April & May 2015 Surgery Sisters

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  • downdog
    downdog Member Posts: 1,432
    edited April 2015

    Tomorrow's a big day with 4 sisters having surgery. Sending lots of luck and healing wishes to flutterbykisses, littletatas, M0mmyof2 and Newgirls.

    Esmerlda50, the main site has a section with advice on talking to children.

    http://www.breastcancer.org/tips/slideshows/talkin...


  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited April 2015

    LoveLiveLaugh - praying healing as you recover from today 's surgery.

  • Metta
    Metta Member Posts: 84
    edited April 2015

    Thinking of all of you and hoping everything goes as smoothly as possible today and this week.

    Did any of you hire a home nurse to help you? I should have! I do so much research that you'd think I would have known about this--basically I can handle the drain care, but I cannot change my bandages by myself, nor is my husband able to do it. I am stunned that doctors think we can do this ourselves. Or are you guys doing it? My insurance company will pay for it, but I've spent hours of my day scanning documents, calling agencies, etc., and I'm running out of time today.

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited April 2015

    When I had my BMX, my breast surgeon arranged for me to have a visiting nurse come in to check the dressings and change them if they needed to be done.

  • Cheesequake
    Cheesequake Member Posts: 264
    edited April 2015

    I'll check in. Left side lumpectomy and sentinel node biopsy scheduled for next Monday, Apr 27. Best wishes to all of us :)

  • AudreyB
    AudreyB Member Posts: 377
    edited April 2015

    Hi everyone!  Best wishes for a quick recovery for all surgery sisters today and the rest of this week.

    I am getting ready for my May 6 BMX and recon.  One minute nervous, the next a bit calmer.  Recliner is being delivered this Saturday, I got some lightweight hoodies delivered from Target, and pink pockets delivered too.

    I am concerned about my recovery, I will be alone most of the day.  Rob will be stopping in to check on me (he works on the road).  I'm going to look into a visiting nurse, just for the drains and dressings, just not sure if I will need that help.

    I will be taking 6-8 weeks off work, hopefully I can go back sooner if I am able.  I have an office job but a 1 hour commute on the LIE each way, so not looking forward to that with expanders :(

    Anyway, keep moving forward warrior sisters. 

    Audrey

  • tangerinequeen222
    tangerinequeen222 Member Posts: 21
    edited April 2015

    I'm scheduled for May 8th. PBM with sentinel node biopsies on both sides :( Scared out of my mind. Positive thoughts please.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    tangerinequeen- yes it must be very scary. It doesn't hurt and it is really the best alternative. So much better than just taking them all out. Lean on your April sisters! This is a strong, positive group, and they will have your back no matter what. Me too.

    Regarding help at home. I went home alone after bmx and did everything myself. I had just moved to a new town and there was no one who could come visit me. Drain care and bandages. Alone. I was managing, I thought, but in the end I think I set myself back weeks. A dear uncle got wind of the situation and hired "helpers". By that time the drains were out, but it was surprisingly helpful to have help making food, cleaning the bathroom, changing sheets on the bed. I never set out to be tough or a hero, there just weren't any other options. I didn't want to go to a SNF, didn't want to kennel my dog. I think err on the side of setting up some help. You can always cut back or eliminate when you are ready. Don't be a hero. Not the time or place.

    Remember, everyone has a different experience. Most April girls are sailing through. I did not. Best to be prepared.

    Hugs to all.

    Katy

  • PMR53
    PMR53 Member Posts: 452
    edited April 2015

    Lynn

    Thank you for your words of encouragement!! It's coming up fast May 4th for me. MX right only. Trying to get ready before hand but how can you ever be ready for something like this!!

    Thank you to my Brave Surgery Sisters!! I read your posts everyday.

    PMR53

  • DayLily15
    DayLily15 Member Posts: 144
    edited April 2015

    Wishes and hugs for the girls tomorrow :) flutterbykisses, littletatas, M0mmyof2 and Newgirls.


    Downdog you are super duper :) so glad we adopted jackbirdie .


    i see the surgeon tomorrow. so hope my drain can come out. little nervous about the pathology of my nodes, i know i had one, hope it was the only one, however after reading lots on this site more or less involvement wont change the Tx plan much. so ive decided no matter what he tells me tomorrow , i wont be much different than today. and today was a beautiful day.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    DayLily your spirit moved me! Good for you for breaking things down to the smallest component. A beautiful day. You go girl

  • middleagedmama
    middleagedmama Member Posts: 46
    edited April 2015

    Lynn, great news on how well you are doing! That gives me hope because I am not a big medicine taker either so I am a light weight with pain meds.

    My surgery is next Tuesday and I have doing fine emotionally up until now. Today is just a day that I can cry for no reason. I think the reality is beginning to hit and needs to come out. As a mother and a wife, I feel that I need to stay positive and strong for my family. They take their lead from me and I don't want them to be scared or sad. I know I have said it before but I will again. This site has been a god send to me! You woman have educated me, provided support, and are there as someone who gets it.


  • patty101014
    patty101014 Member Posts: 53
    edited April 2015

    I am eight days post-op and wanted to share updates from today's surgical follow up appointments. 

    1) I got my drains out!  Hallelujiah! 
    2) I still had an almost 2cm tumor even after all of the hoopla about shrinkage on MRI.  But, it is gone now.  No more cancer for meeeee!
    3) Because of the shrinkage of tumor, my staging is different.  I was a clinical stage 2b, now I am pathologic stage 1.  At the end of the day, it doesn't change anything.  But still made my momma happy.
    4) The margin on the tumor dissection from the chest muscle is very small.  .4 mm.  That's concerning.  But radiation should take care of it.
    5) Nobody in my family better ever, ever, talk to me how I "should have" had a lumpectomy or single mastectomy ever again.  Even after neo-adjuvant chemotherapy, my right breast had DCIS (stage 0) cancer in addition to the big tumor which was completely undetectable on scans.  My left breast had what is called atypical lobular hyperplasia in the nipple/sub areolar tissue.  My surgeon described this as precancerous which may or may not have ever turned into a issue. 

    6) I am afraid that my decision to have nipple sparing surgery on my left side was a bad one considering the ALH.  Trusting God on this one...

     Two weeks of healing before I start the fills on my reconstruction.

    All who are waiting for surgery, recovering from surgery, and making surgical decisions are in my prayers. 

  • SoutherMother
    SoutherMother Member Posts: 111
    edited April 2015

    flutterbykisses, littletatas, MommyOf2 and NewGirls, sending hope for a successful surgery tomorrow with great pathology reports, clean margins and a healthy start to recovery.

    I had a tough day with my emotions today.  My white blood count has dropped so my PS is questioning whether I am healthy enough for surgery.  I see my BS tomorrow so we will see what she thinks.  My heart was beating oddly last night so I have earned a consult with a cardiac doctor tomorrow as well.  My surgery is in limbo and it has me feeling down, just like my white blood count.  Is this what is called a pity party? 

  • SuzyQ42
    SuzyQ42 Member Posts: 32
    edited April 2015

    This is my first post here. I'll be having a single mastectomy on my left breast and some lymph samples taken. Reconstruction later. My diagnosis is DCIS, but due to the large area of clusters (6 cm), my doctor is worried that it may be IDC.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    SoutherMother- a well deserved one, yes. You may have anxiety causing the heart symptoms. Try to put it out of your mind until you are sitting in front of the dr.

    You've had a hard road. It's ok to be down.

    Sending the warmest and gentlest possible hug. It will be better tomorrow.

    Katy

  • Newgirls
    Newgirls Member Posts: 81
    edited April 2015

    I had my bmx in January and had VNA twice a week for two weeks. It was reassuring to have another set of hands to change dressings and look at the incisions. Reassuring to know that all was looking good and healing well. I would definitely ask for a home nurse. Hubby did the housework but now that Im healed he seems to have forgotten how. Haha. But I am so happy to be able to do it again that I don't mind. Exchange surgery tomorrow. We'll see if he remembers where the vacuum power switch is!!!

  • SoutherMother
    SoutherMother Member Posts: 111
    edited April 2015

    Thanks Jackbirdie, I can feel that hug.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    Patty- congratulations on getting those blasted drains out and the humor shrinkage. Very good news

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited April 2015


    I could have never been alone during the day. I could not get out of a chair, or, on and off the toilet by myself. My sister had to put a towel around my waist and gently pull me up. And, think about NOT trying to sleep in a bed. I am pretty strong, but when I was leaning back, I could NOT pull myself up! I am on day 11 post surgery, and I am still sleeping in the recliner. I can just now get out of the chair myself and both on and off the toilet. We do not realize how much you use your arms and chest muscles. So, have a plan. I know it sounds so silly, but you have to be prepared because all at once you cannot do something. You will do it, but not at first! At least this was my experience. Try to have someone there

  • SummerSun
    SummerSun Member Posts: 91
    edited April 2015

    I had my exchange surgery yesterday and had to go back it surgery today because of internal bleeding in my left breast. Both surgeries were easy and not a lot of pain. They are keeping me overnight tonight. The girls do look great though. I got a peek yesterday before the swelling. I have Mentor Rounds,700cc's. I am so glad to have the TEs out!

    Good luck to littletatas, MommyOf2, Flutterbykisses and NewGirls. I will keep you in my prayers for an easy surgery and smooth recovery.

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited April 2015

    Thanks for all the well wishes. Surgery is later this morning and I'm glad to get this over with. Glad to get my expanders out and the permanent implants in! Will be back on either later today or early tommorrow

  • downdog
    downdog Member Posts: 1,432
    edited April 2015

    Welcome Cheesequake, tangerinequeen222 and SuzyQ42 to the April Surgery Sisters! Cheesequake, we're surgery twins. tangerinequeen222, you will get through this and be OK. SuzyQ42, once you know your surgery date, let us know and I will update the list.

    Sending positive energy to Sunnidaze, our flapper sister StillStanding66 and lesliecusana for your surgeries tomorrow. StillStanding66, you will be a little hunched for a bit, but hope you are standing tall soon. hartrish is almost a week out, so hopefully she can chime in and let you know what to expect. Ladies, you will be on the other side of this before you know it! Good luck.

  • Hockeygoddess
    Hockeygoddess Member Posts: 10
    edited April 2015

    Sending positive thoughts to those having surgery today. I am 7 days post op and doing fairly well. I can manage to get around the house and even a short walk around the block last night. Still having trouble sleeping and need to take the valium and vicodin at least once a day. Seeing the plastic surgeon this Friday and hoping for drain removal. Seeing the breast surgeon on Tuesday to go over the pathology and where we go from here.

  • justmaximom15
    justmaximom15 Member Posts: 264
    edited April 2015

    Positive thoughts going out to all those having surgery soon.

    I just returned last night from a much needed trip to the beach! We left St. Louis Thursday afternoon but I had my pre-surgery consultant with my PS that morning first. It confirmed that I was right in making the decision to change PS ... this one and his nurse seem to really be on top of their stuff. He still says this won't require an overnight stay and he doesn't plan on drains so I'm thinking that's good. My Mom and my sister are both coming up from AR and I figure my Mom will stay until I tell her to go home.

  • SuzyQ42
    SuzyQ42 Member Posts: 32
    edited April 2015

    Thank you for the welcome. Apparently, I forgot to add my surgery date. I'm scheduled for April 28th. I have to fly to another location for the surgery and will have to fly back 4 days after the surgery. I've read some horror stories about flying post surgery so any TSA mojo you can send would be greatly appreciated.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    Good luck SuzyQ with surgery. You've a but of extra complication, so I've got the mojo flowin'

    A gentle hug and most positive thoughts coming your way.

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited April 2015

    Surgery went well today. Just resting and taking easy since I've been home.

  • Newgirls
    Newgirls Member Posts: 81
    edited April 2015

    I am a card -carrying member of the Mentor Moderate Plus group. Any benefits with that ? My exchange surgery was completed today. All went well after my sudden crying jag was over! I was in the hospital bed and looking around and feeling of the burden of this deeply. More surgey, more recovery, more time out of life and work. Lyng in a pre-op, curtain-walled room has become a regular thing in my life, hoping all heals well and that I am done. I tip my hat at so many April surgery sisters and the rest of the zodiac who have been through so much more. Off to bed!!

  • downdog
    downdog Member Posts: 1,432
    edited April 2015

    Hockeygoddess, glad to hear you are on the move. Hope you're distracting yourself watching the playoffs, even if the Coyotes didn't make it through.

    justmaximum15, that's wonderful that you snuck in a beach getaway and got to stick your toes in the sand and sip some drinks with umbrellas!

    SuzyQ42, you should start a thread seeking advice on TSA pointers with your specific concern or just general advice. Lots of members have flown to NOLA and other treatment centers for surgery and/or treatment, so they should be able to let you know what to expect, although it can depend on the airport. The TSA does have some info on their site and a card you can print, if you don't want to talk to the agent.

    http://www.tsa.gov/traveler-information/what-expec...

    Jackbirdie, you are such a great cheerleader for us waving your pompoms!!

    M0mmyof2, that's a great bounceback from your surgery. Rest up.

    Newgirls, great to have an update from you. If you need the release, let it all out. It's an emotional journey. Get some rest.

    DayLily15, I thought of you when I was heading to my pre-op today. I was all ready to respond to the 'Are you healthy?' question with a retort about not many people's definition of healthy includes the word cancer and that it is an odd and somewhat insensitive question to pose to a cancer patient. If they want to know whether I have a cough or fever, then ask those questions. Well, I had a super nice nurse, but she didn't even ask. I have to admit I was a little disappointed.

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