Having a scan? Waiting on results? The waiting room is open!

Options
1…1718202223…36

Comments

  • Bosco19
    Bosco19 Member Posts: 221
    edited August 2015
    Annie - good luck for the results. Have you tried asking for scan without contrast? I never have contrast with CT having had a bad reaction to X ray contrast 30 years ago.
    · Share on FacebookShare on Twitter
  • terrij152
    terrij152 Member Posts: 530
    edited August 2015

    Annie, feeling hot and the sensation of peeing your pants is normal, happens to me all the time! I hope you get good news with your scans.

    I had my bone scan today and the tech was shocked that I was back so soon; just had one in May. All the worrying that goes along with these scans just SUCKS!

    Stay strong everyone!!

    · Share on FacebookShare on Twitter
  • kt1966
    kt1966 Member Posts: 1,326
    edited August 2015

    I'm so glad you got good results RonnieKay, and so quickly!

    I hope everyone else's are good too :)

    · Share on FacebookShare on Twitter
  • annieoakley
    annieoakley Member Posts: 870
    edited August 2015

    Bosco, thank you and no I have never asked to have it done without contrast. I suppose I could but worry they wouldn't see things as clearly but I guess if you're allergic you wouldn't have a choice. I just feel really off for days afterwards. 

    Terri, thank you and yes I know those feelings are normal but this time it was strange, I felt extremely hot and my heart was racing. Maybe it just got pushed through the IV too fast. Praying all is good with your bone scan and last one I had the tech thought it was too soon too, makes you wonder.

    Hugs to everyone, Annie

    · Share on FacebookShare on Twitter
  • 208sandy
    208sandy Member Posts: 2,610
    edited August 2015

    Annie - I had a ct scan on Tuesday and the next two days were awful - I have been reacting to the contrast for the last three ct scans and mentioned it to my onc who said "none of my other patients have had trouble" which is what she says about all se's. This time I felt the "push" more so than in the past and yes, I had a racing heart for a few seconds. I am seeing my PCP in a couple of weeks and am going to ask her about it. I've been having my scans closer together as well but that's because we're trying to see if the Faslodex is working.

    · Share on FacebookShare on Twitter
  • Bosco19
    Bosco19 Member Posts: 221
    edited August 2015

    the CT contrast scan question is also being debated on bone mets thread for those who are interested.

    · Share on FacebookShare on Twitter
  • terrij152
    terrij152 Member Posts: 530
    edited August 2015

    After having all these scans this week I feel like crap! Not sure if it's the anxiety of the scans or getting all the contrasts and radioactive crap out of my system. This sucks!

    · Share on FacebookShare on Twitter
  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited August 2015

    Bosco...I had a reaction to contrast 33 years ago, when I had a kidney concern.  I started uncontrolled sneezing & itching, which I thought was pretty funny, but they pulled me out quickly & said it was allergy & to tell anyone scanning in the future about it.  Then comes bc..22 years later & they said the contrast makeup was changed over the years and I've never had a problem....until this time.  Annie, Terri, Sandy..I felt like crap too, all day Friday, headache, a little unsettled stomach & just not good. I chalked it up to not enough water.  Maybe it is that we get more sensitive the more we take in the contrast.  And Sandy...your onc's comments amaze me...like you don't know what you're experiencing..and since when us everyone the same??? Reminds me of my former onc, when I told her I was worried about mets spreading to my brain (my eyesight was tanking) and she asked why I couldn't just live life.  That was the last meeting with her, as she was ill and away from work for a few months (and I got a new onc).

    Thanks for sharing my relief, good news.  It's tempered a bit, wishing and hoping for good news for all.  Very hopeful for my sisters :-)

    · Share on FacebookShare on Twitter
  • steelrose
    steelrose Member Posts: 3,798
    edited August 2015

    Yay, RonnieK!!!

    Hoping for more good news this week from those who are awaiting results...

    · Share on FacebookShare on Twitter
  • 208sandy
    208sandy Member Posts: 2,610
    edited August 2015

    Ronniekay - I tried drinking even more water this last time, literally until I couldn't drink another drop and I don't think it made much of a difference - I was still "off" for three days.

    · Share on FacebookShare on Twitter
  • terrij152
    terrij152 Member Posts: 530
    edited August 2015

    I was drinking so much water that my urine was barely yellow! Still felt off and an upset stomach for a few days. Today is better so I'm trying to catch up on some things.

    · Share on FacebookShare on Twitter
  • Max_otto
    Max_otto Member Posts: 150
    edited August 2015
    Hello Ladies,
    Tomorrow will be my first scan and bloodwork since dx and on Wednesday I will meet with my onc for assessment and status. I am relatively calm but I think Tues I will need to be busy. Right now we have house guests from Germany and I wish they could stay thru Tuesday. They do not know my circumstances. Anyway, I hope my calmness stays for the next few days.

    Kathy
    · Share on FacebookShare on Twitter
  • terrij152
    terrij152 Member Posts: 530
    edited August 2015

    Good luck Kathy, hoping for excellent results!

    · Share on FacebookShare on Twitter
  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited August 2015

    It's good to have other things occupy your mind space, Kathy.  We'll be in your pocket :-) 


    · Share on FacebookShare on Twitter
  • annieoakley
    annieoakley Member Posts: 870
    edited August 2015

    208sandy, I felt crappy for 2 days as well, seems to be that way after every CT scan. Crazy that your onc doesn't believe you, as if we make this stuff up. Praying your scan shows Faslodex is working. When do you get results? I get mine Wednesday afternoon, freeking out a little, I will never get used to this.

    terri, good for you drinking lots of water, I try but I don't think I ever drink as much as I should. Praying for good results for you.

    Kathy best of luck to you! Praying for good results and that your calmness stays with you.

    Hugs to all, Annie

    · Share on FacebookShare on Twitter
  • Andi67
    Andi67 Member Posts: 423
    edited August 2015

    Hi ladies... I just found this thread and wanted to jump in as I had both a bone scan and CT scan on Thursday. First time in 2 years for both of those... I have been having PET scans every six months but now my insurance company has decided not to pay for them. So, I too had that hot feeling of peeing your pants. I usually take some sort of anti anxiety pill when I have mine and I completely spaced, so my heart was racing the whole time. I didn't feel badly afterwards, though..... I drank as much water as possible and really didn't notice any affects. My next appointment with my onc is SEPTEMBER 4th, so she is supposed to call me with the results tomorrow. Needless to say, I have been freaking out most of the weekend. Also, my health care system automatically generates test results as they get them.... so I have also been watching my email every couple of hours. My tumor markers (which are good indicators for me) have been at the "high side of normal" for several months. I have been NED for almost two years now so hoping to continue that trend.... but of course I feel like every little ache and pain means it's back. I also dropped Perjeta from my monthly infusions.... and actually dropped the infusions for about six months last year because the side effects were starting to be so bad...... so I just want tomorrow to come and I WANT THE RESULTS!

    So happy for everyone that has recent positive news.... and will be thinking of everyone this week who is waiting for results too.

    I hate cancer, and I hate scans, but I am so glad I have BCO and such a strong group of women to share this very unwanted journey with. Thank you for being there.

    XO

    Andrea

    · Share on FacebookShare on Twitter
  • 208sandy
    208sandy Member Posts: 2,610
    edited August 2015

    Annie - I get my results on Friday afternoon, along with my next Faslodex shots and bloodwork - nice start to the weekend! Will keep you in my thoughts and hope for great results on Wednesday.

    Andrea - keeping my fingers crossed that you hear good news, never could get a PET scan, oncs always wanted CT and I'm o.k. with that I guess.....

    · Share on FacebookShare on Twitter
  • terrij152
    terrij152 Member Posts: 530
    edited August 2015

    Andrea, wishing you good results!

    I know what you mean, the ladies on these boards are amazing and are a hug help during this unwanted journey!

    · Share on FacebookShare on Twitter
  • Max_otto
    Max_otto Member Posts: 150
    edited August 2015

    Thanks everyone, I'm keeping all of you in my meditations and hoping for good news.

    Right now l feel fine and and my aches and pains are normal as I'm not getting any younger so I try to be positive and not let Cancer seize my day. We had two young women as house guests from Germany and they left this morning to continue their road trip accross America. What an adventure, I pictured them driving on the road and chatting away during the ct scan, it worked wonders and was over before I knew it.

    So now I wait along with you,

    Hugs, Kathy

    · Share on FacebookShare on Twitter
  • terrij152
    terrij152 Member Posts: 530
    edited August 2015

    Well, I got good news- my scans are stable!! We're repeating the tumor markers in September and we'll see what happens then. In the mean time I'm staying out on disability until September 20th.

    · Share on FacebookShare on Twitter
  • Aoibheann
    Aoibheann Member Posts: 555
    edited August 2015

    Terri, Great news! That's what we want to hear - 'stable'. delighted for you.

    Annie, Kathy, Andrea, Sandy and everyone else, best of luck and holding hands tightly.

    I had ct yesterday and should be getting results Thurs. I'm feeling sleepy today. What freaked me yesterday was that tech said they were scanning chest, abdomen and neck and I asked about my head as I have mets in my skull. Tech said my head wasn't included in ct request so she wasn't authorised to scan it. After a few phone calls we established that it was an oversight and she did scan it. Yet again you have to be on top of everything - it doesn't inspire confidence in the system though. Now of course I'm thinking is this an omen...

    · Share on FacebookShare on Twitter
  • kt1966
    kt1966 Member Posts: 1,326
    edited August 2015

    Congrats on stable scans Terri!

    Hope you get good results too, Aiobheann, glad you got the scan sorted re head....I hate when stuff like that happens.

    Andrea, Sandy & Kathy - good results for you too, please :)

    I'm having my scan in 4 hours. Want to get to the bottom of increased discomfort & my heart rate being elevated for over a week now. I'm thinking taxol is not working....but we shall see on Monday when I have an assessment and get my results.


    · Share on FacebookShare on Twitter
  • MusicLover
    MusicLover Member Posts: 4,225
    edited August 2015

    Aoibheann, Kathy, Andrea and Sandy, Best wishes to you also on your scans.

    Ronniekay and Terri, Good news.

    I think we are still waiting on a few people to receive results.

    I hope that I haven't missed anyone.

    I had a Pet scan today, I'll let you know when I get the results.

    · Share on FacebookShare on Twitter
  • livingwithit
    livingwithit Member Posts: 39
    edited August 2015

    Hello ladies! So . . nearly 2 years I had my mastectomy, started taking Tamoxifen faithfully and thought I was finished with beast cancer. A few weeks ago I experienced severe and different pain in my left shoulder so I scheduled a check up with my oncologist. She told me she didn't think it was related to the cancer but agreed something was going on and ordered an MRI of the shoulder along with a bone scan. I had these tests on 8/5 and onc called the next morning . . . bone mets in the shoulder and left hip. I had s PET scan yesterday and won't know the results til I see oncologist Friday. I can't stand the waiting. Any suggestions on passing the next few days? Thanks!!

    · Share on FacebookShare on Twitter
  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited August 2015

    Jenny, stay very busy doing things that you really like doing. See a movie, go to a great restaurant, visit with a good, understanding friend and take a long drive to someplace beautiful. Take some deep breaths. I am sorry to learn of the progression to stage iv, but you are in good company on these threads and hope you find support in them

    · Share on FacebookShare on Twitter
  • Max_otto
    Max_otto Member Posts: 150
    edited August 2015

    JennyLee,

    So sorry you are here with mets, however there is a wealth of good info on these boards and lots of caring ladies. I am waiting for results and will know tomorrow, so

    I have been keeping very busy. Friends help, for me music is important as a great emotional absorber, shopping, excersize, anything that distracts from cancer thoughts.

    Although this is my first scan since DX I am pretty calm. I'm know if things are not as I hope I will feel it but I'm not letting Cancer ruin my life. There is hope and good treatments for both of us.

    Hugs ,

    Kathy

    · Share on FacebookShare on Twitter
  • livingwithit
    livingwithit Member Posts: 39
    edited August 2015

    Thanks for the advice .. .it's hard to think logically when my head is filled up with what-ifs. I know it does no good to worry and dwell on it . . .luckily (haha) I have work tomorrow and Friday so that will help.

    · Share on FacebookShare on Twitter
  • livingwithit
    livingwithit Member Posts: 39
    edited August 2015

    Max_Otto,

    I hope you have awesome news tomorrow! And you're so right! Cancer is not going to ruin our lives, we'll deal with it and keep going!

    Thanks for letting me know I'm not alone :)

    JennyLee

    · Share on FacebookShare on Twitter
  • 208sandy
    208sandy Member Posts: 2,610
    edited August 2015

    Terri - great news!

    Aoibheann - don't you just love that you have to watch everything everyone does, it makes me crazy....good thing you're paying attention isn't it?

    Max otto - keeping you in my thoughts for tomorrow.

    Jenny - I think working is the best (wish I still did) - it takes your mind off everything - I also read when I am distressed because I enter another world (might explain why chores are never quite completed.....)

    Hope everyone is having a nice summer evening. S.

    · Share on FacebookShare on Twitter
  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited August 2015

    Happy dancing for you, Terri!!!  Such good news & hoping we hear much more of the same coming up for our other sisters!   Andi..I'm 4 weeks post perjeta & already feel the difference.  Jenny...glad you were monitoring your body, we need to do that!  Aoibheann...good job being advocate!  My hope is all clear!!!  kt, Music, Sandy, Max, Andi...who am I missing...holding you tight while waiting, hoping, hoping XOXO

    · Share on FacebookShare on Twitter

Categories