The Hermit Club

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  • Teka
    Teka Member Posts: 10,052
    edited April 2015

    Daisy,

    *Facebook*

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2015

    Daisy- some of the pics I share here come off FB from friends and family. The birthday picture came from a googled site, not sure which?

  • Bippy625
    Bippy625 Member Posts: 890
    edited February 2015

    yes, happy birthday Onco!

    Are my girls in the Northeast getting any break soon? My friend from Maine is coming down in a week or so and I can't wait to see her, but I can't guarantee she's going to go back home!

    Seven treatments left with my radiation and sort of hit a wall today, I told the radiologist that I was not coming back unless he convinced me I had to. Well of course he did. He said that the last week of radiation is actually what we've been working up to does the most benefit. Damn. Now I have to finish this chit.

    So I have another job interview tomorrow. It should be fun. My hair is at the point where I am either a coming out late in life lesbian, or I'm just very brave and have a chic supershort haircut. It no longer looks like cancer person.

    I am not wearing my wig!

    Other place I interviewed at I never heard from again, you should've seen them when I gave them the cancer story. They thought it was catching or something. From now on I am a master of omission. I've done my research and I don't have to tell them Jack until an offer is extended. And there are parameters with that as well.

    Anyway, I'm struggling but trying to do my best. It's very difficult as you all can relate. I really do want to get back to work, even if it's just something different but temporary.

    You won't be surprised to know that I'm cooking again! Today it's homemade beef stew in the crockpot. I wish I could insert the smell of it here, it is going to be awesome! Instead, I'll show you what the kitties were doing today.

    image



  • Teka
    Teka Member Posts: 10,052
    edited April 2015

    Cute kitties!!

    I would like a cyber taste then join Teka for a nap!

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2015

    Bippy- sorry you are having a hard time with rads. I hope you can get through the last of it. I was thinking you were in week 4 but think you may be ahead of Mags if you are down to the last week. I think the radiation is cumulative and one must complete the protocol to ensure they get everything. It sucks, I know, I did it too but had internal rads which went faster, but still no fun. Sending you love and energy to get through the last of it.

    Here is what I might suggest to you as you look for employment vs. disclosing things that will only hurt your chances at being selected. Decide what you need before you go in to these interview. So for example, if you think you need to work PT for awhile, ask about the job hours. If they say 40 for sure, then you may be able to negotiate something if you get the offer to work PT on site, and PT from home. Some employers are more open to remote work these days than others.

    When I went back to work end of 2012 and was actually going through treatment then, I told my client site (who really wanted me to come help them with this work) that I had had some surgery and needed to work PT for awhile. Didn't say much more, but they agreed. I also had to step away twice to do the rads (which included going out of town for that). All I said was that I had to have some therapy related to my surgery and just needed to be able to work from home so I could come and go to those apts. I never said what kind of therapy either.

    Now the client there is someone I have known a long time and know she was worried about me and at one point said "are you okay?" I said yes, and that I would be able to do the work for them with the agreed to schedule. They brought me in to take over for someone who was non-performing, so I did not want them to think I was going to be another problem for them. One of my friends said I should tell my client, but then knew I was putting her in a difficult situation and it would have damaged our relationship. So I never said anything and finished that contract last year. My relationship with her is primarily professional, and I let that be my guide.

    I was able to get the work done they needed even around the altered schedule. I just did not want anyone to know about my bc, or to have anyone use it against me then or in the future. We like to believe people are nice about this stuff, but they are not. To this day, they never have know nor will they. I have totally kept it out of my professional community. Besides, no one's biz anyways! And you are not beholden to disclose it to anyone either. Between you and your doctors and your insurance company, everyone else you share with is your choice.

    I think you are going to be tired for awhile after the rads (I know was) so pace yourself and don't take on too much too quickly. Your body is going to let you know what it will and won't do. I worked PT for the first threes months back to work, including the time doing my rads treatment.

    I hope you get a great new job that brings you income and also balance to take care of yourself!

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited February 2015

    The dog has been really good about me not going totally outside with him. I stand on the back porch and wait for him.

  • Bippy625
    Bippy625 Member Posts: 890
    edited February 2015

    jazzy, you are the bestest!

    I had so many teenaged blistering sunburns. Fueled by hormones, youth and illegal and legal substances. All were more fun. They sure hurt less. Or maybe I do not remember? Possible. Well. i am going thru all the way, now, for cancer spite. F&ck you, cancer. Eat this radiation, how does it TASTE?

    Yeah, I am on the need to know protocol now. You would like to think people are open minded and gracious, but NO they are not. Whatevah. Also, I have been applying for caregiver and housecleaning, petsitter jobs on care.com. Really, I want zippo legal work, for now and the near future. I hope it hooks up, I was an excellent caregiver, cook, cleaner for many relatives during their illnesses, declines, etc. my area is ripe with wealthy elderly that need assistance with basic needs like food, shopping, driving, housecleaning, etc. and, they are lonely. i would have such rewards from doing that vs, sitting my fat but at a desk all day.

    have a nice night, hermies. My kittaehs send their love, grudgingly. :)

  • OncoWarrior
    OncoWarrior Member Posts: 5,234
    edited May 2015
  • Jknee54
    Jknee54 Member Posts: 10
    edited February 2015

    Hi, ladies! I'm new in this community and hoping it is ok that I am posting here. I was recently diagnosed with Stage 1 IDC, have had an excisional biopsy and will be having another surgery next week to check the lymph nodes. After that I will have 5 weeks of radiation. I feel very fortunate right now that this is all I have to face. But I also feel like this is ALL I have to face. I don't want to do ANYTHING! I just want to focus on the task at hand and get through it all then resume my life. I wish there was a pause button that I could push to put the rest of the world on hold while I do what I have to do and then when I'm done I can hit play again.

    Right now my biggest issue is that, because I don't know what to expect during radiation, I do not want to work. I just want to focus on going to the appointments and being well! I also suffer from Fibromyalgia and my immune system has already been compromised since dealing with all of this. I'm generally a well person in terms of the common illnesses and still I've have both a sinus infection and the flu in the last month and a half. Also, I am a wife, mother to a 10 & almost 8 year old, and a 2nd grade teacher and Thirty-One Gifts Director. I am worried about the exhaustion and being exposed to all the lovely germs my little lovies share if I do work. And I honestly just don't feel like my head has been in the game since this whole things started on December 10th. I know some people work and I guess I really feel guilty thinking I "can't" and really that don't want to work while I do what I have to do.

    Guess I'm just looking for validation (or a swift kick in the booty ;) ) in coming here to vent. Thanks for reading! Many prayers for all of you to happy and healthy!

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2015

    Jknee- welcome to our thread. We know it is hard in the beginning, many of us were there, some here are in treatment, and we have newbees like yourself that come here to have support as they start this journey. We will be here to listen, to share what has helped us, and especially when you are having a bad day and need to rant! Really nice group of folks here and we try to support and encourage each other. Occasionally we have a good laugh here too, especially when Cami shows up!

    You have a very busy life on top of having bc. I always like to tell people, figure out what you have to do for treatment and to keep the basics going for you and your family, and park what you don't have to do right now. Sometimes you have to figure that out as you go along. Many things you enjoy may go away for awhile, but the good news is, you can and will find your way back to them as you recover.

    Don't be afraid to ask for help either, especially since you have young children that need to be looked after. Getting a good support system around you is key to getting through this. Some people have many in their support network, others have a few people. You just need to have people who can show up and help when you need it.

    About radiation, we have some ladies here going through external rads right now so they may be able to advise you of their experiences so far. I did internal rads and was tired from it. I worked PT during my radiation treatment. If you can go on FMLA or the like and are able to do what you need to financially, then don't work. Everyone here is different with respect to working or not. Some have not, some have, and others have done it PT. I really had to (self employed) and found a way to make it work. You might be tired for awhile after rads too.

    There are rads threads here and perhaps good to join one of those too?

    Let us know how we can help?

  • Jknee54
    Jknee54 Member Posts: 10
    edited February 2015

    Thanks Jazzygirl! :)

  • Teka
    Teka Member Posts: 10,052
    edited April 2015

    Jknee,

    Welcome!

    I was Dx in January 2010 at age 60 and had last BC treatment in March 2011.

    I feel that each thread member goes through a different experience with BC treatments.

    Hope you've mild side effects!


  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited February 2015

    Sending everyone here some positive thoughts and alot

    caring hugs, Please take care and welcome Jknee to a

    wonderful caring place.

  • Teka
    Teka Member Posts: 10,052
    edited April 2015

    Faith and You feeling better for Valentine's weekend?

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited February 2015

    We are hanging in there, went to Costo with a friend and Faith loved the

    walking and I came home tired be felt good getting out.

  • Teka
    Teka Member Posts: 10,052
    edited April 2015

    OK, feeling a little better!

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited February 2015

    Yes but very glad I got out!

    My lung is still sore so I am being careful.

  • Teka
    Teka Member Posts: 10,052
    edited April 2015

    I also get cabin fever even though I love the recliner!

    Does coughing make Your lung sore?

  • Teka
    Teka Member Posts: 10,052
    edited April 2015

    Have a restful night.

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited February 2015

    Yes and at night I have to cough with a sleeping mask on.

    I have alittle dark lung

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited February 2015

    Sleep well and God be with You.

  • Teka
    Teka Member Posts: 10,052
    edited April 2015

    Coughing is so hard on the lungs!

    I hope You continue to feel better for the weekend.

  • footprintsangel
    footprintsangel Member Posts: 43,890
    edited February 2015

    Thank You, send a lot of cyber caring thoughts your way.

     

  • daisylover
    daisylover Member Posts: 310
    edited February 2015

    jknee, Jazzy gives great advice. This cancer experience can be very draining. You should not feel guilty whatever you decide. Just remember to value your own needs. I am not currently working. My husband and I were just discussing my return-to-work schedule today. We agreed that I would wait until after my recovery from oophorectomy in March and adjustment to SE from switching to an AI in April. We thought maybe I should focus on family over the summer and make a fresh start in the Fall. Don't feel pressured by anyone outside your family.

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited February 2015

    Welcome jknee! This group of gals have kept me sane since I joined here last year. 

  • OncoWarrior
    OncoWarrior Member Posts: 5,234
    edited May 2015
  • OncoWarrior
    OncoWarrior Member Posts: 5,234
    edited May 2015
  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2015

    Onco- LOL! That is funny! Hope things are getting better for you every day.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2015

    Happy Friday the 13th, Valentine Day (tomorrow) and/or Presidents Day (monday) to everyone. Pick your holiday and enjoy!

  • Bippy625
    Bippy625 Member Posts: 890
    edited February 2015

    good news!!!

    I got a part time gig! And, it is for an attorney that I know well, not an ahole, she does parenting coordination and protects children. Guess what else? She got dx with uterine cancer the day I found my lumps. She has fought a similar battle. She gets it. And, I will be learning Quickbooks, which is very in demand here. So free training and being paid for it!

    I go tomorrow and it will be one day a week to start, any day I choose.

    hermets, I am Busting. Cannot convey my happiness. Who knew, feeling normal is such a blessing?

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