Change.org petition for better use of fundraising dollars
Comments
-
dlb, point well made. Ridiculous,isn't it?
-
Great article - I hope it gets some attention. I'm posting it to my blog and bumping this up.
http://www.huffingtonpost.com/barbara-jacoby/metastatic-breast-cancer_b_6836818.html
-
Celebrities are on the front pages of magazines when they are in treatment for this disease but when one dies of it the headlines don't mention that. I feel it gives the public the sense that everyone wins their battle with this disease. Am I wrong about that?
-
MusicLover, No, I don't think you are wrong.
I think it's like anything else in life, unless something affects a person directly, most people will turn a blind eye and really don't want to know. The media is set up for "feel good" stories - battle and triumph. That's why I think people that write these articles are so important. The more articles and blogs written about the reality of stage IV, the more numbers we can reach.
It seems like it's all about gimmicks in today's society. Why do you think the Lou Gehrig's ice bucket challenge was so successful?? My Mother passed away from Lou Gehrig's disease in 1993. At that time, most people didn't even know what it was other than a disease named after a baseball player. Look at the media attention it's gotten over the past year. You think most of those people doing the ice bucket challenge even knew about the devastation that Lou Gerhig's disease can cause a family?? It's doubtful. Komen is another gimmick where everyone wants to jump on the bandwagon. Most don't even know where the funds go. Even many BC patients don't know where the funds go, but they still participate.
RESEARCH NEEDS A GIMMICK. Until we come up with a good one, you won't see the masses signing the petition. A STAR, a GIMMICK and the Ellen Show.....that's the ticket.
-
SDB, good points well made
-
Perfectly said slow
Now how can we get a gimmick
-
I think we all need to brainstorm. Nothing more powerful than a bunch of women coming up with ideas.
Bump.
-
-
Wow, interesting and well written article by AJ. Thanks for posting
-
great idea
-
bump
-
Angela Jole is in the spotlight now
I wish we can get her
Perfect timing
-
bump
-
2,296 more needed to reach 10,000
bump
-
2,222 more to reach 10,000
-
Bump,
-
2152 signatures still needed!
-
bump
-
2,013 more signatures needed. -
The whole petition thing is starting to irritate me. I looked on that site and saw some pretty crazy things that people were petitioning for with a ridiculous amount of signatures. Something as important as this struggles to get 10,000? There's something wrong with this picture. I wish there was some way it could get more exposure.
-
it's annoying me too
Question
I no FB is a huge media...and I no it was on in the past....do u think by putting an update like a reminder cause ppl forget might help??????
-
You can't assume everyone always sees your FB posts. Many are missed or ppl are just busy and in too much of a hurry to read or take action. No problem reposting IMO.
-
just a friendly reminder
-
One of the problems with this petition is the request that all Breast Cancer Charities commit at least 50% of total donations to medical research and innovation.
The focus of the petition is Komen - and however I might want more of Komen money to be allocated to research, I believe that the request of 50% of total donations is an unrealistic expectation.
Nevertheless, the idea that the petition asks for all Breast Cancer Charities to commit 50% is ill-conceived and does not deal with the realities of how different Breast Cancer Charities operate and what each charity's mission is.
For instance, BreastCancer.Org would fall under this broad encompassing term "Breast Cancer Charity". If BCO attempted to give 50% of total donations to medical research then something would have to give. Something would go by the wayside. It would change the face and function of BCO. And BCO is a 501(c)(3) that does a fantastic job with its finances. AND it receives grants from some other foundations in order to operate. (EG. Avon Foundation gave BCO a $50,000 grant in 2014 in order for BCO to provide materials to metastic breast care patients.)
Do we need change? Yes.
Will I sign this petition? No
-
dltnhm, I appreciate your input. You've made some valid points, and I'd be interested to hear if others feel the same as you, or have their own reasons for not supporting the petition.
I thought long and hard about my response. I also had to examine why I signed the petition.
I look at this petition as a way for non profits to sit up and take notice. My main objective in signing this petition is to get Komen to donate more money to research. The amount of money they collect is mind bobbling. It is my opinion the terms "Komen for a Cure" and "Race for the Cure" is very misleading. Why not Komen for Awareness? If the words "cure" weren't in their campaign, would they be bringing in the same money? I seriously doubt it. Before I was diagnosed with BC, I honestly thought all the money they collected with their races throughout the country went to the cure, as it suggests.
I also believe we need change. I think this is the first step for Komen and other large non profits to take notice. Do I think that ALL non profits should donate 50%? NO.
It was my hope that the petition would shine a spotlight on how donation dollars are being spent. And more importantly, expose the misleading verbiage being used in marketing campaigns. If I'm running for a cure, 50% doesn't seem like an unreasonable expectation. 75% doesn't even seem unreasonable. Expose where the money for "the cure" is really going. I don't know of too many people that will take the time to log onto a website and read financial statements. I know I had to really dig deep to find Komen's on their website. People hear "cure" and are automatically on-board.
Thanks again for your input. It's always nice to look at something from another person's perspective.
-
Dltnhm, thumbs up.
-
IMO I don't think the petition is unrealistic. I think that anyone diagnosed with breast cancer would like to see a cure for this disease and 50% does not seem like too much. I am sure that "research" can include a lot of gray areas so I don't see this as a problem at all.
(I don't want to get in to a debate, this is my opinion and everyone has right to their own opinion. I agree to disagree, I hope that you do too.)
-
Honestly, I think I would sign ALMOST anything that would aid in getting more research dollars to find a cure. I don't want my children having to go through any of this, and I'm tired of losing friends to this disease. I just wish we could come up with a plan that everyone could get behind.
-
I think the petition is an attempt to do SOMETHING to try and get these charities to make better use of fundraising dollars. It is probably very unlikely that Komen, or any other entity, will do exactly what the petition asks....we don't know what their operating costs are etc...but at least, it is an attempt to make them aware of the public's concern/request that more $$$ actually go towards research and a cure.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team