Starting chemo September 2014

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  • PoppyK
    PoppyK Member Posts: 1,805
    edited January 2015

    LARock, Call your MO. Mine changed my anti-nausea meds, which made a huge difference. When I could eat and drink, I felt so much better. Hopefully you can get some relief.

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited January 2015

    ALND is removal of level 1-2 nodes, it is much more extensive than the sentinal node biopsy. I had 3 out of 3 positive sentinal nodes so both my chemo doc and surgeon agreed that I should have ALND surgery. Love, Jean

  • LARock
    LARock Member Posts: 229
    edited January 2015

    I wish you didn't have to go through that Jean but then again, I wish none of us had to be facing any of this. Cancer sucks but I know you'll kick its butt

  • Tobycc
    Tobycc Member Posts: 789
    edited January 2015

    Hi again all! LA, the nausea for me too: the patch worked wonders then out of the blue whammo-- am doing the patch AND zofran now. I think my nail--- eyebrow loss is from the taxotere/ taxol stuff for sure.

    I have third CMF this Friday (every 3 weeks) and then hopefully I find out how many more: want to be done and on to rads!!!

    Kath

  • badhairday
    badhairday Member Posts: 178
    edited January 2015

    LARock, congrats on finishing chemo! The last one was a doozy for me--I was a blob on the couch for quite a while! I agree with Poppy, it was the hardest thing I have ever done, and I am so glad to put it behind me! Watch out for germs now more than ever...your immunity is down, and it won't take much to get sick. My lovely little nieces and nephews were so happy to share their crud with me over the holidays, and I am still trying to kick my cough!

    Jean, sorry to hear that you are facing another surgery. Will keep you in my prayers, for a speedy recovery.

    Toby, sorry to hear you are still battling the nausea. I hope you are almost done with chemo. I'm not doing rads, but everybody I've talked to has said it is much easier to tolerate than chemo.

    Saw the OBGYN on Friday. Had a pelvic exam, and spent the weekend dealing with some discomfort and bleeding. Did a pap smear, and also felt what he believes is a cyst on one of my ovaries so I am headed for an ultrasound tomorrow. The fun never ends. I will see him again on the 29th and we will most likely schedule the hysterectomy for sometime in early Feb. I just want to get on with it, and get rid of a couple more body parts I have no use for, before they have the chance to betray me. Trying not to freak out about that cyst--surely the chemo that damn near killed me would have killed anything else that was lurking in my body! Right? That's what I am telling myself so I can sleep at night.

    Have an appointment with my GP on Weds. It appears that I got a spider bite (?) on my foot. Now I have this incredibly itchy, patchy, red, raw spot on my foot that will not heal. I have been using the diabetic foot cream that worked wonders on my other dry skin from chemo, and it isn't doing a thing. My FIL took a look today, and said he believes I may have cellulitis. As a diabetic, he has had a lot of experience with it, and ended up hospitalized with it once. I am going to get it checked out, just to be safe. I'm also going to ask for something to help me sleep. My MO cut me off from the Ativan, and I have been struggling with insomnia ever since. I am really starting to feel like my body is the enemy!

    Little E and I made a new year's resolution to eat healthier. We ate so much junk over the holidays! We have been living on salad, veggies and dip, and fruit. It is amazing how much better we feel when we are munching on broccoli and clementines, instead of Christmas cookies and candy canes! LOL! I have been trying to get a bit more exercise as well, but it is difficult with the Cleveland weather. I really wish I could afford to join the rec center so I could walk on the treadmill, instead of outside with a -10 wind chill!

  • Tobycc
    Tobycc Member Posts: 789
    edited January 2015

    Bad hair, which kind of hysterectomy? I had a full total laproscopic this summer: due to the very beginning of finding cancer cells in my uterus. It had not invaded. so they would have not recommended chemo--- but glad it got it All removed! I searched on hysstersisters for tips: some were really good. Keep us posted! Friday my third CMF: that makes 9 total-- should know how many more then :)

  • badhairday
    badhairday Member Posts: 178
    edited January 2015

    Nothing like starting the day with a vaginal ultrasound! LOL! I can't wait to get rid of the girly bits! I am planning on a laparoscopic hysterectomy, losing the uterus, ovaries and cervix. I'm considering having my appendix yanked while they are at it. Time to declutter all the unnecessary body parts.

    My foot was so much worse when I woke up this morning. I could hardly put any weight on it. So after my ultrasound, I headed down the hallway. Right now I am hanging out in the ER waiting for xrays on my foot. The doctor seems to think I stepped on a Christmas tree needle, and got an infection due to my lack of immunity. Oh chemo, the gift that keeps on giving! Thankfully, I caught it early, so once they verify nothing is actually still stuck in my foot, I will get an antibiotic and a follow up with a podiatrist. I am destined to meet every doctor that works at this hospital, I think. The staff keeps apologizing for poking me. I told them that after going through chemo, they will have to do a heck of a bit to get me upset!

    The moral of the story...pay attention to your body, and if something is off, get it looked at right away. The doctor said had I gone another day or two, I would have been looking at a hospital admission and IV antibiotics to clear this up. I felt silly for coming in rather than wait until tomorrow to see my GP, but he assured me I did the right thing. So be vigilant and insist on the care you deserve!

  • Robin73014
    Robin73014 Member Posts: 21
    edited January 2015

    hello Ladies!


    It has been a while! I finished my chemo mid December and will have my surgery 1/19/15 at Cedars Sinai...@LARock who did your surgery? I am having the one step reconstruction after double Masectomy and lymph node removal. How long will I be in the hospital?

    Also I am sweating more with hot flashes after my last treatment... Does this mean I am permanently pushed into menopause? No periods since I started A/C or Taxol. I am only 39 ... I am happy all of us are progressing! Xoxo I pray for all of you! robin

  • LARock
    LARock Member Posts: 229
    edited January 2015

    Badhairday, you're too funny! Keep up the great attitude.

    Robin, I was at the Pink Lotus Breast Center, not Cedars. Mine was outpatient surgery as I only needed a lumpectomy with SLND so I can't speak to how long your hospital stay will be.

    I too have been having hot flashes since my 5th chemo. They seem to be better the last couple of nights. My MO says that the Lexapro he put me on will help. I'm only on 5 mg but if the flashes continue, he wants to up me to 10 mg.

    I think my body is angry at me. Apparently 6 treatments were one too many. Adding fever blisters to my long list of SEs this time around.

    Sending positive thoughts to all of you.......

  • Tobycc
    Tobycc Member Posts: 789
    edited January 2015

    Glad to know I am not the only sweater here! Not the kind you wear :)

    Last night I threw off my sweatshirt, only to wake up freezing, had DH turn off fan, then was cold from sweating, then hot as heck. Mine is not menopause: I went two years without a period then had a hysterecctomy this summer (am 53)

    LA,, oh my goodness. Is this gift that keeps on giving exchangeable? I would not use it as a regift though on anyone!

    My gift is losing eyebrows after 9 weeks of being off the taxol family: not from the CMF I am on: hoping the last of my fingernails that up and left is the last one-- lost 4

    Hang in there fellow warriors!

    Kath

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited January 2015

    BHD -- I am glad that you haven't lost your sense of humor!!!  When are you having your "decluttering" event?  Hang in there.  I promise you will feel better some day.

    Toby -- I have been through many scenarios like that, night after night after night, and I am only 54. I got lucky and went through menopause starting at 49, so I know what you are going through and some nights I still have hot flashes.  Hang in there, you have lots to look forward to, i.e. the weight gain, the gravity problem (even my foobs sag) and of course the wonderful running to the bathroom when you sneeze.   LOL!!!! 

  • Rose0766
    Rose0766 Member Posts: 92
    edited January 2015

    chemo is DONE! Anticlimactic for sure, with everything else I have yet to go thru, but I'll take it! Muscles feeling very weak tonight. Fingertips are sore. Toes too. On the upside, my hair has started growing back.

    I too have been having wicked hot flashes, any time of the day. As I no longer have my uterus(had partial hyster April 2013 due to endometrial changes) my MO says will have blood tests done to check for menopause. Should have had my ovaries out then, but gyn said to keep hormones flowing, blah, blah, blah. My DH bought me a battery operated hand held fan, his idea of helping, lol. Now he knows how often I have them.

    Next up, herceptin only infusion feb 3, breast MRI Feb 4, BS appt feb 16, herceptin feb 24, PS appt feb 26, Surgery feb 27-- will be a very busy month!

    What a crazy awful ride this has been! What a wonderful group of women you are! Although I don't post very much, I read this board every day to see how you all are doing. On to the next tour of duty

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited January 2015

    Hey Rose nice to hear from you. I finish chemo next week and will be glad to kiss that piece goodbye! ALND surgery February 12 then rads. I also am getting the herceptin / perjeta regimen every 3 weeks but from what I've read it isn't anywhere near as bad as chemo. Love, Jean

  • PoppyK
    PoppyK Member Posts: 1,805
    edited January 2015

    Glad to read all of the updates.

    I get hot flashes all of the time, day and night, thanks to chemo. They are so bad they wake me up. I'm sick of them. The MO has me on some med that's supposed to help, but it doesn't.

    My hair is continuing to come in, but some of the new growth looks more like tinsel than my old brunette hair. ;-)

    Rose, Congratulations on being done! It doesn't matter if it's before or after surgery.... it's an accomplishment to be done with chemo. I thought I would mention that my MO doesn't not want estrogen in my system since my cancer is ER+. I see that yours is also. You might want to talk to both your gyn and MO to figure out what you should do.

  • Robin73014
    Robin73014 Member Posts: 21
    edited January 2015

    thanks everyone! Last question .... Buying a bra? Do you buy a few new bra's after the surgery? How will I know my size?


    thanks!

  • Tobycc
    Tobycc Member Posts: 789
    edited January 2015

    Poppy I have to say I love th tinsel note. I am not sure what I have: the sides of my head look white, some hair is darker, a few "wild" hairs likeSusie from the Grinch. I am fearful I will end up with a multi colored mullet: and the irony is that folks LOVE my hair now (wig)

    you all know my staff, etc don't know about this whole BC journey: only friends, church, and one staff

    I had someone tonight ask me if I called in a style consultant. BAHAHAHAHAHAH

  • PoppyK
    PoppyK Member Posts: 1,805
    edited January 2015

    Toby, ROTFL! You may be rocking your new look, but your "style consultant" is very, very expensive.... in every sense of the word. Awesome that no one can tell that your new hair is removable. I still feel odd when I wear my wigs.

    Robin, I would advise that you buy stretchy bras without underwire to wear after surgery. I bought several styles in different sizes so I wouldn't have to go bra shopping post-surgery. I figured I could return the ones I didn't use. My favorites are by Bali and come in sizes small, medium, large, etc as opposed to 36C. I also found some zip front styles at KMart of all places. They were easy to put on after surgery. You will most likely be given a binder or something similar by your surgeon; I was. Also, many insurance companies cover your new bras. You might want to check into it.

  • LARock
    LARock Member Posts: 229
    edited January 2015

    image

    Robin, thinking of you and hoping everything goes smoothly for you tomorrow.

    Now that chemo is behind me I have decided to embrace the bald! Here I am yesterday with my DS. He, DD and I went hiking in the canyon yesterday. I had to stop a few more times than usual but it felt wonderful to be out and about.



  • PoppyK
    PoppyK Member Posts: 1,805
    edited January 2015

    LARock, Beautiful picture! Hope you get stronger every day! My favorite thing about my bald head is how quickly I can get ready in the morning!

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited January 2015

    LARock, you look FABULOUS!!!!!  What a handsome son you have. 

  • badhairday
    badhairday Member Posts: 178
    edited January 2015

    Robin, best wishes to you for your surgery tomorrow! I had a BMX in August with TEs, and the hospital provided two bras for me with front velcro closure, which was great because I didn't consider that I wouldn't be able to pull a sports bra over my head. I wore it until my drains came out, and haven't worn a bra since. I live in tanks and camis now. (The only bonus of these rock-hard TEs is going braless!

    Rose, congrats on finishing chemo! Isn't it the best feeling? I nearly skipped out of the cancer center after my last tx!

    LARock, you look amazing! And so does the scenery! Little E and I (and he who shall not be named) attempted a hike today, but it was too slushy and icy, so we hung out at the nature center instead.It was actually a pleasant afternoon. The cabin fever is starting to catch up with us,

    I've spent the last several days wearing a sexy surgical shoe, thanks to the roto-rooter job the ER docs had to do on my foot. I had a broken piece of Christmas tree needle in there that got infected. Good times! It seems to be healing well, thanks to 2 antibiotics, and the fact that Little E and I spent Friday and Saturday at home in our pajamas! I finally put a boot on today, because I refused to wear that goofy shoe to mass. Have to see the podiatrist on Wednesday.

    Started Tamoxifen this week. I have had it since before Christmas, but my onc told me I could wait until after the holidays to start. It took me a couple of weeks to work up the nerve to start. So far, so good, as far as SEs go. My MO swears that the Tamoxifen is my most powerful weapon against recurrence, so I am forcing myself to give it a good shot.

    I see my MO and do labs on the 28th, then GYN on 29th. Hoping to schedule the hysterectomy for early February. While I am looking forward to it, I am a little bit terrified about being home alone afterwards. Unfortunately, the only friend with the freedom to stay with me is male, so no thanks! Guess I will stockpile what I think I will need, and put my big girl boots on and get it done. It can't be worse than a C-section, right?


  • Rose0766
    Rose0766 Member Posts: 92
    edited January 2015

    Badhairday, glad your foot is doing better! Hopefully you can have your hyster done laparoscopically, you will be able to get around lot easier and recovery time is shorter.

  • Jmo06
    Jmo06 Member Posts: 159
    edited January 2015

    Robin73014 your insurance should cover your bras have to go to medical supply store oncologist should be able to refer you to a place

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited January 2015

    Well ladies, I made it! My last taxol was yesterday. I don't feel very celebratory, more just relieved to have made it through. Still have ALND surgery then rads but figure I'm halfway through treatment. Wonder what the new normal life after BC will be like. Hope to see some of you on the surgery and rads threads. Love, Jean

  • PoppyK
    PoppyK Member Posts: 1,805
    edited January 2015

    Jean, Congratulations! I understand not feeling like celebrating; chemo takes a lot out of you! Maybe feeling accomplished would be more appropriate!

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited January 2015

    Thank you Poppy. That is,just how I feel. With God's help and strength...."I did it!" Love, Jean

  • Rose0766
    Rose0766 Member Posts: 92
    edited January 2015

    congratulations Jean! Accomplished is definitely the better word, when we have so much more ahead of us!

  • badhairday
    badhairday Member Posts: 178
    edited January 2015

    Jean, congrats on making it through! Wishing you a speedy recovery from your last chemo, and your surgery!

    Chemo brain is a real thing! Last night at family group, Little E and I were working on a family legacy project, and I spelled our last name wrong! Duh! Thankfully. I was with a bunch of cancer patients, who don't think I'm a moron. Little E just rolls his eyes at me when I do things like that. I also grabbed a hot crock pot today and burned the tips of three fingers. Blaming chemo brain for that one, too! I am now sporting Iron Man, Thor, and Hulk bandaids.

    If I could, I'd like to request prayers from my chemo sisters. Received a call from the GYN nurse today. My pap was abnormal:undetermined cells and HPV positive. Of course, my mind immediately went to the worst possible scenario. I see the doctor next week, and was told to prepare for a colposcopy, although the doctor may decide not to do it if my hysterectomy surgery gets scheduled for the following week or two. I am beside myself with worry. I don't think I can handle more cancer and more treatment.

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited January 2015

    You are in my prayers, my friend.  Think positive thoughts, things will be fine. 

  • LARock
    LARock Member Posts: 229
    edited January 2015

    Jean, congratulations. While you might not feel like celebrating today, over the next few days or weeks, you'll appreciate what an accomplishment it has been. I am two and a half weeks out from my last and I can't believe how much better I'm feeling; it's like I'm slowly emerging from a fog.

    Badhairday, I'm so sorry. Sending nothing but positive thoughts your way

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