INSOMNIACS place to talk in the wee hours

You are not in the hospital, are you? Try to get some rest if you can so you can think clearly tomorrow.

Boyd, I was just thinking about you and wondering if you had the surgery. It's always a plus to caring provider

Good Morning gals........ So sorry about what you and your Brother are going through Sass.... Sometimes I think you just have to " let go and let God"............ I've been there a few times.

Spookie... it's alright...... People that "haven't been there" don't know how anyone else is feeling............ I think they TRY and help, but they don't understand how all their bells and whistles can be seen in the wrong way.

Sorry Boyd! Man, it seems like your team is going in slow-motion! And there is probably nothing you can do about it! I would get on someone's butt and ask them what is taking so long to get this over with! Maybe I'm just impatient, but if there IS something going on in there, you would appreciate their honest effort to get this taken care of!

And NO... Those tests and procedures ARE no fun, but necessary. I don't think they know exactly how much to remove, until they get in there. They can also send it real quick for testing, and get the results, and take larger margins if needed. So they don't know until after, and the final path report. But that's when the continued treatments come in, depending on your last report. THEN they know which grade, type, stage, and nodes that are involved.

See, at my age, I just get cranky.... when something needs to be done, don't try and flim-flam me... Just DO it, so I can get on with "stuff."

Sassy - We love you and by extension we love your DB. Take care of yourself. I didn't get bombs from your pic but rather picture of he!!. Heaven forbid someone tries to figure out why I google what I do lol.

Sorry Mommy. Prayers for you auntie.

Boyds - don't you wish that at least docs would have to try out the position for these "oh it's easy" tests. Not that I wish BC on them for sure. But I am glad your doc is being careful b4 your surgery.

Boyd- sorry about the MRI surprises. My sister was ahead of me on the whole process so she warned me to be ready and what to do. I had the first MRI on the other breast and surprise, they saw a blood supply formed and I had to go back for a second MRI and have a biopsy done (that resulted in a finding of DCIS). The position they had me in for that MRI biopsy wrenched my back. I remember when I got out of the position, the radiologist and others were like "are you okay?" I felt like saying "I don't know, you tell me?" Anyways, these tests give them more information for treatment options. Keep us posted and hopefully you will have some good answers soon?

Mommy- I am sorry to hear about your aunt's stroke. My mother had one and was stubborn but mostly recovered from it. I hope they got to her quickly when it happened, better chance of good outcomes with fast medical treatment.

Sas- I am sorry to hear about things with Charlie still. Keeping you all in my prayers. Hospitals are iffy places.

Sept 11th today. I don't know if any of you here knew anyone who lost their lives with that but if you did, my heart goes out to you and their families. Big hug to the country today.

Boyd: thanks for the update! and no, MRI tables are NOT like massage tables. The things medical staff say to comfort us don't always work as intended.

Sas: get any sleep? Cannabinoid therapy has a place in oncology, despite anti-emetic meds, for that appetite increasing effect! and a few other things.

Chevester, you being the hip, downtowner in Denver ???? When you are sashaying to Starbucks or other activites ( pole lessons ) do you smell mariquana? Is it legal to smoke in the open? Inquiring minds want to know....lol....Sas was suggesting the medical form for appetite issues for PattyPepper. My kids thought I should smoke during chemo. I could not eat, lost so much weight very quickly. Continued to lose weight through the nightmare. Smoking then was not possible, I was too sick, now occasionally, very relaxing.

Sas, thinking of you, go for a swim. Hope you get a better report soon.

Mommy, hope you get positive news from your auntie soon.

Chevy: (amused/teasing) You miss nothing! Yes, 'cannabinoid' means exactly what you think it does, though as I understand it in regards cancer treatment, smoking isn't the only option, as it is with asparagus. Yes, I was a trifle unclear--I was referring to two different posts of hers.

(seriously) No, I wasn't suggesting that our beloved Sas get some cannabinoid therapy herself, though she may if she wishes. Rather I was agreeing with Ms. Sas, as I was rather of the impression that she had already researched the subject most thoroughly.

Sas: any update yet?

Sas, saying prayers for your DB, his family and you. ((((HUGS))))

Haven't ever done any of the cannabinoid forms myself, either recreationally or medically. Just a vague notion that the different methods of ingestion do have different effects, as do the component. And that it does have an anxiolytic effect, which would certainly help with proceeding through cancer treatment.

More power to them as chooses that route!

Long day. Up at 5:45, there at the surgery center at 8am, only to find out I wasn't scheduled until 11:45. Anyway they got the PleurX catheter in and another 2.6 liters of fluid off! So it works and I finally have a way to relieve this ascites myself! I am sore but grateful and happy it's done. I was hoping to see some good news about Sassy's DB and unless I missed it.. nothing. I hope things are ok. Anyone heard from Patty?

Chevy pot is legal here too but restrictions on where you can smoke it and around kids ect. I voted for it and my DH did too. He is upset about all the pot in candy and food and thinks it will get into kids and pets.DH said if he had known they would have allowed all these pot infused candy, gummy worms and all, he would not have voted for it. There have been news reports about a jump in pets poisoned by pot laced candy.

Mommy- I hope your Aunt recovers. Fiesty patients generally do better then passive ones. Have a great weekend.

Yay Rosie I pray this brings you relief! On your own schedule too!

Ughhhhh....just lost a long post and now I don't remember what I wrote.

Yep the cath is done and I came home with my own little kit for how to use it. The nurse there was terrific, he was thorough and funny. Everyone in the surgery was great and no issues. They were training one gal who swore she had years of experience but my DH and I were wondering. She was spacy, slow and worked in slow motion doing everything like it was new to her. She spoke very softly even though i reminded her multiple times I has hard of hearing. I find that irritating. She wanted to get checked off accessing a port and called up IV therapy who I was talking to. She had everything laid out on top of me so I really couldn't seewhat she was doing and I had my head turned to talking to the other nurse. She reaches over with the needle to access the portacath and the IV nurse says usually we flush those first- I looked at needle and thought odd no saline, maybe she flushed it before... nope it was dry. Scary. So she's waving it around trying to open up the saline and I said- you are keeping the tip sterile right? Anyway she flushed it, accessed it, had it locked couldn't figure out why it wouldn't draw... unclamped it and it worked perfectly. ugh.. I was a wee bit worried. Then she says "when I get checked off then I can teach them how to use a port." I hope she gets more experience under her belt then what she showed me, before she teaches others. I wish I could just be a regular patient just sleepy and clueless, not pay attention and have it not matter. Since I have been away 8 years I worry what have i forgotten...

Then I lost my temper at waiting 4 hours and why did they have us come so dang early? We got there at 7:45am only to stare at the ceiling until 11:45! The spacy nurse says rather dismissively.. "I know how you feel I am sorry." I replied, "No you don't know how I feel. Are you terminal? Do you have months to live no matter what drugs you take, and each wasted hour spent staring at a ceiling is time gone forever? Do you know what that's like?" She was quiet and apologized that she didn't know. I hate to be mean, but the tone was like it was no big deal. It might be a big deal to the patient! That time they squandered is nothing to them and precious to you. Don't get me wrong I am grateful to my marrow to have gotten the catheter placed so quickly but an entire day was blown 7:45- 3pm. The radiologist totally got it. He said as he was suturing the catheter in place -" Now you don't have to waste any time coming here you can get this fluid off at home when you need too. That'll be an improvement!" I thanked him profusely because he's right! My QOL will improve from what it has been all summer! This drain and ascites relief is the best intervention to date besides pain pills. This cancer road is tough.. takes lots of patience and I guess I am running thin. My apologies to all for not having more patience.

Just like Spookiesmom being upset by pink tacos for a dollar more and a menu full of save the "TaTas" Pink October specials- upset enough to walk out of a restaurant. No one understands why that would be be upsetting except another mastectomy patient and BC cancer survivor. To the stage 4 folks Pinktober is like being ignored and passed over that you even exist. Everyone survives in Pink ribbon land... wish that were true. Thanks for listening.. venting is therapeutic.