I got the call on Nov.6,2015 at 5:20pm.

mom45
mom45 Member Posts: 7
edited December 2015 in Just Diagnosed

Today I received the call that I have beginning stage breast cancer. I am feeling totally lost and confused. I don't really remember what she said. I only know I have an appointment with my specialist on Nov.11.



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Comments

  • ceanna
    ceanna Member Posts: 5,270
    edited November 2015

    That's a tough call to get late on a Friday afternoon. I'm sorry for your need to be here, but glad you found this great place to be at this time of need. The hardest part is the initial fear, confusion, and the unknown. I'm glad you have an appointment already next week where you will learn more about your particular situation and begin to put a plan in place. Your thoughts are probably racing in all directions right now but please try not to worry too much before you get the details. Most everyone here has gone through this early period of uncertainties and had to wait to learn more also, and we survived!! Try to keep yourself busy for the next few days before your appointment, and might I suggest you not tell too many people yet since they will probably ask lots of questions you don't have answers for yet. Work with your specialist next week to learn your options, and get a treatment plan in place and/or get a second opinion. Perhaps start a list of questions you want answered before your app't next week. There is time and nothing has to be done tomorrow. Please don't visit Dr. Google until you have more details next week, but do explore these discussion boards dealing with just being diagnosed. You'll find lots of support.

  • mom45
    mom45 Member Posts: 7
    edited November 2015

    Thank you! Those are exactly the feelings I'm having. Confusion,fear, not knowing what's going to happen now. It's a lot of unknowns going around in my head.

  • PKWGA
    PKWGA Member Posts: 19
    edited November 2015
    I'm sorry you got that call, but you have come to the right place. The ladies on these forums offer so much support and information.
    I know it's hard not to panic, but try to stay as calm as possible until you go to your appointment and get a plan in place. I was amazed at how much it helped just knowing what the next step was. Make a list of questions to take to your appointment, because it's hard to remember everything when your mind is scattered in all directions. Take a family member or a friend to the appointment with you, because it's hard to absorb everything the doctors say. Try to stay positive, you CAN beat this!
  • mom45
    mom45 Member Posts: 7
    edited November 2015

    Thank you! I'm so shocked, I can't shut my brain off tonight. I need sleep but it's not happening!

  • Moderators
    Moderators Member Posts: 25,912
    edited November 2015

    Mom45-

    We want to welcome you to our community here at BCO. We are so sorry for the circumstances that have brought you here, but we're glad you've joined us. You are not alone, and you've come to the right place for support as you begin down this road.

    The first days and weeks after you're diagnosed are scary and confusing. We've put together some links to help you process everything, you can find those here.

    Please let us know if we can help in any way!

    The Mods

  • ceanna
    ceanna Member Posts: 5,270
    edited November 2015

    Take comfort in the detail you provided that you have "beginning stage" BC. Putting a plan in place with your specialist will help focus on the problem, but how to sleep in the next few days before your appointment??!! Try to think about the positives--early stage, appointment set up, high quality professionals are waiting to help you, people here who have been where you are tonight and are now doing well, family and friends who may support you, and if you are a believer, think about "Be still and know that I am God." Nothing is going to change or get worse before next Wednesday and, trust me, once a plan is in place, you'll feel less anxious and have less fear of the unknown. Sleep well.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited November 2015

    Mom45, I was in your shoes on Sep. 9. I was lost in a haze of fear and confusion. Walking home from the train station after a meeting down in the Loop, I was stopped in my tracks by this message chalked on the sidewalk:

    "Just breathe. It’s going to be OK. Hope is all around.”

    A calm settled over me that lasts to this day and hopefully beyond. I am 1/3 of the way through post-lumpectomy radiation, and I still draw inspiration from that. I am sending it your way, and hope it works for you too!

  • Racy
    Racy Member Posts: 2,651
    edited November 2015

    You may want to get a copy of your biopsy report, even before the appointment. There is information here to help you interpret it and the ladies here can also give you expkanations in laywomen's language.

    Keep us posted. We are here for you!

  • Frazoo
    Frazoo Member Posts: 9
    edited November 2015

    Hi...I got the call on Nov. 6th as well...at about 8:30am. My doctor called with the gross pathology results of positive for breast cancer but no staging data or any other detailed information. I just know that I need a mastectomy on the left side...which will match the mastectomy on right side I had 19 years ago. On the up side, I'll never have to wear a bra again.

    I have an consultation appointment with the surgeon on Tuesday, Nov. 17th. I'd much rather have it over and done with sooner....breathe in and out and try to have patience. It ain't easy that's for sure.

  • 123JustMe
    123JustMe Member Posts: 385
    edited June 2016
    I am so sorry Frazoo. I hope your surgery is scheduled quickly and your recovery goes smoothly. Waiting for results is so hard!
  • mom45
    mom45 Member Posts: 7
    edited November 2015

    Thank you everyone for your encouraging words. Less than 48 hours till my 1st appointment with my specialist after diagnosis. It was a very long weekend. I'm still feeling the shock and disbelief. Hopefully after my appointment Wed. ,I will know more and what direction we are going with this! Fear of the unknown has given me a headache. On the bright side I've lost 3 pounds ,due to decreased appetite with nerves. Lol! Thanks again. I am happy I found this site!

  • mcook301
    mcook301 Member Posts: 509
    edited November 2015

    Hugs! Sorry you got this news. I remember the day I found out four years ago! I drove my new car way above the speed limit and was so scared and a lot pissed :) . I promise you one thing - as shity as this news is, you aren't alone here.  Hugs 

  • Jinx27
    Jinx27 Member Posts: 238
    edited November 2015

    Your not alone, trust me! I found out when I went on my lunch break at work. The Dr. was supposed to give me a call back about the biopsy results and I never heard from them. I decided to give them a call and BAM. One thing I know for sure is that this site is full of resources and kind-hearted people. Take it one day at a time.

    You are not alone love!


  • Nanny15
    Nanny15 Member Posts: 27
    edited November 2015

    Mom45 I am so sorry you have to deal with this. I would like to offer one piece of advice if I may. If you have someone you feel comfortable with, someone whom could go with you to take with you to be a second set of ears to help you with all the information it would probably be best. Keep us updated, best of luck.

  • Ashley1221
    Ashley1221 Member Posts: 5
    edited November 2015

    I was also just diagnosed with IDC on November 6. Have my surgery consult tomorrow-- well later today now I guess. Trying to do some research so I can ask good questions and be informed. I feel for you-- this is scary and overwhelming and just plain sucks. Take good care. Best wishes. 

  • Moderators
    Moderators Member Posts: 25,912
    edited November 2015

    Ashley,

    Welcome! We're so sorry to hear about your diagnosis but super happy that you've found this warm and compassionate community.

    Best of luck with your surgery tomorrow, we hope you come back and let us know how you get on.

    Here's a link to our IDC Section you may like to read.

    We're here for you, sending big hugs and healing wishes your way.

    The Moderators.

  • TikkasMom
    TikkasMom Member Posts: 83
    edited November 2015

    Good luck tomorrow Mom45 keep us posted

  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    Hang in there. "Beginning stage" is good. Keep us posted.

  • mom45
    mom45 Member Posts: 7
    edited November 2015

    I had my appointment this afternoon with specialist/surgeon. I'm feeling much calmer. She explained I have Stage 0 DCIS. lumpectomy in a couple weeks. Then after recovery from surgery I'll have4-6 weeks radiation. Happy it was found early. Thank goodness for my yearly mammogram. Thank you everyone for your thoughfulness and help!

  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    That's great news! I am glad you are feeling better.

  • Frazoo
    Frazoo Member Posts: 9
    edited November 2015

    Thanks so much. I don't remember being this emotional the first time...now all I seem to want to do is stay curled up in bed alternately sleeping and crying. I've been a glass half full girl my whole life so this emotional development in me is difficult to understand.

    I have a stellar support group both professional and personal but I'm still depressed...perhaps it's the waiting that is dragging me down. I'm trying my best to keep my 'chin up'.

  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    Frazoo: I am sorry you have to go through this again. It's so not fair. Please use your support group. I think your feelings are perfectly normal.

  • msphil
    msphil Member Posts: 1,536
    edited November 2015

    we are here for u sweetie we will help get u thru this we have been in ur shoes some still goin thru be Inspired i am now a 21 yr Survivor have Hope n hang in there, i did.msphil (idc stage2 0\3 nodes Lmast chemo n rads 5 yrs on tamoxifen(

  • MB12
    MB12 Member Posts: 79
    edited November 2015

    Frazoo - sending hugs and prayers to help lift you up!! Hang in there!!

    Michelle 

  • jenmaryland
    jenmaryland Member Posts: 4
    edited November 2015

    I got my call on a Friday afternoon also...9/11/15. In treatment now. Just breathe. I call it the moment my life became a Lifetime TV movie. See, humor is still possible! The gift is that you appreciate each day all the more...and people will reach out to you to help. You will be ok.

  • Kaz5047
    Kaz5047 Member Posts: 2
    edited November 2015

    Was just diagnosed on 11/6/15 as well. I'm only 25 and will need a bilateral mastectomy with 4 months of chemo. Having a roller coaster of emotions. One minute I'm strong and confident that I will beat this. The next minute I'm in a ball crying that I don't want to do it. Hearing about the hair loss was the worst part. I asked my oncologist about freezing eggs and she had no advice to offer. Luckily my insurance is changing in January when I start chemo so I can get a better oncologist. Seeking advice and support

  • Deba1
    Deba1 Member Posts: 10
    edited November 2015

    I am newly diagnosed as well. Waiting for results and not being certain of the treatment plan is awful! I have been told to expect radiation but chemo is still uncertain...my surgeon said since Grade 3 they still might want to do chemo. UGH...I get nauseous just thinking about it. I have an appointment with the medical oncologist this morning at 9....guess I will know then....

  • Smurfette26
    Smurfette26 Member Posts: 730
    edited November 2015

    Welcome to all the "newbies". So sorry we have had to "meet" here.

    Such a difficult journey and the beginning is so, so hard.

    Sending love and light to all.

    Hugs Donna.

  • Moderators
    Moderators Member Posts: 25,912
    edited November 2015

    Kaz5047 and Deba1, we're hate that you have to be here... but wanted to say welcome!

    We know the beginning is really, really hard, with lots of fear and uncertainty, so we hope you'll find support and encouragement here. Also, you may want to check out the information we have compiled HERE for the newly diagnosed.

    Hope this helps a bit!

    The Mods


  • Trvler
    Trvler Member Posts: 3,159
    edited November 2015

    Kaz: Do you have an Ob you can ask about freezing your eggs?

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