Change.org petition for better use of fundraising dollars

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Oops I spoke to soon, it has slowed down again.  Maybe the weekend will be better.

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Deanna was right

Ann is lookin for 10,000.00 signatures

We still need 3732 more

Just a FYI..

I was reading a short while ago about a young woman diagnosed with IBC in 2007. She looked at SBK website for information but could not find anything about IBC. She wrote repeatedly requesting that they add a line about IBC. No reply. She asked her friends to write letters also.

Finally after two years SBK answered her. They told that IBC is "too scary and too rare" to talk about and would she please stop writing and get her friends to stop writing to them as well. What a horrible organisation they are.

Perhaps we should bombard them with letters as well as the petition!

Pity that  those who are running for the so-called cure in October cannot dictate where they would like their money to go i.e. 50% to research.

What a shocking response, painterly! Horrible on so many levels!!!

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thanks jilly! Please pass along!

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It just made the 7,500 mark.  Next stop 10,000 so 2,500 more signatures to go.  Hopefully this will make a big difference in the future, if not for us, for our daughters and their daughters, etc.

I agree MusicLover. I worry about my children.

Anyone else find this thought-provoking? http://www.spin.com/articles/kanye-west-petition-g...

I get their reasoning, but really??? 50,000+ signatures in a heartbeat for something like this vs. cancer research?!!!

smh