AI for E- P+ 35-40%

HazelFrances · September 2015

Stage IIa

Ductile Invasive -Grade 2

Primary tumor 1.8 cm

One positive intramammary node, 1 cm

Six negative axillary nodes removed

BMX 8/14/15

Left prophylactic

No reconstruction

57 YO

So, I'm going to have chemo but after that my oncologist said I will be taking an AI for 5 years. I'm questioning how much benefit I will get since I am E- and P+ at 35-40%.

It seems like the benefit will be limited and I already have joint pain / fibromyalgia before the breast cancer.

I appreciate any thoughts or experiences you have to share. Thanks.

scrunchthecat · September 2015

Hi Hazel,

It's somewhat uncommon to be ER- and PR+. Are you HER2+? I am HER2+, ER- and weakly PR+ (<5%). Right now my oncologist is probably going to keep me on Herceptin and Perjeta for HER2 and deal with the PR later, if necessary. There is a new line of inquiry into Androgen receptors, and I wonder if maybe the ER- PR+ combination is related to this. Has your oncologist said anything about this?

HazelFrances · September 2015

I am HER2-

Should have put that.

I have heard that ER-, PR+ is rare and I found one article questioning if it is possible. But I have been tested twice, including being sent off for an oncotype, which was refused because they again found me ER-.

I haven't heard anything about androgen receptors.

I am just getting ready to start chemo, so she is mostly talking about that.

Meow13 · September 2015

Have you tried asking for symphony-test suites it does more than oncodx and I don't think you have to be er+?

http://knowyourbreastcancer.com/symphony-test/

AI for E- P+ 35-40%

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