Dense breast follow up imagining after cancer treatment

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rrs
rrs Member Posts: 614
edited January 2015 in Life After Breast Cancer

Because of dense breast tissue, my tumor was found with ultrasound.  It did not show up on mammography.  After having a lumpectomy and treatment in 2001, I had annual mammography and ultrasound and then, when breast MRI came along, that was added.  A few years ago, I moved to another state and have had a hard time finding a provider who will do all three tests.  One oncologist recommended mammography and ultrasound.  She said MRIs were only done on "high-risk" patients.  Another oncologist recommended mammography and MRI but no ultrasound. 

Because my tumor was detected via ultrasound, it is hard for me to let go of having that done every year.  What I can't seem to find out is what each is best at detecting.  Is MRI and mammo as good or better than MRI and U/S or should I push to have all three.

I'm over 60 and my breast tissue is rated as "heterogeneously dense" which would hide small tumors in mammography.

I was surprised to hear the oncologist say I wasn't high risk -- ???  Having had breast cancer and also having dense tissue. 

Any thoughts out there?


 

Comments

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited January 2015
    Those are definitely good questions that I will follow with interest, as your situation and mine share some features.

    I hope to see some answers here sooner or later. I'll also raise the issue w/my BS later.
  • angelia50
    angelia50 Member Posts: 381
    edited January 2015

    I don't know what classify's somebody as having dense tissue. Back in my 30's, I had a papilloma and had it removed. During the surgery, the surgeon commented I had the most fibrous breast he had ever seen. I admit, I did not have mammograms for the next many years, probably more than 20, but had one in May of 2014. I mentioned I had been told I had dense tissue and they said well, no so much now, that changes as you get older. That mammogram was done in Kentucky where there are no laws to notify of dense tissue but since I in fact had cancer and went to Tennessee for treatment, I had more mammograms there and eventually a mastectomy, after ultrasound and MRI. At any rate, I received a letter after mammogram there telling me I had dense tissue and by Tennessee law, they were required to notify me of that information. So, seems to vary depending on where you are, not who you are. Guess I'll find out because I still have one natural breast that will require ongoing watch so we'll see if they do MRI or mammogram only but my treatment will continue in TN because I chose to go to a breast center rather than deal with general surgeons and oncologist that treat all kinds of cancer.

  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2015

    rrs, I had very dense breasts, and after my unilateral mx, my BS @ UCLA did an MRI every other year (in addition to annual mammos). If I was having any pain or felt anything unusual, she would also order an u/s to look at the specific area, so some years I did have all three forms of imaging. One thing about having an u/s though is it's almost impossible to do it to thoroughly check the entire breast. It's usually used when you can feel a lump or they want a closer look at a suspiscious area from your mammo, or you have pain in a specific area. Performing an u/s just to look around wouldn't be very effective because you wouldn't know what you're looking for and as you know, tiny lesions can easily hide if a radiologist isn't very diligent about searching them out.

    I think the important thing is to advocate for yourself. If you suspect something isn't right in a specific area of your breast, ask for an u/s of that specific area, and you'll probably get one. Deanna

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited January 2015
    I was told in my 20s that I had dense breasts. Fast forward a few decades and all the literature says again and again that they thin out with age, post-menopause, etc., so I figured that was the case and gave it no more thought.

    It turns out that mine were still fairly dense (a risk factor for bc as well as an impediment to obtaining a good mammograpgic image). My MD had report after report that she NEVER shared with me that mentioned the density. I fully support laws requiring that women be informed of the density status of their breasts; it is OUR tissue after all.

    And yes, there does seem to be a fairly well agreed upon system of describing the density of the glands.
  • rrs
    rrs Member Posts: 614
    edited January 2015

    Thanks for all of the responses.  Just want to point out that my tumor was detected via ultrasound screening - it did not show up on mammography.  They were not looking at a suspicious area or something that was causing pain. 

    I've researched and found that both heterogeneously dense and extremely dense tissue puts a person in higher risk category and that looking into MRI and U/S is advised.  My immediate concern and question is - Does U/S detect anything that an MRI would not?  If so, then I want all three tests.  I should be able to have a test done on my body if I request it and pay for it. 

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited January 2015

    RRS - I agree. If you're willing to pay for it and there's no risk (i.e., no additional large doses of radiation) you should be able to get the test. (Both are pretty spendy, based on what my insurance EOBs show.)

    The question of what the differences in what they detect would be is one I can't answer but I think it does need and deserve an answer.

    You might go to the Johns Hopkins "Ask an Expert" site and see if you can get an answer there.

  • rrs
    rrs Member Posts: 614
    edited January 2015

    kayb - I appreciate your time and comments.  I'm not looking to debate the issue of density and risk.  I am interested in determining if MRI and US together would be more beneficial than alone (also with mammography).  I want to know what each method detects - a comparison of the two.  The physicians I've seen are both oncologist at major breast cancer facilities.  I'm disturbed by the difference in opinions.  Seems to me the imagining should be standard after all of this time and so much breast cancer. 

  • Lou10
    Lou10 Member Posts: 332
    edited January 2015

    MRI apparently has an advantage over US in distinguishing scar tissue vs recurrent cancer (see, eg., the Common Uses section at http://www.radiologyinfo.org/mobile/en/info.cfm?pg...).

    I recall my GP telling me that US is the best type of imaging to distinguish fluid-filled cysts from solid masses, and mammograms are the best for detecting calcifications.

  • rrs
    rrs Member Posts: 614
    edited January 2015

    I do think the skill of the ultrasound technician is key as well as the person who reads the mammo and MRI.  I had a great US technician who found my cancer while it was still small.  I've never felt that comfortable with other technicians and wish I could have seen her every visit.  The breast care practice I used to go to is very large one and like an assembly line but a very slow one.  I would be there for most of the day waiting between mammo, U/S and MRI.  It always made me sad to see how many women were there - most with breast cancer or some of them being diagnosed as I sat there. 

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