Sometimes I cannot cope
I wasn't sure where to post this. Since it has to do with anxiety/PTSD I thought this would be the best place. I was diagnosed with Stage 2A BC on 12/1. I did not do well mentally for the first month and a half. Once I had my surgery and path report I started doing better. My oncologist says my prognosis is very good and Oncotype says 10% chance of recurrence. On Monday I had my 6 month mole check up with my dermatologist. Last year I had a precancerous mole that was removed. I have several moles that are under surveillance. I did not realize that I would react the way I did once I got there. I was absolutely terrified I was going to be told I had melanoma. I cried and cried in front if the doctor. He was so kind. Thankfully I had no new suspicious mole activity and he sent me on my way. Yesterday, I finally caved and went and saw my general practitioner over a cough I have had lingering for 3 weeks. I had been trying to wait it out because of course my mind went to bad places and I really didn't want to know. I really lost it when he decided to order a chest X-ray even though he said he just wanted to look for pneumonia. The waiting was traumatic. I bawled in the X-ray room, at the nurses station waiting for them to call me back into the exam room, and when the doctor came in to give me the results. He read the X-ray immediately himself and said all was clear and then had the radiologist read it who agreed. He said I had airway irritation from a lingering virus. Of course I felt relieved, but I realized how I am not handling this situation as well as I had thought and hoped. I thought once he told me it was clear I would feel OK again. There is lingering anxiety and depression now. I've thought all day about how I will probably never make it to 55 (I am 35 now). Will I reach a point where I can go to the doctor or have a minor illness without being completely traumatized? Is this reaction bizarre? I am seeing a therapist tomorrow who specializes in cancer patients. I hope she can help me get through this. I'm sorry this is long winded. It's okay if no one responds I just really needed to say it. No one around me is getting it at all. Does anyone my age really live to be an old lady without dying from this?
Comments
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hi Shelley
I think that because you have just recently been diagnosed it is still difficult to cope at times. It takes a while to get over the shock. I also think it's normal at this point. I was a mess for several months after my diagnosis. I too had a mole that I had had for forever and then all of a sudden I freaked thinking it was melanoma. It wasn't and I had it frozen off. I still think every ache or pain might be cancer. It does get better though. I ended up going on lexapro a few months after my diagnosis because I was just a weepy mess and I felt like I was making my family miserable. It's really helped me a lot and MO says lexapro is fine with tamoxifen. I also have Ativan, but I rarely use it anymore. The lexapro and time have allowed me to be like my normal self mostly. I think it's great you're going to see a therapist. I never did but probably should have. Many hugs to you Shelley. I promise it will get better for you.
Nancy
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I think that I cope pretty well. But when I recently had a MRI of my neck, I started crying in the MRI scanner. This was 4 years after my diagnosis(where did that come from??)So, I guess I'm not as good at coping as I thought
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Oh Shelley - I think your reactions are perfectly normal, and that you are handling things very well. IMHO you either deal with "it" now or you'll deal with "it" later. I sobbed all the way through my first onco visit, my bone scan, and my ct scan. I suspect that the therapist will help a lot. Recovery is a process and it takes time. One wise doc told me it was going to take a year or two for me to accept the diagnosis. An antidepressant is a great idea and you might want to be get on one anyway if you'll be having hormonal therapy since they help with hot flashes. Take care!
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I can understand evething you have said. I live this way every single day. first thing I think of in the morning..last thing at night. I was diagnosed 3 1/2 yrs ago, st 2a, no lymph nodes involved. er/pr+, her2 neg. I take femara daily. For me..Im feeling worse now emotionally than ever. Crying all of the time. Every single pain, and there are lots on femara, terrifies me. i have a checkup in 1 month and I literally am shaking every day. I had a prescription for xanax that I would use only once in a while. now, use it twice daily or I cant function. I have tried therapy early on this journey, but stopped. just cant sit and talk about this! and absolutely no therapy groups. I dont think I can sit in a group talking about this. i dont want to "talk" about this stupid cancer a all! And because I Was so heavily er/pr positive, I know that it can come back even 20 yrs from now. i cant imagine living my life this way. I am excercising daily, am vegan, no alcohol, take supplements, no sugar. I felt empowered by these choices. not snymore. now I just am terrified.
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I'm so glad I found this thread today. I finished rads in December am on a 3 month schedule for MO follow-ups. I've dealt with this adventure day by day and except for a dramatic, why me moment, I seemed to breeze through. Two months later, my anxiety seems to be worse than ever. Why now? I agree with Theresanne-the "what if" seems to be running my life lately. Nice to know there are others who are experiencing this.
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Magical bean, with your diagnosis and pathology...I wouldnt be crazy with concern. youll be fine
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Thanks for that Theresanne. My Dad always said "it's not the elephants that will get you-it's the ants".
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What if, and what if it doesn't happen?? That is the magical question for me. What if it works, and what if it doesn't? What if I finish rads and it works, but what if it comes back someplace else? What if the next chemo doesn't work, and what if it quits working? It is almost easier to ignore it and just live. I have a long road to go, and I feel like I am in limbo hoping the next thing will do it, and waiting for the next big thing to stop it in its tracks. It has been such a hard road to this point, I feel exhausted and so unsure of tomorrow. I smile and laugh, and feel bad when someone tells me how sorry they are. They should be me, or as I always say "ain't no 5." Geez this was not on the radar.
I see how hard everyone here fights to stop it, kill it, remove it, erase it with chemo, and on and on. Then I suck it up, put on my cancer killing butt kicking boots and stomp on! So its off to rads I go today #19!! So close to the end and no going back for this side anyway. So that is a win in my book. Then I will suck it up, and battle another day and another way! Carry on Ladies, enjoy your weekend!
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Bless you Beachbum! all anyone has is today..realyy this minute...thats everyone in this world. I try to tell myself this every day. A long time ago when I was still in high school, i remember a story where a woman was waiting for a bus. it was freezing
cold and she stepped into a phone booth, yes one of those. A car skid out of control and killed her. young woman, healthy, life ahead of her. So all we can do it the best we can I guess..any of us. Again, im a mess most days than not. I guess I have to work on doing better...but its so hard.
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Thank you all for your encouragement and sharing your experiences. I met with the therapist today. She was extremely nice. She is starting me on a low dose of Effexor and tapering up. She said it will help with my depression and also help with the hot flashes once I start hormone suppression. She said my feelings are totally normal and that everyone comes out of the black hole eventually. Some just take longer than others. I see her again next month. Hoping the Effexor helps.
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Theresanne, you are so very welcome! We all have those hot mess days, and our emotions are all over the place. But we all walk the same path, but we do not walk alone. We are all here together, and we are Game On! When I get in a funk, I make the effort to be and do the normal. My guilty pleasure is treasure hunting the thrift stores for shiny trinkets, a new purse, a nice warm jacket, or that picture frame that I have to have. I can clear my head, have a little cheap fun, and have a small project to do. Or like today I found the coolest pair of earrings for $1.49! It gives me time to just be me, and not be the cancer patient. I try to make "her" stay away.
So have that hot mess day, give yourself permission to have that 1 hot mess day. Get funky, be mad or sad whatever it takes. Then you will be ready to give yourself permission to be you again. Try it, treat yourself, allow yourself to be you. That is who you are, just don't let that cancer patient take over. She gets enough attention! When "she" tries to drag me down, I eat chocolate cake....................take care.
You got this, one day at a time!
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great advice beachbum!
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Shelley hope you get good results with Effexor. I think we've all been there with the depression. I have been resisting going on any anti depressants as I am afraid of side effects, but am very interested in hearing if it helps.
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Nancy, did you have any issues with weight gain with lexapro? I really need to think about an anti-depressant but the last thing I need is to fight weight on top of cancer.
Shelley,, I'm so sorry you're fighting this psychic beast. It's horrible to feel that nothing you do makes any difference or that you'll never feel o.k. again. I suspect that, in time, we achieve a different but tolerable equilibrium. In the meantime, there are tools such as anti-depressants. Just bear in mind that it can take time and trial and error to find just the right dose of the right one, so don't despair if things seem to get worse before they get better. I'm not saying they will, just that it's o.k. if that happens.
And yes, do come here to rant and grieve and explore the things no one wants us to talk about.
Deblc - I hope you, too, can find something that works for you. With anti-depressants it's a lot about fine-tuning, so have patience with the process. Good luck.
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Hi Hopeful - no I have not had any weight gain with the lexapro. Thank goodness - I would have been peeved lol.
Nancy
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Thanks, Nancy!
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the therapist said the newer anti depressants didn't cause weight gain as frequently as some of the older ones. I was on Zoloft off and on for years and i definitely gained weight. I really don't want to battle weight gain from that on top of tamoxifen.
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Thanks for that info, Shelley. It's reassuring. How are you doing today?
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I hope the new antidepressant helps you.
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I am having a harder time getting through this because I still have a cough/weird throat sensation I can't get rid of. Even though my xray was clear I still can't help but think it's lung mets. He prescribed me an inhaler I am terrified to use. I've had some life altering experiences in the past due to medication side effects.
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Hon I think crying is NORMAL no matter when or where and esp cuz you're new to this. I've bawled in front of the doc and anxiety and depression are so common during this. I know that just hearing that doesn't change your situation, but you aren't alone in that fear.
Right after my port was put in, I had to go to the ER because they suspected a blood clot. It turned out to be superficial phlebitis, but I absolutely panicked. I'm queen of the "what if" statements. The thing that helped me, was my mother saying, What if you do have an abnormal response or complication to whatever is about to happen? What happens, happens and the only choice you have is to move through it. That sounds harsh, but my mom is WONDEFUL and said this so kindly in a way only we understand. It really helped me get through those panicky fears. No amount of worry can change what happens.
I know easier said than done. Believe me, I still freak out and panic all the time. Just join us here and vent away. Hugs!
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