First Visit with MO for ADH

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Ddw79
Ddw79 Member Posts: 533
edited May 2015 in High Risk for Breast Cancer

she recommended either Raloxefine or Extremesane depending upon how bad my bone density turns out to be. Neither of these will be easy for me with my many serious comorbidities. She understand this but wants me to try. IDK. Concerne

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  • momoschki
    momoschki Member Posts: 682
    edited April 2015

    I also have a dx of ADH and started taking raloxifene (Evista) about 6 months ago. I literally deliberated for years about whether to do this, as I was very concerned about potential side effects, but finally decided to give it a go. I'm glad I did, since I actually have had no discernible side effects. I already have osteopenia, so it feels good to know I am potentially killing two birds with one stone

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2015

    I have been taking evista (for LCIS) for about 5 years, I really have no SEs. I also have a little osteopenia, so it is helping my bones as well as helping to prevent an invasive bc.

    anne

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  • Ddw79
    Ddw79 Member Posts: 533
    edited April 2015

    Makes me feel a little better. The side effect profile she handed me is pretty huge

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  • Ddw79
    Ddw79 Member Posts: 533
    edited April 2015

    Just wondering if either of you on Raloxefine were told to monitor uterus for possible endometrial hyperplasia?

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  • momoschki
    momoschki Member Posts: 682
    edited April 2015

    I was told that unlike tamoxifen, raloxifene does not have a proliferative effect on the uterus

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  • Ddw79
    Ddw79 Member Posts: 533
    edited April 2015

    Well she just told me yesterday that she wants me to take Aromasin. I already have Osteoporosis so how is that going to be possible? I'm glad that you are both doing well on Evista

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2015

    if you have osteoporosis already, I'm not sure why she is recommending Aromasin versus Evista. I would question her specifically as to benefits versus risks.

    anne

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  • Ddw79
    Ddw79 Member Posts: 533
    edited May 2015

    yeah Im not too happy with this MO. I think she's not a good listener. I also have type 1 Diabetes and the Aromasin is a steroid known to increase problems for Diabetics so in many ways this would not be a good drug for me. These people just do not listen to patients I'm afraid. I have a second opinion coming up next month

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