Any stage 3ers deny radiation?
First, hello! I was diagnosed back in July and have never posted on the boards before. I finished chemo and will start radiation after recovering from my exchange surgery next week. I am stage IIIa, grade 2 with a bmx. I was given 4 rounds of CMF and 12 of Taxol. If it weren't for struggling with the whole mortality thing I'd say I'm doing great through the treatments. Here's my story. I had Hodgkins when I was 17. I am now 42 and fighting bc. Problem is I already had radiation when I was young, which likely caused the bc. My doctors didn't want to radiate again but when I turned up as stage 3 they feel they have to. All the problems we face by having radiation scare me. They really scare me when you add having been radiated twice! I'm being seen at Memorial Sloan and the board recommends that I have proton radiation. It will hit less of the areas that don't need to be radiated (like my heart and lungs). Problem is it's experimental and my insurance company is known for turning it down. I'm trying to wrap my head around it all. I'm feeling like I don't want standard radiation at all if Proton gets turned down. Has anyone here even considered not doing the radiation? I have young children and my goal is of course being around as long as possible, but also having good quality years. UGH breast cancer sucks!! Looking forward to hearing others stories. Really looking forward to anyone that might have a similar past.
Comments
-
Wow--you are in a tough place. If I were in your shoes (I had radiation) I would want to know more about my cancer. If it is er and pr positive, is it Luminal A or Luminal B (which carries a worse prognosis)? Or are you triple negative? What is your Ki-67? What do your tumor markers say right now? How bout her-2 status?
What is your estradiol level right now doing a sensitive assay?
If you are er and pr positive what are you going to do--remove ovaries, take tamoxifen etc. I can certainly understand your hesitation about radiation twice. Fortunately for me my radiation was on the right side, but having had a mastectomy prior to radiation, I am sure that side got damaged. In fact, I know it did--my right lung was scorched. I had radiation pneumonitis for a while.
I hope somebody will come along in a similar situation as yours. The collective wisdom here is amazing, so stick with us!
-
I agree with Weesa, find out specifics and your Doctor can go to bat for you with the insurance to get you proton if needed.You can get more rads in a lifetime then once for other things. Do ask about ki and other stats on your cancer. I hope it all works out, sounds like you are doing all that you can for it.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team