Petrified

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited July 2014

    Farmer....another piece of info....Ive been told later in the week, pathologist disagree more.  Also, not a good idea for biopsies or surgeries to be done on Friday, as specimens have more time to degrade or spoil if not looked at before weekend. 

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited July 2014

    Wow! Makes sense though. 

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited July 2014

    Another stunning finding.  According to Johns Hopkins, blinded pathology reports can vary as much as 20% of the time.  One in five.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited July 2014

    I so wish I'd had the courage to ask my BS to send my slides to Johns Hopkins. I'm not sure if I thought he'd be mad or something. Nancy - VR is so right. Get as many questions answered up front because there will be things you always wonder about. Even now sometimes I still pour over every detail.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited July 2014

    farmer... this info isn't meant to frighten anyone. Pathologist reports varying may not mean they are incorrect.  While there are errors in some, it just means that pathologists are subjective.  Adding into the mix fatigue or poor specimens, one can appreciate why one should exhaust all means to getting the best info regarding their tumor. Sisters like me,with rare tumors, are very familiar with pathology disagreement.  Because pathologists and radiologists too, see fewer rare tumors, our tumors often need more examination. My tumor was found on an ultrasound and missed on a mammogram. When the prior mammos were reviewed again following my diagnosis, it was determined that it was missed becausee the radiologist mistook it for a cyst.

    Again,what surprises me most about what some have said on this thread was that their physicians didn't advocate genomic testing.  My understanding is that since these tests have been clinically used more and more each year, they have been influential in the decision making process in more than 20% of the cases....meaning...in 20% of the cases, the treatment p!an changed with the help of genomic testing. That is a huge number.  In my situation the treatment plan hadn't changed,  It merely reinforced the treatment plan that my doctor and I selected.

  • Tomboy
    Tomboy Member Posts: 3,945
    edited February 2015

    Hi, voracious reader, if you still are here following this thread, I am interested in what information you might have about luminal b subtypes. That is one that I am very interested in. I was reading this, just because it is a fascinating subject, and then you went and mentioned luminalB! that certainly got my attention! thanks for any info you might know about.

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