A must see!

Options

Comments

  • jojo68
    jojo68 Member Posts: 881
    edited January 2015

    It's just a 5 min clip and a must see.

  • Momine
    Momine Member Posts: 7,859
    edited January 2015

    Change it how? I have a friend myself who has survived glioblastoma against the odds. It happens. He, btw, didn't really "do" anything. He just survived.

  • leggo
    leggo Member Posts: 3,293
    edited January 2015

    These guys are my new heros. That kindly Dr. Freireich (think that's was his name), summed it up beautifully. Thanks for this jojo. Hope they get support from EVERYBODY, EVERYWHERE. It's up to every individual to say they aren't going to take this cancer shit anymore.

  • jojo68
    jojo68 Member Posts: 881
    edited January 2015

    Agreed, Leggo!  We need to be our own advocates and not follow blindly the standard of care.  Individualized care is what needs to be championed.  Of course, there are those who survive regardless...the point is there needs to be change in the standard of care.

  • jojo68
    jojo68 Member Posts: 881
    edited January 2015

    Momine...they are showing interviews with reputable oncologists and even the head of the NCI...they are even in agreement that there has to be change.  This is not just about alternative therapies etc...this is about changing the standard of care that is pushed upon every single patient without consideration of risks vs. benefits...and overall survival statistics.

  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2015

    Great piece! Thanks for sharing. I was just a bit surprised when it ended. Although I grasp the gist of it, I thought they were going to be a bit more specific about how we need to change things. In other words, I wanted to hear more! Deanna

  • leggo
    leggo Member Posts: 3,293
    edited January 2015

    I'm going to check into more about these guys and this video, because of what Dr. Freireich touched on about the FDA. I'm curious about their feelings on the bigger picture....the FDA being led around by the nose by pharmaceutical companies (my opinion, not theirs). Thanks again jojo. This video gives me new hope that there are those in the medical field calling "bullshit" and speaking out about it.

  • labelle
    labelle Member Posts: 721
    edited January 2015

    It was interesting, but sort of a teaser IMO. It didn't address what kind of changes are being advocated. Maybe I just didn't get it. As Momine wrote there are always people who have survived cancers even in the face of overwhelming odds. I recently read (reread) Greg Anderson's book, Breast Cancer: 50 Essential Things You Can Do. He was told he had terminal lung cancer and given only weeks to live, but he survived for years and years. I wouldn't say he didn't do anything, he did, (diet, exercise, meditation, etc.) but the things he did are not things doctors tell us will cure anyone. But they seemed to work for him, however all of these things are pretty much risk free/do no harm practices. Not sure if this video is advocating something else, like throwing toxic and untested treatments at people who are said to have "nothing" to loose. I don't think that is a good plan.

  • Momine
    Momine Member Posts: 7,859
    edited January 2015

    Jojo, yes, I watched it, thanks. I also looked up the featured survivor. What I did not hear/see in the video is any indication of how this change might happen.

    Reading some stuff about the survivor, it seems that he mainly advocates for more aggressive treatment and more research to predict at the genetic/molecular level which patients might benefit from which drugs. All of this is obviously a good idea and it is what has been happening in breast cancer for at least a decade by now.

  • jojo68
    jojo68 Member Posts: 881
    edited January 2015


    Hey everyone...this was JUST a trailer for the upcoming film!  If you read the last text at the end it says it will be available for free viewing in February after it is shown at medical conferences.  Stay tuned!

  • jojo68
    jojo68 Member Posts: 881
    edited January 2015

    Momine...I anxiously am awaiting this film.  Thanks for looking him up.  I believe he is pushing for more individualized care which those of us with Lobular cancer don't have...we are always lumped into the IDC category.

  • cp418
    cp418 Member Posts: 7,079
    edited January 2015

    IMO another HUGE obstacle will be the insurance industry. They dictate to doctors what exams, tests, procedures can be performed on patients based upon THEIR approval -- or they will not pay. Many doctors will not even bother to argue or contact a patient's insurance company if an exam or treatment is not on the insurance protocol. IMO they dictate and decide how patients are treated and not the doctors with the medical degrees and expertise.

    Next - if big pharma can make billions off a block buster drug what incentive is there for them to do otherwise? Plus who will make them. They are the lobbyists who control congress along with the other big industries who pollute our water, food, air. Sadly I feel it is all about money plain and simple. Tons of research and publications of promising discoveries but unless they are funded - it goes no where.

    For example, years ago big pharma had no interest in the development of an "anti-estrogen" for breast cancer as they were busy seeking money makers for new contraceptive agents and menopause treatments. Quoted from the 'The Emperor of all Maladies' that it was considered a waste of effort, money, and time. Only by the perserverance of those doctors and researchers whose PRIORITY was to save human lives ---did Tamoxifen finally get recognized for treating breast cancer --- and continues to make BILLIONS OF DOLLARS.

    This was an excellent film and I look forward to hearing more. Along with the 'The Emperor of all Maladies', I hope it gets the public to understand the obstacles and politics behind medical. But now that we know -- we need to DEMAND CHANGE.

  • Momine
    Momine Member Posts: 7,859
    edited January 2015

    Jojo, ok, although I am not sure I agree with your statement that docs do not distinguish lobular cancer from ductal. It depends which doc you have. My surgeon certainly made a distinction. That is why I went straight to an AI, for example, and not tamoxifen.

    Kayb outlined Williams' approach very succinctly and there isn't much to disagree with. He obviously knows a lot about glioblastoma.

Categories