Having a scan? Waiting on results? The waiting room is open!

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited July 2015

    Praying with you Diana! Hope this procedure will not be too harsh on you.

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  • steelrose
    steelrose Member Posts: 3,798
    edited July 2015

    Bosco, Diana, and all those waiting on results… wishing the best for all of you!!

    Diana… the spinal tap shouldn't be at all painful. I had one on my T spine, and it was much, much easier than I imagined. I do have a very active imagination:( Everything is crossed for you today. Onward!

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited July 2015
    Diana,
    I'll be thinking of you this morning and hoping for clear spinal fluid.
    Caryn
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  • Rseman
    Rseman Member Posts: 281
    edited July 2015

    Good Luck Diana! I'll be thinking about you. Renee

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  • Bosco19
    Bosco19 Member Posts: 221
    edited July 2015

    thanks for the good wishes. Bone marrow preliminary results were clear. Full results next week. So good news but still no explanation as to why the count drops every cycle. Onc has given me permission to go on holiday in two weeks though - and today's my wedding anniversary so it's going to be a good day.

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited July 2015
    Bosco,
    Happy anniversary and enjoy your holiday. You may not have an explanation, but at least you have a little peace of mind. Enjoy!
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  • jobur
    jobur Member Posts: 726
    edited July 2015

    Diana, all appendages crossed for a painless procedure and negative results!

    Pam, My last PET was kind of like yours, a couple of new spots and increased SUV in a couple others. I panicked and changed my Tx. Still don't know if it was the right move or not, have definitely had more pain since switching to Faslodex. Will find out next week as it is scan time again.

    Regarding SUV, the spot that increased for me went from 6 something to 10, so I'm thinking 2-3 is low, 4-6 medium, and anything more is oh shit. Don't really know, just a SWAG from my very limited personal experience. Also, was interested to hear you don't do TMs as they were normal when tested. My BCA15.3 has always been in the normal range. CEA is elevated, but has never varied much.

    Anyone else with normal TMs and active disease?

    Bosco, congrats on the bone marrow results and wishing you a very happy anniversary!

    Linda, when is your brain mri? I had one early on and getting those negative results was such a huge relief. I think/hope/pray yours will be as well.

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited July 2015

    Bosco - congrats!

    Jobur - Thank you. I see my Onc on 23 July and will ask her then. It may take a while to get an MRI here in Quebec. We'll see - I'm not too worried because of my history of migraines. My breast TM at time of dx was 21 (within normal range), CEA was slightly elevated but nothing to write home about. My breast TM is now 7, lowest ever. Go figure!


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  • sueopp
    sueopp Member Posts: 1,541
    edited July 2015

    Hanging in there with you Diana, and sending lots of good karma your way. You too Linda. SUE

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  • Tina2
    Tina2 Member Posts: 2,943
    edited July 2015

    Diana, how did it go?

    Tina


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  • diana50
    diana50 Member Posts: 2,134
    edited July 2015

    thank you people regarding spinal tap

    The procedure was fairly easy; initial poke to initiate local hurt a little. Laying on my stomach with face planted (like breast MRI) was a little weird. Lol. The doc that did the procedure has done 4 procedures in last year so we are buds. I call him dr magic fingers b/c I trust him so much

    Headache but the key is to lay down after procedure. Now I just wait for pathology to do their thing. After last brain mri still praying just b9 4 cm mennigoma. Chemo july 20. All I want to do is just my chemo. Lol. Sick of biopsies and procedures for crying out loud 👀

    Thanks for good wishes and only best to all having scans and procedures. We sure go through a lot don't we??😎

    ️Hugs

    Dian


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  • txmom
    txmom Member Posts: 306
    edited July 2015

    I love this thread! Praying for good scans for everyone. Dana

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  • pajim
    pajim Member Posts: 2,785
    edited July 2015

    Diana, I hope it all comes out just the way you want it, or maybe even better. . .glad the tap wasn't hard.

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  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited July 2015

    Pam...thinking of you & hoping for clarity re:bones & rads.  Bosco..Happy Anniversary & tons more :-).  And Diana...zowie...when you say looking forward to just chemo, we know you've been through too much!  Prayers & hope to allllllll :-)

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  • diana50
    diana50 Member Posts: 2,134
    edited July 2015

    Spinal tap. Won't ever have another one. Ever. Headache continues for 4 days. Will get results Tuesday. Lxempra tomorrow. Going to be a long week. 💉👀👀😖😖 Hope the steriod I get ️️tomorrow with chemo helps the headache. The only result on the tap is "it better be good". Ha. I just hate all this stuff we do. Scans, procedures, ports, complications. Strong we are. 👍👊. Best to all. Good news only on scans and such.

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  • Tina2
    Tina2 Member Posts: 2,943
    edited July 2015

    So sorry, Diana. Headaches are the pits. I can't imagine having one for four days.

    Hoping you get relief pronto,

    Tina


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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited July 2015

    Diana,

    I have an amusing story about spinal taps (if such a thing is even possible). When I was in the Peace Corps, in 1978, I woke up one day with an unimaginably painful headache. I'm a bit fuzzy on exactly what happened, but I ended up in the USAID dispensary, the closest thing there was to a Western hospital in country. I can't even find words to describe how excruciating that headache was. They pumped me full of some kind of drugs that left me conscious but very, very loopy. I'm they told me they were going to do a spinal tap but (I am told) that I giggled incessantly and kept asking them to cut my head off. I do remember that I had to lay flat for a long period of time and I had more pain meds. But after the tap, my headache was gone. Turns out I had meningitis and my head was not cut off 😊

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  • steelrose
    steelrose Member Posts: 3,798
    edited July 2015

    Diana, ugh. So sorry about that hideous headache. I was in the hospital when I had my tap, and they had me lay still on my back for hours. Complete with a bed pan! I was miserable but no headache. Feel better soon, and I hope those results are clean and clear.

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  • MusicLover
    MusicLover Member Posts: 4,225
    edited July 2015

    Caryn, Meningitis in a foreign country, ugh.

    I got tm's back and they went down to 26, yeah! They seem to be staying in the "normal" range but last month they went up to 32 and I started getting nervous but didn't want to cry wolf quite yet, good thing. This was a relief to find out. I have a scan coming in August so I will let you all know my results when I get them.

    For everyone waiting on results, I pray they will be good. I think this includes Bosco (& happy belated anniversary), Jobur and Linda and congrats again Diana, Modum and Hansaim.

    Pajim, I finally got back to this thread, sorry about the delay. You have increases but MO would say wait before any changes are made. Is that what is happening, waiting? I pray that cancer starts dying again.

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited July 2015

    Congrats on your TMs ML!

    Praying for good results to all

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  • nancyh
    nancyh Member Posts: 2,644
    edited July 2015

    Hey gals, I had a scan today, hoping for good news, but worried things are headed in the wrong direction. I've had a lot of aches and pains in my right upper quadrant and right shoulder recently. Fingers crossed the pain is chemo melting away those tumors, but my gut feeling is things are heating up.

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  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited July 2015

    Nancy...will be hoping & praying scans show nada...excepting those melting tumors!  And I wanted to add my congrats, with a joyful heart, that you had a great 1/2 marathon.  Your picture was truly beautiful...what a family :-)

    Music...so happy for your TM's looking great!  

    Sending good vibes for all!

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited July 2015

    MusicLover and nancy, hoping for all good results with the scans.

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  • MusicLover
    MusicLover Member Posts: 4,225
    edited July 2015

    Thank you.

    Nancy, Good luck.

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited July 2015

    Nancy,

    Hoping things have not gone south and I love the imagery of chemo melting the tumor away.

    Caryn

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  • terrij152
    terrij152 Member Posts: 530
    edited July 2015

    I was diagnosed with mets to my lung and hip in March of this year. All other tests were clean- brain, liver, pelvis etc. I've been having more headaches and I feel like I'm mixing up my words occasionally, a couple times a day at the most. My husband says I'm worrying too much but when I called my oncologist he ordered an MRI of my brain which i'm having tomorrow. I'm hoping it's just stress and not brain mets. I'm so anxious about it I can barely focus on anything right now!

    UGH, I hate this...

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  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited July 2015

    I'm glad your onc scheduled your MRI...and fast...so you can have some peace!  Getting a mets dx rocks your world...and it's still very fresh, being dx just months ago.  I am a liver metster, but there have been times I've worried about my brain....eyesight changing drastically, not finding words to say, feeling confused, etc.  My onc has never relented when I've requested a brain scan (none since dx 2012).  He says there would be other signs.  For me, it's pretty much become clear that vision change was Navelbine, chemo brain is real & anxiety/stress can do a lot to your mental state...thanks cancer!!!  Hoping/praying your brain is trying to figure out how to kill lung & hip cancer cells!!!  

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  • txmom
    txmom Member Posts: 306
    edited July 2015

    I am newly dx as well and have had the same fears, any headache, any brain twinge ect. My MO has not scheduled a brain scan or MRI. Like Ronnie said, my MO said, there would be other signs like severe headache with vomiting, seizures, double vision, lack of balance. This is all so stressful that I've decided that everyday I wake up is a good day. Let's us know how it goes tomorrow.

    Dana


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  • terrij152
    terrij152 Member Posts: 530
    edited July 2015

    Thanks for your reassurance ladies! I will keep you posted!!

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited July 2015

    Terri, hang in there. Do anything frivolous today that you can to keep your mind occupied. It's normal to not be able to think of anything else but the MRI. I am hopeful youll get clean results. You are still new to the stage iv diagnosis, so it's possible the stress of it all is catching up to you, causing the jumbled words, and headaches can be caused by many many things. Best wishes. Ask to get MRI results asap, ask at the MRI place and call your onc and remind them after your scan that you are waiting for results.
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