Just Diagnosed

bethdawn
bethdawn Member Posts: 8
edited October 2015 in Just Diagnosed

I go from terror to feeling peaceful and am scared. My oncologist has said regular treatment is AC + T and has said that I qualify for a phase II trial (I am being seen at dana farber in Boston) with a 50% chance of receiving cisplatin or regular treatment taxol / how do I make this decision?

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  • Tam-iam
    Tam-iam Member Posts: 90
    edited October 2015

    Bethdawn, I didn't have to face that decision, so I am afraid I don't have any advice. But I want you to know I am so sorry you are in this position. Whatever you decide, don't look back. You'll be deciding based on the best information in front of you at the time. That's all any of us can do. Take care!

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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2015

    Hi Bethdawn-

    We want to welcome you to our community here at BCO. We're sorry for the circumstance that bring you here, but we're glad you've joined us. You've come to the right place for support.

    Many of our newly diagnosed members find our Important Links if Just Diagnosed thread to be helpful in the beginning. We know it can be so scary in the first days and weeks after diagnosis, just know that you are not alone. We are all here for you!

    The Mods

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  • paracelsus6
    paracelsus6 Member Posts: 1
    edited October 2015

    Hi,

    I have just recently been diagnosed. Through my own research, I have considered the idea of looking into a more holistic approach. I have been trying to look more into the root causes of my disease as nobody in my family history has ever had breast cancer. I came across something the other day about how your mouth can be connected to the rest of your body. For example a root canal on the tooth connected to the breast meridian can be a potential cause of breast cancer? Has anyone else ever heard of this?

    Any information would be greatly appreciated!

    Thanks,

    Addie


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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2015

    Hello paracelsus6,

    You may consider looking for and meeting with a treatment team that does integrative medicine. Depending where you are located, perhaps a university hospital or larger cancer center.

    We hope you can get the treatment that works best for you.

    Warmly,

    The Mods

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  • SwissMiss1
    SwissMiss1 Member Posts: 1
    edited October 2015

    Very interesting. I have come across similar articles of research. I had a root canal a year before my diagnosis, so thank you for sharing as this is something that would be worth exploring.

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  • bethdawn
    bethdawn Member Posts: 8
    edited October 2015

    check out snopes swissmiss pretty sure that it is false

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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2015

    Bethdawn,

    We thought maybe it would be helpful for you to also check out the main Breastcancer.org site's page on What Should I Know Before I Decide to Be Part of a Clinical Trial?

    We hope this helps. Please keep us posted on your decision!

    --The Mods

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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2015

    Dental and all,

    Please keep in mind that one of our community rules states:

    You agree to source all health/medical information when it is not personal experience or general knowledge. Personal experience is any symptom, test, treatment etc. that you or a close family member has undergone herself/himself. All statements about statistics, data, studies and new advancement in medicine should have trustworthy sources, and be referenced in your post.

    Dental, please cite your sources in order to keep your posts from being reported as spam.

    Thank you,

    The Mods

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  • Stimson
    Stimson Member Posts: 1
    edited October 2015

    Dear Bethdawn,

    I'm so sorry to hear about your diagnosis. I, too, have read about the studies that others have referred to on this page. They were very credible and do show that your dental health affects cancer.

    I read the Snopes site and don't agree. I hope you will reach out to the member who wrote about the people who have been helped, and, at least, explore other options for treatment.

    Best wishes,

    Stimson

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited October 2015

    There is absolutely no credible scientific basis for the dental theory. None. None at all.

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  • bethdawn
    bethdawn Member Posts: 8
    edited October 2015

    just blocked another user. It's really sad that I have come here for support with my breast cancer diagnosis and I have to read posts from people who do not know the facts.
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  • Trvler
    Trvler Member Posts: 3,159
    edited October 2015

    Here is my approach to those kinds of studies. What's in it for me? If I don't see a benefit to me and my possible outcomes, I don't do it. I don't take chances with my life to help someone with their study. My MO wanted to put me in some study about the benefits of radiation on 2-4 nodes. My BS said no way. You are getting radiation.

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