Conventional Treatment vs. Complimentary

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Hello. My girlfriend, Audrey, of 10 months has had two lumpectomies: Left (Her2 +) 8mm lump removed 2012; Right (Her2 tripple) removed March 2015. A genetic testing confirmed that she has a genetic mutation. She is considered stage 1.

Audrey is 42 and in excellent health. She is a vegetarian. She hikes, kayaks, bikes. She is an athlete. We are in love. I have two daughters from a previous marriage. We want to marry.

Audrey is very concerned about the side effects of conventional treatment. Since the discovery of her first lump in 2012, aside from conventional imaging diagnostics and surgery, she has elected to adopt a supplement, herb, and diet based treatment protocol. For the last 8 months, she has consulted with a professional clinic which has modified her own protocol with an extensive and elaborate regimen of herbs, vitamins, and diet.

Audrey is very smart. She has a big heart, loves nature and animals. She is extremely distrusting of conventional treatment due to reports of side effects: sickness and disease coming from chemotherapy and radiation. She is constantly researching alternative methods. She has been met, unfortunately, with mostly unsympathetic and often condescending attitudes from most of her Conventional/Western doctors.

Is there anyone out there who has done extensive research and comparison of conventional treatment (chemo, Herceptin, and radiation) versus Alternative/Complimentary treatment, or who knows of someone who has? The survival rates and statistics of these comparisons are what she seeks.

Audrey is obsessed with details, percentages and statistics. Other than some books, articles, google searches and words of wisdom from doctors, I have no other real data for Audrey.

My own (uneducated) common sense tells me that if, after the first lump removed in 2012, that if her diet and herb treatment was successful, the second (new, non-recurring) lump would not have resulted. We managed to find with a doctor who mentioned that there are trials presently underway and close to FDA approval that might pave the way for Conventional treatment of Herceptin without chemotherapy. But, Audrey is frightened by various articles indicating that even without chemotherapy, Herceptic, alone, has damaging side effects.

Again, out of ignorance, I just don't know what to say or offer her. My gut is, along side her continuing supplements and diet (which seem to be a good idea for anyone - all of us - as a means to boost our immune system and, otherwise, stay healthy) is to find an oncologist in whom we trust, and go from there.

I am very grateful for your thoughts.

Warmly,

Ben

Comments

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited April 2015

    Hi Ben,

    Sorry you have to be here, but seeking info is always a good idea. Yes, a good diet and exercise benefits everyone, so your girlfriend is smart to maintain those things. You might want to try posting in the alternative forum as those members might have some statistical info on alternative protocols. Complementary is a bit different, in that those who follow that path often get conventional treatment but use complementary practices to improve overall health, ease side effects etc.

    I doubt that there are any long term, vetted, controlled research studies that will give you a head to head comparison of an alternative treatment vs. a conventional treatment.

    As to side effects from chemo and/or radiation, yes they exist and are well documented. They are a known risk, but for many, they are short term. Do some suffer permanent damage? Yes, but that is known as well. I am in no way saying that chemo/rads are perfect or the right choice for all but the risks and rewards are well documented. I, personally, have not found the same level of controlled, research documented studies for any alternative therapy. There is lots of anecdotal evidence for all kinds of stuff from Laetrile to ingesting white kerosene and various diets, but little hard evidence. Perhaps that's why her conventional docs are unsympathetic and I would venture to guess that that's why no comparisons exist between the two (i.e. Alternative has little to no science based evidence to compare to conventional, nor would conventional docs find it ethical to put someone on an unproven alternative protocol for the purpose of a head to head study).

    Anyway check out the alternative boards. You'llfind the vast majority of women on this site use conventional medicine, though many use complementary support as well, myself included. Wishing you both the best.

  • BenL
    BenL Member Posts: 9
    edited April 2015

    Thank you, exbrnxgrl, for you reply!

    I will venture forward with some of the other boards and see what consensus I can gather.

    Wishing you the best, as well.


  • BenL
    BenL Member Posts: 9
    edited April 2015

    Thank you, Kayb, for you reply. Your words are helpful.

    Best

    Ben

  • Moderators
    Moderators Member Posts: 25,912
    edited April 2015

    Ben-

    We want to welcome you to our community here at BCO. We hope you find the support and information you're looking for during your time here.

    We have a forum dedicated to alternative, complimentary, and holistic medicine and treatment, you'll probably find lots of information there, and be able to connect with members that can direct you towards more. You can find those forums here: https://community.breastcancer.org/forum/79 and here: https://community.breastcancer.org/forum/121.

    Please let us know if we can be of any more assistance!

    The Mods

  • dlb823
    dlb823 Member Posts: 9,430
    edited April 2015

    BenL, welcome to BCO, although I'm so sorry the reason you're here is your gf's bc. I am and always have been very into holistic care, including believing after my initial dx in 2008 that I could get a better handle on my future bc risk with naturopatic care over conventional medicine. And my dx line tells how that worked out for me -- which doesn't mean it might not work differently for someone else, or that I might not have had a re-dx sooner if I'd gone with just conventional med. And therein lies part of the problem. Breast cancer can be so individual and unpredictable, based a lot, I think, on genetic differences.

    But the bigger problem from my point of view is that many docs -- conventional and alternative -- simply don't know what they don't know. In other words, although many things sound logical in principle, unless you focus exclusively on bc and have worked with hundereds of patients, docs just don't have enough experience to really know what truly works and what some of the pitfalls can be. And that's where conventional medicine (IMO) has an edge -- especially if you choose to be treated at one of the larger, university medical centers (preferably one of the NCI-designated ones), where they have those kinds of dedicated docs, and that kind of experience.

    There are a three concerning things about your gf's hx. First, the fact that she's had a recurrence and/or a contralateral bc. Second -- and maybe most concerning -- is that her second bc is highly Her2+++. And third, the genetic mutation. And with those three issues, I'm not sure any alternative doc has enough experience to confidently guide her through dealing with all of those potentially aggressive factors.

    I think my best advice to Audrey is to seek out multiple opinions. What I ended up feeling most comfortable with was an NCI-designated comprehensive cancer center that had a significant integrative medicine program -- so that I knew that wouldn't roll their eyes at complementary therapies, and I could trust them to know the difference between pure unproven alternatives (e.g. baking soda or high ph water) the truly beneficial ones that I used and still use to complement to my conventional care.

    Hope this helps. Good luck to you both! You sound like a wonderful man to have in her corner! Deanna

  • BenL
    BenL Member Posts: 9
    edited April 2015

    Thank you for your thoughtful reply.

  • BenL
    BenL Member Posts: 9
    edited April 2015

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