INSOMNIACS place to talk in the wee hours

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited April 2015


    Hey Phyllisssopretty. What fun. Is it going to be easy to do by yourself? Oh it would have be so fun to do it all together. Facials, and mani/Pedi's and cucumbers on our eyes. Drat wish you weren't so far away. HUGSSSSSSSSSSSS

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  • mel147
    mel147 Member Posts: 479
    edited April 2015

    sas - beautiful glassware! Love the shimmery colors!

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2015

    phgraham- wow, what a glamour shot. You look lovely. A nice haircut, some good make up, etc. all make a girl feel good.

    Onco-I saw this pic on FB and knew it was perfect for you!

    image

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited April 2015

    cutiePhilly, great pic of you. Yes, I think Spookie should repost the other pic.

    Have a quilting class tomorrow. Good thing I have everything ready for the class. Just got home from helping to get an apartment set up for a guy who didn't die as planned so good enough to live with assist now. He's 85 and spoil and ornery old man!

    I will be having a scan next week. Got some stuff I have to drink prior. Sure it's going to taste gross. Stomach still hurts and nothing is showing on the blood work, all normal and no ulcer. Now to worry about what's going on in there. I've lost enough body parts, already.

    Sassy, like the glass, very shimmery.

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  • susan3
    susan3 Member Posts: 3,728
    edited April 2015

    philly you are beautiful..love the picture. Frame that baby and hang it up.

    Ray..great attitude

    14 yrs and now I get lymphodema ....what's up with that..poop

    Beautiful 80's today...had to make you smile. Hope cami got to enjoy it

    Night night

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2015

    Smarty- I hope the scan tells you something to help you know what is wrong. If it is an abdominal CT scan (had a couple of these), the stuff you drink is not too bad compared to other things (like the Golightly stuff for colonscopy). I hope everything goes well and let us know. All these scans leave us scared until we get the results.

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited April 2015

    Phillie that is the most beautiful pix i have seen. I agree print it out n frame it.

    Going 2 b 80 tomorrow i think, been off chemo since july wonder how it will b

    Waiving to everbody

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2015

    Dang Blondie, send some of that this way. Been cold out west this week.

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited April 2015

    Phyllis- great picture and I like the haircut, cute. The only other photo I saw was of the 3 of you posted a long while back-Sass, and Spookie. I am sure you are most thrilled to ditch your galbladder. I was thrilled to be rid of mine and 4 huge stones. miserable.

    Mags- I read that Walgreen article for controlling narcotics. Thankfully I don't live in Indiana. They surely don't do that here. I would cry being jerked around like that. We only use Walgreens and they have never given me grief. You know I wanted to mention that when I took Arimidex the first thing I noticed was tinnitus increase, then I couldn't sleep well, then the joint pain just got worse and worse until I had heating pads in stations around the house and felt like moving was just torture - ground glass in my joints. Then the combination of sleep deprivation, joint pain and my ears ringing away I got terribly depressed. I mean suicidal - major. I don't tolerate NSAIDS, tylenol gave me no relief and the onc would not give me any pain meds. So I quit taking the Arimidex. Within 2 months my sleep improved a little, the depression lifted and the joint pain subsided. I just could not tolerate the SE. So if you want compliance I suggest being very blunt with your oncologist about the amount of pain you live with. I know I have just quit being miserly with the pain meds.. I feel so much better taking them when I need them. I move better, am more interested in participating in things. They don't make me sleepy and they make life bearable.

    Wren I love your comment about the pharmacy not carrying narcotics because they might be robbed... like a bank not carrying money because they might be robbed.. logic? No just refusing to treat patients when they need it. Pharmacies like that should be boycotted. Thankfully hospice stepped up!

    Mommy-hope your migraine is gone. Hi Patty and Blondie, Jazzy and All... We are taking a 4 hour train ride tomorrow with the kids. Our train will be held up by "bandits" won't that be a hoot! The girls are really excited. Supposed to be fantastic weather tomorrow sunny and 75! Yahoo!

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited April 2015

    Woke up to no migraine and lots of kisses from Princess

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2015

    Rose- the wild west train hold up ride sounds awesome! I would go with you if I was there! Like being in a real live western!

    Mommy- good to hear the headache is gone.

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited April 2015

    She LOVES you Mom2! Rosie.... very good post... and informational....Sometimes we just have to figure it out for ourselves...

    ANYthing we take, has an effect on other parts... Sometimes good, but sometimes meds just start a chain-reaction ... like a run-away train.... I found that out when I was trying to help our Lacee with her Hot Spots, and used this liquid medicine on her for maybe 2 years! I would rub it on her little spots, and it helped HER, but I was allergic to it... So many different Doctors, and I would get meds FOR the rash and peeling, but no-one could figure out what was CAUSING this.

    And then, one day I thought "Maybe there is something in this that is causing this burning, rash & peeling on my hands... I looked up all the ingredients.. One of them sounded ominous! And I researched it further & found "May cause an allergic reaction, hives, swelling...." So I started wearing rubber gloves.... THE SAME INGREDIENT IS IN "RUBBER" GLOVES!

    And besides THAT, that medicine would be all OVER her fur when I pet her.... I had to quit using that medicine altogether. So it was up to ME to figure out what was wrong.....

    Same thing with my ears! One morning I woke up and couldn't HEAR!.... Left ear was worse.... Right ear was not as bad...... Man, I tried everything... First Doc said "It must be allergies"... So we did all THAT stuff for a month.... nothing.... Then the Audiologist said Profound Hearing Loss... and all I could do was get hearing aids.

    I didn't know what I DID! One day I was fine... and overnight I lost most of my hearing! My Husband kept saying, it MUST be something you are taking. And all I was taking was Tamoxifen. Then I researched THAT, and the side effects... The labels all said that Side Effects included possible Stroke, Cataracts... blah-blah, but you NEVER think it will happen to you.

    And I found PAGES of women who have lost their hearing due to a stroke near the 8th cranial nerve in the base of the brain-stem... causing hearing loss. Doesn't happen all the time... only to a certain few, with a certain gene, that this happens to.

    But oh well... At least I can wear hearing aids, and appear somewhat normal.... shut-up Cammi! Needless to say I quit Tamoxifen, but if there would have been a "test" for this gene, I wouldn't have been prescribed Tamoxifen. And I was too afraid to try any of the others... So my Doctors couldn't help me with that problem.... I had to figure it out for myself... And there aren't enough women who this has happened to... And Tamoxifen has probably helped a lot more women than hurt them....

    I'm just such a bearer of good news this morning.... ! Ha! I have to get another cup of coffee!



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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2015

    Chevy- my BFF thought she had a stroke last year as she was loosing hearing in one ear. She went through all kinds of tests/a brain MRI. She found out in the end it was Menieres disease which is highly treatable and she is doing better. So many reasons for hearing changes.

    Speaking of Cami per your post, where the heck is she?

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  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited April 2015

    Phyllis I love the pic. You look amazing !

    So many people out doing wonderful things today in this beautiful weather you go girls ! Live it up !

    Yesterday and today I have been miserable. Lots of back psin and big D. Very nauseated. Ugh. Ready to get back to life. I won't back down. We are gonna find the solution and start with the thyroid. One thing is for sure ... I slways get nac up !!!!

    Hootie hoo to sll

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2015

    Patty- sorry you are not feeling well again. Can you take anything for the big D? I love the "hootie hoo" thing too.......

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited April 2015

    Came back from an early Earth Day clean-up in my neighborhood and came down with a headache. Took a nap and its gone.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2015

    Mommy-good for you on the Earth Day clean up. We have one here next Saturday and I participate most every year and will do so this year!

    Take care of the headaches. If they persist, do get that checked out.

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited April 2015

    Hi guys! Cammi is somewhere! Between her teeth, and tests, and who knows what ELSE is wrong with her, she just doesn't feel like posting I guess. I just want her to come back.....

    Jazzy, did her hearing come back? Mine never did.... It just happened one night.... I went to bed and could hear..... woke up and could barely hear out of my left ear.... The right was a little better.... but it never came back.... Menieres disease IS treatable....!

    At least I can wear hearing aids.... It's not ever the same as "normal" hearing, but better than it was.... It COULD have been worse....

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited April 2015

    Ms Graham, you are screwed up too?  Glad I am not alone.  You look marvelous.  I love your beautiful eyes and dimples. Anyway, could I borrow your artist friend?  I need a major make over myself.

    Ms Spookie, you are so naughty.

    Ms Sass, how did they put the rainbow in the wine glass? So delicate.  I read your post on the new thread...I am still digesting it.

    Ms Smaarty, I wonder if it has to do anything with your gallbladder. I remember from awhile back you lost quite a bit of weight right?  Hopefully, it  is nothing that can't be fixed.

    Susan, I saw that you had 40 nodes removed and now after 14 years you developed lymphedema?  I guess time is not a good indicator of whether or not you will get lymphedema. I have not had lymphedema yet, but had 2 bouts of cording. It was painful and uncomfortable.  Are you seeing a PT who is specializing in lymphedema?

    Ms Blondie, I hope the warm air will not bother your breathing.

    Rose, the train ride sounds fun. Hope the kids had fun.

    Ms Chevy, I am sorry about the hearing loss caused by Tamoxifen.  I have ringing in my ears after the recent surgery I had in January. I am ok when there is background noise, but when it is quiet, it's a different story.

    Dear Patty, hope you get some energy soon so you can go out and get some sun. Have you had your vitamin D level checked?

    Mag and Beachbum- hoping you have energy to get some laundry done today.

    Mommy, another headache?  Sorry.  Is it because you are nervous about your surgery next week?

    I hope you all find Cami.

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited April 2015

    I forgot to mention...are you sure you gals are insomniacs? I don't have problem with insomnia, but I find it ironic that the other day I was hooooting away and no one was around. I had to stop because I did not want to wake anyone up!

    image

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited April 2015

    Think its because I'm getting really stressed out this week with everything but not the surgery

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2015

    Chevy- she told me very recently her hearing is coming back. It just took them awhile to figure out what was going on. She was very dizzy for a long time as well, and it really scared her. She came through a very tough period of elder care stuff and then a messy estate settlement and the whole thing just threw her into more health issues.

    She sounds much better now, but is learning to take better care of herself. We often talk about how we are putting ourselves first these days. We have to!

    Mommy- why are you stressed out?

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited April 2015

    Just too much crap going on. I just feel like sitting in my favorite chair and having a good cry.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited April 2015

    Loveyoflife.....Love the owl. Wish they're was room for it in the topic box. The meerkat pic came when we were in a time of trouble. I forget what the trouble was, but it was such a good image of us holding onto each other. I'm fairly sure Chevy posted it the first time. The bluebird was added when Kristine was in trouble with a brain tumor. Her screen name was initially Bluebird, but she changed it to FierceBluebird when the brain tumor was dx'd.  She since has passed. The meerkats and bluebird will never change. The other owl, they're is no attachment too, except I wrote the phrase "we can ride it out".

    I started the thread when I was truly an insomniac. I chose to make it my home thread when I was being stalked. I invited people to come. They came. Others have come since  :)    A thread once created, the topic name can't change, but the message within the topic box can be edited by the thread originator. It was an insomniacs thread, but threads evolve. We post at all hours.

    In the early days I used to talk to myself, if no one was around. It was just a nice place to be. Someone would come along eventually. I remember one night Nancynow and I were both yakking into the wee hours and a newbie posts, she is Spanish speaking and writing. limited English. Nancy and I were so tired.  It was omd we can't sign out, she needs help. Out of that contact, I wrote the Mods about having a Spanish access. They developed the Spanish arm of BCO. Cool.

    There is a tendency here to not talk of serious issues for along time. To keep it lite and bright. To have a place to come to that's not talking BC. But we are family. A chosen family. We need to take care of each other in the good times and the bad. Can't be a good Meerkat if we aren't looking out and around. L&H&P's

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited April 2015


    Mommy what up?

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  • MombieZombie
    MombieZombie Member Posts: 509
    edited April 2015

    Hey all--I've been just lurking for a while.

    Sassy--love your words about this thread. I gravitated here the first day I made my BCO account. The gals here are great.

    Lover--I haven't lurked in the night lately because my borrowed lap-top had to be taken back to its owner, but I'm a true insomniac. Maybe we'll bump into one another in the night some time. :)

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  • mostlymom
    mostlymom Member Posts: 466
    edited April 2015

    image

    peek-a-boo

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited April 2015


    MommieZZ-----nice

    Mostlymom ---I certainly had to look intensely ---owls are such good blenders.

    Folks the new thread needs some help. The concept is good, but will die without posters. It isn't a fun topic. It's what I call a technical thread versus a social thread. We all have been upset about Blondie being denied her meds. Now we know why. She was labeled by the system by the word DENIAL. It's a moment that we may cause change. Post.

    https://community.breastcancer.org/forum/110/topic/830496?page=1#post_4366438

     

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  • Loveroflife
    Loveroflife Member Posts: 5,563
    edited April 2015

    Sass, I was just joking, but thank you for beautiful story behind the pictures. That is a wonderful way to remember a sister. Excuse me for my ignorance, but what is L&H&P's? Love, hug, and peace?

    Cute peek-a-boo owl Mostlymom.

    Mommiez, sometimes I have no concept of time and tend to lurk at night while waiting for my 11 yr old to fall asleep. Every so often she has this fear of being in the room by herself and can't fall asleep unless someone is in the room with her...silly child.

    What happened to Blondie?

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited April 2015

    Blondie Yoo hoo tell your story sweetie about how you were denied your pain meds. But pleas, put it on the new thread to. We need to get some fire under the sisters. Talk about Pinktober Revolution. THIS IS IT. Forklift, now we know why you were denied. Let's take off at the gonads.

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