Starting Chemo in December 2013

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  • RHGSR
    RHGSR Member Posts: 774
    edited December 2014

    Kim - I totally agree with you. My husband and I wouldn't have made it this far without our faith.

    Lisa- I'm so sorry. My husband and I separate in 2003 (before kiddos). I went to counseling, he went to counseling, then we both saw a marriage counselor. We stayed together. I feel like going through that made us stronger and is probably the reason we are handling this BC so well. We have ups and downs, don't get me wrong, but so far so good. Of course, I'm still at the physical healing stage. Have 3 more surgeries so we and kind of still in "fight" mode. We haven't really begun the emotional healing yet.

    Jbokland - how are you feeling?

    Michelle- GREAT NEWS!! So happy for you.

    Holli :0)

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited December 2014

    mammo and us today. bilat...well here we go again, prayers and pocket parties. we are really getting tired of this, arent we?. bilat Mammo showed nothing although usually cant due to density but no calcifications either side. US showed complicated cyst on L, (my cancer side), in a different area than the malign lump. at about 6:00 just below nipple. Due to history (this kind of lump was found prior and thought nothing but then showed cancer) they want to biopsy.These can be benign or not as you all know. its small 6mm, cant even be felt. Will have biopsy monday at 11:00 and results 2-3 days later. im ok. Thought id be more upset. Trying to stay in the moment and not think too far ahead. I know what the possibilities are but will try not to get too far ahead. Will try "not to waste energy worrying until there is something to really worry about" now its all speculation and fear. My friend said to "occupy your mind with things you can control"...lets see, I can see my new home care patients and help them be more functional in their homes,learn the new electronic medical record tablet for new job, clean and cook (always feel like ive accomplished something when an area is picked up or i make something yummy!), meditate, eat well, exercise or stretch, go to yoga, wrap presents (i shopped online and everything is almost done!), enjoy fam and friends, get along with husband...(he is trying but is clueless sometimes on what to say or do, ill give him some slack ;)). Let see how my mind goes this next week. GOing to try to stay grounded and not get all hysterical

    Sad to see Mikesgirl (Kathy) go too. I feel like you all are friends and dont want to abandon you all and i need you as well too. But we all have different paths to recovery and survivorship. we have to do what seems right for us even if its not the same for everyone. I wish her well and maybe she will check in on us occasionally and also let us know how she is doing. I think you all are stuck with me though...

  • Mikesgirl17
    Mikesgirl17 Member Posts: 260
    edited December 2014

    I hope you don't feel like I'm abandoning any of you. You can contact me anytime on Facebook. I just find that I worry about a recurrence way to much. Especially with this being TNBC and that this was a recurrence after having a double mastectomy. I was just going to stop posting, but didn't want any of you to worry. I consider all of you friends and can't imagine how I would have gotten through this without you. I probably won't be able to stay away anyway. I'm just going to try it for a couple weeks and see if I worry less.

  • kjfromca
    kjfromca Member Posts: 283
    edited December 2014

    Kathy - I am so glad to hear that you will check in once in awhile, and can understand the fact that you just need a break from this. I will miss you....

    Lisa - I will be keeping you in my prayers. We are always here for you. Sending a hug your way.

    Kim


  • jbokland
    jbokland Member Posts: 890
    edited December 2014

    thanks for asking! I am really doing pretty well. I hope to get at least on drain yanked on Wednesday; the other is still draining around 50. Pain is minimal, I have not even had an Advil today...put I did enjoy a wine tonight! I've had two days out for light errands. I'm looking forward to a haircut tomorrow because my newly wavy hair has me nuts

  • RHGSR
    RHGSR Member Posts: 774
    edited December 2014

    kathy- we will miss your daily posts but understand why you need a break. I look forward to waking up and not thinking about cancer. Please check in from time to time. Like everyone else has said. We are all friends.

    I'm at my BS for my 6 month follow up. Actually it's my 2nd 6 month follow up. Anyway, I saw this in the waiting room. It's title is journey to victory. It reminded me of our victory pictures.

    imageimage

  • DJJ
    DJJ Member Posts: 229
    edited December 2014

    Lisa, am thinking about you! Staying busy with stuff that makes life full seems to be the key for me to keep my mind off the worries. Although I know when the next check comes in April I'll probably be a wreck. I will be thinking about you.

    Kathy, sorry to see you go but I understand. I had a hard time in October when there was pink everywhere, too much of a reminder. They had the pink breast cancer ribbons stuck to the floor at the mall and I stepped on everyone of them that I past. Childish....maybe, but did it make me feel better...YES! Fair winds and following seas my friend. We hope to see you back.

  • oranje_mama
    oranje_mama Member Posts: 260
    edited December 2014

    Lisa, in your pocket!  Staying busy - good advice.  I can't say (at least yet) that this experience has made my relationship with my husband stronger.  We had some really tough periods throughout.  Recently, I feel like it's getting better though.  But I think that's because I am starting (fits & starts) to feel more like myself & more like this experience is something I'm looking at in the rearview mirror

    You've inspired me to sign up for a yoga class.  Starts Jan. 5th & is a full "semester" at a serious yoga school/studio here.  I am finding that being physically active is the one thing that seems to make the biggest difference for me in terms of mental wellbeing.  In the past, I've always let other priorities get in the way (work, kids, etc.).  Now, I'm like, my set-aside times for exercise are non-negotiables.  Short of a true crisis, nothing keeps me from my Friday training session or my Sunday swim.  And now I'm going to add in Monday night yoga to that list.  It always felt "selfish" in the past.  Monday night means I'm not home for dinner/HW/bed routine with my kids.  But I feel like this is something I "have to" do.  I feel like it could make the difference between being healthy or not. 

    Kathy, I get it.  Do what you need to do to be able to live in the moment.  We've got our lives & health now - need to live it to the fullest.  If being on this board is keeping you from it, totally understand that you need to keep away for the time being.

    I got my port out yesterday.  First, doc told me he'd give me a dressing that would allow me to take a shower . . . but when all was said and done, he didn't just use the glue, got a couple of sutures & no showers for 48 hrs.  Of course, I had a presentation today and tomorrow.  Jodi, I share your afro hair issues (I have always had the straightest of straight hair . . . until now!) so no shower + afro hair = interesting look ;).  But I'll take this problem any day over being bald or wearing that damned wig.

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited December 2014

    Holli, I hope your follow up appt went well. Are you feeling better?

    Lisa, praying that you have benign results and that you don't have to wait to long to get them!

    I have my 15 mo w/MO follow up next week...

    Have a good week-end, ladies!

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited December 2014

    thanks all, I'm trying not to think too much about next Monday but my real fear is 2 days after when I get the phone call. The actual biopsy is no big deal anymore. Don't want to put words to the fear because it's too scary! Trying, trying, trying to just stay in the moment of what is happening right now....(and right now I just took a batch of hearty oat cookies out of the oven!) heres the recipe and pic

    http://www.womansday.com/recipefinder/hearty-oat-c...

    image"

    Baking is my distraction. New job is ...ok. The darn electronic medical records (which we do on a tablet) is taking more time than the actual therapy time in a patients home sometimes. I'm not learning new things as well as before it seems and I have to keep going back to previous screens to remember what I wrote there. There are about a million screens of Info, status, goals, progress, why's, when's, why nots we have to doc on. Was so much easier back in the day when Insur wasn't as big of an issue. If we want to see a pt longer than 13 visits we have to write a book justifying why and what we are going to do and how long it will take and justify our justification.....ugh. It's just making me more stressed, (but distracted I guess)

    Oranje, great on the yoga. Hope you like it. It took me a long time to "get it" and that's the right attitude with making exercise a priority especially now. It will serve you well. And yea on deport!

    Thanks on the hubby comments everyone, I'm not alone in this area it seems

    Missy...where are you? How's the boob healing,


  • DJJ
    DJJ Member Posts: 229
    edited December 2014

    Ornge_mama, YAY! Deported! I love not having my port. I've had one herceptin with my arm vein so far and it was alright. Only three more to go!!!!

    Lisa, Yum!!! Now I want cookies!

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited December 2014

    sharing some Christmas spirit!! Happy Holidays ladies!image

  • missy6758703
    missy6758703 Member Posts: 218
    edited December 2014

    Hi Ladies! Jodi, your middle daughter is a carbon copy of you! all 3 are simply beautiful! Good job momma! :)

    I have recovered nicely from my last surgery....went back to Mayo last week and got the air removed from the expander and had it replaced with 300cc of saline. I will go back on Jan 7th for a little more and will have the implants put in around April or so.

    As most of you know from Facebook, i had quite a scare a little over a week ago. My PET scan came back with an area of concern under my left armpit where I had all the lymph nodes removed. This led to an ultrasound and then a biopsy. My fear was at an all-time high during these days. I did my best to keep busy and try not to worry about it, but deep down i was scared to death. I sobbed like a baby at work when I got the call on Friday saying there was no evidence of cancer. Lisa, I will be tucked right there in your pocket and know exactly what you are going through....everything will be ok.

    Hard to believe Christmas is right around the corner, thank God we are all in such better places this year vs. last. Ugh.....gives me chills just thinking back to a year ago.

    I miss all your posts and miss all of you!

    Michelle

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited December 2014

    imageHere you are girls, my worry stone, in my pocket for tomorrow and the next few days to come until results. So Scared. Trying to calm the monkey mind

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited December 2014

    Hang in there Lisa; we're in your pockets!

    Jodi, that picture is amazing! What beautiful babies you have! I LOVE the boots!!!

    yeah, Michelle, such better places right now. Today was my oldest GS's 6th birthday. I was so excited to go to his party this year. Last yr, I was in the middle of my NADIR with chemo and decided it best to stay home and not go to Mr Gattis, for fear of getting sick.

    oranje, good for you, for going to yoga!

    My friends' (that took me to chemo) daughter has been DX'd with MDS...pre-leukemia. She had Leukemia exactly 16 yrs ago. She has since married, had two babies through in-vitro and is only 41 yrs old. I'm so praying that she makes it through this. She is in the hospital now with an infection from the IV...I hope they can get it under control soon, so she can receive TX. She has had blood transfusions last week. If any of you are inclined, please include her (Lisa) in your prayers. Thanks!

    ((HUGS))

    I hope you all have a wonderful week~

  • oranje_mama
    oranje_mama Member Posts: 260
    edited December 2014

    Jodi, gorgeous girls!

    Lisa, keep us posted.  We're with you!

    Question for all of you on tamoxifen . . . do you suffer from insomnia?  are you doing anything about it?  I have been waking up like clockwork every day between 3:45-4am and I'm unable to get back to sleep.  I don't have trouble falling asleep when I go to bed, just trouble staying asleep. I didn't have this issue all through chemo and radiation.  I'm pretty sure it's a tamoxifen SE.  When I saw my primary care doc for a physical in October, she was concerned about this and wanted me to come back if it didn't improve in 6 weeks.  Well, it didn't improve at all, and I'm seeing my primary care doc today.  Curious if any of y'all take melatonien or precription sleep aid like ambien?  BTW, my oncologist doesn't seem to care much about this SE, but that seems to be general attitude toward SEs at this point.  She tells me to keep on exercising (which I am doing - but I still have the insomnia.)

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited December 2014

    biopsy done. They call it a cyst as it's not palpable, a "lump" is palpable. I didn't know this distinction before. Anyone else know this? it reduced down almost totally and she could barely see it after taking the samples, which is a good sign...except that's how my cancer "lump" acted also and was not expected to come back malig. I'm feeling good and "positive" right now (God how I hate that word) . But won't have path report until wed at the earliest but more likely thurs. How I hate waiting. Because of my history they will test every lump bump and cyst I guess. A few more days of agonizing waiting. ITS GONNA BE BENIGN!

    Jodi, gorgeous girls!

    Nice to hear from you Michele, and also keepthefaith

    Oranje, I have had trouble staying asleep for years. I'm not on tamox. I take melatonin and also 1/2 of a 5mg of ambien. Helps to fall asleep but not to stay asleep. I think that's a natural sleep rhythm pattern at that time. That's a common prob with women at menopause, do you still get your period when on tamoxifen? And how many hoursI of sleep are you getting by 3 or 4? There's a slow release ambien but that's a much bigger dose. let usknow what your pc say

  • RobinLK
    RobinLK Member Posts: 840
    edited December 2014

    Lisa, prayers for B9!

    Michelle, glad all is well with you too.

    Oranje, on tamoxifen my sleep is always interrupted. It was that way during chemo also though. My circadian rhythm is a mess.

    Barb, how is Moki?

    Jodi, beautiful girls! How precious.

    Keepthefaith, prayers have been sent up for your friend.

    Saw BS today for 6 month follow up. I have 3 more lumps since last US...1.5 - 2 months ago... She says most likely fat necrosis and common. Then she said call your RO, move f/u appt to next month and then meet with me again in February. 6 months ago she told me RO was being overly cautious by making sure someone was checking every 3 months. Makes me nervous.....like there is something she is not saying.


  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited December 2014

    oranje, yes, insomnia here, too. Seems like shortly after TX ended, I would have insomnia for a couple nights in a row, then sleep pretty good for a night or two and then repeat. I'm not sleeping that well now, but not taking anything for it. I have an appt with MO tomorrow. May ask her about it...

    Robin, I hope all is well! Gheez. I think your BS is just being cautious. My RO is that way and sometimes he freaks me out. The BS is probably pretty knowledgeable and if she was too concerned, would send you in for more testing right away, instead of waiting. Sometimes I wonder if there is really something to be concerned about or if they are just covering their own butts. Try not to stress too much.

    Lisa, hang in there:).

  • RHGSR
    RHGSR Member Posts: 774
    edited December 2014

    hi ladies!! I wanted to share with all of you that today is my 14th wedding anniversary. We've had our struggles- a separation, Finacial strain, child with a heart defect, cancer... But we are still kicking- just not as high as we used to!! LOL

    Below is what I put on my blog. Have a wonderful day.

    Happy Anniversary to the Love of my life!! I love you more today than yesterday and will love you more tomorrow than today!! Thank you for always sticking by me through thick and thin (no pun intended :0). Your perserverence through this past year is awe inspiring. At times you have had to be mom and dad. Not to mention care giver, chef, house keeper , and ultimate insurance fighter. I am amazed by you and honored to be your wife.image

  • kjfromca
    kjfromca Member Posts: 283
    edited December 2014

    Good morning ladies -

    Jodi - Your babies are beautiful, just like you!

    Oranje - I too have sleep problems. I can fall asleep, but wake up all night long. I take melatonin, but it doesn't help. I will continue to take it though, as my integrative health doc says that it is a tumor blocker. I also tend to have the majority of my hot flashes at night which wakes me up.

    Holli - Happy Anniversary. May this coming year be filled with good health, love and abundant blessings.

    Michelle - So glad to hear that your results came back.....no cancer! My mind goes back to last December a lot right now. Trying not to let it steal my Joy this year.

    Lisa - Praying for clean path report.

    Keepthefaith - I will be praying for your friend's daughter, Lisa.

    Robin - I agree with Keepthefaith, I think that if your docs were really concerned, they would have you in for more testing immediately.

    Have a great day ladies,

    Kim




  • Lisaj514
    Lisaj514 Member Posts: 719
    edited December 2014

    BENIGN!!!!!!!!!!!!! BENIGN!!!!!!!!!!!!!!! BENIGN!!!!!NO MALIGNANCY!!!!!!! Can't repeat it enough! love those words!

    So relieved but how many more times during my life (our lives) will I (we) have to go through this fear. But for now I can breath again. Yippeeeee, happy dancing all around!

  • oranje_mama
    oranje_mama Member Posts: 260
    edited December 2014

    Yay Lisa!!!Happy

    Happy anniversary, Holli!  loved seeing all your pics.  We almost share an anniversary - we will have been married 14 years as of Dec. 29th - we got married in Texas too!

    My doc wants me to try melatonin first . . . we'll see if it makes a difference.  She also said to count backward in increments of 7.  Sounds complicated!!!  Kim, glad to hear that melatonin may be a tumor blocker :).

  • missy6758703
    missy6758703 Member Posts: 218
    edited December 2014

    HIGH FIVE LISA!!!!!!!!!!

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited December 2014

    thanks sista's! Getting back to my old self...good or bad I don't know but feeling more normal since getting the good news! I literally feel lighter!

    Kim, how much melatonin did your integrative doc say to take? Mine said 6-10mg but then mo said she's not sure if it does anything and on dr oz few wks ago he said take the smallest amt (3mg) and take 90 min before bedtime as it takes that long to "work". Dr oz says some wrong things though and he was not talking at all about cancer related to melatonin. Melatonin is supposed to help to fall asleep but not stay asleep

    The counting backwards I think is to distract your mind from other thoughts but that would stress me out I think. It's like counting sheep. My trouble is also staying asleep but for me it may be when the 1/2 dose of ambien wears off in 4 hrs then BAM awake and hot flashing! Theres an insomnia thread, "a place to talk in the wee hours" on this board. They are a riot there, don't know what they are saying but seems like they have a good time. Check them out for some laughs or if you need some midnight reading. I read it occasionally but don't post.

  • RobinLK
    RobinLK Member Posts: 840
    edited December 2014

    Amen Lisa! I let out a huge exhale when I saw your post! I also smiled from ear to ear! What a relief!!

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited December 2014

    I have had a very rough few days. We started my husband in the hospice program about 10 days ago due to his decline. He had a severe episode of aspiration pneumonia this Monday and the hospice nurse thought it would only be 24-48 hours until he died. Well like Lazerus he recovered. Not back to his baseline, still needing oxygen and not able to eat except a few bites of puréed foods. Today he actually was able to speak a little again. Still weak and falling a lot. Every day the nursing home calls about finding him on the floor. My son and his fiancée even flew in from California on the Redeye flight Monday night expecting to stay a week for a funeral. Now they are flying back on the 26th. Selfishly I am delighted to have them home for Christmas.

    Lisa wonder news about the biopsy but we all knew it was going to be OK.

    Holli. Happy anniversary, the card is great. We have been married for 34 years.

    Jody your girls are adorable all dressed up.

    I was tapering my Ativan down from 1 mg at night, 1/4 pill every 2-3 weeks. I was going to go down to only 1/4 a pill but with all the stress of the week I stayed at 1/2. I started 3 mg of melatonin before tapering the Ativan. I still wake up around 3 AM but am able to fall back to sleep quickly. I never had a sleeping problem before the BC but there has just been so many bad things happenings this year I just need the Ativan crutch a bit longer.

  • kimie06
    kimie06 Member Posts: 215
    edited December 2014

    Hellooooo gals

    whew... just tried to catch up some !!

    I have been meaning everyday to get on here and check in, working two jobs things have gotten a little cray cray around here !!

    Hopefully over the next couple weeks I will catch up on some pajama time !! I feel like I run constantly as I am sure alot of you do too.

    I am taking a prescience course after christmas with the hopes of eventually getting into nursing, has always been a passion and finally told myself to shit or get off the pot, so Here I go one step at a time :) I am excited about it

    I have my mammo coming up in January, praying for good results, I do the exams often but I have to admit I am terrified every time I do it. Anyone else feel that way?

    I have started back to the gym and am working with trainers on meal plan and workouts, so far so good. I feel really great most of the time but do find I still tire easily, 7am start to the day and by 10 I am more then ready for bed, ??

    LISA !!!! love the post, great news.

    love to all I need to hit the hay

    xo


  • DJJ
    DJJ Member Posts: 229
    edited December 2014

    BENIGN!!!!! BENIGN!!!!! YAY! Lisa!!! The best word EVER!

    Robin, I'm going to go with overly cautious. I saw my MO Monday. She didn't like that my BS is recommending MRI on the alternating 6 months from the mammo. She said that it leads to a lot of false positives and unneeded biopsies. Hmmmm, that confuses me.

    Happy Anniversary Holli!

    I am still taking Ambien to sleep. My feet still burn at night on occasion and my hands get hot every night, making it difficult to sleep. MO upset me because she is never optimistic when it comes to my neuropathy going away. I really don't need Ambien every night because some nights the hand heat is mild and my feet are fine. I just never know which night, Now that I've been taking Ambien for a year I can't sleep without it. I've been researching how to get off of it. Basically its like ripping a band aid off and being miserable for a week until your body learns to fall asleep on its own again. Then I'd like to take it for only burning hands and feet nights. I may try to transition to Melatonin.

    I had a good cry last night. I hadn't cried in a while. My feet were burning and I was pissed because chemo F'd up my body and then equally pissed because I felt guilty because I should be grateful to be alive and not whining about my hands and feet and tender radiated boob (which MO says could be tender for up to two years). Then I got a text message from my boss saying a women that I worked with (but didn't know well) who transferred to Denmark 4 months ago wanted me to call her. My first thought "oh no, she has breast cancer". Yup, she was diagnosed yesterday. I talked to her for an hour. She doesn't even have her pathology back. I HATE THIS DISEASE!!!! So I had a good cry and poured a glass of wine.

    Today I feel better and am going to get a good workout in and go to a Christmas party with friends and my rock hard chest guy and not even think about this messed up disease!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited December 2014

    Wow, everyone has a lot going on.

    So happy for you Lisa!!! whoo-hoo!!!

    Barbara, prayers coming your way for you and your family. What a tough thing to go through at any time, but at Christmas, it just seems worse. You aren't being selfish, just human. Nice that they will be with you.

    yeah, Kimie, every time I see a Dr or get a test done, I am nervous. My DD is an RN. She loves it! You go girl!

    DJJ, I hope your SE's settle down for you soon!

    Have an awesome week-end, ladies!


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