TRIPLE POSITIVE GROUP

Hi,

You are at the right place where you will find many experienced women and efficient advices!

I wellcome you because my DX is similar to your and I'm doing well in my sixth year!

All the best!

Usha ftom Slovenia

Thank you, Jersygirl927

Yes, It seems that some exercise poses will trigger the tremors, it comes and goes.

Hey ladies. More questions. First off, though, my echo came back great (actually went up from 60% baseline LVF to 61-65%), and my labs looked good enough yesterday to get round #4 of TCHP.

One of my liver enzymes is up, though (AST). It's only three points above the high end of the reference range, but it's doubled from my baseline labs back in July. My guess is that this is the taxotere doing its thing, and I've done some research that backs that up, but there doesn't seem to be a clear consensus on whether liver enzymes will resolve themselves once treatment is over. I definitely don't want to kill my body's big filter!

My WBCs and RBCs are still hanging on, too. Lower than they have been, but still in normal ranges--with no Neulasta. I'm hoping this continues.

I figure I'm done with four, so I can do two more. Or not. But I'm sure gonna try, since six is standard treatment for +++.

Thanks in advance, as always, for your advice and info! I'm one of those information-driven research brains, and I find that the more info I have, the better I sleep at night.

Thanks, SpecialK!

814911, just take things a step at a time. Others will post with much more information but I'll just share how it was for me.

I was diagnosed 6 years ago and had a lumpectomy, chemo, herceptin, radiation and have been on a hormonal for over 5 years. Since it was pretty overwhelming, I took it a step at a time. My case was not complicated so I was allowed that. The first thing I did was find a breast surgeon who was terrific. After the pathology report came in, I had a appointment with her to go over what was found in the surgery. All was clear and no node involvement. After surgery I then found an oncologist and radiologist. Both were great. What was really good for me was that I felt each one had plenty of time to spend with me and that was crucial. I needed to know that and needed to know if there were problems with chemo or rads, I didn't have to worry. I would feel comfortable calling the office.

When it came time for chemo, I told the doc I'd rather be dead than do chemo...and I meant it...I saw my mom go thru it in the 60s and 70s..It not like that now. It is much improved and if side effects pop their head up, so much can be done. And believe it or not, after the first couple of chemo's, I loved going and loved my chemo nurses.

Basically, I never thought I could go through this and by gosh, I did! One step at a time. So, if you can, do something nice this weekend, eat well and drink lots of water. And as I said, many will post here with such good information and kindness, you'll know you can do it.

Let us know how surgery goes.

Take care.

Liz

814911, sorry you had to join the club no one wants to be in. I waited 3 weeks from biopsy to surgery. The first time around in 2010 it qas almost 6 weeks. Waiting is the worst. I didn't have lx but after MX waited 4 to 5 weeks to heal before starting chemo. This also gives time for final pathology.

What cowgirl said... One step at a time so go to the surgery board read the October or September board. It should clue you in on what to expect and what questions to as the BS etc. Type in the search what topic you are interested in. Be sure to add to favorite topics. Good luck to you

Nunci, were they discussing patients with early stage or metastatic bc?

nunci - if you look at the Healthline article it references a New England Journal of Medicine article in the section you are referring to - if you go and read that specific article in the NEJM, it does reference metastatic Her2+ breast cancer.

Thanks Special K!! I have read this over and over and haven't realized it was referring to specific stage.  Thanks girl!! I knew yall would have info on this.   

nunci - glad to help!

mmay - yay! Hang in there!

sherry - I took Femara first for six months right after chemo and then developed a trigger thumb on my dominant hand. I was taking the Mylan brand. My MO casually suggested a switch to Arimidex, and the trigger went away. All was fine, some minor joint pain, until a year in - trigger on my wedding ring finger, a toe and my left ankle, and after a minor bump on my right knee (didn't see the trailer hitch!!) it swelled up and I needed a cortisone injection. I asked to switch back to Femara, and ended up with Teva as the manufacturer. I am two years in and no apparent issues. I also started an anti-inflammatory diet, so I think that is part of the success story. If you have issues with the Femara try a different maker before you give up.

Just posting about ooph. I am 35 and my MO was for it all the way. Had it done. I don't regret it, but am a little sad for some reason.

Okay girls...it's not something I'm proud of but I want you guys to know.. I failed Aromatase inhibitors Finished. On a 3 week holiday to make sure it's not something else going on and then onto tamoxifen.

To all you girls in the throes it's a reminder that we all have some difficulties along the way with treatments. I sailed through TCH and Herceptin, surgery and with a bit of a blip on rads...I hit the wall with the hormonals. Hang in there

Ashla, you aren't the only one. Arimidex and Aromasin were bad for me. I started on Femara, and it too was pretty bad, but before starting Tamox, the Onc and I agreed to try a half dose of Femara - so far so good - not great, but I'm hanging in there.

Ashla,

From your signature, it looks like you made it through three years. That's pretty impressive to a newby like me (who has only done about six months). Hope Tamoxifen is gentler on you!

My ooph has made all the difference in the world with tamoxifen. Wish I had the ovaries out two years ago. My arthritis and plantar fasciitis are gone. Mental fog greatly diminished, feel like me for the first time in almost 2 years. Have a feeling MO will keep me on the tamoxifen at this point. Why introduce the possibility of new SEs? Add to that my osteoporosis was stable but in need of monitoring and I am happy to stay where I am.