Change.org petition for better use of fundraising dollars

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  • Deblc
    Deblc Member Posts: 479
    edited February 2015

    Hi Ladies, we're only at 2,000 signatures for the petition, and need at least 5,000 more for it to be presented to the various charities.

    Bumping in the hope that we can get more signatures. Petitioning that at least 50% of fundraising dollars go towards research for a cure: a worthy cause.....let's do it !!!!!!!!!!!!

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  • Deblc
    Deblc Member Posts: 479
    edited February 2015

    Not sure if you've all seen my post in the Advocacy forum re signing a petition requesting that at least 50% of fundraising dollars go towards a cure. I am re-posting it below. PLEASE sign the petition and pass it on through social media etc. It is at 2,000 signatures now, and 5,000 are needed before it can be presented to the charities. THANK YOU!

    * Some of you might be familiar with Ann Silberman's great blog "Breast cancer...but doctor I hate pink", which has chronicled her journey from diagnosis to metastasis. (She also has a Facebook page under the same name). I know many of us share her concern that Pinktober madness does not necessarily help towards BC research for a cure. She has started a change.org petition requesting that more fundraising dollars be allocated to finding a cure, rather than just raising awareness. I am posting the link here, hoping that we all can support this cause, by signing the petition and sharing on social media.

    https://www.change.org/p/keep-a-breast-foundation-....;utm_source=share_petition&utm_medium=facebook&utm_campaign=share_facebook_responsive&utm_term=des-lg-no_src-no_msg&utm_content=ci_fb_share_title_text%3Ano_dm_s


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  • lulud471
    lulud471 Member Posts: 89
    edited February 2015

    signed & put on my facebook too

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2015

    bump

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  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited February 2015
    I can't seem to access it on the iPad but will sign and repost when I get home to. 'real' computer.

    I think the petition is a most worthy effort and I'll do what I can to help it succeed.

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2015

    on FB it says

    We only need a few more signatures

    I have it all over the place.

    On one of the posts it said we only need a few more

    What is the exact amount we need to get this started

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2015

    I just checked a link that one of the sistas sent me

    According to this we need 1,281 more signitures

    Does anyone no it this was updated?

    And accurate

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  • MusicLover
    MusicLover Member Posts: 4,225
    edited February 2015

    I think that they 1,898 more.  https://www.change.org/p/keep-a-breast-foundation-i-ask-that-komen-commit-at-least-50-of-total-donations-to-medical-research-and-innovation-rather-than-to-awareness-and-education-i-request-all-other-breast-cancer-non-profits-do-the-same


     

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  • grammakathy
    grammakathy Member Posts: 407
    edited February 2015

    My posting said 1,896 more needed so it must be updated instantly.

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  • Tomboy
    Tomboy Member Posts: 3,945
    edited February 2015

    I have been trying for days to sign that petition, and I keep getting an uh oh message, i will keep trying, but i don't have a face book account and don't really want one either. So what do I do?? Frustrating

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  • MusicLover
    MusicLover Member Posts: 4,225
    edited February 2015

    I think an email address is ok to use, I signed a few days ago and the details are already a little vague for me but I am almost positive that facebook is not required, unless somehow they verified my facebook account through my email address?  I am not a big facebook user, never have been and I don't plan on it in the future, so I remember using my email address.

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  • Tomboy
    Tomboy Member Posts: 3,945
    edited February 2015

    Thanks, MusicLover, I did use my email, but I am guessing maybe its my browser. Or I will try my man's computer. I tried it from her blog too, and I can't join and be a follower of her blog either, so I am starting to think its my computer...yuck. I also tried from SlowdeepBreathes' blog where she has a link, and if anyone hasn't visited SDBs' blog yet, i highly recommend it! you will find a great and funny woman there!

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  • Deblc
    Deblc Member Posts: 479
    edited February 2015

    Tomboy, you don't need to sign in from Facebook. If you click on the link I put in my original post, it's pretty easy to sign up as long as you fill in the relevant info, so not sure why you can't. Hope you find a way!!!

    Firecracker, the site says 5,000 signatures needed, but Ann mentioned that she thinks she really needs at least 10,000 signatures for Komen to pay attention. I will clarify with her and update you all when I hear from her. It's going pretty slowly, was hoping she would get a big response from this site, but I am so thankful for those who have participated. Not sure why more people on this site wouldn't, as I think it's very important to all of us. Maybe they're not seeing the post, but I don't want to post it on every forum on here and annoy people !!! Don't know if these big organizations will pay attention at all, but we can only try.

    If you're not on Facebook, maybe you could share by email? My friend has done that, as she's not on FB. I don't usually mail-bomb people, but people send so many other "show you support by sending this candle around the world" trivialities to be forwarded by email as a way of "supporting" cancer patients....maybe they wouldn't mind doing something that may really make a difference !!

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  • Deblc
    Deblc Member Posts: 479
    edited February 2015

    This was an email I sent out, as well as sharing on Facebook. Feel free to use it!

    **********

    Dear Family and Friends,

    I know many of you have supported Breast-Cancer-Pinktober-Madness by buying pink ribbon paraphanaelia, and everyone who has dealt with this disease appreciate this immensely. However, do you know where those millions of dollars that have been raised are really going? Most people who "buy pink" or run races believe that their money goes towards funding for a cure. They are misinformed.

    *Do you know that most of it goes towards "awareness" and screening (mammograms) and NOT towards research for a cure ?

    *Do you know that there is mounting controversy whether or not early screening/ mammograms have any effect on survival rates?

    *Do you know that 25-30% of people treated "successfully" for early stage breast cancer will, with no warning, become metatastic at some point in the future? If it metastasizes, you are considered "terminal"...there is no cure.

    So if you REALLY want to show your support, don't stop "buying pink", but make sure your donation is being used in the best interest of breast cancer patients. Take a minute to sign this petition, which is requesting that at least 50% of fundraising dollars go towards RESEARCH. Research towards better treatments, and hopefully, a cure.

    And then please share it with all your friends through email or on Facebook, and ask them to share it with their friends, and so on and so on and so on. You can make a difference !!!!Thank You !!!!

    https://www.change.org/p/keep-a-breast-foundation-...

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2015

    I think ppl r afraid to sign on email...then the spam comes

    I think by getting on the phone with some of UR peeps who no and understand what this is all about maybe then we can convince ppl to sign..

    I have it all over facebook as im on every day but I dought ppl r payin attention unless they have someone close to them with this beast we r dealing with

    I'll do anything to get the word out

    Someone tell me how

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  • Deblc
    Deblc Member Posts: 479
    edited February 2015

    True, most people won't bother

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2015

    I don't use my Facebook and signed up through my email account. I haven't gotten any spam at all. Thanks for the letter. Many of my family have signed. I will send that letter tonight to family and friends. My sister also posted it on her Facebook page.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2015

    Maybe we can make a YouTube Video to direct people to the petition? It would be cool to have a channel dedicated to the cause and we can have different people post videos. Maybe explain what living with stage 4 cancer is like on a daily basis. Before my diagnosis, I had no idea there were so many kinds of BC - I was very ignorant. I believe most people are like how I was. Heck, even people related to stage 4 people don't always get it. I really do believe that most people think you can "beat" stage 4 BC. They have no clue it's terminal. Maybe if people realized how many mothers, daughters, aunts, brothers, sisters etc we were losing there could be more of an impact to sign a petition. The angels thread is a sobering place to visit. There has just got to be some way to get it out to the masses. We need a good marketing person.

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2015

    U tube sounds great

    I worked in marketing and also in collection

    I can be very forceful

    I just need someone to work with me

    I also worked for a newspaper in BROOKLYN..

    How about an ad?

    The down side of this is that the ad will cost....

    This is very frustrating

    How many members R on BCO?

    Maybe we can speak to the mods to help

    UR thoughts

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  • glennie19
    glennie19 Member Posts: 6,398
    edited February 2015


    Signed with just using email.   There is a place where you can check if you want to share on Facebook, but you dont have to have Facebook to sign the petition

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  • Deblc
    Deblc Member Posts: 479
    edited February 2015

    The mods haven't responded to my request that they put it up as a stickie. And I don't think many people on this site have responded, I don't know why. If people on a breast cancer site are not even interested, then how can we persuade the general public to get on board? I have no answers.

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  • glennie19
    glennie19 Member Posts: 6,398
    edited February 2015


    Slow, I think Ann has some vids on Youtube,,, pretty sure I saw one of them from one of her FB posts.

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  • Deblc
    Deblc Member Posts: 479
    edited February 2015

    Ladies, do you think I should hijack some of the "active topics" and post the info in them, so more people on the site wil see it? Or will that piss people off ?

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2015

    yes I think U should

    Why would they get pissed off?

    It's for them as well as for everyone

    A few yrs.ago someone decided to write a letter to the president about BC..we were lookin for ppl just to send letters..flood the White House...there was only one thread where I barged in that made a fuss....

    I may be liked by many but there R some sites I will not go near...

    Iu R thoughts

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  • dlb823
    dlb823 Member Posts: 9,430
    edited February 2015

    No. Please do not hijack other threads. Be patient. Maybe re-post as a brand new thread in a couple of other forums. This petition has garnered well over 4,000 signatures in just a few days. That's fantastic!

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  • leggo
    leggo Member Posts: 3,293
    edited February 2015

    Ditto.

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  • Deblc
    Deblc Member Posts: 479
    edited February 2015

    OK will not hijack. Cancer makespeople cranky :)

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited February 2015

    bump

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2015

    bump

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  • Meadow
    Meadow Member Posts: 2,007
    edited February 2015

    I shared it on our Calling all TNS thread, it is very active, but I dont know if anyone signed as I dont remember them saying so. Maybe people do it and dont post about it...hope so!

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