Starting chemo September 2014

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  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited February 2015

    Thanks for the positive thoughts and esp. The prayers. I am getting a bit anxious, trying not to think too much. Love, Jean

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited February 2015

    Don't forget about me!!!  I was an August surgery and chemo sister, but somehow I fell in love with the September sisters as well.  Been thinking about you.  You can do this!!!! 

  • Deblc
    Deblc Member Posts: 479
    edited February 2015

    Hi Ladies,

    I have posted this in a few threads to raise awareness of this petition, as I think it's an important cause to all of us. But response has been slow and has basically stalled. I am wondering if many people are not seeing it, so I am now posting it in some of the active threads. I hope you don't mind me doing this. If so, I will delete it.

    Some of you might be familiar with Ann Silberman's great blog "Breast cancer...but doctor I hate pink", which has chronicled her journey from diagnosis to metastasis. I know many of us share her concern that Pinktober madness does not necessarily help towards BC research for a cure. She has started a change.org petition requesting that more fundraising dollars be allocated to finding a cure rather than just raising awareness. I am posting the link here, hoping that we all can support this cause, by signing the petition and sharing on social media. Thank You !!

    https://www.change.org/p/keep-a-breast-foundation-...;


  • badhairday
    badhairday Member Posts: 178
    edited February 2015

    Hi chemo sisters! Just wanted to pop in because I was thinking of all of you today, and would love an update on how we are all doing.

    I have been a busy lady, prepping for my surgery on Friday. Now that it is getting closer, I am feeling a little anxious. Little E told me yesterday that he can't wait until all of this is over and he can have his normal mom back! I was choking back tears, trying to be brave and positive, and get him to talk about his feelings. He misses the mom that was always doing things, like hiking and going to the park. He also said he misses my squishy boobs! Apparently, hugs against these nasty TEs aren't the same! I miss my squishy boobs too, kiddo! If all goes well, exchange surgery will be in May or June, and then we can not hang out at the hospital so much.

    Life is slowly starting to feel "normal" again. It's amazing that the mundane things I used to take for granted and even complain about seem like such a blessing when I do them now. I don't know that I will ever enjoy grocery shopping or scrubbing the bathroom, but I know that I am grateful to be able to do those things now! (Except for bikini waxing! Had to do that this week, and ouch! Will never be grateful for that! LOL!)

    Hope you are all are feeling as well as you can, and getting stronger every day! Love and prayers to all!

  • Tobycc
    Tobycc Member Posts: 789
    edited February 2015

    bad hair, will be praying for you ! I was out same day.... Actually that night. You sound well prepared

    Gentle hugs and love,

    Kath

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited February 2015

    I will be thinking of you, my friend.  Keep us informed.  Big hugs to you.  Happy

  • Rose0766
    Rose0766 Member Posts: 92
    edited February 2015

    bad hair day, I'm having my mastectomy the same day you're having your hyster! Best wishes for an uneventful recovery! Remember, moving helps if you have gas pains, and use a pillow to splint your belly for coughing and sneezing, it helps

  • LARock
    LARock Member Posts: 229
    edited February 2015

    Sending prayers to those of you with upcoming surgeries. Jean, I'd love to hear how you're recovery is going.

    Today was the mid-point for my rads. Now I can count down!

    I'm at the gym now. I love, love, love feeling stronger every day.

    Love to all, Laura.

  • Tobycc
    Tobycc Member Posts: 789
    edited February 2015

    anyone else have their MO order a full pet scan after chemo? I am having my second to last tx Friday: last one March 23 then rads: but MO wants a full scan: no changes anywhere for me that I know of????

    Kath

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited February 2015

    I had my ALND last Thursday (no mastectomy). I only took 3 pain pills. I've had no real pain, just some mild stinging. Mr. Jackson Pratt has given me some trouble with stringy blood clots but he is behaving better now. Still lutting out 44cc's in 24 hrs. Hope to get it down soon below 30cc's so I can kiss Mr. Pratt goodbye soon. I see both my BS and rad doc on Tuesday. Sims scheduled for next Thursday and then rads are to start about March 16th. I am posting a pic of my great granddaughter Valentina Jean born 12/22/14. She lights,up my life and gives me motivation to get through this. I still have a hard time wrapping my mind around my daughter being a grandmother! Love, Jean

    image

  • LARock
    LARock Member Posts: 229
    edited February 2015

    She's beautiful Jean! Glad to hear it all went well and that you're moving on to rads

  • LARock
    LARock Member Posts: 229
    edited February 2015

    Kath, no PET scan for me however I didn't have any node involvement.

    This chemo stuff is cruel. I'm getting hair back on my head but now I'm loosing my eyelashes. It's been almost seven weeks since my last chemo - what gives? The gift that keeps on giving?

  • Jmo06
    Jmo06 Member Posts: 159
    edited February 2015

    Nomatterwhat aw so sweet

    LARock sorry to hear about you lashes =(


  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited February 2015


    Toby, I asked my MO if a PET scan was in order after chemo and he told me that there was no need since my cancer was all gone.  When I insisted, my insurance denied it, because I had no node involvement. 

    Jean, what a cutie!!!!

    I'm sorry I am behind I had to rush home to see my mother.  She had a heart attack on Sunday and has been in ICU since.  She has gone code blue several times and when they get her stable she goes into A-fib.  She still cannot talk and we have no idea, if any, what damage has been done.  While I was there, my eldest brother informed me that he is having surgery Tuesday on his knee for cancer in his muscles.  And to top off the day, my cousin will be having a double mastectomy later in the week.  And on that note, it has been a long couple of days and I am going to bed. 

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited February 2015

    I finished chemo on January 20. Since then I've had shingles, lost eyebrows and lashes and had several nails lift. Truly the gift that keeps on giving. I figure if it did this much damage it must have wreaked havoc on the cancer cells. Yeah...go chemo. My brows, my life......no contest! I'm healing nicely from ALND. Getting ready to start rads soon. Love, Jean

  • LARock
    LARock Member Posts: 229
    edited February 2015

    Nomatterwhat, I'm so sorry to hear about your family. (((Hugs)))

    Jean, you've certainly battled a lot. I promise I won't whine (much) anymore. :-)

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited February 2015

    Whine away gals. Whatever gets us through this. The Anal cancer was 6 weeks of chemo/rads and done. Intense but fast. More like a sprint. This BC is like a marathon. Love, Jean

  • Tobycc
    Tobycc Member Posts: 789
    edited February 2015

    No matter, what a week. Take care of YOU! Jean, you are a beautiful soul: and yes, it keeps on giving.

    Whine, shmine: this is the place for it! Sick of nausea, putting up the good front, etc. I wish I lived in a place/ worked at a place I could not wear my wig all the time also!

    Hugs to all of you: off to treatment, then only ONE more: but that pesky Pet scan next week: oh well, worry will not help. Getting on my knees will

    Hugs

    Kath

  • badhairday
    badhairday Member Posts: 178
    edited March 2015

    Rose, I hope your surgery went well, and you are recovering nicely.

    Jean, glad to hear you are doing so well. Your little Valentina is beautiful!

    LARock, congrats on getting to the halfway point of rads! You are on your way! I lost my lashes about 3 weeks after my final chemo, but they grew back fairly quickly. I have had to wax my brows a couple times since then too. I really recommend the Nature's Bounty Hair Skin and Nails. It has worked very well for me!

    Nomatterwhat, it sounds like you have had a tough week. So sorry to hear about all the health issues your family is dealing with. You and yours will definitely be in my prayers!

    Hysterectomy went well yesterday. The doctor told my friend that he is confident that he got everything. Will have pathology back in about a week. I am actually feeling pretty good. Much better than I expected to.I came home from the hospital at lunch time today, had a nap and then went to Little E's cub scout banquet, which was very nice, but tiring. He went to spend the night with his dad, so I can get some good rest. Looking forward to sleeping in my own bed! I have a nice little nest set up, with lots of yummy snacks, magazines, movies, etc. Planning to rest as much as possible. We are about to get pelted with another snowstorm, so it's a good time to hibernate anyway!

    Love and prayers to all of you!

  • Tobycc
    Tobycc Member Posts: 789
    edited March 2015

    Way to go Bad Hair!!! Be good to yourself

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited March 2015

    BHD, you go girl!!!!  You deserve a great weekend.  We are sending you 4 more inches of snow for your enjoyment.  Whew, it has been a rough week, but I made it through and yes my hair looks like this.  LOL!!!

    image

     

  • LARock
    LARock Member Posts: 229
    edited March 2015

    Nomatterwhat, I LOVE the picture. At least you've got some red.....

  • Tobycc
    Tobycc Member Posts: 789
    edited March 2015

    Oh No matter, I LOVE this!!!

  • badhairday
    badhairday Member Posts: 178
    edited March 2015

    Nomatterwhat, thanks for the snow! NOT!!! (It is very pretty to watch out the window. Thank goodness I don't have to go out in it!)

    My hair is about the same, only gray! Yikes! Another half inch, and I will be seeing my stylist to do something with the color.

    Feeling pretty good. Have spent the day binge-watching the old HBO series OZ. At the end of every episode, I walk to the potty or the kitchen and do a few laps around the apartment. Don't have much of an appetite yet, even though my friends have sent over pizza, subs, chicken, pasta, soup and beef stew. I won't have to cook for weeks! Little E's dad just brought him by for some snuggles, so it's a good day! So far the hysterectomy seems a lot easier than the bmx.

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited March 2015

    Wow, what a day!!!  Well, I went to sit with my mother today while my brother had his surgery.  I am exhausted from running around that hospital and I was so hot, that I took my hat off and showed off my "stand up and wave" look.  I thought my nephew was going to fall over from fright.  Anyway, the only stupid thing she said was when her young MALE nurse came in she asked him if he liked my boobs.  Before he could answer or look up from what he was doing, I told him that I had BC and was doing great.  He never did look up and left rather quickly.  But she is alive for now and my brother is home and so am I!!!! 


  • Rose0766
    Rose0766 Member Posts: 92
    edited March 2015

    Badhairday, I'm glad your doing so well! The hyster for me was definitely easier than my mastectomy. Pain has been a major issue for me. This TE feels like a softball in my chest. Stayed in the hospital 2 extra days because of pain. I came home yesterday. Finally got the right combo of drugs so it can be tolerated. I'm hoping it gets better soon

  • badhairday
    badhairday Member Posts: 178
    edited March 2015

    Nomatterwhat, you and your family have been in my prayers! (Don't be mad, but the thought of your mom asking her male nurse if he likes your boobs made me chuckle a bit!)

    Rose, I'm sorry to hear that pain management has been an issue for you. TEs are from the devil, as far as I am concerned! The first week was rough, and then it steadily got better. My bmx was in August, and they are still a pain in the butt sometimes. Can't wait for my squishy boobs!

    My GYN called me today to tell me that he got the pathology back. Other than the cervical cancer, everything else was good! So I am on my way to being healthy again! I don't see him for a follow-up until next week, but he wanted to call me and tell me the good news so I would have one less thing to worry about. What a great doc!

    He who shall not be named came today and drove me to do some errands and get groceries, which he carried in and even put away for me! He has been very nice lately. My best friend was teasing me about not having sex for 6 weeks! LOL! So not happening, no matter how nice he acts! I told her that even if Mark Wahlberg were standing right here naked and begging, I couldn't bring myself to do it! LMAO!

    Feeling a little better every day!

  • Rose0766
    Rose0766 Member Posts: 92
    edited March 2015

    great to hear this TE gets better, Badhairday! I'm glad your doing so well! I think I'm expecting too much from myself. Trying to take one day at a time

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited March 2015

    Ok badhairday and all of you. If you can stand a little comic relief.....if your TE's are a pain in the butt I think your doc put them in the wrong end. (Hope I didn't offend) We will all get through this gals, hang in there. Love, Jean

  • badhairday
    badhairday Member Posts: 178
    edited March 2015

    Rose, be good to yourself! That means taking it easy and not doing too much, too soon! Just a word of warning, the TEs start to feel better, and then it's time for the fills. I was really uncomfortable after the fills, and felt that same tight pressure in my chest. If I had it to do over again, I would have done smaller fills. It's annoying to have to go back so many times, but it beats being in pain!

    Jean, perhaps that has been the problem all along! LOL! No offense taken. Having a sense of humor is what has gotten me through this journey. I hope you are healing well from your surgery!

    Went to family therapy tonight at the cancer center, because I didn't have the heart to tell Little E that we couldn't go. He loves it, and his friends there, so much. He is very excited because he gets to go to a camp sponsored by them. Some of the older kids were talking about how much fun it has been, and he is super stoked! The very best part is that they provide it to the children at no cost. I could never afford something like this, and I am so excited that he can go have fun and be a kid for a week.

    I am definitely guilty of doing too much today! Time to hit the couch!

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