How do you keep from feeling your life's been ruined?
Comments
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Yes, to the thought of having no treatment occurred to me. When I asked my MO what would happen with no treatment, her response was that I would live about one year. Her little pronouncement put me on go and I am so happy that I have done everything recommended by my entire medical team. Treatment, every aspect of it, is brutal, but it works for many of us. I am grateful that we have the treatments that we do.
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Well said Hopeful..
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Have a question for some of the "veteran" women who follow this thread... I thought I was in a place of acceptance after 18 months, but realized that all came crashing down last night. Doesn't help that I have a 20 yr old and 21 yr old that find every way imaginable to push my buttons.... a war with them puts me over the edge and back at the brink of a breakdown. I fell back into the "hate my body", hate this disease that could still be lurking in the shadows, want to relieve stress to stay healthy but my kids just do the stupidest things to raise the stress level beyond being managable and cried for hours until I fell asleep.
I wanted to call my boss last night & quit my job... I am so tired. The hot flashes & night sweats take away real rest. The burden of trying to raise responsible, respectful adults is so wearing... I know we all knew it all at their age, but for christ sake... help your mother out with the little things and stop taking me for granted.
Just wondering if anyone else had multiple meltdowns after you have been in the "clear" for a while? I am normally a glass half full, full of life person... but fell back into a dark hole again last night and am having trouble climbing out today. Just want to give up on everything. Quit my job, sell my beautiful house that we just finish a complete remodel on right before my diagnosis, walk away from my "legally adult" kids and find a place to escape and start over.
Sorry for venting... sometimes makes you feel better to type the crazy thoughts that run thru your head.
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I do know how you feel. I think most of us diagnosed experience some sort of post traumatic stress disorder . I didn't realise the extent of mine until my mum was explaining a cyst she had in her breast over the phone and according to dr google she had IBC. Of course it wasn't but I had a complete meltdown as it brought all the trauma of my diagnosis ( it had been 6 years) back. What I hate about BC is that you are never in the clear there is always a possibility of a reoccurence. It's ok amongst ourselves to be honest and afraid and negative but it's not ok to be like that with others. Maybe it is too confronting
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Delvzy - PTSD for sure - how can we not have it!! It's nice to be able to be honest here with other's who understand. The biggest reason you can't be honest with other's - is they don't get it. They think they do... but unless you've lived it - you don't have a clue!!!!!!!!
I didn't have many dark days early on - probably just numb and did what I had to do to get thru it and hope to move on. I'm sure there will be more, unfortunately. But I'm glad we have someplace to go when those days do happen!!!!
I have found a few plus's having gone thru this experience. I don't have much of a filter anymore - I say what I think (probably not always good lol) and I learned to only do things I WANT to do... I say "NO" more and don't get twisted into waisting my time on things that won't make me happy.
Thanks again for listening!!!
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Delvzy - I'm with you on the issue of recurrence. I think that even on this site there's a lot of burying heads in the sand on that issue. I personally feel that we need to be pretty up front with people on that issue, for their education and for our own mental health. Most people talk as though if they do "everything" (meaning surgery, chemo, radiation) they should be good to go. Maybe I'm a glass half empty type (I prefer to think of myself as a realist) but the fact of the matter is that you can do all that, incur all the side effects, etc., lose a year of your life in treatment and still not have any kind of guarantee that it's gone.
To me, that's the ultimate failure of breast cancer treatment - and kind of the dirty little secret that the rest of the world is clueless about. I think that's part of the struggle for many of us.
I'm not going to live my life wondering if it's going to come back but most cancer survivors I know DO have that in the back of their minds, no matter what type of cancer they've faced. It's a fact of life.
All I can say is that we need to keep pushing for better (especially less brutal) treatments and more progress towards both prevention and cures. In the meantime, we pick up the pieces and go on, even when we don't want to.
I do find it helpful to have sets of visualizations and affirmations and prayers - I compose what I need in different situations and jot them down in a notebook. They are proving helpful in climbing out of the dark pit that sucks me in from time to time.
Best to both you and mjsgumbas. Hang in there.
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I agree n every time i was due 4 a mammogram it was so stressful even the time up waiting 4 it.
When i had y 5 year anniversary i was so excited i thought that was it but deep down i questioned. 14 years later it decided to come n torture me, noe of course metastatic. Not everyone get a recurrence, just us lucky ones. Oh n i am a 1/2 emtpy kinda person
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blondiex46 you have hit the nail on the head. You would think after 14 years you would think you were in the clear! The bloody thing must sit dormant and then something switches it on. Hopefully they will find some protein or gene they can switch off to give us peace. You do your best to have positive visualisation then you see somebody on tv has recently died from it or occurred a reoccurence and you think damn
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Blondie & Delvzy Yes, it does hit hard when you see news of someone well-known dying of a recurrence - especially when they started out at the same stage that you did. It really drags you down.
My understanding is that chemo, etc., kills cancer cells but doesn't kill cancer stem cells, so they can sit in your body working away to create whatever cells they need and then, one day, whamo - you've got a recurrence. Don't quote me on this, but that's what I'm getting from reading the literature. What we need is something that kills the stem cells as well as (or in addition to) the regular tumor cells.
Blondie, I'm so sorry that you were hit with a recurrence after so many years. Thinking of you.
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Eventually, with time, the thought of recurrance or progression , moves to the back of ones mind. It never disappears, for most of us, it's just not front and center. Counseling and neds can help if this doesn't happen on it's own.You can't change the fact that this is part of your life, but you can learn to move it to the back burner
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it is residal cancer STEM cells that differentiate us from people who never had cancer, our bodies can deal with them if sufficiently well resourced. But the right combination of chemicals, hormones and triggers can stimulate stem cells to try and create mets.......
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I feel like my life was ruined by cancer. After treatment I feel into a deep depression and ended up in a residential treatment center (lived in UK at the time...husband is Air Force and stationed there). While at the treatment center my husband called me and told me he wanted a divorce (I was shocked). Shortly later I was medically evacuated to Florida near my parents (I was suicidal and tried to commit suicide a few times). Mental Health on the Air Base decided for me that I shouldn't be near my husband. They called me one day and asked me if I was ready for the evacuation....I felt very pressured and agreed (although I was under no condition to make such a decision.
After 11 days as inpatient in a local crisis unit, I was finally discharged and now live with my parents. I'm unable to go back to the UK (the base won't support me any longer) to be with my kids (Ages 20, 18, 15). My family has been falling apart since I'm no longer there.
I'm unable to work (not sure if anyone would even hire me) because of all the side effects of my psychiatric, pain and other Meds and my cognitive limitations (chemo brain). I don't know if I'm even eligible for disability. I would love for my daughter (15) to come live with me, but there is no more room in my parents home and I can't afford a place of my own.
I can't believe how much my life has changed in the past 1 1/2 years....sometimes I feel like I'm in a nightmare
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bonski, i think you need a lawyer. that f****r. i am so sorry, and i do hope your daughter t least can come to you. that f****r husband needs to pay for all your care, and that of the kids too. You did the job of mother and wife for all that time, and i just cannot believe he would be so cruel. it is probably better to get the kids away from him, before he poisons them with his hard heart.. i can't believe him
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Bonski
So sorry this happened to u..dont have anythin, just glad u found us
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no money for a lawyer, but my soon to be ex is taking care of a lot. He's paying off all our debt (and there is quite a bit of it). He pays me $500 per month, pays for my car (and it's not a cheap one) and pays for my insurance. I'm hoping that the request for me to get housing allowance will get approved! I also get to keep my portion of retirement plan that I saved up for when I was working.
I'm still waiting for my car and personal belongings. I told him that he gets to keep all the big stuff and memorabilia.
Once the divorce is final and he retires from the military, I will be entitled to half of his pension (around $2200 a month for me) and he still continues to pay off any debt if there is any left by that time.
My daughter comes to visit for spring break and I hope she likes it enough to want to move here once I'm able to live on my own. If she does, husband agrees to pay child support that includes living arrangements since I have to get a 2-bedroom place.
Thanks for letting me vent!
Blodiex46....thanks for your welcome
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Bronski, blondie is a sweetie pie, as you will see!
I am glad that you are getting what your'e getting, but it does not seem like nearly enough. There should be some kind of a family/ divorce lawyer that can do pro~bono work. 500 a month just isnt enough to make it. I do hope he has a hard time sleeping at night...
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Tomboy,
I'm afraid to rock the boat and end up having to pay for half of the bills. I'm also afraid to 'start a fight'....don't want my kids feeling like they have to take sides. My husband is also stationed in the UK (Air Force). Not sure what a lawyer can do to change the situation
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Sorry for all the whining and excuses....not expecting any results here but just wanted to vent.
Thanks for all your support and advice!
Hugs, Bonnie
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Vent away! that's okay! I was just getting mad at him for you! (((bonski)))
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Thanks tomboy
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Bonski, u vent away, so sorry u r in the middle of that while doing the cancer thing big hugs
Tom..u r the best hugs 4 u 2
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Venting is one way to help not feel like your life is ruined....so vent away!!
Some days I feel like things are going to be okay, other days are not so good. It's just a step at a time, a moment at a time. I have a scan tomorrow, a follow-up to see how an inflamed area on my chest looks. I've been doing good with it until today, and as of right now I'm freaked out. My shoulder has been hurting too, so now I'm really "going there" in my mind.
I don't think any of us will ever be the same, that is good and bad. We all just have to try and take the next step in front of us.
((hugs))
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Tang - good luck with your scan tomorrow. I hope you get your results quickly and that it's all good news. I'm passing on all the supportive energy that others shared with me earlier in the week.
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bluepalace, I've weave in and out of the same feelings you hd...how are you doing now? you can pm me if you like.
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I had an unsettling thing happen today and I need to get this out somewhere...bare with me please
I took dd out today around the block to sell girl scout cookies. She's a daisy scout and this is our first time doing this, she was very excited and I was happy to be able to walk around with her and do it. I had no thought of BC, other than being happy that I felt good today and It wasn't so long ago that I didn't.
So, we go to the street behind us and knock on a door and a woman answers the door who is obviously undergoing chemo. She is bald, and has no eyebrows and has the runny nose that I remember. I was dumbfounded! I stood there and looked at her and blurted out "your being treated for cancer, right"? She said yes, I sensed that I may have upset her and I told her that I had just finished rads/chemo over the summer. She asked me if it was BC and I said yes and she said hers was as well. She was stage 4, mets to lungs and liver and she said she'd been dealing with it for 11 years.
I swear I just can't get away from BC!!! I hate cancer, I hate how it takes hold of your life and just doesn't let go no matter what! I just wanted to go out and sell girl scout cookies with my 5 year old and not have BC hanging over.
just needed to vent...thanks
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oh I totally get that. I think there is always going to be constant reminders. I am sorry to hear about the woman that answered the door and for you because I understand the need for getting away from BC. I swear after I was newly diagnosed every two minutes a cancer commercial would come on TV. Drove me nuts. Then hubby and I went to the movies where the movie started off with a bald woman in a hospital bed dying. Obviously she has cancer and I told my husband right then that I seriously did not need to see that. I don't think we ever get away from some reminder of BC and how horrible it is, but I do think it gets better.
Nancy
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Ruined? No. Changed forever? Yeah.
I've found great comfort in a book I did not think I'd like at all, Greg Anderson's Breast Cancer: 50 Essential Things You Can Do. I've found it to be incredibly uplifting and read it again and again when I need an attitude adjustment. Despite the diagnosis of BC I have a lot to be grateful for, I just lose sight of that sometimes. Anyway, I find this book not only to have some good practical advice, but to be emotionally comforting and helps me keep things in perspective-mostly.
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Labelle, I liked that one, too! It was a refreshing change from a lot of the other books and one I'd actually consider owning, which is saying a LOT.
Another one I find helpful is "Dealing With the Emotional Impact of Cancer." It's not bc specific and I like that - it gets me out of my own head at times. Both books are widely available in hospital cancer centers and public libraries.
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Thank you for the reading suggestions, ladies. As much as I try to remain positive, there are times I am simply overwhelmed with fear. I am trying to move past it.
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I understand, Warrior Woman. I think we all have those times; I know I do. Hang in there.
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