Herceptin

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Csed
Csed Member Posts: 5
edited August 2015 in Stage II Breast Cancer

hello out there! This is my first time posting in a group like this so hopefully I am in the right place! I was diagnosed with stage 2 HER2+ breast cancer almost a year ago. I went through the 6 cycles of taxotere, carboplatin and herceptin and I am down to just the herceptin once every three weeks now until December. Since going to just the herceptin I have had diarrhea and loss of appetite to the point where I have lost about 20 pounds. My oncologist seems to think this is a latent effect of the taxo and carbo but I am reluctant to believe that. I had a colonoscopy and ct scan no sign of trouble in intestines so not sure what is going on but very frustrating. Feel like I can't leave the house for fear of having a bathroom emergency. Anyone else have this problem?
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  • SpecialK
    SpecialK Member Posts: 16,486
    edited July 2015

    I had Big D issues throughout TCH which continued on Herceptin only infusions until I started a probiotic. Made a world of difference and was recommended by one of the infusion room nurses. Might be worth a try - wishing you the best

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  • Csed
    Csed Member Posts: 5
    edited July 2015

    SpecialK thank you so much for your response, I was starting to think I was going crazy because everyone says Herceptin is so easy to tolerate. Do you remember which probiotic you took?


    Thanks!

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited July 2015

    I am hopeful that things will get easier as far as tolerating Hepceptin once your GI situation is better. I actually first tried Phillips Colon Health and did well with it, I got it mainly because it was readily available at the drug store or grocery store, and I was fried from surgery and chemo, lol! I also tried Culturelle but it gave me nausea. A lot of people use Florastor too, but I have not tried it myself.

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  • Csed
    Csed Member Posts: 5
    edited July 2015

    thanks again I truly appreciate the info!

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  • jumbledbamboo
    jumbledbamboo Member Posts: 158
    edited August 2015

    I recommend the probiotic too. I feel sick to my stomach which I guess isn't typical? Anyway, I hope the probiotic helps and stay hydrated!

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