What is worse- mastectomy surgery or radiation therapy?
I am trying to decide between unilateral mastectomy or large lumpectomy with radiation. What have been your experiences? What do you think is more unpleasant, mastectomy surgery or radiation therapy? I am fair-skinned. Thank you!
Comments
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Well I am the lucky duck that got both. My mastectomies were much more difficult, but I had immediate recon which makes a big difference. And as we like to say on here, no two people have the same experience so you might find the opposite true!
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- My mastectomy was a piece of cake, no pain at all but I didn't have reconstruction yet so that may make a difference. I had radiation also and it was that bad either. I still can't lift my arm all the way up and it's been 3 weeks but it's getting easier every day. Everyone is different.
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had lumpectomy .....radiation was no big deal for me ......I am very very fair skinned ..cant stay longer than 10 minutes in the sun without getting a sunburn ....(irish back ground ) ...I do not tan ...just burn and or freckle in the sun then turn white again .Skin turned a little pink during rads but that's it ....my skin looks fine today ...same as other side ...still pastey white -
I had both--thanks to having multicentric breast cancer and the cancer from one of the tumors spreading to my lymph nodes. Though, I was originally set up to do a lumpectomy with radiation before the second tumor was discovered. I thought the mastectomy was the worst part. In terms of the pain and discomfort. And then going through process of tissue expanders and having them filled over time.
Radiation was not a big deal. But I am dark skinned. I didn't really burn. I did get darker. I'm 9 months out from radiation. And I would say my skin is practically back to normal. Except for my skin being a bit harder. I was able to have breast implants after radiation. Not too many plastic surgeons are in favor of that. But I think my skin has handled it well so far.
One thing my breast surgeon emphasized to me was that the survival rate (which involves a distant reoccurrence) is the same for a lumpectomy and a mastectomy. The only difference is that a mastectomy have a 1% more benefit at preventing a local recurrence, than a lumpectomy with radiation.
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I had both.
For me, UMX with TE was a much bigger deal than radiation in the long run. The surgery itself wasn't so bad, but the arm/shoulder recovery is a big deal because of the chest muscle . If I'd had the choice, I 'd have had lumpectomy.
Good luck!
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Thanks so much for telling me, everyone! It is really, really helpful!
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Lucky me, I had it all. BMX 3 years ago tomorrow. The drains were a PITA, not much pain. I mean like not even a Tylenol.
Rads, I'm very fair. My skin broke, that got me a week vacation to heal. It itched, burned, a real mess.
Plus, going EVERY day for soooooo long, you're tired, and you just want treatment to be OVER!!!!!!
It does eventually end. And takes a while to recover. About a year for me. I would do it all again if necessary to keep it away.
You can do it!
Best wishes
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p.s ..Oceangirl ..I had about 2.6 cm x 1.9 cm x 1cm removed from a very small Bcup and my breast still looks quite nice .Skin and color just like it was before ....if you look real close its a little smaller thats all but barely noticeable ...still a lot of feeling in the nipple too . scar is now white also .
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Another lucky duck that got both--the mastectomy with no reconstruction then 6 months later radiation. I am olive skinned and burned pretty badly, but I got through it. The worst part of the mastectomy for me was the drains that stayed in for 4 weeks.Each person is different, but the radiation never caused fatigue during the treatment, but my skin is still dark and hard 4 months later. The radiation was more bothersome in that I had to go every weekday for 6 weeks.
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I had a BMX without recon & then bilateral RADs. The 1st week or so after the BMX was rough. I went for a walk each day(4-5miles). My surgeon told me not to drive. Moving my arms was difficult. Even working the microwave. Had my drains pulled after 6 days & then things got better fast.
The worst part about RADs was that it was for 5 1/2 weeks. My skin did not like it. Kinda of like a bad case of poison oak. I'm fair skinned but a former sun worshiper. Lots of blisters where I had tanned in my teens & 20s. My energy level was great. I worked out everyday.
Best of luck with your decision.
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I had a modified radical UMX - not bad at all. With if the worst was developing a seroma after 2nd drain was removed 4 weeks post surgery. ROM was never an issue for me. I had read/been told that post surgery would need a button front shirt so I bought 1. Wrong for me. In the winter/cold weather, my 'uniform' is a turtle neck under a pull over sweatshirt which I wore in the day of surgery. When I started getting dressed to leave the next morning, it seemed that I had plenty of ROM to get them on - I did easily so I walked out in my 'uniform'. I did literally walk out - per hospital rules the discharge RN had to go with me with a wheelchair 'just in case' until I got in Son's truck.
Rads were easy during. Started them 1 week after last Taxol which had completely and utterly EXHAUSTED. I felt better every day. Had no skin issues (I am VERY light skinned) during rads. On day 24 of rads (I did 25), very slight 'pinkish' and on day 25 slightly pinker but not anything to 'think' about. Next morning entire radiated area was majorally blistered. I'm allergic to Sulfa so could not use Silvadene/Sulfadene on it and luckily never developed any infections. I still have 'good' scars over a lot of the area. Thankfully the deepest of the burns was under arm where there is nerve damage from surgery so I never felt pain in that area. Vicodan kept the other areas tolerable. What finally healed/dried it up was Domoboro soaks. Last rad was early March - last scab finally came off on June 29 while I was seeing my PA. This was a very unusual happening but then we are all different. Do not expect to have the same experience(s) that anyone else has had.
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I initially had bilateral mastectomy with immediate flap reconstruction. Two years later I had a lumpectomy and radiation. Lumpectomy and radiation is way, way easier. I am very fair skinned. My skin did get raw and very uncomfortable the last week so not a piece of cake but three weeks later I was on vacation in Aruba and really just fine. So much easier to recover from and way less fatigue and a shorter period of pain.
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Thanks so much for telling me. You guys are so wonderful! I found out yesterday that I can get a lumpectomy! I am SO glad I went to a teaching hospital! They were a million times better than the local doctors. They all ran back and forth to each other and discussed everything. That would have taken weeks of appointments with local doctors and they still wouldn't have had enough of a discussion to figure stuff out. The decided as a team that a lumpectomy was the best option for me. I had to drive 2 1/2 hours but it was SO worth it and the advice was completely different to the local doctors, who all three told me different things.
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With a small cancer and negative nodes. The thing to consider is that with a lumpectomy and rads you will be pretty much back to normal. Even if you do have a significant skin reaction, it will recover. Actually how you react to the Sun does not necessarily relate to what happens in rads.
But if you have a mastectomy, that's permanent. Even a reconstruction is never the same.
I'm glad you chose lumpectomy. In my opinion that would be the way to go. Good luck!
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Me too! And I am so relieved because the local doctor here was crazy pressuring me to have a bilateral mastectomy. He kept saying "family history" but at the teaching hospital that was not a big deal at all to them since I have a slow-growing cancer. I am so glad, and I feel so bad for all the patients that go to him and don't know there are other options.
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OHHHHH so happy for you Oceangirl .......!!
I love hearing good news .....glad you went for a second opinion .
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Me too! I want everyone who is newly diagnosed to know that going to a teaching/academic hospital is the way to go! What a huge relief and a world of difference. Thanks so much everyone for your nice messages!
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There are MANY fantastic facilities that are not associated with Universities. Not everyone lives where going to a Teaching/Achedemic hospital is a possibility. I went to our local Cancer Care Center and have no complaints at all. They have a 'Board' that each case is presented to for discussion. My Dr is also on the Board of several BIG name facilities. For my neoadjuvant, they only came up with one TX plan - if it 'worked'. For the adjuvant TX plan, I was told the one that was recommended but given other options - I opted for the recommended one.
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yes, my case was presented to the tumor board at my hospital. Everybody I was involved with was there. One stop. I do have Moffitt in Tampa as a plan B if I ever need it
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The tumor board at my local hospital recommended bilateral mastectomy. I have a 9mm cancer, and a family history of slow-growing estrogen positive cancers. The doctors at the academic cancer center recommended lumpectomy with radiation.
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My radiation oncologist told me that fairness of skin has nothing to do with how you will go through radiation. It seems to have more to do with total area radiated.
I am white, and I mean white, and I had no problems with radiation burns. I've had both a mastectomy and a lumpectomy/rads so am another of the 'lucky' ones.
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Thanks for telling me! Yes, the radiation oncologist told me yesterday that white white skin actually does well with radiation but it is worse for golden middle-eastern skin. I don't know if he's right. But it was somewhat a relief for me.
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I had a lumpectomy with targeted radiation for 5 days (SAVI). I am very happy I had the targeted radiationI as the whole breast was not radiated. The lumpectomy surgery was not bad. They removed about the size of a peach to make sure my margins were well cleared. I was surprised there was no pain from that site. I think the most uncomfortable part the where they removed the lymph nodes. I had all kinds of sensations from that area.
I will say from time to time I do have some pain where I had the radiation so I am very happy I did not have the 6 week full blown breast radiation. If I was going to have that method I would have went for the full mastectomy.
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Thanks for telling me. I am having the whole breast radiation because I'm too young for the other one. I hope it will be ok. My mom had it 20 years ago and she has been fine since so crossing my fingers. I have surgery on Tuesday. Best wishes to you!
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I had the same DX. Are they suggesting an MRI or any further testing before your lumpectomy? My bs wanted to make sure that there were no other problem areas in either Breast before surgery. I was already leaning toward bmx to stay away from radiation. It probably seems pretty radical to most people. My MRI showed questionable areas. Not unusual. I skipped the biopsies and went with bmx. It was the right thing for me since they found cancer in the other Breast. Good luck
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Yes I had an MRI. At the local breast center they were worried about 8 spots that showed up on the MRI thinking I had cancer all over in the upper right area of the right breast and that a lumpectomy might not be possible. But at the teaching/university hospital they are only worried about the confirmed cancer and two other spots nearby, which they are going to take out during the surgery. The other breast was all clear on the MRI. My sister had a bmx because of an MRI that "lit up like a christmas tree" on her other breast but there turned out to be no cancer in that breast. She regretted her decision which influenced me a lot. It is all very confusing and very hard to decide what to do. One cannot really know if it's the best choice until hindsight! So thus is life. But I have felt way way better about deciding what to do since I went to the the teaching hospital and they were not considering bmx just lumpectomy, so that made it easier for me.
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Oceangirl: So happy for you. I personally feel that the least surgery you can do the better but truly that is just my opinion, so many factors to be considered with BC.
I found that after my firs rad treatment, it was fine. It's normal to be worried about rads, sounds so scary but it was easier than I thought. My skin did not burn but turned a very dark brown. Key is to keep Eucerin on it - I truly used it 6-8 times/day and think it really helped with recovery.
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Thanks for telling me about the Eucerin Cream- I am going to ask for it! Did you have a recurrence and have to get a bmx a year after? And was it ok that you had had radiation as far as reconstruction goes? Thanks for letting me know!
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oceangirl654, I too had a 2nd opinion at a teaching university . The surgeon that I met with , who became my surgeon for my lumpectomy, is the head professor of the Breast Care division, so I felt that I was in good hands. My diagnosis was very much like yours except they discovered that i had a " salad bowl" of cancers from my pathology results after 1st Lumpectomy.I went from scheduling a Bmx at another hospital to a lumpectomy at the University hospital. I didn't get clear margins the first time, but the 2nd recision was good. The healing process was good . I think my sentinel node biopsy was more painful than the Lumpectimy.I'm starting rads on Mon after much research. These boards have helped! I was actually thinking of not going through w/ rads & doing more health,supplements related treatment.There are so many decisions that only "we" can truly decide. I think whatever choices we finally make, we have to feel comfortable with our decisions. There are so many uncertainties with this "cancer thing", but one thing that is for certain is that we are ultimately the ones that are in control of what we choose to do! I encourage you to look through the threads " Winter or Fall rads ... So many tips, encouragement & a place to vent our fears , concerns. Good luck to you!
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Dogs Never Lie, has your skin returned to your normal color yet? Have you had any other ongoing effects (tightness, texture, etc.)?
Thanks for anything you care to share.
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