What happens after you wake up from lumpectomy?
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Hi Everyone, I have to say reading thur this has eased my mind considerably. My surgery date is Jan 22nd, so still a few days off, with plenty of time to worry. Not so much about the surgery, and your replies have really, really, helped, but mostly I'm worried about the nodes and margins. I'm still having days of not quite believing this is actually happening to me, since I feel good...and the implications not just for my future, but for my girls as well. I just cant seem to get out of my own head.
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Thanks!
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Bikerbabe, I know what you mean. It is hard to fathom. I keep thinking "What happened to me?" It's just so weird. One minute life is normal, the next minute my day is spent reading about all these treatments that sound scary. And yes, I worry for my cousin and niece and daughter because there are five of us with early breast and prostate cancer in the family now, me being the fifth. But it is always a mild kind which is a relief. I hope your lymph nodes are clear and margins clean. I think even if the lymph nodes are not clear you can get radiation on them instead of have a dissection nowadays. That is an awesome new approach that avoids lymphedema risk. I know what you mean about feeling good and wondering how you could be "sick." I still think of myself as healthy. In a way, it's just that one thing that went wrong, like a gene that doesn't deal well with excess estrogen, but I think the rest of me is very healthy. I wish you luck. It feels good once the surgery is over. And even though it's not a fun day, it's not as bad as I thought. When you get through it you feel proud that you rose to the task and accomplished it. You feel strong. Life is just weird isn't it? But all we can do is go with the flow and make the best of it. Take care xxx
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I just realized that I never wrote how it was. I looked down too, after the surgery, and my breast is just normal. Round as can be! No dents! There is a big scary-looking incision a centimeter in from where my camisole is under my armpit. But that is it. It's amazing! So far I've just been wearing a camisole that is fairly tight to give me support day and night, and putting a regular tshirt over it. Even straight after the surgery I did that. I need help to take off the tshirt and camisole but not to put it on. Also I was allowed to shower after 24 hours which is great. I can move my arm pretty well. And I am taking tylenol or advil, kind of alternating. The vicodin made me nauseous. They gave me anti-nausea medicine in the IV before the surgery so I only noticed that the second day and stopped taking the vicodin. On the two-hour drive home I felt really fine, almost happy. When I woke up after the surgery I was crying like crazy- I don't know why. According to the nurse the doctor talked to me giving me instructions but I remember nothing of that- I was still asleep I think. So no one really gave me any instructions except that I could shower. There is super glue on the incision and that's it. Pretty easy. It does hurt, especially when I wake up at night, but it's ok. The day of the surgery was very surreal. The injection of radioactive tracer the day before was not that sore, like a mild sting that lasts for a few minutes because it's a different PH to your body. The next morning I had to lay still while they took gamma photos of the tracer. Not too bad except your arms are raised above head for 12 minutes two times. Then they did the wire localization and a mammogram. That was unpleasant- very. Trying to get the mammogram with the wires sticking out of me- not fun. I cried and had a sort of meltdown at that point. I don't think they always do a mammogram after the wire thing. Then they did prep for the surgery- so weird- brushing your teeth with all kinds of antibacterial things and putting your hair in a weird little hat thing. Just surreal and odd, like you're about to go to another planet! Then all I knew was that I was awake and it was all over and they took me in a wheelchair to the car with my husband. Just thought I'd tell you in case you wanted to know. I hope it goes well for everyone!! Best wishes!
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p.s. the pink seatbelt pillow really makes you feel snuggy on the way home. I recommend it! And it was nice to have a blanket and pillow in the car to put under your arm. Very nice. Really glad I was told about those things. Another thing- if you are staying at a hotel, bring two towels from home. You have to wash with special soap the night before and then the morning of the surgery and dry with a clean towel and put on clean clothes. So you will need two clean towels and a pair of clean pyjamas and clean clothes for the surgery day, that you've never worn. I didn't feel like the hotel towels are as clean as I would want a towel to be before surgery. Bring your own! Also it is really not that bad not eating or drinking all day of the surgery so don't feel too worried about that. I got super worried about that the night before, like waking at midnight to have a sip of water. But it's not as bad as I thought. And they give you tons of water in your IV when you're in surgery so you're ok after.
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This is the pillow I got. Kind of expensive but it made me feel protected and snug, so was worth it! http://www.amazon.com/dp/B00JXLSI74/ref=pe_385040_128020140_TE_3p_dp_1
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I'm glad to hear it went so well, OG. I was concerned about the drive home, knowing it was fairly long and you might not feel very well.
I think they pretty much always do imaging of one sort or another after the wire localization. Thank goodness mine is wayyy off to the side and really hard to capture on a mammogram, as I know they'll do US instead.
It is strange, isn't it, how you can feel great and then are told you have this life-threatening disease? I don't think of myself as sick; I see myself as a healthy person who is being treated for cancer.
At any rate, thanks for your updates and insights - it's good to have you back amongst us.
Bikerbabe, I hope you'll be able to stay calm these next few days and sail into your surgery feeling that you're in good hands and knowing that you've got an army of sisters behind you!
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What is the wire thing that people are referring to?
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thanks oceangirl, reading about this both scares me and gives me strength to know I can get thru it. I'll just try and focus on work for now
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If you've gotten this far you can get through the next few days, BB, and the surgery will be a cake walk compared to the fear, pain and confusion of diagnosis.
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Bikerbabe, about those wires: A few hours before surgery, you'll have a mammogram to locate your lump, then, after a lovely injection of lidocaine, they'll place a hair-thin wire directly into your tumor. Another mammogram (very gentle because it only needs to check the placement of the wire, not screen for problems) validates the wire's placement. The wire extends several inches beyond your skin, so they will tape it down to keep it from interfering with your movement. The purpose is to help the surgeon identify exactly where to direct his attention. It sounds pretty frightening, but other than the "bite" of the lidocaine, I didn't feel a thing. They will probably also inject blue dye, and maybe a nuclear substance, which will drain into your sentinel node/s. Your surgeon will use a tiny geiger counter and the visual clue of the dye to isolate the proper node/s. The dye is the reason you need to arrive several hours before surgery (or, in some facilites, the day before). I know it sounds absolutely horrid, but most of us here found it far better than we'd imagined.
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Thanks. I know about the nuclear injection, that will happen the day before. And my BS told me about the blue die, but nothing about wires...and he was very good about explaining everything. So it just comes a surprise to read about it. By this time next week, it will all be over, well this step anyway:)
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The wires guide the surgeon and help precisely pinpoint the location of the tumor. It's kind of a gross image but I understand the reality is not as bad as it sounds.
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BikerBabe, I swear my surgeon didn't mention it either. If it were not for this site, I'd have had no clue and would probably have freaked out and ruined the radiologist's day. And mine, and maybe the surgeon's as well.
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I had a titanium marker (about the size of a grain of rice) placed during my biopsy so I didn't have the wires. I guess the radiologist new what was coming...even though I didn't.
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Nash, that's interesting. I have the markers, too, but will still have the wires. My understanding is that the wires outline the approach to the tumor to assist the surgeon in getting the best angle for the incision - or something like that... I thought all the surgeons used the wires but maybe some like a more 'free hand' approach?
The markers are generally placed anytime there's a biopsy so that, regardless of whether it's malignant or benign, a future radiologist will know which areas have been biopsied. I now have an impressive collection of 3 at a total price sufficient to have purchased some rather nice gems.
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Titanium markers - that's a new one and interesting. Anyway, as we have all been saying the reality is not half as bad as the thoughts/fears one has before surgery. Anyone tell me how long I will have a blue tit? Doesn't show much signs of fading after 6+ weeks.
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hey gemma...don't worry ...your smurf boob will be back to normal real soon....id say mine went back to normal within 3 months . -
gemma--It took me at least 6 months for the internal bruising of surgery to dissipate. But I was 71, and the general wisdom is that we heal more slowly as we age; I seem to recall that you too are in the senior age group. But by my first-year checkups, the discoloration was gone. At week 4 and week 5 after surgery, once the blood build-up was fluid rather than gel-like, the surgeon removed 100 cc of blood from the boob--60 cc at 4 weeks, 40 more cc at 5 weeks. And I felt and looked a whole lot better after each extraction.
The persistence of the bruising did lengthen the gap between surgery and radiation for me--it was more like 8 weeks before the prep CAT scan than the more usual 4-6. No big deal, and rads were no problem at all.
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Really, 6-8 weeks of a blue boobie??? Well, there could be worse things I suppose, and it is winter so I am pretty covered up. Smurf boobie...makes me smile, and I'll take itAt a staff meeting the other day, my boss who is expecting, asked me to make sure I included a budget item in a task I was working on, I gently slapped her hand and told her of course, why would I not. A co-worker says "you just slapped a pregnant woman, my reply was, I have cancer! we all laughed, and it was funny. But after a few minutes, it hit me like a ton of bricks, again...does that ever stop? That feeling that it can't be me, that it happens to others, but not me? It sends me into a tailspin of fear and anxiousness.
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bikerbabe I know exactly what you mean. I can't believe it's me with cancer either. I've never been in the hospital or even had a broken bone. I don't think I've fully accepted it yet and not sure I will ever be able to think of myself as a cancer patient. It's all very depressing and I've had a hard time with the mental aspect. I had my lumpectomy on Monday and I'm still home. Not in any pain but just trying to cope.
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I had a mastectomy, but my 80 year old mom was also recently diagnosed (June, 2014) with Stage 1 Breast Cancer and had a lumpectomy. I was absolutely SHOCKED how easy it was for her through surgery and recuperation, especially at her age. She was terrified because she was my caregiver after MX.
She went in as out-patient, went through the guided wires and then surgery - at University of Michigan where she had surgery, they test the margins during surgery. It was necessary for them to take more. After surgery which seemed quick to my sister and I, she was up and awake almost immediately. After some orange juice and a bagel, she stood up and my sister and I helped her get dressed in the clothes she came in - bra and all.
On the way home, we stopped at a restaurant as we had over an hour drive and didn't want fast food. She stayed in the car and we brought carry-out food back for all of us. She ate a full lunch of soup and sandwich - after getting home she rested the remainder of that day. She only took ONE pain pill before bed. The very next day she switched to Tylenol and told me to get rid of the pain pills. Next day after surgery, she proclaimed she was bored and tired of sitting around the house, so she conned me into taking her to the local casino - of course that entailed sitting, but still. At her age gambling the next day!
She had absolutely no bruising, no blue boob, just a nice, clean incision that 6 months later is barely visible.
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Wow, Denise - your mom sounds like a trooper! I wish her continued health and vigor.
I thought it was interesting that they tested the margins during surgery. I'm sure it takes longer that way but it sure makes a lot of sense to me.
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Hopeful82014 - Thanks for your good wishes for my mom! She had her 6 month check-up this week, and I told her breast surgeon how thankful I am that they have the technology to check the margins during surgery. Her surgeon said it takes about an hour longer overall for the surgery because of this, but it is well worth it in the long run so they are not going back in to operate a second time!
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Hi, Denise - That's useful to know. I may ask my surgeon about that. We have to do a frozen section of my node anyway, so perhaps it would be easy to check the margins at the same time...
Information like this is simply NOT available anywhere else! I need and value the support from all the women on this board but the insights and pooled information are an amazing resource as well.
PS - Did you tell her surgeon about your mom's outing the day after surgery? I'm sure s/he would get a kick out of it!
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Hopeful82014...I think my surgeon used an ultrasound to guide him if I remember correctly. My tumor was in the 3 o'clock position.
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Nash, that makes a lot of sense. I wonder why that's not more common? By the way, my tumor is around 3 o'clock, 3:30, too.
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Hopeful...I think it has to do a lot with the location of the tumor. During my preop exam he used an ultrasound to see the marker and decided then he would use ultra sound to guide him during the operation. I also think it has to do with the surgeon's level of confidence with his/her skill and experience.
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Thanks, Nash. We're doing an extensive US of both sides next month prior to scheduling the surgery. I might ask my surgeon about this option. My original surgeon uses the wires but I don't know whether my current one does; she hasn't said anything about it and I just thought that was what all of them did. Mine's pretty close to the chest wall at the far edge; I don't know if that would make a difference or not...
Again, thanks for raising this alternative!
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hi everyone! I didn't even know anyone had replied to my post until now! It's good to read your posts. I hope you are all doing well. Well my boob is still round with no dents but my nipple is now squished. It started after wearing a tight sports bra for a week. I do not recommend that! Only wear a bra that does not squish your nipple. It seems to be permanent now and I'm very sad about it even though it looks sort of ok. Poor nipple. This cancer thing is not easy. Hugs to all of you and lots of love.
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