Tamoxofin - who has taken or still taking..

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Woods
Woods Member Posts: 17
edited August 2015 in Stage I Breast Cancer

Hi stage 1 breast cancer mixed. Have had lumpectomy and margins are positve so surgeon will be taking one more centimeter out of breast. He said then radiation. Then tamoxofin for 5 years??? I have heard horrible things about this drug. Can someone share how this drug affected them? Or has anybody chosen to NOT take any drugs after radiation? Thank you!

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  • Captroynsteph1
    Captroynsteph1 Member Posts: 13
    edited July 2015

    I have been taking since January with no major side effects to speak of. Everyone reacts differently, but I take in the evening and aside from a little temperature regulation issue--nothing! I hope you have the same experience!!

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  • 123JustMe
    123JustMe Member Posts: 385
    edited July 2015

    Thank you Captroynsteph1!
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  • Warrior_Woman
    Warrior_Woman Member Posts: 1,274
    edited July 2015

    Woods - I'm taking it and grateful for the risk reduction. I have no side effects. Remember that those who do are far more likely to post on threads as they look for help and support.

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  • grammakathy
    grammakathy Member Posts: 407
    edited July 2015

    I have been taking it since December and have had only slight heat flushes. I am grateful for this drug that suspends the estrogen so it can't feed stray cancer cells. Best wishes for an easy time.

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  • Bellis
    Bellis Member Posts: 18
    edited July 2015


    I have been taking it for 3 years now and hot flushes are the major side effect. It hasn't really changed but you get used to it. I am also very grateful for the risk reduction. Think about all these cancers where you have no possiblity for risk reduction- Best wishes :)

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  • lizbr98
    lizbr98 Member Posts: 1
    edited July 2015

    Hi Woods, I was Very worried upon hearing that I would bet taking Tamoxifen for 10 years after radiation. I had heard horror stories about it! I am happy to say I have had no side effects and have since learned of many other women with almost no side effects. Hope you will have the same outcome :-)

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  • ALittleBitBritish
    ALittleBitBritish Member Posts: 627
    edited July 2015

    Been on tamoxifen since 2011, hot flashes for a month or two then fine, 10 years is my plan and my oncotype test result score for reoccurrence is based upon taking tamoxifen.

    As I didn't have chemo I feel this is my only line of defense. Hope that helps!

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  • KMSMason
    KMSMason Member Posts: 1
    edited July 2015

    Took Tamoxifen for a year after double mastectomy and chemo. I have recently just stopped taking it. The side effects have been awful and I just thought I would stop.

    I have read different thoughts on that. Any suggestions or thoughts on stopping.

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  • Moderators
    Moderators Member Posts: 25,912
    edited July 2015

    KMS-

    Most doctors suggest taking tamoxifen for 5 years, to decrease your chances of recurrence. Did you discuss stopping with your doctor? You might want to head over Hormonal Therapy forums, there's lots of information there: https://community.breastcancer.org/forum/78.

    The Mods

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  • Lmcqueen
    Lmcqueen Member Posts: 21
    edited August 2015

    I am taking it and haven't had any problems other than it messes with my sleep and gives me hot flashes.

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