atypical cells found after breast biopsy.

Two types of atypia were found in my excisional. Atypical ductal and atypical lobular. My BS wasn't too concerned about the ADH but said the ALH could be a marker for cancer in both breasts. The next step for me was to meet with a genetic counselor who put a number on my risk. He also discussed options

How were you told that you had atypia?What kind of atypical cells? The kind makes a difference. Have you had an appointment to discuss the biopsy results? I had ALH on core biopsy. They called and told me that & that they were referring me to a surgeon to discuss & schedule an excisional biopsy to follow up the core one. Some kinds, like flat atypical epitheleal cells are not considered as concerning. I saw on your other thread that you were afraid that entailed lymph node surgery. That would not generally be the case with an additional biopsy for nothing but atypia.

I am sorry for everyone that has or will be diagnosed with these horrible breast diseases.

Farmerlucy, if you don't mind me asking you, I too had ALH, and only chose a lumpectomy. I have an appointment with a genetic counsellor on the 18th. Did your appointment with the counsellor provide you information that lead you to having a prophylactic mastectomy? I have many underlying breast issues (very busy), mom had bc @ 70 & sister with a papilloma. I would like some reassurance that I am making the right choice seeing a counsellor, family & friends have voiced their negative opinions. Thank you for your advice and I wish you and everyone here all the best.

Also, has anyone been diagnosed with ALH and then years later been diagnosed with bc? And if so, how soon after your ALH diagnosis? Thank you.

I had already made up my mind that if anything came up in any screening I'd do a PBM. However the GC's assessment of 50% risk sealed the deal and persuaded my BS to do the surgery, though I do think there was some feet dragging on their part in getting me scheduled.

Thank you

In my opinion it can't hurt to go through genetic counseling/testing. I have done this twice . It may turn up nothing as in my case and give you more information about your choices and how to procede.

There is a big intersection between thyroid and breast issues much of this relating to iodine or the lack of it.

You may want to read Dr Daniel Brownsteins book on Iodine. He addresses these issues thoroughly.

Both Farmer Lucy and I had recent genetic testing through Color Genomics. It's all done online at a low cost and we were both comfortable with the process and the experience

I hope it's helpful and I think to you it will be. The book is; Iodine Why You Need It.

I have Hashis and Late onset type 1 Diabetes. Oncologist is stumped by all of this horribleness and doesn't quite know how to recommend continuing care/ follow up in my case. We all have way too much

I'm sorry to hear about your DH . We just put one foot in front of the other .

Hashis and Breast Cancer are connected through the above mentioned iodine connection. I began supplementing with iodine this past June as I tested very deficient for it.

Lots of luck and hope

Liza, You wouldn't have radiation for just atypical cells. Did you also have DCIS in your biopsy report?

I'm glad to find this post. I found out this morning I have atypical lobular hyperplasia and will be scheduled to see a breast specialist, where I guess I'll find out more. I'm 52, my mother had BC at 50 and my sister at 48 (also grandmother and aunt had it) so my doctors have been really great at watching me closely. In the meantime, it's nice to read others' thoughts and advice.

I was relieved to get the phone call this morning saying it wasn't cancer. I'll be glad to be seeing a specialist where they'll look even closer at things.

Thanks for the support everyone.

I just had an excisional biopsy after a month of "you need to come back for another mammogram and US, you need come back for a core biopsy, etc"

The core found weird atypia, but nothing definitive, so did an excisional on the 4th. (my routine mamm was on Dec 16th 2015)

My surgeon just called and said they had to send it out for a second opinion, because the pathologist said it looked like the core, but still really abnormal atypia that they couldn't call it just yet.

I am at my wits end. I don't know if this is just ADH (or ALH) or if its Low Grade DCIS, or even something no one has thought about! Driving me batty.

I am 39 on Saturday. I went in for a routine because of my family history, and this is where I am at. I know they want to be thorough, but it's driving me nuts that I can't seem to get a simple yes or no diagnosis.

Anyone else been through this? I also see a genetic counselor on the 22nd. My life is sorta on hold and I am frustrated.

Thanks

Kpannabecker,

In 1997 at age 47, I had a mammogram that showed an area of calcifications in my right breast. I had an excisional biopsy and it was diagnosed as ALH. The surgeon removed quite a large chunk of tissue that would probably be called a lumpectomy in today's terms. He told me that, in all likelihood, I would have breast cancer at some point during my lifetime and to be vigilant about mammogram screenings. Fast forward 20 years and here I am with ILC in my left breast. In all those years, I never missed a mammogram. Yet from one year to the next, the ILC had grown and spread to my lymph node.

ILC is hard to detect. If you have dense breast tissue I would recommend you push for ultrasounds in addition to mammograms. Catch it early if it does develop. Good luck to you.

Kaya

farmerlucy,

This week I'm doing good. Last week I had a biopsy because two little lumps developed in my mastectomy area. Thankfully, that's all they were - lumps of tissue damaged by all the radiation I had. I'm all done with active treatment and am now on Arimidex. Out of everything - chemo, surgery, radiation - it's the worry about a recurrence that is the hardest to deal with. But I try to stay positive and enjoy today.

Sounds like you've endoured a lot, too. Wish you the best!

Kaya

can i ask please. So many state alh and adh. Is that atypical lobular hyperplasia and is this diagnosed in addition to the lump you have?

Or is alh and adh associated only with a papimolla or fibroadenoma and should it appear on your pathology report

Sorry for the ignorance