Having a scan? Waiting on results? The waiting room is open!

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  • kt1966
    kt1966 Member Posts: 1,326
    edited August 2015

    :) great news Aiobheann

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  • MusicLover
    MusicLover Member Posts: 4,225
    edited August 2015

    I have to catch up here but just wanted to say the cancer is stable. So that's good.

    EDITED:

    Annie, Sandy, Aiobheann and Jenny, GREAT NEWS!!!!

    Kathy, Roses and KT, My news is probably more like your news, it is just so difficult to say what is going on some times. My tm's are good but the scan did have increased SUV's on the bone mets but honestly I think that there are some errors, what was left is now right on iliac. It is making me a bit crazy. Good news I think but not 100% certain, nothing eye popping in my opinion (so my assessment is stable).

    Carla, Good luck to you too.

    (I took a break this weekend because of nerves and a few other crazy things going on in my life and now I am trying to catch up, I really hope that I have not missed anyone. Love you all and thank you.)


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  • 208sandy
    208sandy Member Posts: 2,610
    edited August 2015

    aoibheann - great news - now celebrate!

    MusicLover - more good news - I suggest ice cream all around (it's 30C here today so "ice" anything!

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  • terrij152
    terrij152 Member Posts: 530
    edited August 2015

    Love to see good results for everyone!! To anyone waiting, continued prayers are coming!!

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  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited August 2015

    Such big sighs of relief for so many sisters!   It seems we can handle almost anything...but really, a measure of good news is just so awesome to receive & hang on to!  Prayers that good news continues to flow!!!! 

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  • Bosco19
    Bosco19 Member Posts: 221
    edited August 2015

    Italian trip almost over - heading back to London and blood tests on Thursday and PET/CT scan on Friday. Holiday has been busy with house guests most of the time but an underlying anxiety about aches and pains. Leg was aching before I left and blood counts were dropping but I put off scan to travel.

    Blood will be interesting as my platelets normally fall off a cliff about 2 weeks after treatment but I don't know this cycle as I haven't had any tests. All I do know is that when I tripped over dog last week and cut my arm, I expected it to bleed (no platelets) and it didn't.

    Will get results on Friday evening. Onc will only give results face to face. He argues he has to be present for bad results to provide solutions and a plan and that doesn't work if you are prepared to give good results over the phone or e mail. He's an amazing guy. I used to think I worked hard and long hours but I don't think he ever stops.

    Best wishes to all those waiting for results - praying for good ones for us all.

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  • annieoakley
    annieoakley Member Posts: 870
    edited August 2015

    MusicLover, stable is good! That is great news and I'm so happy for you,

    Bosco, I'm sending all of my positive mojo your way. Praying for good scan results and hoping your blood work comes back good too. Glad you had a nice trip but sorry about the underlying anxiety, we never seem to get a day off from cancer. No matter where we are or what we're doing there's alwaye a constant reminder. I'm so happy you didn't let it stop you from taking the trip.

    Wishing anyone else with upcoming scans and tests the best!

    Hugs to all, Annie

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  • 208sandy
    208sandy Member Posts: 2,610
    edited August 2015

    Bosco - sending hugs and keeping you in my thoughts all this week.

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  • Aoibheann
    Aoibheann Member Posts: 555
    edited August 2015

    Great news, Musiclover, yay for stable!

    Hope you had a good holiday, Bosco,and sending you positive thoughts. Hope Friday brings you good news.

    Hugs and best wishes to everyone waiting

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited August 2015

    MusicLover, so happy for you.

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  • MusicLover
    MusicLover Member Posts: 4,225
    edited August 2015

    Bosco, Best wishes!

    Thank you again for all of your well wishes.

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  • RosesToeses
    RosesToeses Member Posts: 721
    edited August 2015

    Jenny, kt, Aiobheann, so happy for you and your good news! Hooray!

    CarlaK, any word? Hope it went well!

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  • Andi67
    Andi67 Member Posts: 423
    edited August 2015

    Hi everybody... .thanks for so many extended hands, prayers and good thoughts.... I'm sorry it took me so long to send an update. I actually had to get my results via EMAIL... ugh... my oncologist didn't call me this time... so nerve wracking to get that email and then have to read it. BUT - all good news.... both CT scan and bone scan showed no progression. Whew. I like the PET scans better because they start out with "No Evidence of Disease:"... but with these I actually had to go through all of the details ... I needed a Xanex just for those few minutes. My oncologist did send me an email a few days later and said :"terrific results"..... so I was glad I was reading it right.

    So glad to hear so many positive results from so many of you! Annie, KT1966, Music Lover, Aoihobean (did I spell that right?) Ronnie Kay, Jenny Lee ( I had my ovaries shut down too...).. and RosesToses.... GREAT NEWS! I apologize if I am missing anyone.... don't think we have heard from CarlaK?

    Thanks for waiting with me! XOXO

    Andrea

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  • kt1966
    kt1966 Member Posts: 1,326
    edited August 2015

    Great Andi :)

    Keep the good news coming everyone

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  • CarlaK
    CarlaK Member Posts: 158
    edited August 2015

    Happy dances for everyone who's gotten good or stable news! You guys are so kind to be worrying about me-I'm still waiting for Radiology to get me scheduled. Bleah. I may make some phone calls tomorrow to try to get this show on the road.

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  • Bosco19
    Bosco19 Member Posts: 221
    edited August 2015

    Had Pet/CT scan this morning. Anxiety levels now sky high. results in 4hours time. Hoping my husband will make it back in time ( he is driving back from Italy with the dog) but it's difficult getting through Channel Tunnel at the moment. Leg and head hurting so expecting bad news. At least it's not long to wait

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  • nancyh
    nancyh Member Posts: 2,644
    edited August 2015

    Sending best wishes to you, Bosco. Good luck!!

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  • 208sandy
    208sandy Member Posts: 2,610
    edited August 2015

    Waiting with you Bosco....S.

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  • SummerD2H
    SummerD2H Member Posts: 2
    edited August 2015

    I have a consult with a BS on Monday. This has been the longest month of my life. I found the radiologist lacking. She didn't want to do the mammogram because of my age (24) But my grandmothers on both side got breast cancer in their early 30s and a cousin got it at 29. I feel like the radiologist thought I wanted BC. UMMM no I just want to be 100% sure. The sonogram didn't find anything because my breasts were too dense and they still didn't do the mam. But I am insisting to see a BS.

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  • Bosco19
    Bosco19 Member Posts: 221
    edited August 2015

    thanks Sandy and Nancy. Good to know you're there. And husband just walked through the door with 2 hours to spare. He looks wrecked from driving 1000 miles but he's here.

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  • terrij152
    terrij152 Member Posts: 530
    edited August 2015

    Good luck Bosco, keep us posted! ((((HUGS))))

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  • cjanet
    cjanet Member Posts: 328
    edited August 2015

    Good luck Bosco, thinking of you.

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  • Bosco19
    Bosco19 Member Posts: 221
    edited August 2015

    and just home with pretty good news. Brain still clear (that's the recurrence I really fear), leg about the same - still showing activity so I am going to have an MRI of pelvis, hips and upper leg next week to see if it's progression or healing. Hilar nodes about the same apart from one a bit larger at entrance to lungs. Some tiny nodules in one lung. After discussing w onc whether this was just some inflammation and not progression, he sent us to see the reporting radiologist ( who kindly saw us straightaway at 7pm on a Friday night). He took us through all the relevant areas and a comparison with previous 2 scans and was hugely reassuring. 95% certain nodules just some inflammation from a cold not MBC. So glad onc suggested seeing the radiologist.

    Onc's summary was v mild progression but depends on nodules. If they are not MBC, probably stable not progression. No treatment change.

    Time for a glass of red wine! Thanks for all thoughts and wishes and hoping others get good news too. Next time I think I'd have scan before holiday rather than after.

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  • txmom
    txmom Member Posts: 306
    edited August 2015

    Bosco, excellent news. So happy for you!

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  • Bosco19
    Bosco19 Member Posts: 221
    edited August 2015

    thank you txmom. Feel a bit silly about my anxiety whine earlier. Hate what this disease does to scare my normal self

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  • terrij152
    terrij152 Member Posts: 530
    edited August 2015

    Great news Bosco! No need for apologies here, we all understand the fear this disease has given us. Enjoy your wine and have a great weekend!!

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  • Aoibheann
    Aoibheann Member Posts: 555
    edited August 2015

    Great news Bosco. Delighted for you xx

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  • 208sandy
    208sandy Member Posts: 2,610
    edited August 2015

    No apology for anxiety EVER necessary - we all understand - glad you're home and hubby too (and dog I assume) - think you're right about getting scan results before vacation next time. Sounds like good news to me - have a great weekend. S.

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  • RosesToeses
    RosesToeses Member Posts: 721
    edited August 2015

    Hooray, Andi and Bosco!

    Wishing you good luck getting in and getting good results, Carla and Summer!


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  • livingwithit
    livingwithit Member Posts: 39
    edited August 2015

    Hi Terri! I just logged in to see what info I could find on radiation therapy pain relief. . .glad the rads helped your pain! I'm scheduled to start treatments 8/31. 10 rounds for my arm/shoulder and 13 for left hip. The pain in my arm and shoulder is intense and I have so much hope the rads will help me. I'm concerned if I cannot get the pain under control I won't be able to continue working. I have a desk job so no heavy lifting but sitting for long periods and repetitive movements in typing really aggravate my shoulder.

    How much relief would you say you've had? And thanks for the heads up on giving it time to work!

    Jenny

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