Do you consider hormonal therapy.....chemo?
I've always been interested to find out the views of hormonal therapy. Does anyone consider it as a form of chemo or prevention to stop cancer recurrence. Interested to hear your thoughts....
Comments
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Hormonal therapy, though systemic, is not considered chemo. For those who are not stage IV it is taken to prevent recurrence. For those who are stage IV, and ER+, it may be used as a first line tx to prevent or slow progression
ETA: just googled your question and some sites do refer to it as chemotherapy. I, personally, never have considered it "chemo" and can't imagine telling people I have ever been on chemo (Arimidex and Femara) for almost 4 years. Knowing many who have been on chemo for years, it would feel a bit disingenuous .
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My sister was her2+ and I am not - her herceptin was considered chemo - my many AIs are not considered chemo - they are hormonal therapy - that's according to three oncs.
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I think that insurance companies have a strict definition of chemotherapy and hormone treatment is not classified as chemo. I'd be pretty sure that oncologists do not consider hormone treatments as chemo either. The general public may not know this, but why would they?
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Good question. I see my MO tomorrow and I'm going to be asking that one.
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I have never heard of estrogen blockers considered chemo. My IBC is ER+/PR- and havs been on Femara/letrozole for 5 yrs.
If you want to donate blood, you can while on Hormonal Therapy and are 2 yrs post active TX and still NED, you can donate. There are some types of cancer that you can never donate as they are blood borne. With BC, even on estrogen blockers, you can donate IF you want to. I havequite a few times since my 2 yr time frame. It is always listed on the form filled out so they are well aware of my HX.
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I have never heard of estrogen blockers considered chemo. My IBC is ER+/PR- and havs been on Femara/letrozole for 5 yrs.If you want to donate blood, you can while on Hormonal Therapy and are 2 yrs post active TX and still NED, you can donate. There are some types of cancer that you can never donate as they are blood borne. With BC, even on estrogen blockers, you can donate IF you want to. I havequite a few times since my 2 yr time frame. It is always listed on the form filled out so they are well aware of my HX.
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kicks, interesting about blood donations. I wanted to donate but they said 2 yrs POST TX, meant AFTER I was off of Tam...not, after chemo and rads. I've only been on Tam for 9 months, so it really doesn't matter anyway, at this point.
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Actually, I'll be donating later this week. Got a call from the local blood bank lasf wdek fo remind me 'it's time' again. They have my records for all my donations from before and after DX. The form they give you to fill out when you check in clearly asks about ALL health issues and any medicine taken. During the indoc always asked about BC and Femara/letrozole listed on the form and it is considered 'therapy' - not 'treatment'. There was one time I went in and the young lady I said she didn't know if I could donate so went and got her Supervisor for clarifacition -/I donated that day and the Supervisor said she would be doing better education for new ones. Not all types cancer can donate after DX and TX - leukemia and lymphoma can't (those are the only 2 I remember seeing) because they are. Mood borne.
We can also possibly be 'Organ Donors' to some degree. I have been told that we can be cornea donors. If you have ever come close go loosing sight - that pretty spectacular to be able to donate. Other organs/parts (like skin) will be on an individual situation..So go ahead and sign on your DL to be a Donor and the Drs AF the time will make the decision as to what is viable.
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Thanks for the feedback. I have always been curious. I've spent many nights explaining to friends that hormonal therapy is not estrogen. It has been difficult getting them to understand, so we just don't discuss it anymore. And I am going to ask my doctor if it will be possible to donate blood. Many thanks for input!
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My oncologist told me that Tamoxifen was as important, if not more important than chemo, but did not say it was chemo. They're both treatments, but I don't think you can compare the two. -
Kicks, thanks so much for the info on blood donation while on AIs. I suspect that the guidelines vary regionally but it's good to know that it's not flat-out ruled out.
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I don't consider AI's to be chemo, but I get tired of explaining to folks about my treatment. I also get monthly infusions of pamidronate. I tell people I will always be getting treatment and sometimes when we do talk about it, they ask how my chemo went, I just tell them fine because I don't want to get into it anymore. I think that unless you are in treatment or close to someone who is, all people know about cancer is chemo or rads and you are either getting that or you're in remission. GG
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Before I was diagnosed with breast cancer I worked in Transfusion Services for the largest blood bank in Florida, which is also one of the largest donor testing companies in the United States . I donated regularly, but I will never donate blood again. I would respectfully ask you to carefully consider a few things before you donate blood, and add that it is important to understand both how donated blood is screened, and who gets blood after it is donated. I realize that it I everyone's right to make choices about whether this something that they feel is ethical to do - and it is certainly within your rights to do if your local blood collection agency allows it, but I think it is important to be fully informed before you make that decision. One of the reasons that many blood collection agencies will allow collection from cancer patients, other than those with blood cancers, is that they currently have no screening tests available to screen for cancer in the donated blood supply. This was once true for HIV/AIDS and blood donations were collected and transfused to people who then contracted disease from that blood. Now we have screening tests for this and a number of other diseases, such as hepatitis, West Nile, Chagas, etc. Donor testing processes are being developed all the time and blood will be collected from donors with degrees of risk until a screen is developed to eliminate them as donors. Blood collection is a business, so until there is a screening test for cancer cells in the donated blood supply many local agencies will continue to collect from cancer patients after an arbitrary time period from treatment. Some agencies will allow after a year, five years, some not at all. Additionally, please consider who is getting your blood - it is fellow cancer patients who are immune compromised, elderly, they could be anemic, or catastrophically injured folks, open heart surgery patients, and babies in the NICU. The blood given to patients is not sorted in the compatibility testing lab prior to transfusion to determine the donor's individual health history - so your donated blood - with potential for it to contain cancer cells since none of us knows when we might recur, or anti-hormonal drugs - could be transfused to a newborn, or another cancer patient. I can't in good conscience donate my blood knowing this, and just because you can donate doesn't mean you should.
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Thank you from me too. I took my name off the Red Cross's list, but was wondering whether I was being overly conservative. i guess not.
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Wow I can't believe people who have had cancer can donate. It's not something I would do but I am really surprised that it is considered okay. I ate meat in the UK in the late 80's and I'm not allowed to donate in case I have Mad Cow Disease. You learn something every day.
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Thanks for that informed insight, Special Kay.
Donation has been important to me as transfusions saved my live (and those of others I love) and I want to give back. However, it might be a good idea to seek out a new way of doing so. This is not something I would wish to share with anyone, particularly in the name of doing good.
PS - I have wondered whether the transfusions I received might have had something to do with my dx. but, of course, will never know.
And no, I don't consider endocrine therapy to be chemo. And yes, it does get tiresome explaining it to people. I should make up a little card to hand them...
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My MO specifically and emphatically stated that hormonal therapy is NOT chemotherapy. I have a friend who calls her Femara her oral chemo. I think it is easier for her to explain treatment that way.
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I think also because Femara (in my case anyway) makes my hair fall out - I wonder if that could be it?
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I had very close situation. I was less than a year out of rads for DCIS when my brother who had Hodgkins called me to tell me he was looking into bone marrow transplant and said, you know the best chance for a success was a sibling. I was startled and said you know I would not likely to be allowed to do that~~ His answer, why? well I said that I was only year after my 3 lumpies, rads and such and did not think I would be permitted. He did not understand as he did not consider my DCIS to be real cancer!
he got angry, said he was only researching the transplant. It caused a major rift in my family but I am sure I did the right thing. Years later he did do an experimental transplant that failed and his heart gave out.
I have no doubt that I did the correct thing as I could not have handled him passing after I had given cells
think on that guys!
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I used to be a regular blood donor but was permanently removed by the Red Cross after my diagnosis. Which is completely fine with me for all the reasons Special K explained.
I also do not consider my hormone therapy as chemo as it seems disrespectful to those who have suffered thru chemo.
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Many thanks for all the input. Blessing to all of you! I'm always learning and interested in views from others!
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SK - completely agree...actually I think its different in Canada, my good friend works at our agency here and said I would never be able to donate. I would have never anyway, I would never put someone else in harms way. This is when people who have a clean history need to step up to make up for those of us who wish we could, but cant
hormone therapy is not a chemo...works completely different. Yes it is a adjuvant therapy but not the same (as anyone who had both can tell you!)
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Rozem - and viva la difference!
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I am on the bone marrow registry and they said I wouldn't be considered for x numbers of years (I don't remember). Would you ladies consider that the same thing? My only question would be if I was a match should I do it since matches are often rare and tough to find? Thoughts?
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Yikes! And what about organ donation?
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based only upon my brothers experience, I cannot see how the docs on both sides would agree. In my brothers case, when it came down to things, I was not contacted to donate or even be tested. I would not have been comfie doing it. in his case, he waited so long for the transplant and his heart was weakened by the initial procedure. The shot him full of chemo to kill off any thing and then were to build him back up for the transplant. His heart failed when they tried that. Maybe if he had been younger when doing it but he was about 66 when this occurred
it really never made sense to me, then again, supposedly this was experimental
there is hi rate of failure with the best of setups
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My understanding is that only long surviving in situ cancer patients can be considered for marrow donation. In addition to potentially harboring cancer cells, marrow can be permanently damaged by chemotherapeutic agents. For other organ donation from cancer patients, I believe that skin/tendons/bone (in some situations) and corneal transplants can take place. I do have a good friend (and dx'ed at 35 with TN breast cancer) that works for our local transplant organization doing histopathology and they are exceedingly thorough about who can donate, so it doesn't hurt to list yourself as an organ donor because they will take a full medical history, and do a lot of testing, before proceeding with any transplant plans.
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If we can't donate, there's still a lot that can be done to help, such as volunteering with drives, getting the word out (i.e., be the match), etc. It's not as immediate and it's not as satisfying but better than nothing, in my opinion.
SK, as always, thanks for sharing your expertise.
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makes sense to me, since my thing with my brother, I really was no way long term but can imagine.....timing was off for him
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Great info! Thanks!
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