April 2015 Chemo Crew... Starting in April? Please join us!

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  • GingerChi
    GingerChi Member Posts: 252
    edited September 2015

    Jackbirdie: Not sure on the insurance issue, but thanks for bringing that up, I definitely will have to check on it. The BS said that her patients tell her how painful the dog ears are! She also said to remove them is typically not an extensive surgery because its removal of skin and fat only, but it can extend to the back which would make for a large scar. Please keep me posted on what your PS says..I'm not sure when I'll be seeing one. I still have a month to go on Taxol and rads are still up in the air...so it may be after the first of the year before I'm ready to explore that.

  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited September 2015

    you women are just the real deal!!! Not only are you so beautiful, you are also so brave!! I am just googoogaga over ya'll. congrats Dizzpark.

    LITTLEBLUE...thinking of you

    Kbee...you keep us in line and really reassure based on your experience

    Scarlett - thanks

    Gingerchi....fall leaves are coming, they are coming, peaking through. We will be expecting you one of these years for fall foliage

  • gkodad
    gkodad Member Posts: 188
    edited September 2015

    Yes, that's a sandhill crane, but a pretty young one, so willing to walk right into the facility - the doors open automatically. I figured once in he would panic and get hurt, so fortunately he went the other way when "shooed".

    For those looking at reconstruction, see if you can find a good female PS who deals with breast reconstruction. My experience thus far is that my female PS has a much better understanding of all the issues involved in reconstruction and a great understanding of the female side of things. I'm not planning on reconstruction and she totally gets it....even said she might not either given her age, but we both agree the flappy little dog ears are definitely strange. However, I definitely don't want any more surgery right now. The first [male] PS was overcome with horror that I would pass on reconstruction.

  • GingerChi
    GingerChi Member Posts: 252
    edited September 2015

    gko I'm like you on no surgery for awhile. The BS said when I come back in 6 months maybe I'll be ready to talk about it then...but suggested that I probably want some normal for awhile before more surgery. . Thats an understatement!!

    Positive: Glad fall is coming there, enjoy it and the beautiful scenery!! We had a teaser over the weekend with temps in the 70's, but its going to be back up close to 90 in a few days!!! Poo!!

  • Addie29
    Addie29 Member Posts: 307
    edited September 2015

    well ladies tomorrow I go for my recon surgery and my port removal. Just waiting on a time to be there. I can't wait to get these expanders out. The port doesn't bother me so much. I've had no issues with that and don't even notice I have it.

  • Stephmoen
    Stephmoen Member Posts: 563
    edited September 2015

    congrats Addie wonderful news to be almost done with this crap I go for surgery Monday uggh I'm nervous

  • mamajencoz
    mamajencoz Member Posts: 52
    edited September 2015

    3D mammogram completed. No lumps.. today will be a good day. Littleblue... your turn for good news!

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    Congrats everybody! Addie, welcome back to the land of the fully human LOL. Counting down the hours until I can get my ultrasound done. Hope I have spaced the ativan out enough that I can drive!

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited September 2015

    Thanks for all the congratulations everyone. I would never have made it without each and everyone of you. Whether you knew it or not, you were there for me in the middle of the night when I couldn't sleep and anxiety would peek. I knew I could grab my phone and read the words of women just like me....just as scared as me....and trying to be brave just like me. You've encouraged me and answered those questions that just need answered. AND most importantly, no one here has ever made me feel like a lunatic for flying 3000 miles round trip every 3 weeks fir treatment. So once again THANK YOU for EVERYTHING you are, everything you've done for each other, and Everything I am sure you will continue to do.

    Steph and Addie....I know your surgeries will go well this week and I wish you both the easiest, pain free recoveries possible.

    Gingerchi, those taxols will be over before you know it. So close. I know you wish you were closer. I hope these last few are easy on you. How's the P.N.?

    I know there are a couple of others still finishing up with chemo. good luck to you as well. Just know that it will feel so good to get that last one and know that it used to be so far away.

    Those of you undergoing radiation, um...have fun with the schmaltzing the emu oil? I've has such dry flakey skin during chemo my naturopath has recommended replacing moisturizer with coconut oil....the kind you cook with. Does he not remember my skin cancer issues? I guess it will work if I have no plans in the sun. ???

    We are at the airport on the way home...I am already feeling it in my mouth and throat, so by tonight I'll be pretty miserable. See you all in a few days when I come out of my chemo fog. 💓




  • lovlilynne
    lovlilynne Member Posts: 405
    edited September 2015

    Hi sabes, I have not posted in a long time - I read every day, but I have not had the time to post a decent reply to all of you. BUT, I wanted to get on and congratulate all the April ladies on the last chemo!!!! Heather being the latest, but I missed congratulating Addy, Tina,Gingee, Melissa, and I'm probably missing other, sorry about that!

    I just want to say that as great as it feels to have that last one done, it just gets better after that. Not at first, some of you have already had the worst 2 weeks in all of this, but it does turn around. But, more than the physical stuff, it's the mental realization (at least it has been for me) that you don't have to do that again - it feel very good. I hope you all have that.

    It's a huge milestone, and even if you have rads to go on to, this big part is done, and you will feel better day by day!

    Thinking of you all,

    Lynne

  • GingerChi
    GingerChi Member Posts: 252
    edited September 2015

    YAY for a clear mammo, mamajen! Congrats!!!

    All the best to you tomorrow Addie!!! Will be praying for you. Let us know how you are when you feel up to it!

    Lynne, glad you checked in, I'd been wondering how things are going with you?? Update us when you can!!

    Littleblue, waiting to hear from you....you're in my prayers as well!

    Taxol #9, DONE! 3 more to go!

  • AndreaC
    AndreaC Member Posts: 220
    edited September 2015

    Hi all!

    Congrats Dizz!!! 😀👍🎉🎊✨

    That's great that your mammo was clear, mamajen!

    Good luck with your surgery Addie! Let us know how things are going.

    Littleblue, I hope your ultrasound went okay and I am sure it will show nothing to be concerned about. I freak out at every lump and bump, seeing as my body seems to like making tumours...so I know where you're coming from! Ativan is wonderful, isn't it...

    I had my 20th (of 28) radiation treatment today. The end is in sight! My skin is pink and I have a bit of a rash but it's not itchy and there are no blisters. My underarm is red though, and sore. I was told by the rad tech to do saline soaks...which I will, once I find a 1-litre container I can clean out and use. All in all, I'm doing pretty well.

    Ginger, you're almost there! How exciting!! What is next for you once the Taxol is finished?

    Andrea


  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    The Radiologist and the MO said they are 98% sure its scar tissue, but if I want peace of mind they will get me in wth my BS tomorrow. Same rodeo as initial Dx. I can't even see the top of the rabitt hole right now.

  • GingerChi
    GingerChi Member Posts: 252
    edited September 2015

    Glad for the positive news so far little blue!!!

    Dizz, hope your flight home is smooth and you feel better soon! My neuropathy is so/so. Its better than it was. I've been using a creme made with essential oils, maybe thats whats helped.

    Andrea, I will be on Herceptin until approx next July. At some point will also be put on AI's. MO doesnt think I'll need rads, but is setting up a consult with RO for his opinion. I hope I don't, but on the other hand I'd like to hit this with everything while I'm at it. Glad rads are going well for you!! Have you felt the need to clobber your mom's b/f yet? lol

  • KBeee
    KBeee Member Posts: 5,109
    edited September 2015

    Jen, Are you going to have them biopsy it? Glad them seem very certain it is ok.

    Lynne, Glad you checked in.

    Ginger chi, the end is in sight!

    Dizz park, hope the side effects are few!

    Andrea, I hope your skin keeps holding up. I am a ways behind you. I had 13 today.

    Mamajen, glad the mammo went well!

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    I want them to but apparently I have to see the surgeon first. 4 pm tomorrow.

  • KBeee
    KBeee Member Posts: 5,109
    edited September 2015

    uuugh. Sorry this is dragging out so long. I hope they can do it this week

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    It's hell. I'm glad montana is a right to die state. I don't have any more strength to give. I just want what we all want....health and happieness. Oh well.

  • bluedog
    bluedog Member Posts: 212
    edited September 2015
    So sorry you're going through this, littleblue. Remember, Ativan is your friend.
  • Alibeths
    Alibeths Member Posts: 656
    edited September 2015

    good luck with surgery Addie and STEPH!!!! Yay!!!!!! Sorry your dealing blue. So, did you have the ultrasound?? If they are telling you it's scar tissue, they k ow their shit. Still annoying though. Keep us posted. X

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    thanks! Engaging in unhealthy coping now. I wish I had kids or a Dh to keepmM&%3re sane...

  • KBeee
    KBeee Member Posts: 5,109
    edited September 2015

    Jen, all of this crap we have been through can give you a big case of symptoms characteristic of ptsd which just comes crashing through any time things like this happen. You have many, many more years in front of you and one thing we all have to trudge through together is holding each other up through these fearful times when lumps and bumps paralyze us with fear. We are here for you

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    I just want to get too drunk to care..not proud of that but I don't lie here. Probably in sick tomorrow,. I asked for better anxiety meds and was refused.

  • KBeee
    KBeee Member Posts: 5,109
    edited September 2015

    If they can not give you better anxiety mess, ask for someone to talk to. Let them know how much this is bothering you

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited September 2015

    Jen- what Kbee said. About PTSD and about asking for someone else to talk to. In the meantime, I hope you can feel us all around you.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    a what I really want is health and a vintage airstream in the Arizona desert, with pink flamingos and chilli lights. Maybe backed up against some sonoran cliffs. If this is metastsis...well...I'll see I die in a place like that..

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited September 2015

    Addie- best to you tomorrow. Thinking of you and setting up a mojo drip. Hugs.


  • KBeee
    KBeee Member Posts: 5,109
    edited September 2015

    Jen, it would NOT metastasize like that. You have many, many more fun years ahead. Even in worst case scenerio it would not be considered metastasis, and there is a 98-99% that this is nothing concerning. Try, try try to distract yourself. Do you have a local friend you can call to come stay with you

  • Rpayton
    Rpayton Member Posts: 235
    edited September 2015

    Jen, the vision in the Arizona desert is what you should keep thinking and dreaming about. It is PTSD catching up in our head. It really tries to mess us up, don't let it in to do that. What other new things are you doing with yourself these days? What are you looking forward to tomorrow and for the weekend? For me some days just hopeful to get a dunkin donuts cup of coffee! LOL We have been strong and brave and that catches up. I get it....keep posting and updating us on what is next...

    Last week had huge panic anxiety returning to work. Sadness that I wasn't returning in a clinical role and yet excited to get back to healthcare business, a daily "normal" and get the focus off myself. As I recover and get my immune system back the office position I'm in will at least keep me busy and pay the bill$. This week wondering if I went back too soon. The pink and bit of swelling is coming from rads plus the fatigue. But I'm pushing thru and glad to be busy. Kind of hard to realize the summer is gone and while others talk about their trips, fun times they had all summer we all get to reflect and remember chemo and all the fun of that! Hard to explain or for anyone to understand unless they have been there. Thank God for our coming together and supporting each other in this group!

  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited September 2015

    littleblue... We are here for you, every step of the way. 98% Scar tissue sounds about right. Just to get that anxiety down - scar tissue is the most likely cause of lumps right now. Bumps, lumps, .....sounds like a dr. Seuss fiasco. Hang in there, sister

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