Vitamin d

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  • SunnyRunner
    SunnyRunner Member Posts: 2
    edited July 2015

    Thanks for the article, interesting indeed!

  • kittysister
    kittysister Member Posts: 212
    edited May 2015

    Good link. Twice as likely to survive sounds good, but does this mean before BC diagnosis or after? For years, I have been taking some D, like 2000 mg a day, sometimes more. It didn't prevent it, that's for sure, so it must mean after DX? Guess I need to do more research.

  • SummerSun
    SummerSun Member Posts: 91
    edited May 2015


    Does anyone know what the safe dose of vitiman D is that is refered to in the article?

    "There is no compelling reason to wait for further studies to incorporate vitamin D supplements into standard care regimens since a safe dose of vitamin D needed to achieve high serum levels above 30 nanograms per milliliter has already been established," lead study author Dr. Cedric F. Garland of UCSD, added in a statement."

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited May 2015

    SummerSun, When I was diagnosed, my Vit D was 18. My oncologist had me take 50K units/week for 2 weeks which boosted my levels to just above normal. I am now taking 3K units/day and my last D level was 45 which is where my doctor wants it to be. I think everyone is different, so best if you are under a doctor's care AND are getting annual D levels checked.

    MsP

  • Momine
    Momine Member Posts: 7,859
    edited May 2015

    Although I think it is probably a good idea to keep up vit D levels, the correlation between higher vit D levels and better survival does not really mean that taking loads of vit D will improve survival. "It might" is probably the most you can say. it is completely possible that some other factor causes both low D and high cancer mortality, for example, and that this factor can't be alleviated with high doses of vit D.

  • Momine
    Momine Member Posts: 7,859
    edited May 2015

    I didn't say there was any harm. I take D myself, at my doctor's recommendation. All I am saying is that logically speaking, the correlation may not mean what we hope it means. For example, I strongly suspect that I have a problem in my vit D metabolism, and that it is hereditary (dad and grandad both had rickets as kids). Most likely ingesting a lot of vit D will not fix that.

  • cp418
    cp418 Member Posts: 7,079
    edited May 2015

    For what it's worth, I had better results using liquid vitamin D drops then the capsule form. So far, I am able to maintain blood levels between 60 - 70 but I need to take 4000 - 6000 daily to keep it in this range. note: My dermatolgist also preferred I use oral supplements for vitamin D as I am high risk for melanoma. So I avoid intense sun, stay covered and use sunscreens.

  • juneping
    juneping Member Posts: 1,594
    edited May 2015

    cp - do you mind PM me the vit D you're taking?? Thanks!!

  • labelle
    labelle Member Posts: 721
    edited May 2015

    I think in order to know if you need vitamin D supplements you need to have your levels checked. Mine were very low a year prior to my BC diagnosis (who knows for how long) . By supplementing I've kept them in the 70-80 range. You really need to be tested regularly if supplementing to see what your levels are doing and make adjustments as needed. I have mine tested about twice a year since they were once in the toilet. I currently take 5000-6000 units per day.

  • Meadow
    Meadow Member Posts: 2,007
    edited May 2015

    At the start of tx my Vit D level was 40, now it is 65, I take 5000 u daily

  • geewhiz
    geewhiz Member Posts: 1,439
    edited May 2015

    I live in the southern US, play tennis outdoors year round (in the sun for at least 3 hours a day) AND take Vitamin D supplements and years of this leaves me at a Vitamin D level in the 20's. I have tried all types of d. I think I have some sort of issue metabolizing D too.

  • SummerSun
    SummerSun Member Posts: 91
    edited May 2015


    MsP, thanks for your response. my oncologist did not check my vitiman D level when I was dx, but, I am having it checked on Friday. I take 600IU a day and was just wondering if that was enough. I guess I will wait for the test results and adjust if necessary.

  • Italychick
    Italychick Member Posts: 2,343
    edited May 2015

    I take emulsified vitamin D3 drops under the tongue. The company is Biotics Research, bio-d-Mulsion forte. I got my vitamin d level from 57 up to 98. MO said great, now back off a bit. I was aiming for between 70-100 during chemo as optimal for acute phase during treatment. Interestingly, my vitamin D level was one thing my MO tested right off the bat after diagnosis and prior to starting chemo. I have her test me every few months to make sure I don't go too far. If you are doing vitamin d supplementation, research doing it synergistically with vitamin K2.

    Hope this information helps!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2015

    I take Vit D drops also. My MO, who checked my levels during tx, wants my D levels to be on the higher end, closer to 70; she says that's optimal. So far they've never been low, but taking Vit D-6000 to 10000 a day--have ensured they are at the higher end. Been doing this for 4 years now...

    Claire in AZ

  • LillieRose
    LillieRose Member Posts: 112
    edited May 2015

    I'm newly diagnosed and just got my results... 36!

    Did you take the vitamins during chemo or wait until after?

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited May 2015

    Lillie, if your onc wants you to raise your d levels, you will be able to do so while you are getting other important treatments. Just make sure you take supplements that your onc AND primary physician approve and agree on. There are dangers associated with excessive vitamin supplementation and you want to achieve and maintain maximum health while you are in active treatment and for many years to come. Hugs to you as you start your treatment and sorry you have to join us here.

    Love, MsP

  • flaviarose
    flaviarose Member Posts: 442
    edited May 2015

    I did genetic testing through 23andme.com where you send in a saliva sample and they look at your genome. It turns out that I am "vitamin D resistant" meaning that I have trouble getting enough D from the sun. I now supplement and my level is around 50. My nutritionist said that it should be between 40 and 60, no higher. Testing is important because everyone is an individual, and you don't know if you are taking too much or not enough unless you test.

  • peggy_j
    peggy_j Member Posts: 1,700
    edited June 2015

    Interesting. My doctor's office said that the normal range is 30-100, so it sounds like if you go from being deficient (17) to the bottom of the normal range (30) you halve your risk of recurrence. Has anyone seen data for when the Vit D is higher than the min? My MO's attitude was that as long as it was above the min, I was good. But, at the advice of my endocrinologist (who's watching my bone health) I upped my Vit D supplements so I went from a value of 36 to 56. He recommended testing about 3 months after increasing my dose of supplements to get an accurate reading.

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