Fall Rads 2014

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  • HomeMom
    HomeMom Member Posts: 1,198
    edited December 2014

    I finished last Wednesday, yay!! I'm just wondering, did any of you who have finished continue to use the Aquaphor ? I'm not tender or anything. It's actually like when I would get a tan and the skin would fade , making my skin actually look dirty. Not sure need to use it anymore.


    Monday I go for a bone density test

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited December 2014

    HomeMom, I had quit using Aquaphor about a week or so after I finished my rads. However, at my 1 month check-up, the RO told me to keep using it. My skin was dry. I also found I needed to start scrubbing a bit more to get the dirty gunk off. Apparently gentle cleansing doesn't wipe off Aquaphor :)

  • Blownaway
    Blownaway Member Posts: 760
    edited December 2014

    Home Mom - Just to be on the safe side, I think you should continue to moisturize for 2 weeks after last rad.  Someone said that any burned area can continue to worsen over that time period.

  • HomeMom
    HomeMom Member Posts: 1,198
    edited December 2014

    Pegg I know it's gross. Lol. Thanks Blownaway, that makes sense.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited December 2014

    HomeMom, I didn't realize how bad it was until I was scratching there during my shower. Then I started scrubbing :) No more gross-ness!

  • Puffin2014
    Puffin2014 Member Posts: 961
    edited December 2014

    Homemom: my RO wants me to keep moisturizing every day for several months, said it didn't have to be aquaphor, but a cream of some sort. So I'm using Vanicream every day.

  • skbrown
    skbrown Member Posts: 40
    edited December 2014

    i started my boosts yesterday.  my breast felt like it was in a vice grip.  ouch.  blown away, I sure hope I don't look like I have been burned by a cigar.  ouch.  the only thing I am using on my breast is aloe vera.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited December 2014

    SKBrown. Really? My boosts didn't feel any different. Yikes!

  • skbrown
    skbrown Member Posts: 40
    edited December 2014

    they put my breast in between 2 square clear plastic pieces and pushed it tight and clamped it down.  then put tape around it so only the tumor area was exposed. 

  • yikes1
    yikes1 Member Posts: 120
    edited December 2014

    PontiacPeggy

    now you know why my "name" is yikes !!

    actually, yikes was taken, so i used yikes1.


  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited December 2014

    OMG, SKBrown! I've never heard of such a thing. UGH!!!! Like getting a mammogram.

    Yikes1, yeah, I sure do get it :)

  • agness
    agness Member Posts: 576
    edited December 2014

    My boost area is really red and it started crusting over in parts of the area. I am using domeboro soaks now to loosen the crust and then I will use silvadene.

    I was feeling really inflamed throughout my body for a couple of days, as if my body was feeling overwhelmed by the amount of damage. I took some liquid Claritin (Children's formula, absorbs really quickly into your system). Histamines can be part of an inflammatory response and ibuprofen and vicodin weren't helping -- and it did actually work really well. Natural anti-inflammatory supplements I'm taking; vitamin C supplements, fish oil, plus magnesium as I was deficient. I am going to to pick up some bromelain and fresh pineapple at the store to help work at it from that angle as well.

  • MDnowPatient
    MDnowPatient Member Posts: 17
    edited December 2014

    I have currently undergone 12/25 radiation treatments of my left breast/chestwall and axilary nodes levels I/II. My RO stressed the importance of avoiding skin-to-skin contact of my axilla (keep my arm away from my body) to prevent friction from causing blistering. She recommended walking around with my hand perched on my hip at all times to accomplish this. Unfortunately, after a few minutes, I forget and since there isn't much pain yet, my arm goes back down to my side. Has anyone found or heard of any garments I could wear, such as a particular T shirt designed to help protect that area. I don't want wait until blisters form to deal with this. any suggestions? Thanks!

  • yikes1
    yikes1 Member Posts: 120
    edited December 2014

    to MDnowPatient,

    For now, until I come up with a better solution, I am bunching up my t-shirt so that my arm and side are separated.

    but another idea i may try is actually rolling up a shirt (or something) and putting it under my armpit to keep the areas separated.

    I may have other ideas for later as I try things out today. I am having #18 today and just yesterday told the RO I was having pain on my side and she suggested I keep arm from my side.

  • Blownaway
    Blownaway Member Posts: 760
    edited December 2014

    yikes1 - the volunteers at my center provided small homemade heart shaped pillows to place under the arm.

  • Susug
    Susug Member Posts: 193
    edited December 2014

    Yikes, after you find what's most comfortable maybe u can figure out a way to make a sling to hold it up. Something that will go around your neck. Not sure how it will look but if it helps who cares.you just need to feel comfortable good luck.Susu

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited December 2014

    Yikes - When I first had my surgery I received a pillow with a ribbon attached to two corners - it looked  like a purse.  That might work.  You could wear it under your shirt if it was cotton. 

  • yikes1
    yikes1 Member Posts: 120
    edited December 2014

    to Blownaway and CoyoteNV,

    what was the pillow for?

    sounds like this may be a good solution

    I also am trying to figure out a way to keep my shirt from touching my skin - when not wearing a bra

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited December 2014

    Yikes - The pillow was to keep my arm from rubbing against the surgical (lymph area) wound.  It seems like it would work in your application also. The shirt thing is interesting because I have found that I like my skin covered as long as it doesn't move around.  I bought some Kathy Ireland stretchy bra like things at Ross's. They remind me of a flimsy Genie bra.  They are pull on's with no metal or plastic fasteners.  I bought them oversized because I did not want tight, just unmoving. They are not cotton, but they are seamless and seem to lightly embrace my chest and underarm area.  I don't like a loose shirt lightly grazing over the radiated skin. For me that causes little electric shock sensations. Definitely unpleasant.  I don't have any open sores or moist surfaces on my skin. Just lightly pink, bumpy, prickly, itchy and slightly "sunburned", so the fabric doesn't stick to my skin.  

  • jeanelle
    jeanelle Member Posts: 179
    edited December 2014

    Yikes, I don't have any suggestions about under the arm. Mine really never got bad in that area. After surgery, I would put a very soft washcloth under my arm to keep them from rubbing together and irritate the SNB incision.

    I had my follow-up with the RO yesterday. It went really well. They are amazed at how well I am healing. I'm down to having just a couple large brown spots that are peeling along with my nipple still being sore and peeling. It is beginning to look almost normal again. :) Now I just need to break up the large amount of scar tissue under my breast incision.

    I hope everyone is doing well!

  • HomeMom
    HomeMom Member Posts: 1,198
    edited December 2014

    I never did anything, I didn't know it was a problem.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited December 2014

    I never did anything either. Didn't have any skin issues other than punctation (redness of the hair follicles) and a bit of a "tan." Just used Aquaphor as a moisturizer.

  • Susug
    Susug Member Posts: 193
    edited December 2014

    Hey ladies I hope everyone is doing well. I I wanted to ask if anyone has had scar tissue around where you had your lumpectomy. My tumor was close to my nipple. The scar tissue ( if this is what it is ) is inside the areole it feels like a lump but I think it might be scar tissue. .?

  • SCMom
    SCMom Member Posts: 112
    edited December 2014

    Hi there. I started radiation on December 9th - 10 down, 18 to go. I'd like to know if anyone in this group did radiation with implants? If so I'd love to hear how it went/is going. Thanks!

  • SmartassSmurf
    SmartassSmurf Member Posts: 157
    edited December 2014

    susug, I haven't checked into this board for a while, but saw your post and thought I could offer my experience. I had lumpy tissue in the areas where I had my lumpectomies when I asked my surgeon about it, she said that it was my tissue being a little overzealous in the healing process & essentially creating fibrous tissue like scar tissue. She said it would likely not ever go away. I had a double mastectomy a couple months later for other reasons, so I can't offer any more insight.

    Good luck ladies!

  • Blownaway
    Blownaway Member Posts: 760
    edited December 2014

    Susan - my lumpectomy scar is hard (June/July). I had one several years ago and it was hard also but as time goes on, it becomes soft and I wouldn't be able to find it by touch without looking in the mirror. The old scar is now white and barely visible whereas the recent one is still an angry red.

  • Blownaway
    Blownaway Member Posts: 760
    edited December 2014

    SCMom - I just finished 7 weeks of rads with implants. The doctors gave me lighter doses of radiation but for a longer period of time due to the implants. I was warned that my breast might shrink over time and push the implant upwards. I was advised to put lotion on and massage it in a downawards motion, pressing hard. So far, so good but I only finished about 1 month ago - time will tell.

  • SCMom
    SCMom Member Posts: 112
    edited December 2014

    Blownaway, thank you! I'm so glad to hear that it's so far so good with you. I'll have to ask my RO about massage, he was adamant from the beginning that there would be no harm to my implant but I'm just not so sure. I'm just under two months out from surgery and it seems like almost every day I'm feeling some sort of change. I can't wait for this to be over!


  • jeanelle
    jeanelle Member Posts: 179
    edited December 2014

    susuag, I also have really hard scar tissue under my lumpy incision. The doctor said it would break up over time and I can help by massaging it so that is why I'm doing.



  • Susug
    Susug Member Posts: 193
    edited December 2014

    Thanks everyone now I will not worry about it. It really does feel like scar tissue. Jaenelle, how are you feeling since you finished rads. I had a couple of weeks of fatigue after I finished its going away now. I want to wish everyone Happy Holidays.

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