April 2015 Chemo Crew... Starting in April? Please join us!

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  • mamajencoz
    mamajencoz Member Posts: 52
    edited September 2015

    You all are hilarious. You say the things that roll through my head. Here's my head shot. Its grey up front and darker in the back. Lord knows what color it will wind up being. Its my $85,000 ombre lol. Its doing the weird sticking up thing too image

  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited September 2015

    LOL, Littleblue, KSusan, Jackiebirdie! Hair stories, eyelashes, and petting.

    Mamajen, Addie, Littleblue - that hair is coming; watch out for the growth spurts. It will grow...mine is starting to curl a little on the sides.

  • Addie29
    Addie29 Member Posts: 307
    edited September 2015

    $85000 wow I never actually looked at what everything cost. Thank god for gOod insurance

  • mamajencoz
    mamajencoz Member Posts: 52
    edited September 2015

    $42,000 for 4 ac.

    $14,000 for 4 taxol and herceptin

    $13,000 for 4 more taxol and a herceptin

    $14,000 for last 4 taxol and a herceptin

    It all adds up. I think the last chemo billed to my insurance was $7800. Add the cost of the drugs itself, anti nauseas, blood work, nulasta shots, pharmacy costs, time in the chair charge etc...

    Yes praise God for insurance! I hit my $5000 out of pocket max before I even had surgery!

    It kind of makes you rethink the "cost of LIVING"

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited September 2015

    Even 85k seems a little low....I think my insurance pays out 30k-50k every 3 weeks for chemo. 8 chemos...240k-400k. That doesn't include the 25k for 4 days in hospital with neutropenia. AND I haven't had surgery yet. Thank Heavans for insurance!!!

    So, today has been irritating. We've had police, news, and air force helicopters circling our area due to the Phoenix Interstate Shootings. They fly so low they make the windows rattle. Fortunately, we can avoid the Interstate for the most part, except early Sunday when we need to get to the airport. We plan to leave extra early and take surface streets. I really wish they would catch this/these idiots!

  • Addie29
    Addie29 Member Posts: 307
    edited September 2015

    wow that is crazy. We have a very limited income so we actually receive state aid for insurance- and I haven't seen one bill but actually I'm curious to see what all this cancer care did cost.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    Addie I hear ya. Same here. But they send bills just so I know how much I'm worth lol.

  • Stephmoen
    Stephmoen Member Posts: 563
    edited September 2015

    I'm also on medicaid my husband owns his own business and I'm not working now..he has been hired at a farm working pretty high up and wants to go to full time and recieve blue cross I'm so nervous about changing insurance and the costs stresses me out big time I know this shit ain't cheap!

  • ksusan
    ksusan Member Posts: 4,505
    edited September 2015

    Mamajen--yeah! I'm actually pretty excited to have hair long enough that it sticks out at funny angles.

  • gingeel
    gingeel Member Posts: 102
    edited September 2015

    Wow, never really looked at how much all this is costing.....but, like you said, thank God for insurance. I'm so excited for hair after looking at all of your hair pics! It's coming in, though...but mostly peach fuzz.

    So, I've been feeling like garbage. Don't know what it is, but since last Friday's last chemo, my stomach hasn't been right, I'm having all of these weird aches and pains and even muscle weakness, I've had headaches, and my I even feel like I'm about to break out on my cheeks. My skin is all flared. Don't know why I'm having all these lingering symptoms now, when I've gone this whole time without most of these. I usually feel great by day 7.


  • GingerChi
    GingerChi Member Posts: 252
    edited September 2015

    My insurance has paid out $79k. They've been billed $194k but only pay the "plan allowance". I was so glad when I met my $5,000 out of pocket! I guess with Herceptin I'll meet my out of pocket pretty quick after the first of the year too.

    lol so true Mamajen, the cost of living has a whole new meaning now......

    My hair was doing a weird bed-head kinda thing this morning.....I tried to get a pic to document this but it didnt show up. lol

  • Addie29
    Addie29 Member Posts: 307
    edited September 2015

    awe gingeel I hope that passes quickly and you start to feel better. i also have been having muscle weakness. Mostly in my legs. My back has been hurting a lot lately. But that's nothing new for me. I'm thinking I have something up with some discs. I've now started getting some numbness is my left arm. I've had it before and it took me going to the chiropractor twice a week to get it better but unfortunately that isn't an option for me right now.


    Off topic I've been thinking with the holidays around the corner that it would be a great opportunity for all of us fine ladies to maybe exchange Holiday cards for those who celebrate. Anyone interested? We could message each other address that way they aren't on this discussion board for everyone to see. What do you guys think?

  • KBeee
    KBeee Member Posts: 5,109
    edited September 2015

    Addie, holiday cards would be fun! We could message addresses or we could create a document with them in our facebook group.

    Gingerchi, it always amazes me how such short hair can have bedhead...but I have it every morning!!!!!!!!!!!!

    Gingeel, I hope you feel better really soon. How many left??

  • gingeel
    gingeel Member Posts: 102
    edited September 2015

    Thanks, gals....actually Karen, I'm done with chemo! Finished last Friday. I just went in today for my rads sim. They said 4 weeks.

    Addie, that is a cute idea.....

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    good idea addie! Gingeel, sorry yr still feeling yucky. It takes FOREVER to feel better :( and better comes and goes..but you will slowly notice an improvement..

  • gkodad
    gkodad Member Posts: 188
    edited September 2015

    Don't forget the neulasta shot when you're totaling up - $5000 a shot paid by my drug coverage - I only paid $36 each shot. so far insurance [hospital, tests, chemo, drugs and just the start of radiation] has paid about $80,000 and they are about two weeks behind on daily radiation billing, which should add another $30,000 or so to the total. I've only paid my deductible, out of pocket, and copays - about $3000, and my drug co-pays. I don't know what we'd do without insurance.

    Fun day at rads - the men's dressing room is being remodeled so they set up an area for the guys, with a curtain to pull for privacy. I turned the corner heading for my session and was greeted with a full moon by a man who apparently didn't understand what the curtain was for. I had to bleach my eyeballs after I got home.

  • gkodad
    gkodad Member Posts: 188
    edited September 2015

    Thanks, Ksusan - It's my new look.

  • GingerChi
    GingerChi Member Posts: 252
    edited September 2015

    Count me in for the holiday card xchange!

    Gingeel...Sorry you're feeling so yukky, hope it passes quickly!! Glad you get a break before you start rads!!

    Saw the MO today, she asked if I wanted another break since I'm still having some numbness and I said NO! lol Its been much better this week until today....Fri-Sun are my worst days in general and that's when my hands/feet bug me most too. I'm pressing on....4 more to go!

  • GingerChi
    GingerChi Member Posts: 252
    edited September 2015

    OMG gkodad!! You should honestly write a book, your experiences are off the chain!!

  • KBeee
    KBeee Member Posts: 5,109
    edited September 2015

    GKO... Eeek!

    I never had any issues baring my breast for the rads techs, docs, etc. I think it is much better than if I would have to bear my butt, begins area, etc. I know many men have to get prostate rads. I think thise areas might be more challenging. But that could be because I do not have real breasts. I just have nicely rounded reconstructed mounds....... Which I just schmalzed with emu oil. #11 done.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited September 2015

    🎼🎼🎼Schmaltzing Matilda, 🎶

    Schmaltzing Matilda,

    Won't you get monkey

    With Emu and me?🎶🎶🎶

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    Hahahahahahahahaha

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited September 2015

    Got a call from cancer center today re: yesterdays bloodwork. My platelets are way down. Car manager put in a call to MO to see if he wanted to postpone last chemo. Fortunately, he gave us the green light to fly on Sunday. He's hoping my platelets will go up enough before Monday. Everyone cross your fingers for me and pass along any tips you have on improving platelet count. My ear surgery is scheduled for 10/8...Pretty sure that will get cancelled if platelets dip this much again. I'm at 67.

  • GingerChi
    GingerChi Member Posts: 252
    edited September 2015

    DizzPark: I've heard the chemo nurses at my center recommend eating beets and dark chocolate to patients with low platelets. Hit the candy aisle. lol You're almost there, hope all goes well with your trip Sunday. Good luck!!!!!!

  • KBeee
    KBeee Member Posts: 5,109
    edited September 2015

    oh wow. Those platelets are low. I am not sure of tips to improve them but I am thinking good thought for you. So glad you will be done after this next one

  • samaileko
    samaileko Member Posts: 13
    edited September 2015

    I'm sorry that I just pop in every once in a while...I just finished my DIEP Flap a little over two weeks ago, have three little boys, (oldest is six,) and my husband is deployed.

    I just want to tell Gingeel that after my last chemo, 18 Jun, I figured I would feel better than my others, but it was actually a lot harder. I think it may have been a mental concept that affected me physically. My thoughts were the same as yours...I should have been feeling great after two weeks. I was experiencing thigh muscle weakness, (feeling my legs were going to give out, especially going down steps,) calf cramps, (especially in the morning or sitting for a while,) and serious fatigue. I was also retaining water in my legs, I think. I found an older post in the discussion boards that described the exact feeling. (If I can find it, I will send it your way.) That person was given a diuretic, but I just decided to stay on top of my hydration better. She talked about all the science behind it, but I can't quite remember. All I know is I could not do my normal 1.5 walk two days in a row or I would crash pretty hard. Odd thing is, after my DIEP flap surgery, I no longer have those symptoms. No more tippy-toeing to the bathroom in the morning or feeling I'm going to fall down the stairs. I think it might have been all the IV fluids that finally flushed all the chemo out.

    I am struggling with low iron because I lost a lot of blood during my surgery and my body is not quite able to provide and build just yet, so I'm on iron elixir. My onco said I may have to have a transfusion if my counts are not up by the time I have my hysterectomy in December.

    I had a small bout of depression, but as soon as my PS told me the rationale behind it, I popped back. The first week was really rough, physically, so I kind of doubted my decision of reconstruction. She said I didn't experience it with the bilateral mastectomy because that surgery was accomplished to save my life. She said I will feel better, when I feel better, (if that makes sense,) and I do!

    At my onco appt on Tuesday, she said after the treatment is done, we have to watch out for kind of like an aftermath depression...once all the busy busy time stops. She said it's best if I can work through without meds, but she can always give me something. Probably a support group would be better :)

    Gotta run. Most gracious blessings to all of you!

    image

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    Hi samaileiko, thanks for stopping in! Your MO sounds like a wealth of info, and it's good to hear validation on the mental stuff we go through. Glad you are starting to feel better. Hopefully your husband's deployment goes smoothly! Also, beautiful dog!

  • mamajencoz
    mamajencoz Member Posts: 52
    edited September 2015

    I had a chemo crash after my last Taxol infusion. I told my Mom it was a good thing it was my last because I wasn't sure I could endure any more. I felt worse after my final chemo than I did through all of Taxol. Body aches, headache, no energy, stretchy tight muscles. She said something that just stuck with me. She said, " In your mind, you fought to feel ok, fought to push through, you fought to sustain, you fought to get it over with, fighting fighting fighting... and now that you know you were done... you let go. You stopped thinking I can do this one more time... just a few more weeks.. a couple more times in the chair. You just said in your mind you were done... and your mind stopped your body from fighting too. So all this junk you have pulled along the whole time overwhelms your spirit and takes over." I believe it. Now it is a time to heal.

  • Rpayton
    Rpayton Member Posts: 235
    edited September 2015

    Hi all! So much to catch-up with here and on Facebook. I laugh at all your stories and comments.

    Littleblue: the cop and your mini mohawk story hilarious. A book on this social experiment of having cancer treatment and society reactions would be good, cartoons, and even a reality show could be done. LOL

    DizzPark hope your platelets get on the program where they should.

    Everyone's hair pics are great! Addie you have way more than me and thicker and I've been done for six weeks. It is very slow growing, fuzzy and sticks up everywhere.

    I got used to being home the last couple months and going commando at home and scarf to treatment. Now back to work and put on the wig. Errrggghhh scratchy and hot. But I'm not brave enough to just do the scarf as I'm now working in a more corporate environment. Can't wait for hair.

    Got thru my first 2 days back exhausted but in a good productive way. Halfway thru radiation and so far no problems, not even pink skin yet. I hope all of us in rads go thru easy, breezy. We need a break.

    The cost of cancer treatment is just mind blowing. I read something recently where some socialized medicine countries are not going to allow patients to have some of the drugs needed due to the expense. Horrible situation. In my mind big pharma should take the profits from other meds and help fund treatments or operate as non profit for cancer meds. Just like confiscated drug cartel possessions should be liquidated to fund treatment for addicts.

    Definitely want to do the holiday card exchange! Great idea!!!

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited September 2015

    Mohawk is blue today! I made my friend who always always says the wrong thing: like cancer is caused by negativity, chemo will kill you, radiation will kill you etc. Finally see me without a wig. And every time he says the wrong thing I make him rub my fuzzy head. I figure it's kind of like sacking out a horse...eventually he will see its not so scary and calm down. New favorite comment: Girls look awesom with hair. (Face palm)

    Also, just got one of those flyers for prepaid funerals in the mail. That really brought me down 😢

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