Trigger thumb surgery on LE side

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doxie
doxie Member Posts: 1,455
edited May 2016 in Lymphedema

I'm over a week out from trigger thumb release surgery on my LE side. It was a very difficult decision because I already have truncal LE (well controlled). The pain and reduced function of my hand pushed me to take the risk. Pain and loss of function would only have gotten worse and another cortisone shot wasn't going to fix it. It's my dominant hand, also.

Thankfully, I had only the minor swelling in my thumb and index finger that would be expected with the surgery. No infection or other problem related to use of the tourniquet for about 20 minutes. It was done at a surgicenter. I had to do the antibiotic washes the night and morning of the surgery as with all the other BC related surgeries there. So a very sterol situation.

My surgeon had thoroughly researched the same surgery with another patient who was fearful of LE, but didn't have it at the time of surgery and had no problems afterwards. He agreed, though, that if I needed it on my other hand I should have the IV put in my foot and not my LE side.

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  • carol57
    carol57 Member Posts: 3,567
    edited May 2015

    I'm so glad to hear all went well with the surgery! It sounds like the surgeon is well informed and takes LE concerns seriously, which is quite reassuring. Hope your recovery continues with no drama and great results.

  • doxie
    doxie Member Posts: 1,455
    edited May 2015

    Thanks, Carol.

    I came to the conclusion that surgery was less risky than the cat scratches I get from time to time. And the tourniquet probably not unlike spending a day cleaning out a garage, painting a room, or helping someone move. All things that could aggravate LE. The end result of the surgery would allow me to return to activities I've had to avoid or curtail.

    I think in the end you just go with your gut as to whether or not it will work out ok.

  • carol57
    carol57 Member Posts: 3,567
    edited May 2015

    Faced with choices that feel like, 'do nothing = bad; do surgery = maybe bad,' I think you are spot on that it ends up being a gut decision. Hooray that your gut was so accurate for you this time!

  • mary625
    mary625 Member Posts: 1,056
    edited June 2015
    I had trigger finger surgery on my non-LE hand. I've since found out that trigger finger is a side effect of Taxol.
  • vlnrph
    vlnrph Member Posts: 1,632
    edited June 2015

    Thanks to Doxie for sharing her experience. The aromatase inhibitors are known to contribute to trigger finger development. Luckily for me, mine resolved earlier this year with a single steroid injection and was on my non-dominant "good" side. (I was able to continue light violin playing despite the condition but was worried about progression to a surgical solution if relief was not realized).

    My hand surgeon thought this may be a class effect with AI therapy so I have cautiously resumed medication after a 3 month drug holiday...

  • sandcastle
    sandcastle Member Posts: 587
    edited June 2015

    I had a blood clot on my Le side.....it was on my finger...all worked out fine...Liz

  • doxie
    doxie Member Posts: 1,455
    edited June 2015

    Yes, I've read that trigger finger/thumb is a possible SE with Taxotere and Taxol. Clearly it's a late developing SE.

    Being a woman, diabetic, and/or having rheumatoid arthritis also up the chances. Well, I'm definitely a woman. The blood test for RA came out negative, but isn't always reliable in identifying whether one has RA or not. Not pursuing that more at the present. Not diabetic.

    I suspect those of us who have had T and are on AIs are more prone to trigger digits, but I've also read of women who've not had T but are on AIs who get it. AIs may tip many of us over the edge.

  • doxie
    doxie Member Posts: 1,455
    edited June 2015

    sandcastle,

    I posted in part because some of us will have to decide on whether or not to have surgery on our BC/LE side. I've seen other women struggle with this over shoulder surgery and cortisone shots.

    While one person's successful surgery won't mean that another person will also avoid LE related SEs, at least it should be out there that LE flairs aren't a given with surgery. I'm not totally out of the woods yet as I still have stitches to remove and am not completely healed, but am hopeful.

  • sandcastle
    sandcastle Member Posts: 587
    edited June 2015


    Doxie.....I, guess I had not choice....but to have the surgery......I am sure others will be put in that position....Liz

  • SpecialK
    SpecialK Member Posts: 16,486
    edited June 2015

    I developed a trigger thumb on my dominant hand after I had been done with taxane based chemo for 6 months, and on Femara for the same period.  I immobilized the thumb and switched to Arimidex and the trigger resolved, but I developed new triggers on my wedding ring finger, one toe and my left ankle a year later.  I also had simultaneous painful swelling in the right knee that eventually needed a cortisone injection.  At that point I switched back to a different manufacturer of Femara, which I have been on for 18 months, no new triggers.  I do have frequent diagnoses of skin cancer, the most recent being on my LE arm between the elbow and shoulder.  I elected to have it treated with a topical rather than electrodessication or excision surgery because I wanted to minimize irritation for the arm.  Both of the other methods would have resulted in about a one inch cubic chunk being removed.  My dermatologist is not certain that the topical went deep enough, so he will re-check in three months.  I am hoping he will not insist on further treatment because my arm did well - not certain how it will do if he cuts into it - I tend to have swelling and pain even with the surgeries I have had for recon since diagnosis of LE even though they are not on the arm. 

  • doxie
    doxie Member Posts: 1,455
    edited June 2015

    SpecialK,

    It is so difficult to know what to do in these cases. Removing two 1" cubes of skin from an LE arm seems much more invasive than the 2" incision I had. I hope the treatment works for you.

    My truncal LE flared with nipple reconstruction, once after walking too long with weights, and when helping my daughter pack and move. I've been lucky otherwise. No lower arm involvement except for my thumb swelling related to the pain and inflammation of trigger thumb. Unfortunately splinting didn't work for me. I'd have preferred that. I've had the same generic exemestane since starting the med, Roxanne. Only last year was there another option for a generic from another manufacturer, Alvogen, and it barely has a foothold in the US. Mostly Eastern Europe and Asia. I think I'll pass.

    I think my problem is lack of estrogen that can only be resolved when off AIs. This was slow in coming.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited June 2015

    doxie - I'm glad you are doing well after the procedure. I hope you don't develop any more triggers. Since chemo my skin cancers have picked up the pace. I had three wide excisions in the middle of my upper back (essentially lumpectomies), and two electrodessications - one between my shoulder blades, one down at the waist, all in the last year. I'm worried I will have more crop up on my arm, but I will have to cross that bridge when I get there

  • doxie
    doxie Member Posts: 1,455
    edited June 2015

    I've also had a lot of small moles of varying types appear after chemo. I'm watching them. Nothing that seems like skin cancer, but I'm a little concerned.

  • vlnrph
    vlnrph Member Posts: 1,632
    edited June 2015

    Doxie, it may be worthwhile for you to get a 'baseline' exam from a dermatologist which I had 3 years ago. I have an appointment this week for another assessment because I do not trust my husband to properly watch the moles on my back...

    Also having a fair complexion like specialk, every little thing looks worse than it probably is. Still, I have a flaky area by my nose that may require attention (in a typical spot for sun damage to occur) K, do you feel your skin cancers are related to the breast disease?

  • SpecialK
    SpecialK Member Posts: 16,486
    edited June 2015

    vlnrph - No, I had the first skin cancer at 35, 20 years prior to my diagnosis of breast cancer, and I have had more than 25 of them - all basal cell carcinomas.  I am a blue eyed, fair-skinned, blonde who grew up in California prior to the advent of sunscreen, and I was out in the sun all the time. My derm is well aware of my breast cancer history and does not link the two.  I think there is more of a connection between melanoma and breast cancer, but usually basal cell are sun exposure related. I have been very careful about sun exposure for the last 20 years but I have noticed an uptick in the surfacing of the skin cancers after breast cancer treatment that did not include radiation.

  • doxie
    doxie Member Posts: 1,455
    edited June 2015

    vinrph,

    You are probably correct that I need to see a dermatologist. I lived and worked in the sun in my youth on a farm. I was outside much of the time. Luckily I tanned well and have dark eyes and hair. Still I got way more sun that was healthy.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited May 2016

    Back in 2007 I had painless trigger thumb on my left hand, which prevented me from gripping a guitar neck, so I had a cortisone shot. The swelling from the shot was down enough that I could resume playing two days afterward. It recurred painfully with a vengeance in 2010, and this time the shot was a temporary fix until my touring schedule had a long enough hole in it for surgery & recovery. But all that was pre-bc, and I had and have never had arthritis in my hands.

    I have been on letrozole four months now and developed mild right arm LE after losing four nodes via SNB. Yesterday I awoke with painless triggering in my right thumb--my picking hand. Like it was on the left, it's in the knuckle joint. To my relief, I was able to pick up a guitar and found that when I play, I move only the joint at the base of the thumb, which is not the joint that "triggers" (though I learned enough anatomy the last time out to know that's where the tendon nodule that hangs up on the sheath and causes distal triggering is located). If I play for a minute or two, the triggering mostly abates.

    So I have no plans yet to get a shot or surgery. But back when I posed the hypothetical to my LE therapist, she said that for all surgeries in the LE arm, the therapist is usually in the OR to do immediate wrapping. She also said that with the shot, not only infection control but wearing compression till the swelling goes down and the infection danger has passed is key. I'm hoping that I can get by for awhile without treating the triggering (aka tenosynovitis). But if it gets worse, I hope I have a long enough window between gigs to recover, especially since after surgery I am not allowed to play till the sutures are out.

    Just when I thought I'd dodged all the bullets of successfully treating this early Luminal A tumor, now I am threatened with possible loss of my performing career....or quitting AIs and risking metastasis. Gee thanks, cancer.

  • Binney4
    Binney4 Member Posts: 8,609
    edited May 2016

    Aw, ChiSandy, that is truly discouraging--no, it's alarming even! I think where LE is concerned, musicians of all kinds really suffer from this crummy condition. You might be interested in contacting Sarah Schmalenberger, who did a study a few years back about musicians and post-breast cancer LE. She might have some suggestions for dealing with the issues you're facing. I haven't heard from her in a few years, but she has contact information here:

    https://www.stthomas.edu/music/faculty/schmalenber…

    In the meantime, hugs and chocolate!
    Binney

  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2016

    chisandy - I have had triggering in many spots - thumb of dominant hand, ring finger and thumb of non-dominant hand, both ankles, one toe. Also had knee swelling after that was not in proportion to the mild twist injury I sustained - required a cortisone injection, which solved the problem. I found that initially switching from Femara to Arimidex after six months when the first trigger developed kept the triggers at bay for the next 18 months, then when they resurfaced I switched back to Femara and was trigger free for two years, until a couple of months ago. I also got relief with the thumbs by wrapping with training tape (Coban-type) for immobilization. I have bi-lat LE, worse on the ALND side - also my dominant hand side - but no hand swelling specifically.

  • glennie19
    glennie19 Member Posts: 6,398
    edited May 2016

    But back when I posed the hypothetical to my LE therapist, she said that for all surgeries in the LE arm, the therapist is usually in the OR to do immediate wrapping.

    Wow,, really?? My hospital, that I must go to due to insurance,, doesn't even have a LE therapist,,, so this is impressive.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited May 2016

    Glennie, I am SO fortunate to have a hospital (NorthShore University Evanston) that not only has several LANA-certified LE OT/PT therapists but also probably the national authority on LE (and LANA’s founder), Dr. Joseph Feldman, on staff of its Physical/Rehab Medicine dept. The surgeon who did my L trigger thumb years ago is out south in Oak Lawn, who operates in his own surgicenter though he has privileges at Advocate Christ (where my husband is a cardiologist and my friend just had her BMX). Advocate Christ is excellent for breast cancer (its bc surgeon Barbara Kruger is terrific) but its attitude towards post-SNB LE is somewhat laxer than Evanston’s, at least re: LE prevention. Not only doesn’t my original hand surgeon have an LE therapist on his staff (and I’m not sure there are any at Advocate Christ), but were I to get my trigger thumb “released” at a NorthShore hospital (be it Evanston, Skokie or Glenview) one of my own two LE therapists would be the one wrapping me in the OR or at least the Recovery room. I have no reason to believe that the hand surgeons at the NorthShore hospitals are any less than excellent.

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