TRIPLE POSITIVE GROUP

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  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited October 2015

    Colleen, I get trembling while I am doing yoga for no reason in my right leg, not sure if it's the same, because the yoga is not hard, but my right leg will tremble out of control???

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  • slousha
    slousha Member Posts: 312
    edited October 2015

    Hi,

    You are at the right place where you will find many experienced women and efficient advices!

    I wellcome you because my DX is similar to your and I'm doing well in my sixth year!

    All the best!

    Usha ftom Slovenia

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  • Gretagirl
    Gretagirl Member Posts: 182
    edited October 2015

    Hello to all. Welcome to Minneswede and others I may have missed. This is a great thread. I just had TCH round 5 yesterday. I had an echocardiogram Monday and results showed mild issues with dilated left atrium. Have not spoke to MO yet about this. Just some concern on my part because I still have several herceptin infusions to go. Anyone experience this?

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  • colleen1013
    colleen1013 Member Posts: 50
    edited October 2015

    Thank you, Jersygirl927

    Yes, It seems that some exercise poses will trigger the tremors, it comes and goes.

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  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited October 2015

    Greta, my heart ejection factor lowered from 68 to 53 but as I increased my exercise it went back up to 55 and I just finished my 17th and last herceptin / perjeta infusion this week. BTW, my cardiologist said it wouldn't increase but God knew better. Prayers are powerful, said the doctor! Love, Jean

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  • KateB79
    KateB79 Member Posts: 747
    edited October 2015

    Hey ladies. More questions. First off, though, my echo came back great (actually went up from 60% baseline LVF to 61-65%), and my labs looked good enough yesterday to get round #4 of TCHP.

    One of my liver enzymes is up, though (AST). It's only three points above the high end of the reference range, but it's doubled from my baseline labs back in July. My guess is that this is the taxotere doing its thing, and I've done some research that backs that up, but there doesn't seem to be a clear consensus on whether liver enzymes will resolve themselves once treatment is over. I definitely don't want to kill my body's big filter!

    My WBCs and RBCs are still hanging on, too. Lower than they have been, but still in normal ranges--with no Neulasta. I'm hoping this continues.

    I figure I'm done with four, so I can do two more. Or not. But I'm sure gonna try, since six is standard treatment for +++.

    Thanks in advance, as always, for your advice and info! I'm one of those information-driven research brains, and I find that the more info I have, the better I sleep at night.

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2015

    kate - one of the reasons oncs do CMP periodically is to keep tabs on your liver and kidneys since these drugs are filtered by those organs. It is not unusual to see elevated values since there is inflammation, and I don't think you should be worried. Barring elevated values from a different source they should return to normal after chemo is done, but it may be a bit PFC before your labs reflect normalcy - it took mine about 6 months.

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  • KateB79
    KateB79 Member Posts: 747
    edited October 2015

    Thanks, SpecialK!

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  • Gretagirl
    Gretagirl Member Posts: 182
    edited October 2015

    Thank you Jean! An increase in God and in exercise! Got it:)

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  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited October 2015

    814911, just take things a step at a time. Others will post with much more information but I'll just share how it was for me.

    I was diagnosed 6 years ago and had a lumpectomy, chemo, herceptin, radiation and have been on a hormonal for over 5 years. Since it was pretty overwhelming, I took it a step at a time. My case was not complicated so I was allowed that. The first thing I did was find a breast surgeon who was terrific. After the pathology report came in, I had a appointment with her to go over what was found in the surgery. All was clear and no node involvement. After surgery I then found an oncologist and radiologist. Both were great. What was really good for me was that I felt each one had plenty of time to spend with me and that was crucial. I needed to know that and needed to know if there were problems with chemo or rads, I didn't have to worry. I would feel comfortable calling the office.

    When it came time for chemo, I told the doc I'd rather be dead than do chemo...and I meant it...I saw my mom go thru it in the 60s and 70s..It not like that now. It is much improved and if side effects pop their head up, so much can be done. And believe it or not, after the first couple of chemo's, I loved going and loved my chemo nurses.

    Basically, I never thought I could go through this and by gosh, I did! One step at a time. So, if you can, do something nice this weekend, eat well and drink lots of water. And as I said, many will post here with such good information and kindness, you'll know you can do it.

    Let us know how surgery goes.

    Take care.

    Liz



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  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2015

    814911 - I was originally diagnosed at the end of September of 2010, but due to having to wait for BRCA testing because I am adopted and had no access to family history info, then having to coordinate the BS and PS for bi-lateral skin & nipple sparing mastectomy, I did not have surgery until the first week of November - so a wait of 5 weeks after diagnosis. After surgery I was found to have a 2.5cm mass, with positive lymph nodes, but I am here five years later. Try not to worry - spend the weekend preparing, but do something fun too! We will help you through this.

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  • rosesrx
    rosesrx Member Posts: 458
    edited October 2015

    814911, sorry you had to join the club no one wants to be in. I waited 3 weeks from biopsy to surgery. The first time around in 2010 it qas almost 6 weeks. Waiting is the worst. I didn't have lx but after MX waited 4 to 5 weeks to heal before starting chemo. This also gives time for final pathology.

    What cowgirl said... One step at a time so go to the surgery board read the October or September board. It should clue you in on what to expect and what questions to as the BS etc. Type in the search what topic you are interested in. Be sure to add to favorite topics. Good luck to you

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  • Nunci
    Nunci Member Posts: 18
    edited October 2015

    Hi girls! Long time! Glad to read you gals are doing well. So I came across this article from this year.  Can someone explain this to me?? Is it saying only <10% will not have a recurrence? I don't even know why I read these articles.  ;) just wanted your girls insight on it... 

    image

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  • debiann
    debiann Member Posts: 1,200
    edited October 2015

    Nunci, were they discussing patients with early stage or metastatic bc?

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  • Nunci
    Nunci Member Posts: 18
    edited October 2015

    It's an article about Her2+.  Stages were not discussed. 

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2015

    nunci - if you look at the Healthline article it references a New England Journal of Medicine article in the section you are referring to - if you go and read that specific article in the NEJM, it does reference metastatic Her2+ breast cancer.

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  • sherry67
    sherry67 Member Posts: 556
    edited October 2015

    Special K,


    How is Femara as far as side effects. I'm on a two week Holliday from the Arimidex due to bone pain especially my legs...

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  • Nunci
    Nunci Member Posts: 18
    edited October 2015

    Thanks Special K!! I have read this over and over and haven't realized it was referring to specific stage.  Thanks girl!! I knew yall would have info on this.   

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  • MMay
    MMay Member Posts: 27
    edited October 2015

    Well 5 TCH down and 1 to go!! So glad I had this board to lean on going through this! I was so terrified. So far so good and my hair is even growing already. Have a nice little layer. 😊 So looking forward to being done with the big treatments and the herceptin dropping to every three weeks. Happy to hear that so many of you are hanging in as well. ((Hugs)) to you all

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2015

    nunci - glad to help!

    mmay - yay! Hang in there!

    sherry - I took Femara first for six months right after chemo and then developed a trigger thumb on my dominant hand. I was taking the Mylan brand. My MO casually suggested a switch to Arimidex, and the trigger went away. All was fine, some minor joint pain, until a year in - trigger on my wedding ring finger, a toe and my left ankle, and after a minor bump on my right knee (didn't see the trailer hitch!!) it swelled up and I needed a cortisone injection. I asked to switch back to Femara, and ended up with Teva as the manufacturer. I am two years in and no apparent issues. I also started an anti-inflammatory diet, so I think that is part of the success story. If you have issues with the Femara try a different maker before you give up.

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  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited October 2015

    yes, take it one step at a time, and hydrate your body tillyou think you are going to float away. So many people think that it's not important, it is one of the most important, and you will be happier in the long run...

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  • jumbledbamboo
    jumbledbamboo Member Posts: 158
    edited October 2015

    Just posting about ooph. I am 35 and my MO was for it all the way. Had it done. I don't regret it, but am a little sad for some reason.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2015

    Many here have donated . Thank you !........Wandering around and cheerleading again :)


    Donate today, make a difference directly in all our lives. By supporting BCO, we support each other. Thanks and Hugs :)

    image

    https://community.breastcancer.org/forum/110/topic/834331?page=1

    Link to the mainboard donation page

    https://secure3.convio.net/bco/site/Donation2?df_i...

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  • ashla
    ashla Member Posts: 1,581
    edited October 2015

    Okay girls...it's not something I'm proud of but I want you guys to know.. I failed Aromatase inhibitors ;) Finished. On a 3 week holiday to make sure it's not something else going on and then onto tamoxifen.

    To all you girls in the throes it's a reminder that we all have some difficulties along the way with treatments. I sailed through TCH and Herceptin, surgery and with a bit of a blip on rads...I hit the wall with the hormonals. Hang in there :)

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2015

    ashla - you can only do what you can do - hoping for SE free days on Tamoxifen for you.

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  • Trisha-Anne
    Trisha-Anne Member Posts: 2,112
    edited October 2015

    Ashla, you aren't the only one. Arimidex and Aromasin were bad for me. I started on Femara, and it too was pretty bad, but before starting Tamox, the Onc and I agreed to try a half dose of Femara - so far so good - not great, but I'm hanging in there.

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  • ashla
    ashla Member Posts: 1,581
    edited October 2015

    SpeciaK, Trish-Anne

    I'm wondering if maybe there's a dosing problem. One size doesn't fit all. I'm in that Dr Susan Love clinical trial that is investigating just this issue.

    I felt that at this point , it was becoming dangerous. I nearly sliced a finger off while chopping garlic when my hands cramped. The icing on the cake was when I got stopped by a State Trooper while driving home from a night baseball game two hours away. My left leg was so cramped I was massaging it and must have gone over the line ! It was Saturday night . Thought I was drunk :)

    Feel kinda like a kid in school who didn't finish their homework assignment.

    Thankfully my MO is wonderful abou it.

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  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited October 2015

    Ashla,

    From your signature, it looks like you made it through three years. That's pretty impressive to a newby like me (who has only done about six months). Hope Tamoxifen is gentler on you!

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  • ashla
    ashla Member Posts: 1,581
    edited October 2015

    Elaine There,

    I had all the classic symptoms from the start but it was very manageable. For some reason at the 2 1/2 year mark I hit a wall. It's been a struggle for the past year..

    Hope you have a better experience :)

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  • RobinLK
    RobinLK Member Posts: 840
    edited October 2015

    My ooph has made all the difference in the world with tamoxifen. Wish I had the ovaries out two years ago. My arthritis and plantar fasciitis are gone. Mental fog greatly diminished, feel like me for the first time in almost 2 years. Have a feeling MO will keep me on the tamoxifen at this point. Why introduce the possibility of new SEs? Add to that my osteoporosis was stable but in need of monitoring and I am happy to stay where I am.

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