INSOMNIACS place to talk in the wee hours

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  • badger
    badger Member Posts: 34,614
    edited December 2014

    ((Sassy)) the HysterSisters come to mind http://www.hystersisters.com/

    They have a gyn cancer forum so maybe some support there for your friend. ♥

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2014

    Good morning Owlettes!

    Just saw this:

    http://www.foxnews.com/us/2014/09/17/michigan-doct...

    Disgusting and terrifying. Hoping it doesn't apply to any of our Michigan sisters or their families

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited December 2014

    Chevy- you are right many times they will treat more advanced cancers with chemo fist then surgery. I should have had that but my doctors were idiots and started carving first without even enough film studies.It didn't help I was a nurse and asked repeated for more studies and further explanation I got shot down as a worry wart! I have spoken to folks who went to larger universities and got chemo first before surgeries and radiation. They will usually mark the area so they know where the tumor was and where to keep an eye out. Insurance blockades are miserable.

    Sassy- good luck with your friend. Ovarian, uterine and cervical cancer is miserable. Thank goodness we have these vaccinations now for cervical cancer.

    Wren- was it you who said you tried trazadone and it worked? I am on day 2 of trying it and am a little frustrated. I think it takes my gut longer to move meds and get them in my blood stream. So I took the trazadone at 9:30 at night and was up wide awake until 12:30. That was the last time I looked at the clock. I was promptly awake at 4:30am, but laid there and dozed a bit. Then up for good at 6:30. So what's that - maybe 5 hours, a little broken up? What was your experience?

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited December 2014

    2ntimearound- that Michigan doctor is criminal. There is a fine line between killing the cancer and killing the host (YOU!). Always remember that when you sign up for any chemo. It may sound good but the price may be high. We had a neighbor whose relative had aggressive uterine cancer. The woman was given a few months to live. She decided to try a very serious chemo to get more time and within 12 hours of getting it was in ICU unconscious. She died a day later. I doubt the cancer would have killed her in 48 hours. The time she so desperately wanted she lost.

    I wish when a MD has a horrible track record that those doctors who get a patient from that clinic would warn the medical board that something is wrong and to investigate. They don't report fraud or incompetance generally. We had a surgeon here in Oregon named Patel who left an ugly trail of dead patients and slipshod medical care. Then he left Oregon and went to Australia where he continued to kill patients. They finally arrested him! When you look back at the records be was barred from doing certain surgeries because his outcomes were so poor - yet employers gave him good references!!!! So he just kept moving along.. hurting and killing patients who of course had no knowledge of his past.

    As any nurse knows after working on the floors and seeing how patients do, the patients nearly never know enough to decide if their doctors are really competent or not. Nurses see who does well after surgeries, medical care and such. They get report and see the complications and watch how things are managed. Then you know who to avoid and who to accept. I find it rather terrifying to just go armed with hope alone. You can have alphabet soup after your name (degrees etc..) and be dangerous.

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited December 2014

    Two things. Chemo killed my dad. They shot it in the femoral artery directly on the tumor in his liver. The Cancer would have gotten him in a few months, he was burned to a crisp with this.

    I was an UN dx'd stage 4. I had chemo, unwillingly, before surgery. We could feel the tumors shrinking with each cycle

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2014

    Oh I just thank God you are still alright Spookie....!

    So many stories! Geez... it's like your're damned if you do, and damned if you don't... I know we are all different... BUT....

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  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited December 2014

    SAS - sorry to hear about your friend. She lucky to have you on her side. :-)

    Ditch iris - glad you are still lurking at least. Glad you posted. The conversation changes so quickly, so don't wait. Just jump in.

    Mommyof2. - hiw much snow you got now ? Did it stick. ?

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited December 2014

    Why wouldn't I be ok? Wondering where YOU are?

    Just finished wrapping, looking at a grey gloomy sky. It's going to rain soon, I feel a nap ATTACK coming

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  • Enerva
    Enerva Member Posts: 3,162
    edited December 2014

    hi just stopping by to wish you all a merry xtmas. I will go to Denver for the 25,26,27 coming back the 28 lol never been there. Just visiting a dear friend of mine whom also has no relatives there. I also watched a movie which I hope you all get it. It educates us about Alz. It really needs to be watched so people understand better what it is.

    image

    I wish I had seen this movie when my mom was dealing with the disease.


    Love you all

    Let me know if any of you are in Denver n may feel like grabing a coffee ;)

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited December 2014

    hey enerva, glad you popped in. Merry Christmas to you too.

    Now if Susan would pop in a quick hello, that pretty much covers everyone. Sass, heard from her?

    Everyone have a nice Sunday. I'm going to finish wrapping a couple things

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  • Wren44
    Wren44 Member Posts: 8,585
    edited December 2014

    Rosevalley, Trazodone, like most meds with me, takes about 2 hours to work. It doesn't know you out, just helps make you sleepy. Sometimes I take 1 and a half. I suspect that cutting it in half makes it start working sooner. You might try doing that. I do help it out by hitting the bed as soon as I feel sleepy. If often takes an hour or two before I fall asleep.

    Enerva, Good to hear from you. Enjoy Denver.

    Our senior center has a huge Alzheimer's program with events for the patients and groups for caregivers. They started a choral group for patients a few months ago which is pretty successful. Sometimes the diagnosed members are better off than the undiagnosed.

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited December 2014

    Well, I'm bummed. A cop was killed this morning in the little town where I worked from. Tarpon Springs Florida. The scum who shot and ran over him had a pretty long rap sheet. Haven't heard the whys yet.

    Then this afternoon 11 people were hit by lightening after the Bucs game in Tampa. 6 to hospital

    Sad day

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  • Wren44
    Wren44 Member Posts: 8,585
    edited December 2014

    That's such a shame, and so close to Christmas. I feel for his family.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2014

    hello o n kindle so please pardon strange stuff.

    Thanks badger 're ghostwriters and histersisters

    Smarrty haven' t heard from Susan. How's the goons or the foobs

    Enerva Chevy' s in Denver. Symmetry Chrstmas and Merry Christmas

    My computer won't turn on any ideas?

    Hugs to all :)

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited December 2014

    plugged in? Haha! Have you been on it since you had that storm? That part of the house, everything else works? Plug it in somewhere else if it's easy to move. Power strip on?

    Boobs are good, nothing changed except I shouldn't wrap presents. Made the top of them ache. I guess I'm not ready to do much yet. I'm getting bored and my butt is sore from all the sitting. Guess I'll start reading tomorrow. Maybe knit on my shrug. A little humbug. I miss not being able to make cookies

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited December 2014

    Enerva- the NY Times had an article on the movie in the opinion section - interesting. They compared the early onset with the common form that most older folks get. Interesting read. I look forward to seeing the movie.

    Wren they did a fun study with giving Ipods to seniors with dementia and Alzheimer and the music triggered wonderful memories and had them calm and singing, remembering things they had forgotten. I forget where they did the study but they took old Ipods people didn't want and loaded them up with favorite songs. The seniors loved the music!

    I will persevere with the trazadone but I don't see that it's doing anything much. Perhaps it is the dose, we'll see.

    Spookiesmom- your poor city and NY grieving for senseless murders of police. Reminds me of the Gandhi saying "An eye for and Eye makes the whole world blind." Very sad. Their poor kids and families.

    Chevy maybe I should delete my post about the surgeon Patel (you can read about the case on the internet) and the other comments. Not very positive but true. Remember that doctors are people just like everyone else; there are great ones, good ones, mediocre and scary ones. There was recently a case where a professor at MD Anderson, a very well respected research breast cancer oncologist, tried to poison her lover with antifreeze! She was found guilty and will go to prison. How could someone so smart and who had so much to lose throw it all away like that?

    This afternoon we headed up into the mountains during this storm and in all the years I have gone up there I have never seen the Santiam River rolling like a boiling kettle... roaring down the canyon. There is a cabin very near the rivers edge and as my DH and I stood on the bridge neither of us expect to see it the next time we go up. It was being pummeled by water! The water came up a good foot in the afternoon we were there! Wow! Water falls roaring down the mountains adding to the lake- amazing the power of nature. Makes you feel very small in the enormity of the mountains, storm and forests -just an awesome feeling of wonder and magic. Hope everyone had a good day.

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited December 2014

    Dutchie.....Yeah, we got a fly bye hideho....hope all is good with you & your kids....

    I did hear from Susan awhile back, through a PM.... She is struggling.... I sent her a Xmas card. I have her mailing address from when Kristine was in the hospital. I would love to send everyone a Christmas card & note. I have always been a card sender. I send post cards when I travel. I love to receive cards.

    Hard this time of year to think about Bluebirds kids & DH. Those family traditions that cannot be fulfilled.

    Tangarang, your Dr. Had you get the scan now, because it would be in 2014, & you already paid that stinkin deductible. Smart Dr. They have probed, burnt & dissected your poor chest enough. You are good to go....that's my analogy & I am sticking with it....hope you get the bottom line soon.

    Blondie, hope the shingles has healed....

    Rose, I think you are a wise, common sense person. I enjoy your post. I started Trazodone a year before bc dx. I had a colectomy ( 1/3 of the colon removed, disgusting right? ). Sleep issues from that, was working full time. I still take a very low dose. I truly do not know if it helps now. It does make me sleepy for 10 minutes, but not enough to fall asleep. My PCP says it is a easy, harmless med. She will have me go off the other meds next spring that I got during cancer tx.

    So glad that Christmas is almost here. Too much....But, I am so thankful that I am well, can participate. Last year was a nightmare...

    Envera, good to see you also....

    Hello to all

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2014

    Morning gals! Enerva.... where will you be staying? Just send me a PM, and maybe we CAN get together for coffee... Ha! Will you be wearing a yellow ribbon in your hair?

    Wait.... now I can't remember what I just read... Okay... I moved this page over, and went to the last... Rosie.. whatever you say, just don't delete it... Ha! Even when something happens to us, maybe it will "affect" someone else, and help! We get more insight into our own problems, when seeing what others go through...

    HiHo... My SIL had most of her colon removed, but is doing just fine now... Good to see you posting!

    Oh, and so there's Spookie! Spookers, I MEANT that I'm glad YOU are alright, because of what YOU went through..! We were talking about chemo... of which I know NOTHING about... Sorry about the news there... people are just nuts!

    Smarty... just don't move your arms around so much... that HAS to hurt your boobs! I think I'm making a Shrug also... I'm using different types of yarn, but all a cream/whiteish/tan color... and I think I can just knit the ends of each side together? To have my arms go through? I don't have a pattern, but I'll look-up pictures, to see what they look like...

    We went over to "our other Daughter/from/another/Mother"... She and her DH fixed a beautiful dinner for us... For both DH's B-day, which is today, and for Christmas! She had steak and Lobster as the main dish, with baked Sweet Potatoes, mushrooms, broccoli, and all kinds of snackers on the table! It was soooooo good! We haven't had Lobster in forEVER! We brought the steaks home for today.. plus another Lobster tail!

    Rosie came from Viet-Nam when she was little, but has made a beautiful life for herself and her Husband. Our Daughter and she started working at King Soopers 32 years ago, and she has been OUR friend that long also! She is a chef at one of the Kings, and she is the BEST cook I have ever known! But she had a horrible life as a little girl... I'm proud of her.... !

    Hope you get your computer fixed Sass... Can you call someone who might have a clue?

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited December 2014

    Yesterday's snow showers only amounted to a coating that melted by the afternoon.

    Princess is still having a blast jumping up on the freezer to get to her food and water. She has taken to sleeping in her cat tower now. It was adorable just a bit ago to look over and see her sleeping in it with her head just hanging a bit over the side.

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2014

    image

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited December 2014

    OMD!!!!! How cute!!!!!!! Still warm! Whatkind is he???

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2014

    I don't know.... I found it on this link.... He is sooooooo sweet!

    https://www.facebook.com/media/set/?set=a.34835635...



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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2014

    speaking of Facebook, big WARNING:


    image

    WARNING! SCAM ALERT! Be on the lookout for these two guys! They are hanging out around the Wal-Mart parking lots. When you are putting your groceries away they ask you for a ride to McDonald's. They are very convincing and very hot! Once in your car one takes his clothes off and starts climbing all over you. While he keeps you busy, the other one takes your purse. I've had mine taken on the 7th, 8th, 10th, 11th, 14th and twice yesterday. Probably will happen again two more times tomorrow. Wal-Mart has purses for $9.99, but I found some at the dollar store for .99¢ so I bought all they had. These two guys not only take your purse, but you never even make it to McDonald's so I've already lost 11lbs. Keep a lookout for them (I find lunch time and around 5:30 the best times.)

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited December 2014

    great link Chevy. Love the assortment.

    2nd, are you sharing?? When tired, send them north!

    Mommy, I thought you were in snow country. Doesn't CT get a lot of snow?

    Ok, have to take a shower today. That's all I have plans for! Is it Cami or Chevy that always smells nice? Maybe both, they compete

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2014

    Ah GEEZ 2222222222! So you share? I WONdered what was going on at Walmart! Those guys keep knocking on my car window, but I just hold my hand up, and don't pay attention! NOW I know! NOW I'll open the window, the car-door, and push the seat back.... and pull the blinds... and scare the chit out of them.

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  • tangandchris
    tangandchris Member Posts: 1,855
    edited December 2014

    hahahahaha!!!! LOVE it!

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited December 2014

    ummmmm I need to get to walmart

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited December 2014

    Yeah, well you'll have to wait in line!

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited December 2014


    Smaarty,

    I do live where we do get snow, but its been more on the warm side lately. If we do get snow it's not much or it turns to rain!

     

     

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2014

    of course I share, that's why I posted. There's probably a local group in your area, keep a look-out for them

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