Phyllodes Tumor

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stormy5210
stormy5210 Member Posts: 3
edited October 2015 in Less Common Types of Breast Cancer

Hello,

I am 20 years old and two weeks ago, my OBGYN found a breast lump. He told me to make an ultrasound appointment right away. The very next morning, I went in to be told that what I had did not look like a cyst or a fibroadenoma. The radiologist couldn't give me a straight answer. He believed it may not be cancer because it didn't look aggressive, but he wasn't sure. He requested that I had a lumpectomy because it looked like a Phyllodes tumor which cannot be confirmed with a biopsy. I met with a surgeon the next Tuesday and he scheduled my lumpectomy that Friday. In less than three weeks, I have found a lump, received an ultrasound, and a lumpectomy which confirmed a Phyllodes tumor. I will found out my results this Thursday of if the tumor is cancerous or not. The doctors seemed hopeful because of my age, but what worries me was how fast everything moved. I try to talk to my family and friends, but they tell me to be patient. I know Phyllodes tumors are very rare and I have not seen a lot about them online. I am curious about others with similar situations.

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  • Meadow
    Meadow Member Posts: 2,007
    edited October 2015

    Stormy, welcome to the website. I hope you find tons of infomation and support here. I am so sorry you are going thru this...I hate it for young women like yourself especially. I do not know about this type of tumor, but I am bumping your question to the top ofthe active threads so more people can respond. I hope you get benign results, please update us when you can.

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  • Jay_may_
    Jay_may_ Member Posts: 1
    edited October 2015

    I'm 36,I was diagnosed with malignant Phyllodes tumor in left breast 10/7/14 needle core biopsy to determine diagnosis. Oncologist recommended double mastectomy. I had a lumpectomy in November to remove the 10cm neoplasm followed by 25 local radiation sessions..I had no insurance at the time of my diagnosis and went through planned parenthood,had two ultrasounds in one yr prior to diagnosis. They miss diagnosed me with fibroadenoma..less than one percent.. I feel very very lucky. Have any questions feel free to ask. Be strong! You will get through this.

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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2015

    Welcome Jay_may,

    We're so glad to see that you've found this community. It looks like you've been through a lot and can help others who've been through a similar experience.

    If you need help around the boards anytime, feel free to PM us.

    Warmest wishes to you,

    The Moderators.

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