April 2015 Chemo Crew... Starting in April? Please join us!

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  • bluedog
    bluedog Member Posts: 212
    edited September 2015

    Thanks, all, for the congrats.

    Addie, I think you look great!

  • Stephmoen
    Stephmoen Member Posts: 563
    edited September 2015

    so had my appointment pathology results arrrre not final uggggh but it's a good thing I heard the girl talking outside my door they can't find anything they haven't found any tumor nothing at all having them sent out and sliced through more thoroughly she did say my lymphs were good I asked any dead cancer cells she said she only knows they were clear and free of cancer..I can't wait anymore

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited September 2015

    That's good news Steph. Glad you were eavesdropping

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    Yay Steph!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    Addie, you look fine! . There is nothing that zumba can't cure!! You are so lucky you have good bones in your face- I looked like a blob even when I had little eyebrows.

    You guys, radiation isn't that bad. We like to bitch about it, but it really is way better than chemo. If its warranted, do it- don't be scared.

  • Addie29
    Addie29 Member Posts: 307
    edited September 2015

    oh Jen I'm Sure you look fine as well.


    Just curious with my ladies that have neuropathy- any of you have itching? I've been having it off and on for a few days now. It isn't severe and doesn't wake me up at night but it's just annoying. It just worried me because when I met with my PCP she asked "are yu having or had any whole body itching?" And at the time I didn't so I answered no- and her response was "good" that what worries me. It could be something serious. All I know is that with cholestasis I would have dark urine- and clay colored stool- among other things that I don't have also with lymphoma I would have other symptoms. Maybe I should call my Mo to have some blood work done but I'm scared of knowing if it's something serious. Ugh. Come on life cut me some slack

  • ksusan
    ksusan Member Posts: 4,505
    edited September 2015

    Jen, you haven't looked like a blob at any point in this process.

  • Addie29
    Addie29 Member Posts: 307
    edited September 2015

    I agree with Susan.

  • KBeee
    KBeee Member Posts: 5,109
    edited September 2015

    Addie, I have a friend with liver issues and he has whole body itching to the point of nearly scratching his skin raw. Not sure if that helps as far as figuring out symptoms. A phone call never hurts though.

    And then there were 7. 7 rads left. Finally got a prescription for Silvidene

  • Addie29
    Addie29 Member Posts: 307
    edited September 2015

    kbeee this is nothing like that. .i really think its neuropathy because currently my cheek and legs feel like they are buzzing. I spoke to my mom (who's a nurse) and she seems to think that it sounds more like neuropathy also. I will see if it improves through the week. If not I will call Monday to get an appointment.

  • AndreaC
    AndreaC Member Posts: 220
    edited September 2015

    Hi all!

    I have just finished catching up after a few days...

    Ksusan, love the coconut bra and grass skirt! Soooo chic! 😃

    Dizz, my last chemo was definitely the worst. I had SE's for almost three weeks when I was used to having them for only a week. And I only had four cycles (TC). Glad I did not have to go through any more! You will feel better soon, I promise!

    Re rads and burning - I am quite sore, red and blistered. Apparently the more fair your skin is, the worse you will burn. And my skin is very fair. Stupid Anglo-Saxon genetics. I have flamazine burn cream which helps, plus I am using Aveeno and I take ibuprofen for pain. I had been using Aquaphor at night but my cancer clinic doesn't like it. I was almost out of it anyway.

    I am in Ottawa right now visiting my son - it is so great! He bought himself a house a year and a half ago and this is the first time I've seen it. It's beautiful! So nice to see him doing so well.

    While I have been here my family doctor called...she has to take me off my antidepressant (Paxil) because of a severe reaction between it and Tamoxifen. She is going to switch me to another antidepressant but I'm worried because I have been on Paxil for years and it does a great job...I don't know how it will be on something else. Oh well, we'll have to see.

    Andrea


  • KBeee
    KBeee Member Posts: 5,109
    edited September 2015

    Andrea, I hope your burns heal quickly sndvthstbthd pain eases. I think Effexor is all you can take with Tamoxifen. It does not play nicely with a lot of drugs,

    Addie, It does sound more like neuropathy... Hoping it eases soon!

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    I had itching with neuropathy- actually the tops of my feet itched like crazy, if that helps. It quit soon after chemo ended- maybe a few weeks? I was using hydrocortizone cream...

  • greenae
    greenae Member Posts: 540
    edited September 2015

    Addie

    I had crazy otching and burning of my feet and hands that started 3 weeks After my last infusion. Also, numbness of the bottoms of my feet and all toes. It lasted 2-3 weeks. The numbess 3 months later is now almost Gone--yay! I hope the same happens for you! The cumulative effects of the chemo didn't really catch me til my last dose...and I am so thankful they are almost just a memory. Good Luck!

    Arlene

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    Ok, How's this in the ongoing cancer social experiment- You know people aren't worried about you anymore when they start telling you you look like crap, rather than the hated "you look great!". Guess in society, I am now considered healthy LOL.

    Also, I've noticed men over 50 are 20 times more flirtatious with me now. Why? Are they trying to boost my already giant ego? So odd......

  • Addie29
    Addie29 Member Posts: 307
    edited September 2015

    well that makes me feel better. Today is 4 weeks post last chemo- it's so weird how we think we're done with this chemo crap and the side effects still decide to sneak up on us. It isn't like severe itching just enough to notice- and at times it just feels like the bottoms of my feet are buzzing. Any weird symptom I have I automatically think of another cancer- I'm sure we all do. I've been googling cholestasis and lymphoma- I was convinced I had it- but like I said I have no other symptoms- just feels like I've walked through a spider web. And Jen flirt away- wish I got flirted with but I never go out. I'm home all day everyday.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    hahaha, I don't flirt back- its just an odd thing I've noticed. I'll flirt with you Addie! I wish I didn't have to go out- That's the worst, having to deal with people all through this, when I just want to hide. Guess we have all been added back into the rolls of the living, with all the social weirdness that entails..

  • Addie29
    Addie29 Member Posts: 307
    edited September 2015

    ugh some days I wish I was around adults instead of my 2 1/2 year old all day- I love my little peanut but this momma needs some adult interaction.

  • Addie29
    Addie29 Member Posts: 307
    edited September 2015

    and speaking of social weirdness- I don't even put on my eyebrows to go out anymore. I'm at the point now where I just don't car

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    When did you finish chemo again? I bet you have eyebrows here in a week or so..

    And as you have probably noticed, I am 100% the wrong person to interact with if you are looking for adult interaction LOL

  • Addie29
    Addie29 Member Posts: 307
    edited September 2015

    hahaha when i say adult I don't mean personality wise- I'm 29 and act like a child- but I was referring to someone to have a decent conversation with- not someone who responds to everything with "why?" Or "no" and I had my last treatment exactly 4 weeks ago today

  • ThePrincess
    ThePrincess Member Posts: 424
    edited September 2015

    Littleblue - Addie and I are both 4 weeks PFC - i hope they come in soon!! I'm so tired of not having them!!!!!

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited September 2015

    Addie..here is the analogy I have for my neuropathy. When it first starts, its like the hot/burning feeling you get after walking too far on vacation. Pretty soon, it feels like I've got a colony of ants living in my shoes and they are eating my feet. ('Pins and Needles') A day or so later, it turns into a dull burning pain / numbness. Eventually, that gives way to a deep ache. Usually this last stage sticks around until time to get the next round of chemo and then it all starts over. Since there isn't a next round this time, I am looking forward to seeing when this feeling might permanently hit the road.

  • Addie29
    Addie29 Member Posts: 307
    edited September 2015

    oh Dizz that sounds awful. I hope once your done with chemo the decides to stay away. The neuropathy is just annoying. Mine was never that bad but I've always gotten it in my face- my doc said that's not common.

    I'm sick of drawing in my brows. I want my real ones already!!!

  • GingerChi
    GingerChi Member Posts: 252
    edited September 2015

    I don't have itching. Mine starts with tingling, in the fingertips (and toes) then will progress to feeling like my fingers and down onto my hands have been smashed....a little painful and a little numb. Picking up anything with texture such as a rough towel, or popcorn is painful to the fingertips. My feet are affected too, but aren't as bothersome as the hands....I get numb under the ball of my foot and the toes. I also have some dull burning here and there...and my balance is a little off occasionally. Mine is usually worse days 5 and 6. Day 7 is better, but thats also the day I start taking steroids for the next treatment.

  • GingerChi
    GingerChi Member Posts: 252
    edited September 2015

    Oh on cholesterol...My overall cholesterol is good, Triglycerides are high and VLDL is slightly elevated. PCP didn't mention this at my appt, so not sure what that means.

  • Rpayton
    Rpayton Member Posts: 235
    edited September 2015

    GingerChi and Addie sounds like neuropathy but definitely bring up with the doc.I have the same numb, weird feeling bottom of my feet too. My MO promised it would go away but will take time. MO suggested I start taking Vit B6 2x day to help. Have been but not really any change.

    Andrea I'm in the same shape with redness, sore breast. My last rad was Monday. It is going to get pretty nasty over the next few weeks. Under my arm just raw as that is where i had the boosts against the chest wall. And I have to do the same and start Tamoxifen at the end of the month. I've been on a low dose of Zoloft for ten years for perimenopause symptoms. It has worked great and I'm nervous about changing to Effexor too. On top of all the scary interactions and blood clot risk with Tamoxifen too. I was really hoping I wouldn't need the Tamoxifen but my MO strongly wants and says it works to prevent. The body assault just never ends. Let's look on the bright side and hope the Effexor makes us feel super great!!!!

    Radiation has made me super sleepy. Trying to get some exercise and push thru.

  • GingerChi
    GingerChi Member Posts: 252
    edited September 2015

    My MO and I discuss it every visit....she offers to give me a break if I want it. She gave me 2 weeks off a while back and it got better during those weeks. I had treatment today and only have ONE MORE TO GO, so I don't want a break now! I've also been taking B6..... but have since the start, so its hard to tell how much its helped.

    Steph, great news!!!!! And good evedropping! :D

  • ksusan
    ksusan Member Posts: 4,505
    edited September 2015

    When I got up to use the bathroom last night, I had a wave of deep nausea, followed by my vision spinning in a way I haven't experienced before. No idea what caused it.

  • Rpayton
    Rpayton Member Posts: 235
    edited September 2015

    Oh wow, Susan, that sounds pretty awful. Let's hope just a weird viral thing and it has passed. Anything further and I would head immediately to an ER. Those symptoms can be many things and need to be checked out. Waiting never good as so much can be reversed if care given quickly.

    Steph that is good detective, eavesdropping and super great news! LOL

    Anybody else on Tamoxifen now? My hubby just came home telling me about a buddy of his whose wife was on it and she became a crazy person. Hot flashes and mood swings. OMG having a bit of a panic and trying to keep perspective that we all can react differently. But still....would love to hear if any of you are experiencing issues or side effects.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited September 2015

    yes.

    Hot flashes= wake up 10 times a night= sleep deprivation= mood swings= crazy person.

    Been on it 2 months now. Not a fan. But afraid not to take it

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