First Visit with MO for ADH

Ddw79

she recommended either Raloxefine or Extremesane depending upon how bad my bone density turns out to be. Neither of these will be easy for me with my many serious comorbidities. She understand this but wants me to try. IDK. Concerne

momoschki

I also have a dx of ADH and started taking raloxifene (Evista) about 6 months ago. I literally deliberated for years about whether to do this, as I was very concerned about potential side effects, but finally decided to give it a go. I'm glad I did, since I actually have had no discernible side effects. I already have osteopenia, so it feels good to know I am potentially killing two birds with one stone

Anonymous

I have been taking evista (for LCIS) for about 5 years, I really have no SEs. I also have a little osteopenia, so it is helping my bones as well as helping to prevent an invasive bc.

anne

Ddw79

Makes me feel a little better. The side effect profile she handed me is pretty huge

Ddw79

Just wondering if either of you on Raloxefine were told to monitor uterus for possible endometrial hyperplasia?

momoschki

I was told that unlike tamoxifen, raloxifene does not have a proliferative effect on the uterus

Ddw79

Well she just told me yesterday that she wants me to take Aromasin. I already have Osteoporosis so how is that going to be possible? I'm glad that you are both doing well on Evista

Anonymous

if you have osteoporosis already, I'm not sure why she is recommending Aromasin versus Evista. I would question her specifically as to benefits versus risks.

anne

Ddw79

yeah Im not too happy with this MO. I think she's not a good listener. I also have type 1 Diabetes and the Aromasin is a steroid known to increase problems for Diabetics so in many ways this would not be a good drug for me. These people just do not listen to patients I'm afraid. I have a second opinion coming up next month