Going it alone
I'm new here--just joined. This world of treatments and choices is very scary and unsettling. I only had my biopsy six weeks ago..and I feel like I've been sucked into a tornado. Never been sick up to now.
Is anyone else alone like me--I'm 67 with no spouse (I'm a widow, 15 years in July) or boyfriend, no kids, no siblings. My mother is 90 and lives across the country. I saw her for the first time in 24 years this past January. We talk on the phone (when I call), but she's pretty focused on the fact that she "has nothing left to look forward to."
My late husband had many, many health problems (kidney transplant, hip replacement, two heart attacks, pneumonia, and other stuff), and I was ALWAYS there for him. He was hospitalized at least 20 times during our 10-year marriage (second marriage for both of us). There's no one to Be There for me in that way.
When I told my friends about my diagnosis, lots of people said, "whatever you need," etc., and I really really appreciate that. But when you're alone at 3:00 in the morning and pacing the house. Or when you wake up scared and just wish someone was there to make you a cup of coffee...there's nothing like a spouse/partner...or I guess, a parent or daughter/son. As a childless only child, I've experienced many times that "blood is thicker than water." I know husbands can emotionally abandon you, and children can be scarce (look at me and my mother!), and "family" is not a guarantee of support. I know friends "choose" and family doesn't. And yes, I know that in the end, we're all alone anyway.
I figure this is the one place I can let my hair down and reveal how I really feel. This past weekend I began to confront this new world and realized no one in my life is in here with me, the way I was with my husband. And no one will be. That makes me very sad. I don't want to carry all of this by myself. I want someone next to me that I can lean on. Not first this friend, and then that friend, and then they get back to their ordinary lives. (As much as I appreciate them-- and I truly do.) I don't want to be alone in this ordeal.
I know there are support groups--I'm not looking so much for practical suggestions as I am for sympathy/empathy and comfort.
If you're alone, how do you manage emotionally?
Comments
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Hi Jane,
We're sorry you have to be here, but really glad you found us. Our Community, as you're sure to see, is an extremely supportive, helpful, knowledgeable, caring place where you can express everything you're feeling, and you'll find many others who feel like you do.
In fact, you may even be interested in checking out the forum Singles with Breast Cancer, to meet others and discuss how they are navigating a breast cancer diagnosis "alone".
We hope this helps! Please let us know how else we can help!
--The Mods
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Response to your question: not well!I am also alone, but not yet 40, and I work long hours, in an industry where people are not 'nice' so there are only a handful of colleagues who know of my diagnosis. I had a 'prospective boyfriend' (I come from a broken home and had really bad experiences with men when young so don't trust them) who ran away (quite literally) on diagnosis, as if I were contagious or 'bad luck' or something. You know what he told me: 'I don't have any time for this'.
I really felt like answering back: 'yeah, I might not have much time left either'. I made him wait because I wanted to make sure he was serious: I don't regret not having 'dived in' as he would have left me all the same, and it would have been even worse.
I am renting and I am going to have to move out some time this summer, right in the middle of treatment (I am really on a roll: b/f; bc; and now accommodation issues), so I am freaking out as I am a one-person household: how I am going to get another rental agreement? What about a mortgage further down the line? Even if I beat this one, by the time I'll be officially 'cancer free', I'll be in my 50's. I am really worried about my career too: it is really ironical that I have worked so hard to get where I am, I have lived such a 'saintly' lifestyle too, and now bc is threatening to destroy everything, me included.
Feeling very lonely too which is why I hit this forum when I got diagnosed: I had found 2 other forums but women were constantly chatting about children, grandchildren etc. and besides I couldn't find anyone with the same diagnosis as me, which really, really, really scared me... This forum is much better
Don't have much spare time but am trying to continue going to the gym, esp. classes. I only make small talk with the other ladies, but they're kind, and most of them have had health problems (that's why they're at the gym!) so I know they won't 'reject' me if I show up with a headscarf or any other visible signs. If I wasn't renting, I would try to get a cat, although I would have to make provisions for what happens to him when I die. I get insomnia too and sometimes I really do crave a hug, especially at 3am! A virtual one is all I can manage right now, however I hope that when I will be in hospital some of the other patients or nurses won't be too afraid of physical contact. I sometimes wonder whether I should 'become' lesbian: maybe I'd find a partner who is less interested into how I look, and more into who I am.
Well done for supporting your husband the way you did. I don't really believe in karma and all that stuff, but I hope some of your friends or neighbours will be willing to give a bit of their time and energy. Giving you a virtual hug if I may.
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Hi Penzance- When I saw your screen name, I wondered if you were either British or a big Gilbert & Sullivan fan (or both), and then the "neighbours" in your last line gave you away.
I'm a renter and I have two dogs and three cats and a prince for a landlord. Surely in England you can find a landlord who will at least allow one cat? Having the animals around helps--the place would be really empty without them. This whole thing is so overwhelming. To have to make big decisions with long-range consequences based on "studies" that really can't predict what will happen to any one individual person...yikes. And yeah, you have been pushing this rock up the mountain for years and with one diagnosis, the whole thing threatens to slip all the way down. I do hope you can find a good place to live. I sold my house (will NEVER own another one!) in a small town near here a couple of years ago, and drove around until I found this rental in the city, which is THE most darling place you ever saw with a tiny fenced back yard for the dogs. I have fantastic neighbors, something I've never had before. I wish the same for you (and a cat).
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Hi, JaneQ - no, you are not the only one without a significant other, or any children. I turned 55 yesterday. Had dinner with my brother's family. Went home to my empty house, and laid in bed staring at the ceiling, feeling like a ghost.
Sometimes it's so lonely (usually at night), and it's worse now that I have a serious illness. I have had to reach out to others, more than they reach out to me, which isn't so easy.
I have a cat. Who has his own health problems (we're quite the pair.)
Also, I confess I spend a lot of time online, and I watch more television than is good for me.
Anyway, welcome to the forum. I have found a lot of comfort and support here. It's easy to look at our solitary lives and feel like a loser, but we are actually pretty brave and resourceful, doing this on our own.
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Thanks, NineTwelve. One of my cats has bladder issues and is on four medications per day. I agree that nights are bad. I don't feel brave, but thanks for saying so.
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Hi JaneQ,
I am 37 and was casually dating when I was diagnosed. The guy I was seeing literally left town to meet another girl the day of my first treatment so that ended that. I was single all through chemo and I actually enjoyed being a hermit through that time. I stocked up on TV series, books and movies and snuggled with my 2 cats.
It was really hard to take people up on their offer to help but I did and it has strengthened my friendships.
During chemo I would ask friends to come by to take me for a walk when it would fit in their schedule. I knew that walking would make me feel better even though I didn't want to do it. Sometimes we would just walk around the block but sometimes it would be a little longer of a walk. I was sometimes surprised how much I perked up once outside and moving.
When I had surgery I asked one friend to drive me to/from surgery and help me with dinner, another to stay overnight and another to hang out during the day the next day. Each person was able to support me at a time and in a way that worked for them and I felt so much better having someone around.
After I had surgery I started dating someone new, which has been it's own challenges but is going pretty well. I see him a couple nights a week but my friends are still my main support network. I am just now finishing up radiation.
It really has been amazing to feel so much love and support coming from places that I never would have guessed. I have been totally surprised by who stood up to help and reached out to me, including people that I barely knew.
Best,
Kate
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That's a great post, Kate. When people say they want to help, I don't know what to tell them-- you have some great ideas.
I'm glad the first guy ran--obviously he wasn't worthy of you. He showed his true colors early in the game.
Sometimes I have a hard time keeping myself from sliding down the mopey glass mountain into the whiny pit, and your post was uplifting. Thank you.
But more importantly: what are your cats' names?? My orange tabby cat Max ADORES me. He drapes himself across my arm and lets me stroke his paws and just g-a-z-e-s at me transfixed by my utter wonderfulness. (sigh)
JQP
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Both my cats are black and the long haired boy, Marcel, is my lover. He has bedroom eyes like your Max. My other cat, Priscilla, rules the house and enjoys it when I sit perfectly still so she can lean on me and she sometimes enjoys letting me pet her.
I did an exercise in a dance/performance workshop on feeling emotions completely, letting them over take you and then letting them go that was really helpful for me. You can be completely sad, cry, pout and mope and then just get over it when you're over it and be just as happy as you were sad. I think that our society stigmatizes an "emotional roller coaster" but I have embraced all the feels and I think I am much better off for it.
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You sound like my soulmate. I absolutely believe in feeling your feelings, including crying whenever I feel like it. It bothers me when people refer to shedding a few tears as "breaking down." Like there's something wrong or pathological about crying-- especially when you're hurt or really sad. (When they did the wire localization before the lumpectomy-- apparently with a minimum of local anesthesia-- I cried during the whole thing!)
When my husband passed away (this year it will be 15 years), the ONLY thing that got me through the early months was crying whenever and wherever I felt the urge. And it did help me feel better for a while (until it built up again...and then you cry again). Didn't wear eye makeup for about two years.
You are so gutsy to be in a dance/performance workshop! Wow. I really admire that.
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JQP, so sorry you are feeling this way, but it's understandable with what you are going through. I am 60, divorced, but do have 2 (very busy) children, who have their own lives and kids to deal with. My dog is my comfort. I have two very dear friends that have been super supportive. One of them took me to almost every Dr appt I had. I did have a time at the beginning, that I felt very helpless, alone and scared and wished I had someone there, too. But, I have come to the conclusion that this is Gods' plan for me right now and I have leaned on my faith also. Sometimes friends just don't know what to do, so they don't do anything. Give them direction and suggestions. Maybe someone can bring you a home-cooked meal, rent a movie and hang out. It's okay to have a pity party now and then; we all do. Like you said, just don't get lost in it. And, if you feel yourself going there, you can always ask for professional help. You will amaze yourself at how strong you can be!
Where in Texas are you?
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It sounds like handled the loss of your husband with grace. I'm sure that was a hard time and crying sounds like the best way to handle it since it gets the emotion out and doesn't hurt anybody in anyway.
Dance has actually been a big part of what has gotten me through this. I'm a belly dancer and the dance community has been incredibly supportive. Dancing has actually helped with my side effects as well.
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I wish I could just give you a big hug because I cannot imagine what you must be dealing with. I do thank you though for giving me a reminder to not take for granted the support that I have.
I'm sure that you have a friend that you don't realize won't be bothered with a 3:00am phone call. Sometimes that support comes from the ones we least expect.
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Thanks for the replies.
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Today I had radiation treatment #9 of 16. It's so simple that it's hard to believe it can possibly have any effect. I'm in the machine for about 10 minutes and the radiation is actually on for four 20-second bursts. I count the seconds. The radiation techs are soooo nice-- in fact, everyone is. I really have nothing to complain about. And I'm not complaining... but...
I'm posting this here because every now and then-- like today-- it hits me that I'm going through this all alone. Not ALL alone, as I do have friends who take an interest from time to time. When I'm on their calendar. When nothing more important in their lives is going on.
But yesterday I was reading the facebook page of a woman I went to grade school with and her posts for the past year or so on her "cancer journey" were all about her husband and her kids and her grandchildren and her siblings and her church and I just picture her buoyed up, cradled, and held by all this LOVE. A big nest of love. A bit quilt of love just for her because of who she is to these people. Not generic love, but specific for her. Made for her. Specific, love directed at wife, mom, grandma, sister-- love for her. Love from people who think of her even when she's not with them and when they haven't seen her for a while.
I so want that special love that is just for me. Not the "one of the girls" or "someone I work with" or an online pal. I do appreciate these friends and well-wishers. But I'm not on anyone's mind. I long to be The One to someone.
If this sounds too whiny, just ignore me. Today I feel sad and mopey. And so alone.
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Hi Jane - I'm sorry you feel so alone. No advice, but I just wanted you to know that I hear you and I wish you a better day tomorrow. For some reason an old John Denver song comes into my head when I am feeling the way you are today - I think it is called "Sad Song". Someday are just like that. Sending you a gentle cyber hug.
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Hugs to you JQP. Hope today is better for you. Is trying out a local church an option for you? How about a support group - check where you're being treated.And you know, no matter WHO is or was around, I always got onto that radiation table by myself. . .I was acutely aware that I was the one needing treatment, not anyone else close to me. Where you focus your mind is important - don't get caught up in the fairy-like idea of human support because the reality is often very disappointing. Smell some flowers today, or whatever it is that makes you genuinely smile. (((hugs))) Merrellgirl
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Thanks for the replies. i really don't know what I'm going to do... but I appreciate the kind thoughts.
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Hi, Jane
I know exactly what you mean. I am not anyone's first thought or favorite thing. I haven't had a husband or boyfriend in 14 years. It's been that long since I was in love with anyone. I get what that feels like.
But I remember when I was that to someone, and I don't think it made me more contented or a better person than I am now. I think happiness kind of finds its own level in each person, and we let ourselves have only as much as we are used to having.
If only we could find a way to expand our joy. I think there must be some way, so I keep searching.
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Jane, I hear you. Just had last T/C last week and trying to recover, but this one is really hard. I hsve someone here for treatments for 10 days, then they leave. No one lives in my city. I just moved here 2 years ago so I do not have any friends here. I just worked as a teacher and was pretty isolated in my job. Then, this happened. I am so alone and do want love in my life, but am feeling very discouraged. Still hsve to hsve exchange surgery sometime this fall and have to get stronger and get through that. How fo we do this?
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I don't know... just keep putting one foot in front of the other, I guess. It's difficult...
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Jane,
So sorry you are feeling alone. I can say I think I understand. Although I do have family, 3 grown children, a daughter and 2 sons and many friends I too feel alone.
My husband of 30 years passed away on April 2nd. He was a truly wonderful man in every way, I was the love of his life and he of mine. He was diagnosed with small intestine cancer and gone from us in less than 8 weeks. I was diagnosed with BC on June 19th. My kids were grieving for him and then I had to tell them this news. My surgery was July 15th. Good results, although very much discomfort still.
My kids are wonderful, my daughter and sons have been here for me every step of the way. I still feel alone without my husband, and I dont know if that will ever go away. I have joined a bereavement group that starts this week. I will let you know how it goes.
In the meantime, I do urge you to consider joining a support group, being alone physically all the time cannot be doing you any good. There are probably breast cancer support groups in your area. Believe me, just having another person around does help, if only temporarily.
Sending you a warm hug and good thoughts.
Pat Brx
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Jane,
So sorry you are feeling alone. I can say I think I understand. Although I do have family, 3 grown children, a daughter and 2 sons and many friends I too feel alone.
My husband of 30 years passed away on April 2nd. He was a truly wonderful man in every way, I was the love of his life and he of mine. He was diagnosed with small intestine cancer and gone from us in less than 8 weeks. I was diagnosed with BC on June 19th. My kids were grieving for him and then I had to tell them this news. My surgery was July 15th. Good results, although very much discomfort still.
My kids are wonderful, my daughter and sons have been here for me every step of the way. I still feel alone without my husband, and I dont know if that will ever go away. I have joined a bereavement group that starts this week. I will let you know how it goes.
In the meantime, I do urge you to consider joining a support group, being alone physically all the time cannot be doing you any good. There are probably breast cancer support groups in your area. Believe me, just having another person around does help, if only temporarily.
Sending you a warm hug and good thoughts.
Pat Brx
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You know, I'm not alone per say - my dad and step mom have taken me in and I have been having my BC handled here. But... I'm single with 2 children who are with their dad in another state. My mom and the rest of the crew are also in another state. I got a call from my sister and brother when I had surgery - than nothing. Surgery is over so no one cares to check in, I haven't head one peep since my last surgery on the 20th. I have no friends really either but than I guess that is my fault - right? I too yearn for the human touch. How nice it would be for someone to just wrap their arms around me and let me cry. Or someone to just stop buy, send me a card (got 2 and not from my family) or flowers. Why is it that everyone thinks life "moves" on once surgery is over? I feel trapped in this house - my dad is retired and cannot add me on his car insurance so I cannot even get away from here and do my own thing.
I don't know, I think I am just tired of feeling alone and having folks expecting me to "move on" cause surgery is over and it's been 3 months since my dx - so come on now - get on with your life will you.
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Sometimes you can feel more alone when there are people around, but you don't get the support and connection from them that you want. At least I know why I don't get called by my children, grandchildren, husband, brothers/sisters, other family-- I don't have any.
When you do have them and they don't seem all that interested... that hurts.
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