Mastectomy scheduled - pretty sure i don't want recon?

Options

Hi everyone,

I received my Dx of DCIS, stage 0,Type II on 3/19. I'm a BC survivor from 24 years ago (same breast) and had a lumpectomy, chemo and radiation so am not a candidate for Lx w/rad again so Uni Mx is scheduled for 4/2. I'm about 90% sure I don't want recon but it seems like there is a lot of pressure out there to go that route. I'm 62 years old, a size 34E and really don't want to get reduction on the "good" side or go thru multiple surgeries. Also live about 100 miles from my major hospital and dr so that is a consideration. I know there are a lot of happy recon ladies out there but almost from the moment I found out about the Mx my thought was "I don't want reconstruction." I think the fact that I keep looking for reasons NOT to have recon means I really don't want it! I'm hoping I can find a decent fitting form / bra that will let me look "normal" in my clothes. Hubby is good with whatever I want to do. Just wanted to put it out there for any advice / words of wisdom......

Comments

  • glennie19
    glennie19 Member Posts: 6,398
    edited March 2015


    Hi bassetlover!    is that your baby in your picture?? So sorry to hear that you have had a reoccurence after 24 years!!

    There is no reason to do recon if you don't want to. There are foobs (prosthetics) in every size. There are lots of nice MX bras out there now. Our very own goddess Ariom is an expert at such things!  She has a foob-moire!! Be sure and visit Erica's page at breastfree.org.   Those 2 ladies are extremely helpful with foobs and bras and camisoles.

    Feel welcome to ask any questions and we will try to help.

  • DayLily15
    DayLily15 Member Posts: 144
    edited March 2015

    Hi Bassetlover

    i love bassets too, lemon and white is my favorite colour.

    like you i am thinking less, not more surgery.

    i have not worn a bra for 10ish years, i was worried that id now have to wear one, but the good ladies here left notes saying, not necessary [whew].

    xxoxx

  • bassetlover
    bassetlover Member Posts: 7
    edited March 2015

    Thank you glennie! Yes, that is my baby in the pic! i will definitely check out Ariom's posts and Erica's page. Appreciate the response -

  • bassetlover
    bassetlover Member Posts: 7
    edited March 2015

    Hi Daylily - yep - I think it will be one and done for me. Very personal decision and I think I'm pretty much at peace with it. Of course once I get home and look in the mirror I may have second thoughts but I don't think so.

    I have found this site to be extremely helpful and informative. Done nothing but read from here and other sites (Komen, American Cancer Society) for the last 3 days and it has been comforting to know there are so many sisters out there. I knew that 24 years ago but there was never a way to easily share like now.

    thank you all so much for sharing your journeys - it is much appreciated!

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2015

    I had bmx, from the beginning I told my BS no recon. I've been flat since then. I didn't want more surgery, I'm retired, if somebody has a problem with me being flat, so what

  • debiann
    debiann Member Posts: 1,200
    edited March 2015

    I think we all have a inner voice that tries to tell us what to do, but its difficult to hear it at first because so many others are giving us advice. Bassetlover, it sounds like your inner voice is coming through pretty strong so listen to it and not to others. There is no right or wrong answer, just what feels comfortable to you.


  • Ariom
    Ariom Member Posts: 6,197
    edited March 2015

    Hello bassetlover! another Uni here and Glennie is right, I do have a FoobMoire!LOL

    I was another who had that gut feeling that recon was not for me and over 2 years down the track, I have never regretted that decision. Please make the decision based on what you want, not what someone else thinks you should do.

    If you decide that you don't want recon, you must make sure your Surgeon is on the same page, you need to make your wishes very clear. I told my Surgeon I wanted a very straight scar and flat chest.

    There isn't any rush, I was assured that I could always reconstruct later if I changed my mind. I can't see it ever being something, I'd want to do, but it is good to have the option.You'll be surprised how many of us there are, both Uni's and BMX. The bras, clothing and forms available now, are pretty impressive.

    Take your time, try not to feel pressured. You can ask anything here, we are all happy to share our experiences.

  • bassetlover
    bassetlover Member Posts: 7
    edited March 2015

    Thank you so much debiann and Ariom - never thought about the inner voice but I think you're right. Meeting with the surgeon tomrrow and I wil be sure and make ii crystal clear what I want - I read about your dog ear experience Ariom and will use that as an example. You all have been very helpful in letting me be at peace with my decision.

    I do have a question for Ariom - about how long was your recovery from your Uni? I normally do pretty well with pain, am very healthy - yeah,except for the cancer - and am hoping to get to my "new" normal relatively soon. I know everyone is different but wanted to ask.

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited March 2015

    Bassetlover, I too knew right from the start that I had no interest in any recon. In fact as it turned out none of the options would work for me anyway. Nobody ever tried to talk me into it and I had NO idea that some surgeons are so arrogant that they leave some extra skin "for when you change your mind"! I was flabbergasted at some of the things I heard about, here!

    My scar is nice and flat and I rarely think much about it. There is still a fair amount of tenderness around the whole area. But my boob was always ouchy anyway so no big difference.

    I never had any other surgery so have nothing to compare it to, but it was a pretty quick recovery. I only had UMX so I still have one good arm. The arm with the SNB will be not much use for awhile. Be careful not to stretch it up at all for the first couple weeks. But I was back at work one week after surgery (nothing strenuous and nothing that can't be done one-handed). The drain came out on day 6. It was no big deal.

  • bassetlover
    bassetlover Member Posts: 7
    edited March 2015

    Thank you Jennie93 - great advice an encouraging news on the recovery! I still work part time but mostly from home so that is good to hear you got back to it so quickly. Hoping my surgeon will take me seriously - she seems to listen and to really care so I'll hope for the best

  • glennie19
    glennie19 Member Posts: 6,398
    edited March 2015


    i went back to work after 4 weeks,,, desk job,,, really I could have gone back sooner, but I have TONS of sick time and wanted to be off longer!

  • Ariom
    Ariom Member Posts: 6,197
    edited March 2015

    Hi bassetlover. I was very surprised that this surgery was nothing like I expected. For me, it was a surgery of strange sensations, I had no pain to speak of and the night of my Umx was spent walking the halls of the Hospital, chatting and having coffee with the Nurses. I didn't require any pain meds after the surgery or when I went home.The next morning, my Surgeon and the team arrived, took off the bandages and sent me home. I even talked my Husband into stopping at a mall on the way home, so I could grab a few things. I even bought shoes!

    My Daughter came to stay for 10 days to help me,which was wonderful, because it was difficult to use my right arm. For me, the recovery was quick, with the exception of the extreme tiredness which could hit me at any time, I could virtually drop off to sleep, mid sentence in the early few weeks.

    I did do the PT exercises religiously and started to massage my chest to prevent adhesions and to desensitize the skin, which can be uncomfortable from the scraping and the cutting of nerves, during the surgery.

    All in all, I have to say that as long as you take it easy and listen to your body, nap when you need to, eat really nutritious, drink plenty of water to flush the anesthetic from your body, eat food with enough protein to aid in your healing, you should do really well, so long as there are no unforseen issues. The drains are a nuisance, but they are gone soon enough.

    I had a couple of hiccups along the way, an infection and a seroma, and cording, but they were fixed relatively quickly without being much more than a nuisance.

    One tip, if I may, you may think it ridiculous, but for me it really worked at making me good with my decision. The night before my surgery, I had to stay in a Motel close to the Hospital, on my own. My Husband is a C5/6 quadriplegic and we live over an hour from the Hospital, so getting him up and out for a very early start was not an option. I was having trouble sleeping and was very nervous about the SNB, which we have discussed on another thread. I decided to actually speak too my right breast I said "You've let me down and you have to go!" weird, yes, but I became calm and managed to sleep.

    I wish you all the very best for a speedy recovery! Let us know how you're getting on.

  • bassetlover
    bassetlover Member Posts: 7
    edited March 2015

    Thanks again Ariom - great tips and I love the idea of saying goodbye - I've already kind of done that. I've had a love / hate relationship with my left breast for the last 24 years anyway so a final farewell I don't think will be too hard.

    Met with the BS today and she was very positive and seems on board with the straight incision and flat scar - no extra skin. Said she would do her best. She also said she wouldn't be taking any nodes so that is one less worry - besides, most of them were removed with the first BS. I'll definitely do the PT and massage. Appreciate the encouraging words!

  • crystalphm
    crystalphm Member Posts: 1,138
    edited March 2015

    Basset Lover, there are photos here as well as on the facebook Flat and Fabulous, and looking at them will help you and your doctor have the same vision. I truly lucked out because through my tears my doctor understood no more surgery for me and he made me nice, flat with no extra skin of fatty fluffy places.

  • Ariom
    Ariom Member Posts: 6,197
    edited March 2015

    That's great bassetlover! Glad to hear your Surgeon understands just what you want, that's something you don't need to worry about!

    crystalphm is right, there are many pics around that you can look at and even copy and show to your Surgeon if you want to. I also checked out breastfree.org and the Scar Project too.

    The truth be known though, having had a Mother, who was also a Uni, made it much easier for me. Her scar was not the best looking scar, she had a radical Umx and full Axillary clearance in '94, just 4 months after we lost my Dad.

    I must have learned a lot from her, without even realizing it. She was a very sophisticated, well groomed lady, but she handled being Dx and losing her breast with such grace, at such an emotional time, but she also had a wicked sense of humor, which got her through, too!

    Take it easy and let us know how you're doing.

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited March 2015

    I had the one mastectomy 14 years ago now. No reconstruction for me. Still happy with that decision.

  • bassetlover
    bassetlover Member Posts: 7
    edited April 2015

    Hi ladies - just a quick update post surgery. Back home and feeling great - no pain - just a little discomfort and happy it's over. The drains are a major pain but that too shall pass within the week. Scar about what I expected - thanks for the advice of looking at pics - that did help. No dog ears and surgeon did a good job. Obviously will be able to tell more in a week or two after healing but overall can't complain. I think I'll be able to get the hang of this uni-boob new normal without too much trouble. I do look forward to getting fitted with a prothesis but glad to move on to that phase. Life is good - helps so much to have wonderful husband, family and friends - and the support and advice of all of you that have gone before. Bless you all -

  • glennie19
    glennie19 Member Posts: 6,398
    edited April 2015


    Hi Bassetlover!  Glad to hear you are home and reasonably comfortable. The drains are indeed a pain but they will soon be history. For now, rest and catch up on TV shows!   Keep us posted!  glennie

  • Ariom
    Ariom Member Posts: 6,197
    edited April 2015

    bassetlover, Welcome to this side, of the surgery experience. I am so pleased to hear you're doing well and have a good scar result. When you are ready, take a look through the All things bras and prosthesis thread, there are lots of tips there to help you transition into being a Uni! Take it easy and let us know how you're getting on.

  • mel147
    mel147 Member Posts: 479
    edited April 2015

    Bassetlover - so glad you are home and doing well! As glennie said, the drains are a pain, but start the countdown and they'll be gone before you know it!

Categories