March 2015 Surgery Sisters
Comments
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Jenga, your wait is not much longer! I also went through a cleaning or "nesting" phase trying to get things ready--but it was pretty pointless to clean as my family of 5 quickly undid all of it. My 3 year old got tons of extra snuggles the week before my surgery. We have found other ways to snuggle since the surgery, she puts her head on my lap or "reads" me stories. It has been harder not picking things up or reaching above my limitation...I really don't see me lasting 6 weeks with that weight restriction!
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Hello all!!
New March surgery sister here. BMX with TE recon and SNB March 27th. DX with DCIS in January. Spent that time researching, meeting with cancer team at hospital and determining which course of action to take. After much deliberation and the advice of my med oncologist, I decided on the BMX. So here I am nearly a month later just 7 days away.
Nervous, worried and all the feelings that I'm sure SO many have been there and bought the tee shirt before me. I've had surgeries before like gallbladder, uterine fibroid, multiple breast biopsies and yet this go around I'm afraid of pain, anesthesia and the recovery process AND that the SNB will show something more.
But trying to be strong, gracious and take deep breaths. After all, look at all the amazing women that have walked this journey before? It's remarkable at how truly magnificent women can be.
Be well!
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Welcome PhillyEmma. Best wishes for a successful surgery and easy recovery.
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I can't wait to speak to my oncologist on April 3. I'm hoping I can get advice on treatment options. I'm still researching to decide if I want to move forward with a BMX. I am hoping I won't need chemo and want to be sure if I have a BMX can I also avoid radiation. Originally I was terrified of BMX but now treatments sound scarier. I read that radiation can cause problems down the line. I'm a former smoker and lung cancer can develop. Having had two surgeries now I'm a little braver.
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Hi phillyemma! Glad you joined us. You will find so much support here and so much information. You will do fine! Sounds like your health team is informative and has it together. Keep us pisted and ask awey, knowledge is power!
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Welcome PhillyEmma! Sorry you have joined the "club", but we welcome you. We'll be here to help you along the path.
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Hi sisters! I hope this will be coherent but I doubt it. I came home yesterday from the hospital after spending one night, with two little mounds on my chest..woo hoo! The TE pain is much worse than the BMX pain was but I feel better this time. I'm not waiting on test results and this feels like all I have to do is recover. I have a new respect for those of you who had recon at same time as umx or BMX. I have 2 drains and am at least 5 different kinds of meds. Hubby is awesome and taking good care of me.
As I was lying in pre op and wondering what in the heck was I doing, I started to cry. This journey sucks..for all of us. We have to make choices we never wanted to and all along hope they're the right ones.
I'm rambling but I just wanted to check in, welcome our new sisters and give my support. We can do this!
I didn't need a thing in the hospital other than my cell phone and chap stick. I am in my zip up fleece now and will live on the recliner for the next week or two.
Take care and ((hugs)) to all of you.
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just checking in. Sorry I haven't been on much but although I continue to recover well from my MX/SNB, I have found myself pretty low emotionally (although no one else knows, I'm putting up a good front) and haven't felt able to offer too much here. Think I am coming out of it now, so I would say to others, be prepared for the occasional down times but know they won't last. Still waiting for test results and hopefully some good news. All the best to all my March Surgery Sisters
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catsrus and hummingbirdlover...I hope you are doing better each and every day. I certainly can relate to how you are feeling. Got home on Thursday afternoon and physically have been doing pretty good. The emotional part will take a lot longer. I haven't had the courage to even look at my incisions - I kept my eyes closed while my hubby and sis in law helped me dress. Until I look I guess I can still trick my mind into thinking that nothing has changed. I know that sounds childish but it helps me get through the day. I know that I will need to look to begin the acceptance phase of this process but I felt like I needed a few more days to adjust to my new normal. My sis in law says everything "looks good" but her definition of good is probably not the same as mine. I am so glad to have her her with me although she will be leaving in a week and I know I will miss her support. Just trying to take it one day at a time and hoping that the pathology reports will only contain good news and no new surprises. Won't see the BS for another week and my MO until April 8th. Fortunately I am able to take as much time as I need from work and have a great and supportive boss/friend. Thinking of everyone who has undergone surgery and or is still waiting for surgery. Hugs to all. Candy
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hummingbird,
Glad to hear from you! I didn't have TEs, was direct to implant, but yeah, having your muscles cut and stretched certainly adds some discomfort...lol. May you have a smooth recovery and get those drains out soon enough (even if they are there for a good reason right now!)
I am not dealing with nearly as much of the stuff as you ladies, in terms of worrying about pathologies and other treatments, are since my first surgery was all prophylactic, and this was all more cosmetic, and honestly first time around I had no problem adjusting to the new me....I think my relief at reducing my risk overtook all and I felt pretty good and positive...released from the cloud of anxiety I had. But after this surgery, I did have a couple down days about how things were looking despite logically knowing that it takes time, and I know the revision surgery might not resolve all issues 100%. It was peculiar as I certainly look 100x better this soon out of surgery than I did last time! Last time I looked like someone had beaten me in the chest with a bat, and my implants at first were up near my neck. Not pretty! But I was more curious than anything, and found the whole healimg process rather fascinating. No problem looking. I think this timemaybe it was a coming down from the GA combined with some life stresses and so on...because honestly I feel so great physically this time around, not at all like before, and also know I will get back to it as I did last time...so it really felt like a bit of a GA downer. I don't know.
Now for my own negative news, not directly related to surgery but it is related to why I did do this surgery...and this thread is my "main thread" at the moment...
For those who do not know, just days after my surgery in April of 2014, I found out my mother, who was originally diagnosed with breast cancer in December 2005, had had a Metastastic recurrence. She went on a new AI (she was taking another AI at time) and they radiated her hip for pain relief. At that time, it only appeared to be in her hip. She had some pain relief, and her hip tumour appeared to shrink up a bit. Her next scans in October were positive. We were hopeful that things would stay somewhat quiet for a bit, though of course we were quite aware how fast things could turn (my grandmother, great grandmother, etc had all died of metastatic breast cancer so yeah, my mum is definitely keenly aware).
Anyway, oddly enough, I just found out today, days after my second surgery, my mother had has quite a bit of progression in last handful of months....in her hip but also a couple of spots have now shown up in her spine, ribs, and on her lungs (the latter which may or may not be mets, but they were not there in October). She starts oral chemo on Monday. She is pretty anxious about it...she had chemo (the infusion kind) at her original dx and it was difficult. She had to go to a standing workshop held every Friday last week (sad that they need a standing workshop for oral chemo, isn't it?) where they talked about oral chemo, and what precautions to take, etc. She said it felt like a Haz Mat class.
It's all so unfair. My mother is still active, busy, and pretty young IMO...57...and it is so déjà vu...both my mother and grandmother had their original diagnosis at 48, and a recurrence a few years later...my grandmother died at 59...and while we are still hopeful mum will see past that, this progression so soon and having to go on oral chemo so soon...already turning to the bigger guns that generally you want to wait to have to bring out...is very, very discouraging. I know women can have year with just bone mets, but it seems hers is not going to respond to the first response team of AIs (her hip tumour was still ER+, but obviously the Tamox and 2 AIs were not enough)
My husband and I are going to try and figure out a way to go out and see her soon, we live a couple provinces away now, so it's a decent 13-14 hour drive, but I'll try and get something figured out with my work schedule. My mum would have paid to fly me out, but my husband would really like to see her too - he was pretty shook up when she had her mets dx, he really likes my mum a lot - and flights are pricey...so we will drive. It's hard being far away, we moved here in 2009, but as I told my sister who still lives in our hometown today, it can be hard being close to for its own reasons.
Cancer f'ng sucks.
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Divecat- I'm sorry about the news about your Mother. Your decision to do what you did with having a PBMX was a smart and brave one! My heart goes out to you and your family. I will never forget you because you were the first person to respond to me about trail running after my mastectomy when I first joined BCO. You are in my thoughts.
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I had my bilateral mastectomy with expanders on 2/25/15. I am scheduled to see my oncologist on 3/25/15 to determine if any chemo or radiation will be necessary. I had no idea the expanders would be so painful. However I am finally down to only 1 pain pill twice a day. My plastic surgeon used some muscle from my back to reinforce the breast area for the permanent implants that will be going in. This muscle is painful and is below the armpit area. Has anyone else had this done and how long did it take for the muscle to shrink
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Sue1968..
It sounds like you had a lat flap? Here is a very long lat flap thread, you may want to read through and/or post your question particular to the lat flap there!: https://community.breastcancer.org/forum/44/topic/...
TEs are not pleasant unfortunately, and there are threads on TE woes as well around....I was direct to implant so never had them but it seems almost everyone is relieved when they are out!
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Thanks trail rose...I hope you are doing well
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DiveCat - 57 is definitely young....I'm 61 next month. Hugs to you and your mum. xx
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Divecat...You went direct to implants, but then you had another implant surgery? And, I read that you said your first implants were way up high. I am trying to decide about direct or expanders. I have implants now that are 10 years old and I would actually like to be a little larger. I knew nothing about implants - really - when I got them 10 years ago and just let the PS sort of decide what size to put in. Anyway, now, my PS for my upcoming BMX says he can do a direct to implant, but if I want to go larger, I am thinking an expander would be better. ?? What are your thoughts. It looks like you had to have a second surgery anyway to change (or fix) implants. As if we don't have enough to think about with a cancer diagnosis...and this too. Thank you.
Lynn
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jenga60, eaglemom - Hoping for a easy surgery for you both. Thankfully your wait will be over soon with good results.
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Divecat, I'm so sorry to hear about your mom. My mom was dx exactly one year before me. She had BMX, chemo and rads since hers wasn't caught as early as mine. It's hard to watch them suffer, isn't it? Your mom is young, mine is 71 and she's still young! I hope she responds well to treatment and I don't blame you one bit for the path you chose. I have 2 younger sisters and I'm sure it's on their mind as well.
NY2TX, just take your time and I promise it will get easier. I cried the first time I looked at my flat self but the shock does wear off and after a while, once I felt good again, it was easier to accept the new me. I'm glad you have help. My sister, who is a nurse came and spent the first week with me and it was so awesome having her here. I didn't want her to leave.
Good luck to Jenga60 and eagle mom tomorrow. We will be thinking of you.
Sue1968, I totally agree, I had no idea these TEs were going to be so uncomfortable! I keep reminding myself I'm only a few days out but wow, even with these good drugs, these puppies kinda hurt.
I truly feel better even now than I did this morning, which is encouraging.
((Hugs)) to all of you!
Kim
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thanks Kim for the encouraging words. I finally took a small peek today but not full frontal. Not ready for that yet. I am doing surprisingly well with little to no pain. Have been able to just rest all day on the couch or in bed since I have a great hubby and sis in law. Sending hugs to everyone. Candy
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MySunshine...I think with direct to implant your sizes are limited. Also, keep in mind your implants will be under the muscle. My 20 yr old implants were above the muscle. I had direct to implant with a size B.
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Hi everyone : I been creeping this thread for a couple of weeks now. I started this journey back in Sept 14 with a infected breast cyst . Went to docs received antibiotics and told I should book a mammogram because I'm 56 and never had one. I didn’t feel the need to overburdened our already stressed health care system . I was doing regular self exam and never felt anything. Screening mamo was Nov 26/14
Had diagnostic mammo on Dec 22/14 Required 2 biopsy on right and one on left . All core needle . That was done on Feb 12th and report was received on Feb 28th . 14.7mm Dcis with cals grade 2. I still can't feel it . That is lesson 1. Don't think this evil creepy thing always is a lump.
I go Wednesday for my SNB shots . Not looking forward to it. The actual ink and surgery will be at same time as lumpy. Then I have my wire location. Then I get to come home and return the next morning March 26/15 for my surgery .
It's getting closer and I'm getting more anxious .
I just wanted to say thanks to everyone on here for your experiences, it helps a lot . To those still waiting for surgery all the best for a pain free recovery.
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Hi all,
Just wanted to thank those for the welcome! It's been a busy weekend as last weekend before surgery. So been running around cleaning, errands and last spin classes, etc.
It's crazy how you want to speed up the week and yet pause it. My mind is constantly at war with itself. Since diagnosis there have been a lot of very early wake up calls to think and this weekend was no different. I surmise this week will be the worse.
I suppose I'm worried about pain, trauma of what I'll see, feel, experience etc. I fear the SNB will show something worse. What can I say other than I am probably experience some very normal feelings.
Anyway, thank you again, ladies. NY2TXbaby your post gives me encouragement that there is light after surgery and maybe the pain is tolerable.
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Good luck with your surgery. Mine is April 10 and I am already anxious. I just want it done and over.
Post how you are doing when you get home. From what I read on this site, most surgeries go really well. It is the waiting that is the worst. I, like you, am trying to keep up with things, get ready and exercise.
I will be praying that all goes well.
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Mysunshine...
Yes, I went direct to implant in April 2014. I had an elective revision on March 12 2015 to switch to a different implant style.
To be clear, any time I have ever said my implants were high, this was in the context of explaining the drop and fluff process to people - my implants were ONLY high to start right out of surgery - this is due to the pectorals squeezing them, and it happens with TE/exchange as well...just like with augmentation, implants in reconstruction need time to drop and fluff. They settled into proper place within a few weeks to months, and were perfectly placed. I often report this experience to women who are worried about their implants looking high and square right out of surgery, be it direct to implant or exchange, to show that you need to give your implants time to settle into their pockets and proper homes. Their placement was not why I changed them. Indeed, they were perfectly placed once I healed up. I changed them as due to my thin skin, I had a bit more rippling than I liked on one side. That was not due to going direct to implant, but due to my already thin tissues, combined with the mastectomy itself leaving even thinner tissues, and the implants style. I did not "have" to have a second surgery, I chose to, but yes, just as with TEs and expanders, sometimes if you go direct you do go back for revisions. I likely would have had rippling even going TEs, as I likely would have tried the same implants.
My very much elective revision surgery was very easy and my recovery also very easy. I don't feel any worse off for going in for a revision, than if I had done TEs and still needed at least 2 and maybe more surgeries (I likely would have had still had rippling issues to try and address). And many are really one and done after direct to implant, I could have been but I was a bit picky
. My recovery from the direct to implant went very well, the implants turned out pretty darn good, and I did not have to go through TEs and expanders. Even if I think of the first implants as "expanders" in the sense they were placeholders until I got my new implants, well, they were a heck of a lot more comfortable than it seems TEs are reported to be! So even with going in for a revision, I am still very happy I never did expanders...but I also never wanted to go bigger, if I did I would have needed expanders. I was a 30E before surgery, and remained a 30E after my first surgery. TEs did not make sense to me to use as I definitely did not want to go bigger
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thanks hummingbird.
I have heard the TEs might be a bit more comfortable once you start getting some fills...it alters the pressure points or something somewhat
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I've added you to the list canadiancampmama
The anxiety is understandable, though it will be over and you will be on the other side before you know it - don't hesitate to ask your doctor for some anti-anxiety meds or sleeping aids to get you through the next few days.
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Thanks divecat for the add.
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Thanks sunshine for the good thoughts. I'll keep you in mine as well. And I will definitely update here how I do as I know it is insightful for those of us waiting.
My PS is filling me 200-250 at surgery so hoping the pain port will take care of the adjustment. He says that because of the extra skin I will have (large breasted) he feels he can inject that much saline. That will put me half way there as my expanders are between 400-450. My incisions will be the upside down T instead so the implant sits better in the end. Fingers crossed it all goes we well.
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Welcome to PhillyEmma and Canadiancampmama!
Thursday can't come soon enough for me! I get my silicone implants that day! My nearly empty left TE is huge because I have developed a seroma under it and it keeps growing! Yesterday my family had a reunion 3 hours away and I decided to go because I had sisters that came from SD, Hawaii, and Texas and im in MO. It was a lot of fun, but I came back in a lot of pain. Too much activity. I'm supposed to be taking it really easy due to the seroma. Now my left foob is readdish and my chest muscles hurt nearly as much as post surgery. Supposedly they will fix it Thursday unless I get a fever and need antibiotics. Hopefully not! Going to lay around and wait till surgery since that's about all I can do anyway....
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justamy....
Please take it easy! I hope the next few days pass quickly and uneventfully, and you can get those blasted TEs out on Thursday!
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