INSOMNIACS place to talk in the wee hours

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited July 2015

    Loverly.. I would have thought I would have at least 3 days of relief.. I don't know. I asked about spironolactone and lasix.. onc said no. Actually I have some lasix and have been taking it. I have been having gut pain diffuse for several weeks now, so this has nothing to do with the tap yesterday. Initially I thought I had gastritis or a blockage or chronic constipation.. no none of that. Mets to omentum which explains the tenderness and pain. So I just wait another week... before any new intervention or news feeling crappy. Nothing is ever done quickly in cancerland.

    Although I asked for the tap and got that in 3 days.. pretty quick. If they had waited much longer I would have had to go to the ER. I was pretty disgusted to get into ultrasound and find my oncologist had ordered nothing on the fluid removed. He ordered the Paracentesis but No labs, no cytology/ pathology orders on the fluid removed for for even a difinitive dignosis of malignant ascites, any cancer cells in this huge belly full of fluid? You are just going to throw it away in the biohazard waste can utterly un-investigated? REALLY??? I was majorly bent out out of shape. I told the tech to get on the phone and get some orders. I never get what other patients get. I am curious what's in it. The fluid was the color of dark beer. I mean if it's going to kill you, might as well find out what characteristics the little buggers have.

    When I was first diagnosed my core biopsy came back IDC. Which I didn't have because the idiots didn't use the stain to differentiate it. I found that out after talking to another MD at another pathology lab, who explained I had ILC period. Then my Oncologist (different one fired), surgeon, radiologists, OB -no one orders the markers for the core biopsy ER,PR HER2, how aggressive it is etc..,. So I called 10 days after, while waiting for surgery and asked the lab to run them please so we know some of the characteristics of the cancer. THE PATIENT CALLS...none of her doctors could be bothered. I should never revisit the past... not happy.

    On that note Happy July 4th and be well. Hugs!

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited July 2015

    WTH?!?!?! Why are they in the career they are in??? What if it was their parent, sibling, spouse ,or God forbid their child, would they act the same? Are they forgetting that they are dealing with a HUMAN BEING ?? Goodness grief!!! Terrible,just terrible and very unfair that you have to endure all this. They should work in a different industry. How could they sleep at night?? I need to go chill in the shower. Hugs. I am sorry I am upsetting you. Ok going to the forest

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited July 2015

    Rose,

    It all sucks.....I am so sorry you have gotten the shaft on decent medical professionals. Wish things were different.

    Big cyber hugs, my friend.....



  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited July 2015

    Patty- that is one of the worst things I have ever read about cyber bullying. I think the parents do need to know. It is hard enough what you and your family are going through, it needs to stop. I would call the police too if there are any laws against cyberbullying in your state Sometimes a well placed visit from the cops is a nice reminder to cut the crap.

    http://nobullying.com/is-cyberbullying-a-crime/

    Rose- I am sorry the fluid is coming back. I hope you are able to feel well enough to enjoy your company this weekend. Sweet corn sounds yummy.

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited July 2015

    Yes, you gals are all right... Peppermint, I would talk to the principal, and find out the kids parents number! They just can't do this... period. We can understand how it makes the kids feel, when someone thinks they have the upper-hand, and can "control" other people. And it just plain hurts.

    I remember one time when I was about 10, a little neighbor told me "Why are you so ugly?" And I remember going home and crying... don't know if I ever told my parents... but it hurt me to the core... But I showed HER, that little Witch! Ha! Maybe that's why I learned to do everything I could to feel "pretty"....

    And ROSIE'S biopsy turned out just FINE! But she has to go in every 6 months, to watch this "what-ever."..... She called, and was sooooo happy!

    Our Refrigerator came! WHAT A JOB! Just trying to put stuff back, into a smaller one....! So that means the Chickens will have lots of fruit, and veggies that were frozen for the next couple days. Chicken people are gone, so we are feeding the Cat and Chickens. But today it is still working! I think I will order the 3 year service plan? It's only $129... and might be worth it.

    Our old one went out in those 3 years! If a new one goes out, you have to take it YOURSELF to be serviced! I could put it on a two-wheeler and take it across town for service... ! Unbelievable.

    I just hated what July 4th meant to all of our pets! I went out in the alley one time...(Yes, I know you can believe this) and told those damn kids that "You guys your fire-works are scaring my dog 1/2 to death!" And they said I'm sorry, and they quit! This was on about July 8th! You should call the Police! There ARE laws that they can't shoot off those really loud ones!

    Also Janie came over, and together we worked out in the front of our house, to pull the weeds, trim the crazy vines along our fence, and just clean it up out there! WHAT A JOB!!! But it was fun working with her.... Then DH came out and helped us throw it all on the banks of the ditch... The ditch mulches down everything, I think because of all the shade from the trees, and the winters here. I'll finish it today.... we were lucky with the weather yesterday... Not so hot, and THEN all the shade.

    Okay, I'm done... going to get my coffee now...

    SPOOKERS! You are a BAD girl! Hah! "Nurse Ratchet"..... HhhhhhhhhhaaaaaaaaaahHah! Sass, you KNOW she is just kidding!

    (no, she really meant it.......) I can tell.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited July 2015

    Chevy- glad to hear that your friend's biospy was negative. Hopefully there will be nothing there for the longer term either. Whew!

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited July 2015

    I know! Thanks.....!

    So DH made the back storm door open wider for the fridge.... BUT instead of getting the pin out of the bottom door thing, to let it open, he un-screwed it from the door jam, then it twisted and bent!.... Not to mention the screws were stripped....

    So he was trying to put it back on, with one screw left in, only he had that piece vertical instead of parallel.... So we were having a HELL of a time, trying to make it work.... I realized it before any more screws stripped from that damn drill-driver, and we figured out how to get the pin out...... oh never mind.... We worked TOGETHER to get it fixed the right way! That is the BEST part!!!! We were up and down a thousand times, trying to get that thing to go in right, and screw in the screws without that jet engine powered drill that would strip a screw the size of a HOUSE!

    We did it together..... I am so happy! We CAN work together! Hah!

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited July 2015

    Good morning lovely and beautiful ladies!

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited July 2015

    Hooray for the favorable result for your Rosie, Ms. Chevy!

    Yes, get the warranty! Maybe a 5-year one if not much pricedifferent from the 3-year. They don't make things the way they used to. I sound like I have lived forever haha. 46+ years.

    Going for a walk. It is lovely outside

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited July 2015

    Chevy- I had a water filter housing bust on my fridge last summer (thank god I was home or it could have flooded the house), and my repair person (a woman) told me the newer fridges because of all their energy efficient features don't last as long. She said you used to be able to get 15-20 years out of a fridge (mine 11 years plus and has a few more good years so she says), but she said the newer ones only last like 7 years. I was shocked, they are WICKED expensive to be so disposable. I always get some sort of warranty on my appliances just in case they are defective beyond the 1 year standard.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited July 2015

    Same goes for washers. Ours about 3 years old. Sometimes it won't do the final spin properly. Had repair guy come. He said to unplug it, wait a minute, re plug. Then slam the lid 6 times!!!!!! It works, but I know it's going to crap out soon.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited July 2015

    And the same for cars!!!! My car has been attacked by computer eating bugs. We'd I started it, the passenger air bag display said it was ON and OFF nothing on the seat. Should be off then. Yesterday, the date, time, temp display wasn't on. Then all hell broke loose when I got out of grocery.

    Turned the key, it started, and: the traction control light came on, the 4 ways started, the a/c recirculator went off, the windshield wipers came on. Me thinks the computer has gone kaput. It has an apptwith the dealer Mon morning.

  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited July 2015

    Good morning ladies. Thanks for all the suggestions re ds1 text. I am talked to ds1 more about it. He really really doesn't want me to call the boys parents. I don't want to break his trust and I want him to continue to feel comfortable to come to me about anything. I don't want him not telling me next time for fear of what I might do. Dh at first was going to the parents but now he had changed his mind. Telling me to cut the apron strings. I really don't think the school would be allowed to give me the parents number. Ds1 said he has repeatly tried to call the boy but he won't answer. I could call from my phone where he doesn't know the number. Maybe a police visit would scare him good but again dont even know the parents name. Hopefully the school can st least tell me that. I went back thru emails from during school. Was hoping to get moms name or email. Apparently she must not have ever volunteered help at school because I know all the names on the email list. Hmmm. Oh well will have to wait til monday to call school. OK enough about that. We are hanging home and having friends over tomorrow. Gonna swim, grill and maybe have a couple beers and ofcourse DSS have enough fire works to entertain us all night. Its supposed to brain on and off all weekend. Hoping the lightening stays away and we will be fine.

    Loverly. - love the pics. So relaxing and peaceful. Thanks.

    SAS. - hugs

    Blondie - do you remember that song " the final countdown "? So is it 5 days now?

    Jazzy - ouch 3dmovies always give me a headache. Glad you enjoyed it. I sgree , wish I was going to Fl to meet them also. If I won the lottery one thing I would do is plan and pay for us all to get together. Maybe somewhere tropical with s little umbrella drink. Doesn't that sound awesome?

    Spookie - lol. Slam the lid 6 times. Too funny. Not5 not 7, but 6 times . how did they ever figure that it ?

    Rosie - the Dr Sounds like a complete idiot. Was hoping for much longer relief for you.

    Chevy ,- yea, glad to hear Rosie's biopsy results. I had read in consumer reports that the extended service plan is never a good idea. Not sure if that is true .

    What's everybody doing for the holiday?

    Hugs all around esp those I missed

    Hootie hoo

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited July 2015

    I always heard the extended warranties weren't good either. But I bought it for my first Saturn. Had a bunch of trouble with it, warrenty took care of ALL of it. Current car has it too, but has 14k on it.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited July 2015

    Spookie- I bought an extended warranty on my Subaru and already had one thing that needed replacement. Subaru's have a relatively low mileage warranty (35K), where as most cars have at least 50. So I spent the money right around the time the car was hitting 3 years (before 35K). I know many warranties are sold as money makers, many times they don't cover stuff.

    I hope your washer last a bit longer. Mine also had a motor burn out last summer right after the fridge problem, and expect that will need to be replaced in the not to distance future. I found a great appliance repair person in the process of all that too (woman owned, gotta love a gal that can wrangle appliances!)

    Patty- there are women on these threads whom do see one another regularly, and once a year in a group thing. There is an exercise group here that just met up out in Cali. I think the FL friends here have organized things too.

    Also, I understand your need to just detach from that family. Sometimes the better thing to do is to just let go of those people and create space. You can probably have the cell phone company block anything from that number to make sure your son is not subjected to that meanness again. People are very unpredictable, from the kids to the parents. I have had people get "in my face" with their stuff and had to create strict boundaries in the past. If I feel any personal safety issues, I will call the police.

    I have been harassed by up to 3 men in the past (a co-worker, an old boyfriend, and a weird guy from junior high) and told each of them "cut the $*&%#@ or I am calling the police." Two went away, the other I did have to call the cops on and then told him unless he wanted a visit from his local police, to stop contacting me. No one wants a visit from the cops or worse, a restraining order.

    I hope this problem goes away for you and you can enjoy time with family this holiday weekend.

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited July 2015

    Oh Patty, your poor boy. Wish we can go there and gibbs slap some sense into that little brute. Something must be going on in his home. Jazzy has a good point about blocking the calls. You can actually do it on the iPhone( if he has an iPhone, not sure about other smart phone) without contacting the carrier. Go to contacts and scroll to the bottom and activate "block this caller". I am assuming the bully called DS1 on his(DS1's) mobile phone. I don't think the school can do much to intervene since it didn't happen during school time.

    Jazzy, 3 stalkers??? How annoying and scary.

    We have not regretted buying warranties for our cars or major appliances. They don't make things like before.


  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited July 2015

    potential stalker to avoid

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited July 2015

    Ms. Spookie and Ms.Chevy,have you been driving like they did in the commercial???image

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited July 2015
  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited July 2015

    Loveroflife- yes, three stalkers. Once I dealt with the first, I knew exactly how to deal with the rest. Harassment and scaring a person is not a way to make anyone want to spend time with you.

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited July 2015

    Loverly! Little honey, you are only "46"?????? I have shoes older than that.... My DAUGHTERS are older than that.... I just odered the 3 year warranty online through Sears! I know they will suggest I renew it.... And if I wasn't a thousand years old, I probably would.... Ha!

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2015


    Patty, just saw your post up top. Maybe talking and showing your son the law. So, he understands they're is a recource.

    Arkansa cyberbulling discussion of Arkansas law.

    http://www.criminaldefenselawyer.com/resources/cyberbullying-laws-arkansas.htm

    The actual statute

    http://law.justia.com/codes/arkansas/2012/title-5/subtitle-6/chapter-71/subchapter-2/section-5-71-217

    I had to mull over what I would suggest. If you decide to act--Follow the law. This will protect you I think from any flashback. People react differently when you say the" Law says blah blah and this should be handled this way b/c the law says blah, blah". You and son are protected by a law passed by the elected representatives of Arkansas.

     

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited July 2015

    And how come is it everyone gets a stalker except ME? And no that was NOT me Loverly! BAD girl! Ha!

    Wait, Janie had a stalker once.... could NOT get rid of him, and it was my Cousin's SON!!! All these scary, threatening calls, and waiting for her after work....! She answered him once, and told him she would call the Police if he didn't leave her alone.... We just looked his picture up on FB! He STILL looks scary!

    Took the 1942 High School year-book to Theresa.... She was just THRILLED! The home told her they would give her this "reader on a stand".... On Sunday.... Someone left it, and told them to give it to a good home.... So that will help her go through her book! This other gal came in her room.... Found out, her Daughter ran around with Janie! But her Dementia makes it kind of hard to talk to her.... Theresa just calmly tells her "No Betty, we can't go down to eat yet.... and go put some shoes on!" Over and over.... She said "No, I don't want to!"

    But then an aid came to get her because her Daughter was coming to take her to Red Lobster for dinner! And she HAD to go put shoes on! Ha! I think you would have to have the patience of Job to always be around a Dementia patient..... who was Job anyway? I mean you would have to love them to pieces, like Glen Campbell's wife.....

    Oh never-mind.... I just looked it up.... This JOB had NO patience, anyway!

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2015


    I had two stalkers here. I had to send the Florida stalking law to the Mods to get it taken care of. It worked.

  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited July 2015

    I LOVE extended warranties on cars, saved my butt on many occassions! We had the entire transmission go out on our minivan and it was totally covered. sweet. We buy the warranty always. My DH decided to lease his car as we got a super deal through Honda. He's happy. The only thing I don't like about his civic is it's hard to get in and out of it, it's so low. Hurts my hips. Of course with all my mets.. everything hurts my hips.

    Jazzy when I was a thin cute 18 year old, I had a boyfriend who used to meet me at work. I was charmed, at first. I was very good friends with his sister. So as things progressed, he kept showing up where ever I was. It was a little unnerving. Then one day I was running late to work and drove into my space, stopped and had my ear rings in my lap. I took the ear rings and went to look in the rear view mirror to put them on. I could see Paul's face! It was like being stalked in a scary movie.(He said he saw me and just pulled in behind my car to say hi!) I flew out out of my car and yelled "stop follow me everywhere. It's creepy!" I told him not to be there when I got out of work or I would run him over! Sure enough he was there when I got out of work! He tried to stand in front of my car so I couldn't leave. I told him to move or he'd be flattened! He followed me home that night, because I could see his car from my bedroom window. That did it for me.. being followed, showing up where ever you were, watched - was no way to show affection. Scared me to pieces! Our relationship was kaput after that. I refused to talk to him.

    I have told my girls highly possessive people and ones that have to know where you are every minute of the day are cracker cases and stay clear. We had a nurse whose DH would call the floor and demand to put his wife on the line! He would show up just to make sure she was where she said she was. This nurse and I were pregnant at the same time, each of us had daughters. I got to know her and she was so sweet and crazy about her kids. The issue was she was social and her possessive hispanic husband was not. He shot her in the back and then killed himself. No one who worked with her was surprised. Pitiful to leave her 2 kids behind. Pretty tough to get away from someone like that because he clearly considered his wife his possession! scary.

    Patty you are too generous 40$ worth of fire works each! My kids would be in hog heaven. With the drought being so severe and the fire hazzard so high, I am surprised that there are sales of fireworks here. Big risk. The entire place could go whooosh like a tiki torch! Have fun. I loved sparklers as a kid.

  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited July 2015

    Rosie - SMDH at your docs past and present. It's not exactly like you live in the backwoods of medical care or ?is it? Wishing you'd gotten more relief from the tap. Did you get some path done on the fluid finally?

    Good grief Patty. What a load of crapola about DS. Thank goodness he's got the smarts to not believe everything. Next kid might not be so lucky. I don't think DD would have let me call parents either unless I had known them really well which for sure you don't. And those are not usually the ones to do s**t like this, usually a fringe acquaintance. I would bet counselors are still around school some but not sure what they can do since it didn't happen at school. Just playing devil's advocate here. But give it a try. Kid not answering DS because he knows he's done something stupid. Even with my ancient bar phone I can send selected calls to voicemail without ever receiving them. I know for sure I did it with the Samsung smartphone I had for work. Never even knew they called.

    Loverly - I would love to go to the stream place picture, but remember to bring the mosquito spray lol.

    Chevster - Yay for your Rosie's biopsy.

    Well next thing to go in our house was DH's old truck. Just as I was leaving yesterday to deliver meal to church family he called. Truck wouldn't restart at beer stop. So I deliver meal and go get him. Sounds like it wants to start but not quite. So we leave it a couple of hours and try again. Nope. He calls AT&T where we keep roadside assistance. Yup they can send tow truck in 2 hours, already dark. Call again this am and truck towed to house. Cost zero. We've never used the service so they have made $ on us thru the years. He was ready to donate it last night but today thinks will try replacing the fuel filter. At least it's now in our yard.

    Spookie - I sure hope the computer has not frazzled itself. Oh my. You said it had 14,000 miles on it. Maybe talk dealer into free tow. Is it still under original warranty or are you now in the extended part due to age of car? Rental car!!

    Your cartoons Loverly remind me of something on the news. Smash/grab ATM robbery yesterday, took an ATM that was out of cash haha.

    The only stalker I had was Ronald G. when I was in 8th grade. Ran up behind me and kissed me on the check walking home from school bus. I learned to walk down the irrigation culvert road and climb over our back concrete block fence. Wonder I never got snake bit, this was in El Paso lol.

    No particular plans for the 4th. But I am going shopping tomorrow. Neighbors I hope have their semi-pro - just kidding but it's pretty good - fireworks this year. I live down between 2 ridges, gets really spooky/ghostly with smoke from fireworks. One year we had a big rain late afternoon and that made for spectacular smog lol.. No fire dangers this year. And yes the county commissioners have in the past banned fireworks sales. The commercial ones were allowed to continue.Texas just lengthened the days and expanded the holidays for fireworks sales. Did just used to be New Years and July 4th. DD plans to come next weekend, her birthday on Saturday the 11th.


  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited July 2015

    Never had a stalker... that I know of. Come to think of it, I think I might have scared them all away hehe. Works for me and no complaints.

    Hahahaha Ms Chevy, wrong Job??Job was a righteous and humble man who lost all of his children and their families. He became a pauper overnight- lost all of his wealth. On top of that, he was struck with leprosy or some sort of skin disorder. Despite of the tragedy and the calamities in his life, he refused to curse God. Well, you are right...he was not patienttoward the end. Hah

  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited July 2015

    LMG--lol serve those robbers right!!

  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited July 2015

    Luvgoats- for some karmic reason my treatment is the same no matter where I go. I mean I tried to help myself by getting more info from Mayo's in Florida. As soon as my chart gets there I am dead. Mayo oncologist wouldn't listen, wouldn't scan or check what I needed without proding and begging. He did a cursory over view, gave his recommendation and couldn't wait for the plane door to slide closed! He wouldn't allow a trial of the new med Ibrance and he had patients on it. He wouldn't take me as a patient unless I lived within 60 miles of their clinic. He did ask why no one used tumor markers since they correlated with my scans. My Onc here refuses to order them - Said he gets all the info he needs from CBC, CMP and bone scans. So much for that theory- total failure! My tumor markers were 250 something in January. I asked they be drawn a week ago and they were over 600. That 30$ tumor marker test could have headed all this off had he not been so stubborn he refused to use it. My lab work is ok and the cancer has progressed wildly into my peritoneum and omentum. I refused the bone scan and agreed with the CT scans he wanted. He only wants to look at my bones. Current onc has his agenda and nothing I say will change that. Every oncologist I have had here is exactly the same. So had he done the tumor markers instead of flat refusing, he would have known that his treatment wasn't working. I have to endure weeks of misery and fill up like a water balloon before he will consider any change in course. Or admit that there is any need to change course or investigate!

    Yes I did get full work up on the fluid. Thank goodness I asked about it or they would have thrown it out! The only word on the order sheet was paracentesis. I saw it. At this point there isn't much that will fix this. I mean have you ever seen ascites fluid that looked like beer? It was a rather alarming color, billirubin can make it turn brown. We will see what the report says. I had a tiny lunch, honey dew cubes, potato salad and slice of ham and cheese. Now I am uncomfortably full and queasy. Eating just makes me feel awful. This too will pass.

    Anyway.. my burden to put up with. I hope they write a book about my care. It should be titled What not to do with a breast cancer patient.

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