INSOMNIACS place to talk in the wee hours
Comments
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I take enough meds, Sas is about to have a heart attack about them. The D is the ONLY supplement and calcium that I take. I think if you have a reasonable diet, you get what you need.
Mods, delete this if not allowed:
Go to About.com, click on fibro. There is a lot of info there about D, backed up by reputable studies. Have a big coffee close, it's a good read.
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Susan--cute idea for the picure. Sounds like you live in a fun place. Playing near home is great around here too. Lake cabin is one hour away. Beach--hour and a half. Parks and hiking all over the place. We can spend a couple of hours just walking through the combined yards of mine, my inlaws and another relative. The inlaws have a huge firepit with benches all around. We like to go out there and do s'mores and picnics.
Spookie--I like to rely on what's in my food too.
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Spookie, Actually, calcium supplements can be a problem-----I know you don't want me to say anything. Lots of your medical prob. OOps you don't want to hear---shoosh sassy. Mods would not delete if you aren't trying to sell something or go against their rules. i.e. posting in too many places. That's why I was banned last year. They just don't get that a posting here will make it to Timbuctu.
Susan Hello, please give us an update > Miss you
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MammaRay, in Florida, Sun mostly travel within state---over to Tampa for DS and Doc. Dear cousin 1/2 hour away. Over to Disney when friends family are visiting. Dear Brother here six months of the year, but to far too visit frequently. Love having DC so close. -
sas...not much to update. Hubby doing very well after back surgery. Fused L3,4and 5. He is back at work, lifting ban, of course, but all his pain in leg foot and shoulder is gone. Yeahhhhh
The chemo I am on now isn't bad. Get tired around day 11,12 and13. Sleep a lot then, otherwise doing great.
Master bedroom and bath being gutted, that's going well also.
Ok.....maybe there was a lot to update...ha ha
Still working and of course knitting....started to run again since weather is getting better. Had to do a run walk....boo...but I will get it back to all run..I am stubborn enough. I know walking is good enough, but I haven't sold that to myself yet.
Pattyp, how are you doing?
Hello everyone else
Sleep tight and sweet dreams
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Susan, Yes lots of good news. You're a runner didn't know that. I could look at a patients legs and ask if they were a runner. walker, or a golfer. Never got it wrong. Healthy look to the lower leg, knee, and thigh. SOOOOooooo happy for DH successful sx. Great doc.--had the dx's right and skill to relieve as evidenced by no pain post-op. Cool. Bless him. Lumbars are not the best design of Gods plan. Not sure why I'm doing well with four bulging disc's and the weight I'm carrying. Must be my staff assuming all hurtful activities. Plus, I've reduced falls by maintaining rules. Had numerous falls in 2013 when Dini came. Shats changed her routine and Dini laying in walk ways. A singular hole inches wide in a 200x100 yard took out my shoulder. Wet dog feet on ceramic took out my other shoulder. I came to call them Dog Falls after that. Created rules. Only one dog fall in 2014. 2015 two dog falls on Super Bowl Sunday.---broke a rule ---walked on the lawn to go to the back neighbors SB party. Both by the gate--small unevenness.... Good now,. Waiting for the pool to warm up.
The chemo--11-13 th day, common to the drug? Interesting. Expected pattern? Have you ever been to the Stitching thread here? Lots of nice folks there.
Yay, a new bathroom. Fun to redo.
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Susan--Yay for your DH good recovery! Sorry to hear you are on chemo. Glad it's going well. How many rounds do you have to complete? I am impressed that you are out running! My chemo (last Fall) flattened me completely.
My reactions to chemo were like clockwork. I even knew what day my mouth was going to hurt too much to eat pudding.
Sassy--That's a lot of accidents. I guess I'm a little slow. LOL I didn't catch on very quick that you must be a nurse. ARNP?
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sas, don't know if it's common. Low wbc, but that wouldn't do it...no biggy cause it doesn't last long. hubby had a very slow growing ostio arthritis . Pain started about 8 yrs ago, till the curve finally crushed the nerves. Not fun. So all in all, not to make light of it, they just need to straighten him back out to release the nerves. He has never had bulging or slipped or herniated discs. He is very licky for that. He is the cyclist in the family, I'm the runner , and daughter is the swimmer. Together we are an iron man..ha ha. Me being the weak link..lol
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Sweet dreams MammaRay Hope you can wake up refreshed tomorrow.
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Susan, I am clueless about normal, abnormal's on anything chemo,. But HAPPY you are otherwise doing FABULOUS on this chemo.-Hey , right? You and ChriisyB are in a class all your own. Duh-- ChrissyB ----Bone mets sine 2003. Hmm you gals should talk maybe. Interested?DH -Like I said lumbar not Dear Gods best design feature. Lordosis? Doesn't matter, he's fixed YAY HOOTIE HOO Anytime a problem is fixed and no infection---------fireworks celebration
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Well that's kinda of hairy versus beautiful, enlarging it made it kind of not pretty. Hmm Chevy, any opinion?
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Hi all. Just an update I am back in the hospital. Got here around 4 am wed. Same thing. Uncontrollable vomiting and diahrea. Very dehydrated and weak. White blood count very high. Infectious disease dr coming by for consult tomorrow. Hoping to get to the bottom of this. Finally.
Blondie - yes I cleared my voicemail. Call anytime.
Hugs to all
Hottie hoo
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Ah sheesh! She's back in the klink! Sorry Peppermint.... Hope it's an easy fix.... can't imagine being that sick!
Sass, sometimes the pictures I want to post from Google Images do the same thing.... If I try and enlarge they really get fuzzy.... It has something to do with the whatever, of which we don't know... It COULD be a beautul plant in bloom.... Ha!
Susan, many years ago I had the Ls4 and 5 operated on... Except my problem was different... The disks in between had squished out, and pressing on the Sciatic nerve.. Had to remove all that, and "coagulated blood" and didn't fuse...and no rods...or cage..... etc. But my MOM had Osteo-arthritis, and they "scraped" the sharp pieces off, to fix HER back. I know there are more technical explanations... but I don't know them. Anyway her back healed.... and mine has been great!
I think the "re-hab" I had, plus all the pushing and extreme massages I had beFORE the surgery, made it worse. Finally got to where I couldn't take the pain... A Neurologist fixed mine... After that they gave me Traction, and a little more re-hab, and it worked great!
Sorry Sass.... But I know about tripping or falling over our dogs... I was pretty good at that, but no real damage.... That's one reason I don't want to get another one right now... Since my hip, I'm just too afraid of falling agin.... MAN! THAT one hurt! Really wasn't my hip.... I broke the neck of my Femur... the part that connects the femur to the hip socket... So they just put a rod in my femur, screwed it into the ball joint, and another one lower down my leg.... But it worked out just fine! Amazing how your bones can heal together again... I mean even at MY age.... Ha!
Okay, I just want to ask.... Did any of you take lots of vitamins and supplements after your CA diagnosis? I think the reason I did that, is because I stopped the Tamoxifen, and wanted to think I was doing everything I could to not get CA again.... But did you feel any better when you took them?
I just never felt any different... and taking all of them was not fun.
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Patti--Scary! So sorry you are in the hospital. Prayers coming your way.
Chevy--I do take Vitamins and Supplements, but they are carefully tailored to specific things and I've had the help of my doctors to decide what things to take. I agree that some don't make you feel any different. But some are silently doing things you can't really feel or identify. Some take a long time to show results. The things I take now definitely make a difference. I'm currently on a B Complex for stress management. Definitely working. I'm on Potassium/Magnesium (can't recall why) and CoQ10 for heart protection. I know that's helping, I can feel the difference in my heart rhythms. Melatonin was to help me sleep--worked, but gave me bad headaches, so I quit that one. A lot of it is hit and miss. Oh, and I take Emergenc-C packets in place of a multivitamin. The high dose of C helps manage my joint pain and I don't get sick with colds as easy anymore. I've been taking probiotics for years. I haven't had a stomach flu since then, and chemo had less effects on my GI track thanks to that as well. Those are things that worked for me, but I think the Vitamin/Supplement world is no more exact a science than the rest of medicine world. I try to get most of what I need by healthy eating and exercise.
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Hello
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Hi!!!!
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Here too! Hey all!
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It's going to be a busy night. My DH's brother's family is coming to put on a musical concert for all of the family here tonight. They have seven kids. They ALL sing and play multiple instruments and they participate regularly in professional symphonies and local plays or musicals. It's going to be a nice evening I think! My own daughter is singing for a dinner/fundraiser tomorrow. I have to help her practice. She's 4'10' (she has Turner's Syndrome). She's singing Chim Chim Cheree dressed like a chimney sweep, complete with a chimney broom on an 8 foot pole. It's going to be so cute. DH is playing the accordion for the same event.
How's everyone today?
Patty--Are you doing any better?
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sounds fun momz
Chevy, same with hubby...everything they tried before surgery made it worse. Glad it worked for you too.
Patty.....ahhhhhhhh...how frustrating and exhausting. Hope they figure it out soon
Sweet dreams all
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thanks for the love ladies. Still hanging out at the hospital. Def the most expensive and most boring spring break ever.
Hootie hoo
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Patty, sorry, chit -
Mama, that's probably the main reason I moved. When we got married, our date was April 20. A week before, it snowed. I was hysterical. Crappy till mid June. Ugh.
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Ugh, sorry to hear about more snow Ray. We had a super nice, warm day yesterday. Hoping for similar today, once the fog burns off. We had a lot of rain before that. It's nice to dry out. I think I was starting to grow moss!
Patty--Hope you get to break out of "prison" soon.
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WOW Dr. Heaney answered my email the same day, I didn't open email till today. LOL Now I wish asked lot's more questions.
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Is there a contraindication to Vitamin D3 supplementation by breast cancer survivors? No
What amount of Vitamin D3 should a breast cancer patient/survivor take? Whatever it takes to get serum 25(OH)D above 40 ng/mL – typically 4000–6000 IU/d from all sources.
What amount of Vitamin D3 should a Breast cancer patient/survivor that has been previously diagnosed as deficient? ( pre BC-I was originally < 4 not detectable) Same as everyone else. See answer above.
Do cancer patients differ in the amount of Vitamin D3 needed versus the rest of the population? No
What is D2 a role with cancer patients? None. D3 does it all – better and cheaper than D2
Is there a link between Vitamin D deficiency and BC? Probably. Adequate vitamin D status helps our bodies recognize and throw off cancers in their earliest stages. Probably works better for some cancers than for others. We don’t know for sure which are protected and which are not.
Vitamin D3 deficiency and Thyroid cancer? See above. The link is clearter for breast cancer than for thyroid cancer
Recommendation on dose of Vitamin D3 for Metastatic Breast Cancer (MBC), specifically but not limited to, bone mets? Same as above. But no harm in pushing to a higher level, such as 60–80 ng/mL. (But don’t go above 200 ng/mL.)
Robert P. Heaney, M.D.
John A. Creighton University Professor Emeritus
Creighton University
2500 California Plaza
Omaha, NE 68178
Tel: 402 280 4029
Blog: <http://blogs.creighton.edu/heaney/>-------------------------------------------------------------------
About Dr. HeaneyRobert P. Heaney, BS’47, MD’51, is a clinical endocrinologist specializing in nutrition. Until 2014 He held the John A. Creighton University Professorship. He is world-renowned for providing nearly 50 years of advancements in our understanding of bone biology, osteoporosis, and human calcium and vitamin D physiology. -
Good to know. My naturopath retested my Vit D. I haven't got the results yet. People in Washington are often deficient though. We don't we enough sun in the Northwest. Too bad Vit D isn't in rain fall. None of us use umbrellas--we just run around getting wet. LOL There should be some benefit in that, right?!
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Yeah, it snowed here Wednesday, but yesterday it was all gone, and worked in one of the little gardens! Supposed to be nice all WEEK! But I saw the middle of April is still expecting temps down to damn 30!!!!
I planted a little bowl of those tiny "pea" tomatoes! I can bring that in when the temps go down. They are bush tomatoes, but they look like currants on the plant..... You need a whole hand-full to even taste them.... Ha!
Did you guys ever watch the story about "Shiloh" the little "Mermaid" girl? It was such a profound story of her young life.... her Parents, the Doctors and her care..... I could have posted it, but it is as much beautiful as it is up-setting..... She lived until she was 10.... and even THAT was a miracle. Just makes you appreciate your own life so much....and how many things we have to be thankful for.....
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Chevy--Those tomatoes sound fun. I might have to see if we can try growning those. It's always fun to have new things in the garden. We tried brussel sprouts last year. The stalks grew really tall, but there weren't any tiny "cabbages" on them.
That story about the little girl is sweet. It does put things into perspective. I've had kids in and out of pediactric hospitals over the years. It was always sobering to see that there are situations out there that are a lot harder. I'll keep my own sack of troubles thank you. My life seems pretty blessed.
My anniversary tree is starting to leaf out!! Not a single part of it died in the big transplant. I think a part of me was superstitiously thinking that I wouldn't make it through if the tree didn't. Silly I know.
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