Anxiety getting worse not better
Please help me. I am 4.5 yrs. out and scared. I just had my labs done and tumor markers -- all okay. But I was hysterical with fear about having the tests. We are talking terror!! I can't sleep for weeks leading up and all I do is sob. I fear for my sanity. I start to scream at my husband and kids and throw things and behave very adolescent. Then I fear that the stress will cause cancer. I've been seeing a therapist since the dx and I keep thinking that I'll get better at this. I'm not. I was dx w/ IDC 4.5 cm stage IIb, with around 5+nodes. It didn't help that my mammogram was fine 6 days before I discovered the lump. Nor does it help that 3 dr.'s said I was fine. They also said that it was a remote possibility that I'd be BRCA + -- you guessed it, I'm BRCA2+ with no family history.
When I was first dx I was afraid that treatment didn't work. Then at 3 yrs. some ladies said that's when to be really afraid because it's the time when …well you know…now as I approach 5 yrs. I worry because others have recurred then. I want to get off this roller coaster. I don't know if I will ever feel safe again.
I've actually talked to my therapist about electric shock therapy (though it's no longer called that) to see if I can get rid of the memories.
TIA,
Trying to be brave
Rachel
Comments
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I find my anxiety is getting worse instead of better. Does your therapist not have any ideas? They should be aware of how to treat PTSD or related anxiety issues. I hope they can come up with something for you because it is not a nice way to live. I hope you find peace. Sending hugs.
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Thanks, Wrenn. I love your name :-)
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Do you take any medicine for the anxiety? After my diagnosis, it took me almost six months to sort out and understand my feelings. The doctor kept trying to put me on antidepressants, a number of different ones that all made me sick or in a stupor.
I finally realized what I was experiencing was anxiety. When I discussed this with the nurse practioner, she prescribed buspar, an anti anxiety, non addicting med that I take daily. She knew I was sensitive to medicine so she started me on a small dose twice a day and told me the doseage could be increased if needed. The very first afternoon I took it, I was able to get off the sofa, commented on how the birds were chirping outside and washed the dishes in the sink. Previously, I had been paralyzed with fear, unable to participate in anything. Bupar gave me my life back, literally.
I have a prescription for Ativan, also an anti anxiety med, that is considered habit forming. I take it only every once in a while after particularly stressful days to help me sleep.
Please see what kind of medicine can help you out. As my onc likes to say "better living thru chemistry." It's true
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I have effexor, I was on 75 mg /day. But now taking 1/2 that. I have xanax and attivan as needed. I'll ask about buspar. I have never heard of it.
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My experience was that the antidepressants increased my anxiety level. The buspar does not change my personality, or make me tired or sick. It takes the edge off the fear that was immobilizing me. I still feel happy or sad or get irritated but i deal with it better. Best wishes to you as you seek solutions to your situation
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If you haven't tried it yet, you could also ask your therapist about EMDR therapy. It really helped me with a different traumatic event (other than cancer) and helped me get over some specific triggers.
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Wow! I was just about to delete myself from this site and then I found this thread!!! Rachel1....I can TOTALLY relate to your post. I just had my surgery on December 3rd...and after meeting with my doc to discuss pathologies (bilateral mastectomy - 24 lymph nodes removed), I learned my stage and treatment plan (chemo required and radiation). I had the appointment with my doc on December 15th. From then to now....I feel like I have lost my marbles!!! Prior to this, I was doing sooooooo well. I feel like the rug has been pulled out from under me - and I cannot get up!! I have three children (youngest is 10)...and I know that I am killing them and my husband (and everyone else who loves me) with depression and serious RAGE. Then, I feel guilty for imposing this upon them...then angry again about having cancer AND I feel like, if one more person tells me "attitude is everything - stay positive - at least you are alive".....I might punch their lights out!!! I LOVE that I am not the only one who sees this as a tragic, horribly frightening fact. I have cancer. CRAP!!! I hate cancer!! CRAP!! Will this ever go away? FISTS BUNCHED!!!! Is this my new life? ANGRY FACE....and the tears are starting to roll!!!!
I need professional help for sure and I am extremely sensitive to all drugs....have never been a fan of anti-depressants BUUUUUUT, so very grateful to read about the TheDevineMrsM and her bupar - sounds like something that might help me as well. At this point, I'll try anything. I feel desperate and so broken...I used to pray and I just can't even do that anymore...I am absolutely...lost. ):
My heart is broken for me and for all of you. Hang in there and if I find a way to pull myself up and out of this ditch....I will absolutely share it all with you!!! And in the interim, any advice that you might care to share - will help, I'm sure. I am too young to be finished living a happy life!!! I feel like I have been robbed.
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Huge bear hugs to Rachel and PerAngusta. I have anxiety too - diagnosed as "cancer caused anxiety" - gotta love it. I've always been a worrier, but I could keep it in check. With my C diagnosis (almost to my one year anniversary, which is increasing my anxiety for some reason), anxiety shot through the roof. I found myself crumpled on the floor in a bookstore for a good half an hour, unable to move during holiday shopping last year. I think that the initial fear of the unknown re BMX and chemo was the worst. Now, a year later, it should be better, right? I do have some good days. But, its due to pharma. I'm on Citalopram and Ativan. I don't leave home without my Ativan since my panic attacks are debilitating when they occur. I've even had to take Ativan to get myself out of the car to go into yoga. That's ridiculous. But true. A friend described Citalopram as something that doesn't make you happy, but acts as a net to catch you from falling into the anxiety pit. I completely understand the fear of recurrence. I'm in a place pf decision making for my post chemo treatments, and I went from advocating less toxic treatments early on to now worrying that I haven't done enough. My MO just yesterday decided to switch my Tamoxifen to OS and an AI, given new trial results. I was advocating for this change. I had wanted it. So, you'd think that I'd feel relieved. Nope. I'm scared and worried and wondering if I'm afoul of the "be careful of what you wish for" adage. I try to put on a face of health, happiness and confidence for my 9 yr. old daughter. I'm her entire world and only parent. But she sees me climbing into bed at 6pm (unable to sleep but exhausted and too tired tor read to her or play a game). I cry for the childhood memories that she is accumulating through this stupid C. But, I will say that I tried to go off the Citalopram and it was then that I realized how much it was helping me and needed. There should not be any mental health shame here. BC causes anxiety. I've been told to live in the moment, to eliminate the worries. That's a hard thing to do, but yoga helps me to try. I recommend Yin yoga or a restorative class (more concentration on the meditation/stretching/healing aspect instead of a flow workout). Even if I'm having a bad anxiety day, and can barely drag myself there, I never regret having gone to yoga. I leave in better spirits.
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Thank you Formydaughter...kind of you to reach out.
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My wife and are newbies and we are at the beginning of this lousy journey. I can only imagine how you feel.
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Be very careful with PTSD drugs. I take them as a veteran, frankly, I'm terrified that I do.
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concernedhubby, Can you say more about the PTSD drugs and why you are terrified about taking them? Thanks
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The anti anxiety medicine buspar is not a ptsd drug and there is no fear or harm in taking it. I personally don't feel like what I was/am dealing with is post traumatic stress disorder. It is anxiety from dealing with the uncertainty of bc. I take 10 mg of buspar a day, it works, and yet a person can safely take up to 60 mg a day if needed for anxiety. I have continued to work part time as an aide in an elementary school, traveled to the Bahamas, Grand Canyon, Las Vegas and more since my diagnosis, enjoyed lots of concerts and shows, good books and movies, restaurants. I also appreciate the daily, regular routines of life. I still smetimes get a wave of anxiety, but am able to get busy, it passes and I move forward. It would not be possible without medicine.
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Thanks to so many of you for reaching out. I feel absolutely depleted today. PerAngusta -- that's exactly it -- rage! Am I raging against the disease? Is it one massive protest?? Or is it just a pervasive anger. Ugh… my husband is wonderful to put up with it..so far. My beautiful children …I grieve for their childhoods full of sad, angry mommy. Formydaughter, I know the second guessing oh so well. I wish that I had words of wisdom concerning that, but I do the same thing. I think it's because I'm a bit of a control freak. i'm freaked right now that the stress is causing my cells to go kerfluey. I'm going to send my therapist an email concerning the buspar (thanks again The Divine Mrs M). My therapist did give me the book Healing Trauma to work through with her.
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Hi PerAugusta,
I also had a double mx on dec 3 after finishing chemo for 2 different cancers in one breast. I've lost my hair. This hell started in July, 2014...I have 3 sons, ages 13, 11 and 5. I just want you to know that you CAN do this! It completely sucks right now...I went through the angry phase also. Please try to remember that you are a strong woman who can rock this cancer/mom thing. Try to lean on your friends and family when needed. But most of all....my oncologist said at our first meeting: don't let cancer consume you and become your identity. Cancer is a horrible bump in the road of life but women beat it every day....become one of those women! You will become stronger than you ever knew! Try not to change your kids lives too much...focus on keeping their lives normal. By changing your focus back to your children, life will be happier. Chemo is part of your cure and it works...research and ask lots of questions about how to manage the side effects. I would take a reflux med, nausea med, anti diarrhea med and a prescription steroid every day for the first week after every round of chemo....and it all worked so that I could still be a good mom and work part time. This year will suck for you but please know that having the rest of your life with your family is worth the challenge! YOU CAN DO THIS!!
Love to you!
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Hi All! Happy New Year ....I hope!!! Just joined this group today and was so happy to find this topic!!! I've suffered from depression and anxiety for many years and take medications which help. Being diagnosed last August has certainly not been beneficial to my emotional state. I was almost beginning to believe my idiotic husband who thinks I am just being overly neurotic. Thank you all for being so honest about your feelings and the different ways that you cope. It actually makes me feel relieved...(maybe not calm!!) but certainly not crazy!!
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Rachel, first of all, yahoo on the all clear on your recent tests !I don't really have anything to offer as help, but you are not alone in this. I too am 4.5 years out from diagnosis and am getting ready to head into my yearly labs. I experience the same things you describe, and my anxiety has not decreased. I feel like I'm losing it too. Not sleeping, angry, don't want to talk to anyone who is close to me, lots of bad habits, missing work etc. And my mind goes to dark places. It's probably a good thing I live alone.
I did pretty good during treatment and back when I was a little more naive. About 6 months out it hit me like a ton of bricks. I saw a therapist for a while but that was focused primarily on getting me back to work. Haven't seen her in a couple of years.
Last year after my labs, I asked my GP if I could maybe get ativan to help me cope. He agreed, and then when it came time to get a script and I asked, his response was, "what, you want it NOW?" (yes, just like that). Saw him a couple of months ago again and when I made some comment about my upcoming mammogram, he was kind of dismissive and said "oh that'll be fine", which of course, didn't help, and actually increased my anxiety because it feels like tempting fate (have I mentioned how much more superstitious I've become?). I still don't have any ativan.
I've lost a couple of close family members the past couple of years to cancer, including my dear father a little over a year ago. I have also had issues with my own follow up care including doctor oblivious as forementioned. My onc's however have been pretty great, but I fell through the cracks for the first year or so after active treatment. I think it's a whole combo of factors as to why sometimes things get worse, rather than better.
I remember there was someone else a while back here that was commenting on increased stress close to the 5 year mark as well.
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Chemicalworld, its like your doctor was trying to shame you for asking for help, and I don't like that. It irritates me how doctors often minimize the anxiety that womens' health issues can create and that all we women need to do is keep that friggin' positive attitude and everything will be okay, honey. Really, it pisses me off. We need to be more direct and assertive and say, hey, this is really bothering me. Stop allowing the doctors to make us feel like we are drug addicts because we want relief from anxiety so we can go about living our lives more fully. We are not little girls. We are women.
I found my onc wasn't as supportive with helping out with anxiety issues so I dealt more with my gp. It was actually his nurse practitioner that worked with me to find a solution. I remember having such difficulties at first trying different meds she prescribed. I finally called the doctor's office and asked the receptionist could the np please call me, even tho that's not really something that she did. I begged the np to please not give up on me in trying to find something to help me with what I was dealing with. I said, please know that I'm being sincere when I say these anti depressants are not working for me. Please work with me to find something that can help. I was so sincere, and she is such a gem, and that's when we finally figured out I needed meds for anxiety and not depression and I got the prescription for buspar from her.
If you feel the need for medicine to help with anxiety or depression, please follow your instincts and keep after your doctor to get what you need.
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ChemicalWorld -- you mentioned being more superstitious. OMG… that is happening to me. I am so superstitious. This is going to sound so weird, but if I see pictures or hear of movie stars or someone who was dx or died of C, I think it's a sign. If I feel similar pain as the surgery, I think it's a sign. My therapist says it's part of PTSD. I'm so freakin sick of Post Traumatic Stress, Pre-Traumatic Stress, on-going traumatic stress, stress in general!!! Rachel
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Rachel, I am sorry you are afraid. Fear is so debilitating and sucks. I'm trying to figure out to overcome my own.
I went to a spiritual bookshop and went rock crazy. They had stones in all colors and makes, each promising different health benefits. I actually felt a sinus clearing when holding one. For years my sister has sworn by the power of rocks and I've pooh-poohed her, deciding it was a bunch of hooey. I have no idea if it does anything, but I figure I need all the help I can get right now. So I now have rocks to meditate with. I'm in the cancer phase of looking for answers/help in new places. The yoga retreats that used to sound cultish now sound like a possible answer. I'm grasping at anything these days. I want to drink the coolaid to make this all go away.
I remember this mandatory women's health survey that the U of Mich gave all women as incoming freshman and again senior yr. one of the questions was "does the tv have special messages just for you." My dog is named Snowflake. The other day, some talking head on tv said "Snowflake" during a weather report. My dog suspiciously looked at the tv and hasn't trusted it since. I've been laughing reminded of that old survey question. As crazy as I feel, I haven't gotten to the point where the tv is having special messages just for me - only my dog.
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TheDivineMrsM - my 80 yr old mom was diagnosed with Stage 1 BC in June, 2014. She was my caregiver all through my
Stage 3 treatments. We had just gotten over that and then BOOM, she was diagnosed. She had tremendous anxiety.
Her GP prescribed Buspar. Within 3 days I could tell a difference in her anxiety and attitude!! It was as if the dark cloud lifted.
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Denise, I'm sorry that your mom received a diagnoses of bc, but am glad that she found relief for her anxiety.
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Wow - I just found you.... and already I feel better.... I am almost 2 years on Arimidex (tomorrow!) and in some ways I am feeling like I am getting back to normal - but..... and this is huge in my life I am terrified of driving on the freeway. I can be a passenger - but driving fast freaks me out. I also feel like I am moodier - more up and down.... I have taken celexa in the past for anxiety and stopped because it made me feel like I didn't have a full spectrum of emotions - but I feel like I need something. Any ideas?????
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I'm still in the active treatment phase and am already worrying about recurrence.
In addition to a therapist and anti-anxiety meds (btw I just weaned off Celexa because my MO says it interferes or interacts with AI hormone meds?)....alternative methods can be helpful.
My sister was DXd right after me. She has always been an anxious person and it often channeled into anger too. She started taking meditation classes and has found it helped.
No matter what religion you are in meditation has been shown to help reduce stress, lower BP and have many positive health benefits. This is also true of acupuncture. My Rad Doc actually provides 6 free acupuncture sessions free at her clinic! She really believes in it.
I brought a natural white crystal with me to the chemo clinic, I cleansed it in a crystal singing bowl, asked it to protect me at the clinic, put it in little brocade drawstring pouch. Whether it's a placebo effect or not, it helped. It helped because I felt at least a little bit more empowered or have some control over my life.
I think, in my case at least, one of the greatest drivers of anxiety is the loss of control. Even the fittest, healthiest people can get cancer. Even if we do everything the Doctors ask us to do it can come out of remission. This helpless feeling when facing a disease that is deadly is overwhelming at times.
It messes with our minds and hearts, big time.
So anything to help calm the mind, relieve stress (such as yoga), practicing meditation, aromatherapy, acupuncture, crystal therapy is good IMO.
I wear a wrist mala, I use it to count my meditations and also to remind me to stay calm and be patient. It is like a rosary for your wrist, it doesn't matter what religion you practice, as meditative prayer is meditative prayer. IMO no one has to be happy about this, or think that having cancer in their lives brings positives (it can, sometimes it does) but we have to validate the fear as legitimate and then move back to a place of calmness. When I can be happy and joyful, when I have that spirit in me I let it out, when I enter a fear state my only job is to get back to a place of calmness. IMHO when facing extreme fear and anxiety it's too much to 'just be positive and happy or just smile' as many will admonish us. No, our only real job in overcoming fear is to be calm. Use your energy to get back to the middle place of calmness.
I hope this makes sense and helps.
Namaste.
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Dear DB - Thank you for this.... it helps tremendously just to know that I am not alone with these feelings. You are so right - it is the loss of control. I try to be in the present and think about just now - just now I am OK. And that is what matters. It is a struggle to keep my mind centered. I continue to try - and driving on the freeway is what bothers me the most - which in the scheme of things is very small.
Take care-
Marilyn
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Marilyn - Freeway driving is nerve wracking even without BC!! Merging from the left and exits from both sides. ARGH!!! Hang in there and take the side streets, if possible.
Doggiebytes - my sister gave me a handful of healing rocks, each with a note telling what it is supposed to do. I am not usually into the spiritual thing, but I swear that I do feel the energy of some of them sometimes. I hold them one at a time to see which resonate with me different days- it changes. I'm not sure that I'm a believer, but feel like it can't hurt and I can use all the help that I can get. Like you, I've found that meditation helps. I started restorative yoga with treatment/surgery recovery to help with stiff joints, but the meditation aspect and mental benefits have been the best unexpected thing. It has helped me to stay in the moment, appreciate the moment, and take a day at a time. My sister also gave me a mandala coloring book for meditation. I love it.
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bump
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The anti-depressants made me depressed! Right now, we are trying a super-low dose of trazadone to help with the anxiety and insomnia. Seems to be working fairly well so far.
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Oh god the anxiety! I can put on a brave face during the day for my family most of the time, and most of the time I can quiet myself down...sometimes I take a xanax, .25 mg. I understand the fear of the routine testing. I just want to know when I am going to be able to feel like I can exhale! I am a positive thinker, but also a worrier.
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Oh great...let's add to our anxiety with Pinktober!
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