Can we have a forum for "older" people with bc?
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Evening ladies, winter is gone here and spring has returned! Snow last week, almost 70 today!
Went to the Pulmonologist today, remember I had an embolism in December. He spoke to me about discontinuing my Coumadin. Some question apparently since Im on Arimidex. Apparently Arimidex can make you prone to bleeding.Wud test me before taking me off the Coumadin. Also Momarch, mentioning the aching joints reminded me when I started Arimidex I almost went off due to the increase in my arthritis. Today also saw an orthopedist for my foot and knee which were injured when i was tripped on our vacation, plus shoulder bursitis. He says all are due to arthritis and the knees and foot being aggravated by the fall. Wondering if the Arimidex has made the arthritis worse? Have my mammo on Friday, praying all is OK.
Seems aside from the riots in Baltimore all we hear on the news lately is trans gender and gay marriage.
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If seeds in the black earth can turn into such beautiful roses, what might not the heart of the human become in its long journey toward the stars?
Gilbert Keith Chesterson
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He saw how I hurt. Ihave been on it almost four yea
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Bonnets,
Glad Spring has made it back your way. I always feel just a little timid through the 'iffy' part of Spring where you are never quite too sure what you will get. Our weather will get into the low 70's and stay that way for a few days which I'm looking forward to very much. The 60's are not bad but you do need a jacket handy in case a good breeze decided to show up.
Seems like you can learn something new all the time about these drugs. I probably read it at one time but I had no idea that Arimidex could make you prone to bleeding. I would have to say though, I don't think anything is really cut and dried with cancer txs. Everyone's response is slightly different. Well everything in my spiritual literature says that no two of us are alike -- we ALL are unique in that way. This disease seems to 'prove' that quite well.
More sun today. I will stay blooming for sure.
As far as Baltimore ( and many other cities ) and it is must my opinion, but I'm thinking a whole lot needs to change with our police departments. These men ( like firemen ) all my life I was taught to look up to as someone who would protect you. So often they do --- but the last couple of yrs. it comes out that some minorities are subjected to things up to losing their lives that shouldn't happen. It is a difficult thing. Police have to be trained in very aggressive measures but so many incidents just don't call for the level of aggression that is used. No easy answers here.
I hope Wednesday is wonderful for all of you.
Blessings
Jackie
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Bonnets, I really think that Arimidex and other similar drugs aggravate arthritis and cause more inflammaton. I'm not really sure why this happens but too many of us have suffered with increased arthritis symptoms and pains while on those drugs. Maybe it's because our immune system is compromised by the time we get to the "pill" portion of our journeys and it can't fight off the inflammation.
II have really mixed emotions on the gay/lesbian/trans-gender issue. During my 33 years of teaching, I came across a few students at the middle school level that I thought were gay or had those tendencies. Most of my instincts were correct and I don't think that they could help it. Then I have seen cases where somebody was just fine for years and all of a sudden was "gay." One of my son's friends was certainly not gay during his high school years. He and his girlfriend were "hot and heavy" and waited only a few weeks after graduation to marry. They had children and were devoted to one another. Then he got a job in another town and only made it home on the weekends. Shortly after, he was living with a guy and wanted a divorce because he was gay. I had a hard time trying to figure this out. And the celebrities.....I think many of them become that way to "shock" others into focussing on them. Just my thoughts, which I really don't understand!
The sun is shining and we are going to play golf this afternoon. YAY!
mommarch...Keeping you in my thoughts and prayers! Glad you splurged on the prime rib! You needed that! Please keep us informed.
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Illinoislady:
You are quite right about some keeping up an appearance for fear of non acceptance. I grew up In a small town where everyone knew everyone else and behavior against "the norm" meant a person was an outcast. People should be able to be who they are.
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Yeah, they can be who they want to be I guess, just don't know why they feel the need to become someone entirely different at 65! It is just like you said..... for money, and notoriety, and to feel popular, not to mention stark raving mad.
Sorry.... like I said before.... At 65, we have a good idea of who we are, and no need looking around to change your and everyone else that KNOWS you.... THEIR lives!
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Mommarch, Prayers for you as you come up with your treatment plan this week.Jackie, I couldn't agree with you more with regard to some people not being able to "be" as they were born. It's my opinion, that we have no control over who we were born as, be it sexual orientation or gender identity. It is real. Great strides have been made in the acceptance of gay people and strides will be made in the acceptance of transgender people. I think we are here on this earth to love one another - to be tolerant and accepting of everyone.
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Such a gorgeous day today. Maybe if we had weather like this all the time it wouldn't be so special. I love being able to walk outside and enjoy being "outside."
I picked up the license plate and registration for my Prius today and learned that we should have had the car inspected. DH and I thought we had to wait for the plate and registration. Tomorrow I'll have the car inspected. A little dumb considering it's brand new but I guess the state needs its $$.
Mommarch, thinking about you.
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So nice here today! Opened the windows on the porch and ate supper out on the porch. Wish it wud stay this nice!
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Glad so many can "enjoy" the sun and warmth. Seemed like such a long winter to me -- too much rain and far too many gray skies. Here's hoping we all can have a good amt. of great weather. We still have more leaves to fill in, but it has started to become fairly difficult to see some of the homes around us. I'm talking the next street more than ours as there are only three homes here. Part of my love of living at the lake is that when Spring is over -- no one knows we are here. Our little dirt covered lane as well as our houses sort of disappear.
Jackie
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Morning gals... MomMom, you are sooooooo cute! Sometimes when I have crazy opinions, its just me talking about something I really don't understand.
And sometimes I am just so set on thinking the way I do, I have a hard time being open minded and not sounding so old-fashioned.
It's like all the legalizing pot going on here, and now the people dealing with all the ramifications... Maybe I should just shake my head, and change my attitude.... Ha!
It's all just so different now... Growing up in the 40's & 40's was just such an easy time.... Everything was just "different".... and its hard to see how our lives have changed now with all the drugs, open-ness, and acceptance that just wasn't "there" when we were "learning" and building our own lives....
Except I thought it was funny, when I asked my older friend Theresa, if she liked Dancing with the Stars.... (She's 92).... and she yelled "NO, they don't even wear any clothes!"..... I just cracked up! Haaaaaaaaha! So I'm not THAT old fashioned....
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Love is a force that connects us to every strand of the universe, an unconditional state that characterizes human nature, a form of knowledge that is always there for us if only we can open ourselves to it.
Emily Hilburn Sell
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Chevy...I love your quilt. I've been leading a crochet group at the Cancer Support Center. One lady knits, so I'm learning and loving it. Guess this old dog is learning a new trick
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Good morning,
Maybe I was thinking about you Chevy when I noticed today's quote. Our earlier yrs. were great weren't they ???? But then we were young and had ( and hopefully it helped most come through ) flexibility. There were issues, and problems -- and some were so trifling compared to what we sometimes face now. Not to get too long-winded, but our universe is like a wheel -- no beginning or end, and each individual is a part of the WHOLE. This is where that flexibility arises. All of us, those who are VERY un-like us and those that are much closer to how we are. Thinking here that the phrase -- love the sinner, but not the sin may come from that.
It is often hard to understand or even try -- a murderer, a prostitute, a bisexual, transgender or whatever is the thing that raises the hackles on the backs of our necks -- but they too are a part of the wheel. Sometimes our flexibility helps us to love and care beyond the picture or presentation. That doesn't mean that we will mimic any of these behaviors, but that we have reached a point where we can feel some compassion -- which would be much harder to develop if we were all the same. So much harder for US to grow if our world was not full of differences. We will ALL understand everything --- if not in this world, certainly in the next one which is why this world is here and is now.
So it is all going to be all right -- for everyone.
Oh, its sunshine here this morning. We ( despite some coolness ) are just having things pretty gorgeous. I look out at all the NEWNESS that is a part of Spring and it is just an almost breathless amazement and why I love this time of yr. so much. How the old trees must be singing inside with the growth spurts of all those fresh new leaves after the tiredness and rest of the long winter falls away. What a fantastic gift -- and makes me so glad that I came back home. I loved ( most of the time anyway ) southern California when I lived there. But at some point some yrs. after I had been there, I felt some lack - an ingredient missing. When I came back home here and re-experienced the excitement connected to the seasons it just fell into place. Some rhythms are inside of you and you miss your connection ( like missing a train ) if you cannot be in tune with them at the right times.
It is going to be a good day here and I really hope it is going to be a great one for everyone.
Blessings
Jackie
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Morning all
Jackie- I thought I would be just like you when my DD moved to Ga. Seasons again! After all, I grew up in NYC. I do enjoy the fall, and the fireplace in the winter, but I am disappointed at how many gray, dreary days go with the seasons, especially winter and spring. I can deal with the cold, I am not really an outdoor person, but the wet, not even rainy, really, cold, gray days really get to me. I am always glad to get back to sunny Fl, even with its heat and humidity.
Re the whole sexual orientation thing- I just feel so sorry for our grandchildren and the world we have given them. While individual parents might try to instill values like kindness, integrity, etc, the media touts standards that totally oppose those. The "world" says a women needs to look a certain way, and everyone has to adhere to "society's" criteria and has made a person's private life fodder for anyone's input. My sexual behavior and/ or orientation were never a part of my job, or even for that matter, a topic of discussion outside our own bedroom. Yes, friends and I would talk about sex sometimes, but our own sex lives were not part of the discussion. I worked with several gay people, who, like me, did not discuss or behave in a way that made their sexual orientation obvious to the whole world. I knew because others told me, or in one case, I happened to be at SAMS when I saw my co-worker with another woman. I recognized their behavior as that of a long time married couple, and when I asked someone, I was told yes, they had been together for many years. I had known her for years at this point. The gays I have problems with are the ones that make being gay their whole identity and everything else is secondary. Be whoever you were born to be, but keep your sexuality where it belongs- in your bedroom. I don't mean hide it and be ashamed of it- I just mean don't force it on everyone you see. It is important to be accepted in your own life, but it really is not something everyone who comes in contact with you needs to be told. . Can you hold your partners hand in public- yes, and even kiss? Yes, briefly in public. I have to say that I find the medias constant barrage of the love affairs and sexual behaviors of straight people just as offensive as I do the constant attention to gay issues. I believe gender identity and in most cases sexual orientation are there at birth, but I believe they should be handled privately. In the case of gender identification, if it were my child and I knew during their school years, I believe I would move so no one the child had contact with, would know his/her past history- not out of shame, but just to give the child a free slate instead of heavy baggage. I believe it is stressful enough to deal with family, much less your whole world.
My DGS has his first girlfriend. Very sweet. But, she used to be his best friends girlfriend. Even that is not unheard of. But the reason they broke up is because boyfriend #1 was "emotionally" unavailable to her. What?!? At 15? And their whole group thinks he is gay, and either doesn't realize it or doesn't want to admit it. None of them care if he is, they like him as part of their group and can't see that changing. Beyond that, the girlfriend, a very sweet girl, suffers from anxiety or panic attacks- again at 16?? ( she just had a birthday). She is very needy emotionally and although DGS is very attentive, he said one day to her that he was tired of reassuring her he was not the old boyfriend. She should understand that by his behavior by now. That started hours and hours of an anxiety attack and phone calls and frustration on his part to the point that he screamed at his mom when she walked into his room. Trust me when I say that is not his normal self.
He also thought that his 16th birthday brought the right to smoke or do some kind of drug. He didn't have any intention of doing either, but thought he was now legal to do so. It's funny- the one thing he is able to do at 16, drive, he had no interest in at this time.
We are, again, through the media, giving our kids a much tougher life than we had, in so many ways- but I have been on my soapbox long enough, so I will leave things there
I went to see my surgeon yesterday and a small section of the incision is infected. I have to put ointment on it and am on a 7 day round of antibiotics. I am a little upset because my youngest son (29) is having some serious back issues and wants his mommy. And, of course, I want to be there for the grand children's end-of-year activities. Hopefully it will clear up easily, and he will give me the go-ahead to travel next week.
{{{Hugsto Mommarch}}}
Anne
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Anne,
I think you hit all the nails squarely on the head.
Jackie
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Such great, thought provoking comments from everyone!! This is a good group, with our hearts in the right place for sure. Just trying to do the best we can. My thoughts have certainly evolved too over the years. {{{{{{Hugs to all}}}}}}.Paula
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We are back home. I am exhausted and have been sleeping most of the day. If it is not cost prohibitive I will start on oral chemo taking a drug called Xeloda. It will be 4 pills in the morning and 4 pills in the evening for 14 days and then off for 21 days. After the 14 days I will see the ONC the next week. I have to have a CBC every week. It will be 6 to 8 regiments and then a scan. If it is cost prohibitive we will go with IV chemo. ONC is trying to make it to where we do have to drive 200 miles one way every two weeks.
They are finding out the our cost of the med and will let us know and we will go from there.
Thanks for caring.
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Mommarch -- thoughts are with you and I so hope that something can and will be arranged so that the cost is not too hard to bear and that you will be able to skip that long drive. Get lots of rest, while I send lots of prayers through the Universe on your behalf. Everything crossed and all the positive energies I can find for you.
Hugs and blessings,
Jackie
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Paula -- love the hugs !!
Jackie
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Mommarch, Healing thoughts coming your way. I hope you don't have to do the big drive. Get some rest and gain strength for the fight ahead. Hugs.
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Thanks for the update mommarch. I am hoping and praying that you don''t have to make the long drive and can do the oral drugs. Hugs across the miles to you!
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Momarch,
Thoughts and prayers coming your way. Hope you won't have to make that long drive. Good to hear from you.
Jo
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Mommarch, joining others with thoughts and prayers for You and Family!! *Hugs*
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The powerful potential behind change lies in the possibility that each
new beginning will bring us greater joy and freedom than we have ever
known. Whether or not that actually happens--whether or not we
continue to grow through the cycles of our lives--is largely up to us.
We play a part in what happens by choosing how we see our changes,
our beginnings, our endings. We can see each ending as a tragedy and
lament and resist it, or we can see each ending as a new beginning and
a new birth into greater opportunities. What the caterpillar sees as the
tragedy of death, the butterfly sees as the miracle of birth.John Marks Templeton
Worldwide Laws of Life -
Hey, Jackie, I am following you around the sites this morning! I just wanted to pop on before I got busy today and wish everyone a happy and good Friday. The sun is shining in Illinois today and it looks like it is going to be a great day to be outside.
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Quietly, as I type, I'm singing inside "Oh What A Beautiful Morning" because it is. The winter is safely tucked away now. Spring can be iffy and I hold my breath, but I can let it out now. Our freak snows usually come at the first of April. Also, the stuffy full nose and the green coloring outside everywhere -- parked on railing and glass tables and my car that is pure pollen -- means we are well on the way.
Several things to do today. I have to go have another perm. Wondering if I want a shorter do or just what. Decisions !!!!! I have no style -- somehow when girly attributes were being passed out --- I seemed to have been MIA for a bit. I have no style for clothes, make-up, hair-do's and lastly I am not at all handy with my hands --- unless you want to count opening cat & dog food bags and cans. I really do have that one down pat. Maybe I'll just ask Beth -- and no matter what she says I'll likely do it -- and never actually SEE if it is right or not.
I'd worry about this but the truth is -- it simplifies my life. I use a sm. amt. of eyebrow color and a shade of mauve lipstick that just makes me feel like I'm sporting a fairly natural look -- used it for yrs. and some clothes ( not well matched most of the time, but very important ) and I'm on my way out the door. I noticed early on that the feral cats I feed only give cursory glances as I dole out their food -- and the people in town became use to my "get-up" long ago. No raised eyebrows there --- so I do not spend hours in the powder room.
Today -- well, prayers and hope that it is a great one for everyone.
Blessings
Jackie
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Monmarch - adding my hopes & prayers that you can avoid the drive and the Xeloda works out.
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