How to tell my parents, older children, friends etc.
I was told over the phone of my diagnosis right before our family vacation. I don't have details yet. How do I go about telling my parents, older children, friends etc? I don't want my relationships to change. I've only told my husband. My daughter asked him while we were on vacation what was wrong with me. I didn't want to ruin the vacation. Now it seems like I don't want to ruin any day by telling them. I am 48 years old with no health issues, no family history, nothing. This is a shock to me and I know it will be a shock to others as well.. I don't want every conversation to be about cancer. I really don't want my life to change! I'm not scared about the cancer or the treatments as much as I am afraid of hurting the people I love by telling them this news.
Comments
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Hi Justa, I can't speak to your particular situation, but I wanted to tell you to trust your gut. It was so hard for me to tell my parents and husband of my diagnosis, but we are getting through it as a family, and it has made us a stronger, more loving family unit. You can do this and come out the other side. Trust their strength and your own.
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I am sorry that u have to b in our group. Unfortunately your life will change, some u have some control over some u dont. U will know the time is right n what n how u will tell them. U know ur family n friends better than anybody, how much u want them to know is all in ur control. We r here for whatever u want.
WELCOME
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Justamom, I was 49, married with 3 boys (11, 15 and 16) when I was diagnosed. I didn't tell anybody (except my husband) about my diagnosis for weeks. I waited until school and finals were over. I also waited because I didn't have enough information to share. It was easier once I knew the details of the biopsy report and had a treatment plan in place. Once we told our kids and my Dad, I let my husband field the phone calls. I was having a hard enough time wrapping my head around my diagnosis, let alone having to talk to everyone about it.
You get to decide who to tell, how much to tell them, and when to tell them. Some people tell everyone; others tell only a few people. You know what is best for you.
I have a group of about 12 very close women friends. We have all know each other for about 16 years; our kids all know each other. With this group, I sent an email message. I didn't want to talk about it 12 times and wanted to tell them all at the same time. I explained this to them in the message and they understood why I told them this way.
With my kids, I let them know I would always tell them the truth and would answer any of their questions to the best of my ability. I let them know that there would be things I wouldn't know. I also told them they could talk to me any time they wanted to and that they could tell any of their friends or teachers. I cautioned them that some kids don't want everyone to know because they might want to be treated normally, not as the kid whose mom has cancer.
Blondie is a wise and helpful woman. She has excellent advice for you. Your life will change and it will not be the same again. It can be good and fulfilling though. It will take time. Blondie is a wonderful friend and source of support to me. She will be the same to you, too.
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Hi, I am single and live alone. I told only my sister and best friend. I was able to hide it from everyone else.
I can very much identify with how you feel.
As others have said, it is your choice to decide the timing of whom you will tell, if anyone. Just be aware that people whom you tell may pass on the information.
Keep visiting here. It is a wonderful source of support and information.
Best wishes for your treatment.
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Everyone is different, only you can decide who to tell and how to tell them. I'm a single parent of three teens (two of my own and one I took in a few years ago). I'm also a very open and, I've been told, unemotional person. I just told them straight-out. They were stressed out and worried at first, but seeing that I was calm and not freaking out helped them. My mom was very upset at first, but I had my sister talk to her about results of tests and scheduling of procedures, which helped (I think). I told all of my close friends one at a time, too. I just gave each of them the facts. I'm a big believer in keeping calm and just dealing with one thing at a time. Good luck to you!
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Justamom, I did a lot of what PoppyK did. One thing that helped was not to feel I needed to tell everyone at once. I told my sisters before I told my mom--that was the hardest one. I did wait to tell nearly everyone until I'd had all the tests and had a treatment program in place.
The needy people in your life will be needy in the way that they respond, even if they think they are helping you. I also told a group of close mom friends via email, and that was helpful, because they could respond after absorbing the news. I have to say they have been great. I also realized that not everyone in my life needs to know, i.e. people I don't see often. I also didn't want every conversation to be about this. Work: I've told almost no-one, and as long as I stay healthy I plan to keep it that way. My son is 15, and I'm completely straightforward with him. I found that some of the hardest people to tell were the ones whose lives had been significantly touched by cancer, but in some cases they were the ones who got it. For instance, a dear friend lost her mother 30 years ago to cancer, but she knew how treatments have changed since then and was very understanding. The first conversation is hard, but if you give people cues, they're grateful. For instance, if I'm feeling yucky, I'll say so, but if I'd rather talk about something else (Donald Trump, teenage children, whatever), people are usually happy to oblige.
A word about husband: he's been great, but I think the hardest thing for him is when I want to be off by myself to think about things. That's hard on him. (Yes indeed, I am an introvert.)
Hope this helps! Good luck; you don't need to figure it out all at once.
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Thanks everyone for your kind words and advice. As I get more details this week and a treatment plan I'll hope that I will feel more comfortable sharing with those closest to me.
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Justamom: thank you for asking. I've been wrestling with that same question, though thankfully not just before a large family gathering. But waiting until you have a treatment plan in place, however tenuous, before telling most people makes sense to me.
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Wait as long as you like. This is about your needs. Do what feels right for you.
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on the flip side, I felt that thinking about it all the time but not saying anything was using up my energy. I told a number of people at work, and, since I took a long leave (6 months), it was news that was out there. I set up a caring bridge website, which I feel is more private than Facebook, and have actually enjoyed the blogging for the website. Overall, I have gotten an amazing amount of support from the people at work and other friends, a tremendous gift that is humbling and helpful. I feel so much less alone and wrapped in a bubble of love and support, something I did not anticipate.
My family has been a little more standoffish? and I am glad to have support from other places. I think this is partly because I had a positive BRCA1 result, without any apparent family history, and now my close family are having to deal with this in a very direct way as they decide for themselves whether to test, etc.
Like Racy said, do what feels right, the rest falls into place
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Ah--that's something else. I kept this entirely off Facebook. Too many people whom I know only casually--or professionally. I specifically asked everyone I know to not ever, ever post anything about this on FB.
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I've know about my diagnosis since memorial day weekend. My mother's very close sister got sick at the same time. I've been holding back telling her until my aunt was better. I was dreading telling her. I did this morning. She was shocked at first but as we talked for a couple of hours she is now in super care mode. The relief I feel is tremendous!!
My kids, teenagers, I told once I knew I was going in for surgery. I kept it hidden ror about 5-6 weeks. They have been pretty good but are still wrapped up in their own worlds like teenagers can be. They are not as familiar with the scariness of a cancer diagnosis as say my mom who is old school and it used to be a death sentence for. A few of my kids friends mother's have it. It seems so friggin' common these days.
My closest friends I told right away because they have some experience with it. They have been super supportive.
My boyfriend, he has been my rock from day one. He came into my life 3 years ago and has been a gift for me thru this.
Work is a whole different story. I work at a big resort with a lot of employees and gossip runs rampit. I only told 3 people my diagnosis, my boss, his boss, and the director of HR. I asked them I didn't want my diagnosis public for now. I've been out from the surgery for 3 weeks so far and will prob take another 2. I really don't know what I'm going to say once I get back. I can imagine the speculations that are going around. I don't really want everyone to know. I don't want questions and pity looks. I don't think I will be able to hide it though. I mean everyone knows my hair...even a wig will be so obvious.
Well I hope I didn't babble on too much but I know I like reading others experiences.
My main point is that that telling people close to me was hard, keeping it "a secret" was harder, but such a relief once I finally got it out!! A big relief and once the initial shock wears off, in my case anyway, the support feels so comforting.
Good luck to you and sorry for your pain.
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Mira, I'm sure it was a relief for you. I'm glad your friends and family are giving you their support in ways that are helpful to you. I think you are wise in how you handled your work situation. Teens are a different breed! Very much wrapped up in their own lives. One of my boys had a rough time with the BC situation. He was a senior in high school, pulling away from our family and preparing to go to college. It created a lot of turmoil for him. He was testing his limits, pulling away from us, but unable to handle my cancer and the possibility that he might lose me sooner than he had planned. So unexpected for my DH and I.
Oh, and prepare for people to say really stupid things: stories of other BC patients, asking if the docs got it all, did you lose your breast, did all of your hair fall out..... and so on.
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Justamom,
About the hair issue, I've done chemo twice 25 yrs apart first time without cold caps, this last time I still have my shoulder length hair, the only people who knew I was going through chemo were people I told. My MO at. UCSF suggested I do that, there are great forums and rooms on this site expressly for those considering cold capping and offering advice. If your MO says it's okay for you I highly recommend it and there are many here who can tell you all about it.
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This has turned into the actual discussion board that I was searching for when I was diagnosed thanks to all of your responses. We told our kids first and they took it really well. For those of you with teenage sons, you will appreciate this. My son is 18 and we are moving him into college next weekend. The first question he asked me was, "So, what's going to get you in the end?" I told him it would not be this breast cancer. I could still get hit by a bus tomorrow or something else health wise. He seems to accept that answer but it was interesting to see where his brain went. My daughter is 24 and has already come over one night to cook us dinner. My parents are out of town so I had to tell them over the phone. They appreciate when I send them detailed emails about my procedures and such. My mother-in-law responded well also but she doesn't understand everything that is going on.
So, bottom line, once I shared my news, it was a great relief. Don't wait too long because that stress does not help with your healing. You have to focus on your healing now, it is very important! Everything else is a distraction and will cause stress which will slow the process. Prayers for everyone here on this journey. One step at a time, together.
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