TRIPLE POSITIVE GROUP

1…929930932934935…1334

Comments

  • KateB79
    KateB79 Member Posts: 747
    edited September 2015

    I debated about weighing in, here, but I have to:

    Most of what Planned Parenthood does is cancer screening and prevention and birth control. Abortions are a very, very small part of what they're about and, without PP, more women would die of breast cancer every year.

    That is all.

    · Share on FacebookShare on Twitter
  • lago
    lago Member Posts: 17,186
    edited September 2015

    And without planned parenthood there would be more unwanted pregnancies, many leading to abortion!

    · Share on FacebookShare on Twitter
  • wabals
    wabals Member Posts: 242
    edited September 2015

    Planned Parenthood does kill babies and sells their body parts and does it with taxpayer money. It is on tape for all to see if they can stand to watch.

    Their CEO makes $600,000 a year. They make so much money that their income far exceeds their expenses.

    Yes they do some screenings but there are thousands of community health centers that also do screenings and do not do abortions and do not take tax payer money. And they do not do mammograms.

    Their founder was Margaret Sanger, a racist whose mission was to eliminate black babies. Most clinics are in black neighborhoods.

    It is in the history books ladies. Did anyone watch the hearings on CSpan yesterday? People need to be educated as to what this organization is all about.

    · Share on FacebookShare on Twitter
  • ashla
    ashla Member Posts: 1,581
    edited September 2015

    Wabals

    All proven lies....PP has done NOTHING illegal.

    You obviously didn't read the editorial by the New England Journal of Medicine. Education takes work.

    "It is shameful that a radical antichoice group whose goal is the destruction of Planned Parenthood continues to twist the facts to achieve its ends. We thank the women who made the choice to help improve the human condition through their tissue donation; we applaud the people who make this work possible and those who use these materials to advance human health. We are outraged by those who debase these women, this work, and Planned Parenthood by distorting the facts for political ends." NEJM

    And yes I watched the hearings. It was a perfect representation of the disrespect that those who attack PP have toward women.

    · Share on FacebookShare on Twitter
  • edwsmom
    edwsmom Member Posts: 346
    edited September 2015

    I always find it funny when people balk at the salary of a non-profit CEO. What do you think they should be making - they are a freaking CEO! That requires education and a great deal of experience which SHOULD be paid well.

    The CEO of National 4-H makes the same amount of money as you quoted for PP.

    The CEO of the Los Angeles Philharmonic makes more than a million per year.

    The CEO of the Alzheimers Association makes $2 million per year.

    The CEO of Goodwill makes $3 million per year.

    $600k salary for a CEO is NOT a lot of money.

    I'm staying out of the rest of the argument - it's all just so silly. One side is never going to convince the other and vice versa - so why not just drop it so we can have a nice thread here again?

    · Share on FacebookShare on Twitter
  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited September 2015

    Yes, let's stick to the purpose of the thread -- to discuss triple positive breast cancer. edwsmom has it right; neither side is going to convince the other at this point. We should just agree to disagree.

    · Share on FacebookShare on Twitter
  • ashla
    ashla Member Posts: 1,581
    edited September 2015

    edwsmom

    I actually believe this much more than silly It goes to the very heart of what brings us here. Women's Healthcare. Cancer. Survival. Scientific research.

    :)

    · Share on FacebookShare on Twitter
  • wabals
    wabals Member Posts: 242
    edited September 2015

    I find it ironic that those who fight for survival for themselves would deny it to the most innocent of us- the unborn. Every one of you had the chance to be born. Why do you deny that right to others?

    That is all I will say on the matter. The facts speak for themselves. Late term abortion is illegal. Selling body parts is illegal.

    · Share on FacebookShare on Twitter
  • edwsmom
    edwsmom Member Posts: 346
    edited September 2015

    Ashla, if you think you're going to make a dent in those on the other side, God bless you. I just don't think you can.

    Let's take this to another thread please.

    · Share on FacebookShare on Twitter
  • AmyBeader
    AmyBeader Member Posts: 90
    edited September 2015

    So not to change the subject, but..... :)

    I had my LX with SNB on the 18th, and the good news was that the margins were clean, the tumor was <1cm, and the nodes were negative-Yay! I am waiting for oncology referrals, but the surgeon said that because the tumor was so small I might be able to escape chemo. However, she said that I cannot have Herceptin alone, and that I definitely need to have the conversation with the MO and ask questions. I have gotten the impression that Herceptin is the wonder drug for HER2 positives, so wouldn't I want to do it? Why can't they give it alone?

    · Share on FacebookShare on Twitter
  • SpecialK
    SpecialK Member Posts: 16,486
    edited September 2015

    amy - Herceptin is thought to work synergistically with chemo, so it is given together, based on drug trial data. Systemic treatment with chemo and Herceptin is usually only given to those with a mass of 5mm or larger, although some with small but multi-focal Her2+ disease also receive it. Giving Herceptin with weekly Taxol only, which is thought to be milder, seems to be the choice for tumors under 1cm. Here is some info:

    http://www.breastcancer.org/research-news/20140207...

    http://www.nejm.org/doi/full/10.1056/NEJMoa1406281

    http://www.ascopost.com/issues/january-15,-2014/her2-positive-breast-cancer-patients-with-small-tumors-benefit-from-low-toxicity-regimen.aspx

    · Share on FacebookShare on Twitter
  • edwsmom
    edwsmom Member Posts: 346
    edited September 2015

    Question - for those of you who had TCHP, how did you find your first cycle to compare to the subsequent cycles? Did you feel the same the week after each? Did you feel worse...better?

    I'm gearing up for cycle #2. During the first cycle (done on a Thursday) I was pretty much down for the count from the following Sunday through Wednesday. Then started to feel better. I went back to work on the Friday (I worked from home on the other days).

    I guess I'm wondering if I should expect a similar experience going forward or a more manageable one?

    Also - was there a cumulative effect as you went through the treatments that made it harder?

    Thanks for sharing your experiences...

    · Share on FacebookShare on Twitter
  • SpecialK
    SpecialK Member Posts: 16,486
    edited September 2015

    edwsmom - I did not have Perjeta, but I found that for me infusion #1 was hard, the big D, nausea/vomiting (took me a beat to determine that Zofran was ineffective for me, lol!), a killer headache (probably from the Zofran that didn't work), and ear ringing. Infusions #2 and #3 were not bad - better control of nausea with different drugs, no headache, but still had Big D, #4 and #5 were a bit tougher - mainly due to reduced hemoglobin and fatigue, but #6 was decent, just fatigued but no Big D. I generally was close to home for the first week following infusion mainly due to the Big D, but after that I was out and about, and I also had Thursday infusions. A number of people on this thread and the TCH thread, followed a similar pattern - first infusion was a bit of an assault and often with a headache that did not happen on subsequent infusions, the ones that followed were better, but cumulatively more fatigue toward the last infusions. Perjeta may cause more GI distress, but I don't know whether that is consistent from the first infusion, or worsens as you go along. If you didn't have it the first time, you might not experience that particular issue.

    · Share on FacebookShare on Twitter
  • ashla
    ashla Member Posts: 1,581
    edited September 2015

    edwsmom

    Like Special K ,I had TCH. Infusions on Monday and was on a steroid high till Thursday .(Great time to do the closets and heavy cleaning). Then ...until after I found this forum..I faced the BIG C for 3 days .I was generally just Dazed and confused till Sunday and then it was upswing mostly till the next go round.

    All in all..the first week was the toughest but all doable. And for me...it did not seem to be cumulative in its difficulty. My last two treatments were actually the best. Probably because I was prepared.

    Good luck!

    · Share on FacebookShare on Twitter
  • edwsmom
    edwsmom Member Posts: 346
    edited September 2015

    Hi Special K,

    I sure did have the Big D. ugh. yes.

    I ended up taking myself to the ER for dehydration because no matter how much I drank I just could not keep up with hydration due to the D. :(

    Beyond that I had about 1-2 days of light bone pain, manageable with tylenol. And mainly fatigue all the way through the first week post chemo. This past weekend and week I've felt pretty much back to normal (still a little D though, but manageable).

    · Share on FacebookShare on Twitter
  • edwsmom
    edwsmom Member Posts: 346
    edited September 2015

    Thanks Ashla!

    I sure hope to have the same experience! Chemo #2 is next Thursday. Fingers crossed! :)

    · Share on FacebookShare on Twitter
  • ashla
    ashla Member Posts: 1,581
    edited September 2015

    Special K!

    Congratulations on your miletone! Five years...so.wonderful:)

    · Share on FacebookShare on Twitter
  • SpecialK
    SpecialK Member Posts: 16,486
    edited September 2015

    ashla - thanks!

    edwsmom - are you getting Neulasta? If so, you might want to have them hang a bag or two of fluids when you get the injection so you can stay ahead of the dehydration. I would also ask for prescription help with the Big D - you are likely to continue to have it all the way through if you had it this time - Immodium is usually not enough so ask for some Lomotil.

    · Share on FacebookShare on Twitter
  • KateB79
    KateB79 Member Posts: 747
    edited September 2015

    edwsmom, I agree with what everyone has said here. Granted, I'm only through 3/6 rounds, but I've found the last one to be much more tolerable, overall, than the first. The fatigue is worse, but everything else has improved (including the digestive distress, which for me has been a terrible combination of D and C).

    I should add that I'm only on a half-dose of Decadron, due to the SEs it caused me. I do wonder if that made the fatigue more noticeable this time around, but I'll take it over the alternative.

    · Share on FacebookShare on Twitter
  • AmyBeader
    AmyBeader Member Posts: 90
    edited September 2015

    thank you so much SpecialK! I looks like that might be a good path for me.


    · Share on FacebookShare on Twitter
  • edwsmom
    edwsmom Member Posts: 346
    edited September 2015

    thank you. I did have to get lomotil. I love the idea of getting the extra fluid when I go back for my neulasta shot on Saturdays. Great tip!

    · Share on FacebookShare on Twitter
  • rosesrx
    rosesrx Member Posts: 458
    edited October 2015

    My worst days were 4-7 and I scheduled off work due to fatigue and pain from Neulasta. Like others flying high from steroids and if I was scheduled to work weekends after my infusion on Wednesday I would extend my taper by a day or two. C was my issue caused by the Zofran so I took colace and magnesium citrate starting the day prior thru day 3. (chemo day is day zero)

    · Share on FacebookShare on Twitter
  • SusanHG123
    SusanHG123 Member Posts: 414
    edited October 2015

    Have to jump in regarding the Planned Parenthood discussions. Federal funds do NOT go to funding abortions. Do NOT. The word "abortion" is the medical term used for a pregnancy loss regardless of the cause-personal choice for termination, "miscarriage", medical reasons.

    As a nurse who has worked women's health I not just wanted but needed a source for medically provided abortions. I am old enough to remember coat hangers, soda bottles, caustic agents.

    Please ladies, remember why we are part of this group. We have all experienced loss and made decisions based on what was best for us under very adverse conditions.

    Thank you.

    · Share on FacebookShare on Twitter
  • debiann
    debiann Member Posts: 1,200
    edited October 2015

    Yes, the term abortion is used for a miscarriage too. I learned that when I miscarried with my first pregnancy. I also learned that some people in the medical field should be more sensitive and know what they are taking about before opening their mouths.

    It started with an ultrasound where the female Asian doctor announced, "oh, baby dead." Yep, just blurt it right out like that.

    I needed a D&C. The woman at the hospital registration desk saw the word abortion on my file and snarled, "Why don't you want this baby." I broke out in tears crying "because they told me its dead."

    I guess we all have our own  list of stupid or hurtful things people have said to us. Those two have topped my list for the last 31 years.


    · Share on FacebookShare on Twitter
  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited October 2015

    Please ladies stick to the topic...we are dealing with enough here. Abortion discussions are very traumatic for some of us. Praying for peace. Love, Jean

    · Share on FacebookShare on Twitter
  • SusanHG123
    SusanHG123 Member Posts: 414
    edited October 2015

    This weeks issue of Time magazine arrived today. Interesting article-the cover actually-about breast cancer.

    I want our group back. I don't post as often but I read every few days. I miss you guys.

    · Share on FacebookShare on Twitter
  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited October 2015

    I'll have to look for that article, SusanHG123. By the way, I visited with my OB-GYN last week and asked about an ooph. He wasn't that enthusiastic about giving me an ooph. He said that women who kept their ovaries tended to live longer than women who didn't. I made some mild complaints about the inconvenience of getting monthly Zoladex shots in order to take an AI. He said that on average, women go through menopause at age 51. Since I'm 48, he suggested taking the Zoladex until 50 and then get tested to see whether or not I was menopausal. If so, I could just discontinue the Zoladex. OK. Well, OB-GYN is getting ready to retire. He said, "I've got bad news and good news for you. The bad news is that I'm retiring at the end of this year. The good news is that I've got a cute, young partner who you will be assigned to." OK. I'll ask the "cute, young partner" about an ooph next year. Getting Zoladex isn't THAT inconvenient.

    · Share on FacebookShare on Twitter
  • SusanHG123
    SusanHG123 Member Posts: 414
    edited October 2015

    ElaineTherese.

    Ha! I would strongly recommend continuing at least until you meet "cute young partner"! I am older than dirt and I want to plan a trip with ladies on this thread to someplace with hot and cold running maid service AND cabana boys. Old. Not dead.

    · Share on FacebookShare on Twitter
  • ang7894
    ang7894 Member Posts: 540
    edited October 2015

    yes nice to see the group talking again ! I don't post often but read all the time.

    Winking love this group...


    · Share on FacebookShare on Twitter
  • Musosgirl
    Musosgirl Member Posts: 387
    edited October 2015
    I haven't talked with my OBGYN yet, but my BS is not keen on me removing my uterus and/or ovaries. I am a long ways out from menopause though, and she says to focus on the cancer I have and not to worry about a cancer I may get. She is not willing to do two surgeries in one when I have my lumpectomy so I guess there is no rush in deciding or even talking to my OBGYN. Then again he is getting up there in age and he hasn't mentioned a "cute young partner" taking good care of me.

    Is Tamoxifen the only option for pre-menopausal? Other than a hysterectomy? Talked with my PP today about needing to switch off Paxil in the next year--this is tricky territory in my case. Really need to explore all my options--granted, switching a med is a lot less invasive than surgery, but I will do anything to protect my mental health.
    · Share on FacebookShare on Twitter

Categories